Having read Karen's heartbreaking post and been offered sensors on our last clinic visit we thought we'd take up the offer. We have it writing to say the PCT had funding for 9 months of sensors. We didn't take up the offer on that first visit as he wanted to do the research about them and make sure it would be something of benefit.
My son does a lot of sport and his insulin sensitivity's shifting around like a sandstorm, and we've been alerted that you can go very low after strenuous exercise - not necessarily the night after that exercise. He also feels he really needs to re-adjust his basal (he's dropped from needing approx 70 units per day to around 40- he weighs 69kgs)..so sensors seemed a fab way to go. Patti's chatted to my boy - we're not being lazy here - he's really put in the work the last nearly four years to give himself the best outcome. Like others on the board he's tested 10,12, plus times a day to get proper gc, set up appropriate basal rates etc. Not easy in the teen years with all those other hormones surging it.
Turns out he can have the sensors...just not the two grand bit of kit that makes them work... that we would have to fund ourselves.
I truly appreciate how hard pressed the NHS is ( & I throughly count my blessings to live in a country with an NHS), but why on earth offer a child sensors and then snatch it away at the last moment. Thoughtless.