Author Topic: Blog by Mum of Type 1 Diabetic  (Read 2738 times)

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Offline JillT

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Blog by Mum of Type 1 Diabetic
« on: 03 April 2014, 03:53:31 AM »
I really like this mum's take charge attitude. I hope the link may be of interest to other mums.

http://diabeticalien.blogspot.com.au/

I'm Not Dead Yet
66yo Female, Western Australia
T2 DX'd 7/3/12 - GTT: Fasting 6.4 - 1 hr 14.2 - 2 hrs 12.9
BMI 7/3/12 = 30.4 –> 24.3 (20.18% weight loss)
HbA1c - 12/3/12: 6.2% - 25/1/16: 5.2% - 33
Idiopathic Interstitial Lung Disease/Pulmonary Fibrosis - DX'd Oct 09
No medications
Eating to my meter & Eating real food – Low carb/no grains works for me

Offline Pattidevans

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Re: Blog by Mum of Type 1 Diabetic
« Reply #1 on: 03 April 2014, 09:21:52 AM »
She certainly posts some nice low carb recipes!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: Blog by Mum of Type 1 Diabetic
« Reply #2 on: 03 April 2014, 12:08:36 PM »
I think her rant - in red - about bread should be made a sticky LOL

I didn't know that about the intestine walls and triggering the auto-immune response - interesting !
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Cora

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Re: Blog by Mum of Type 1 Diabetic
« Reply #3 on: 04 April 2014, 01:18:42 AM »
I admire her passion and her willingness to take good care of her child. But I think she's reaching in some aspects. The gluten/diabetes connection is tenuous at best, psuedo science and an agenda at worst. As for the intestines also playing a role in T1....well, sort of. The gastric system plays an important role in your immune system, but actually being held accountable for T1? Also debateable. There are between 18 and 23 genes involved in the development of T1, and then you have to hit just the right "trigger virus" which is different for most people. It is simply too complex an issue to demonize a certain food or food group. And talking about diabetics being "carb intolerant", is confusing things somewhat with type 2. If a T1 doesn't eat any carbs at all, they still need insulin and will still have diabetes.

Yes, I agree that pushing whole grains is a useless exercise, but you have to be careful of demonizing foods or substances with kids. What's the first thing they're going to do when your back is turned? You guessed it! Dive right in. My own personal opinion is that kids should lead a balanced life. Some carb, some protein, some fat, some veg/fruit. A chocolate bar every once in a while? Go for it. She implies that it will kill her kid, which is simply not the case. It will make the child feel more normal and in control and fitting in with peers. Learning to carb count properly and then dose correctly is an important aspect of living long term with T1 - not depriving yourself of food. IMHO.
Diagnosed type 1 1966
Dialysis 2001
Kidney transpant 2002
Pancreas transplant 2008

Offline Liam

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Re: Blog by Mum of Type 1 Diabetic
« Reply #4 on: 04 April 2014, 11:50:59 AM »
Very validate points Cora. I never really looked at the why only that it was a good source of lower carb recipes. It is too extreme I would say.
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline sedge

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Re: Blog by Mum of Type 1 Diabetic
« Reply #5 on: 04 April 2014, 05:25:36 PM »
Yes Cora - and I take your point about it not being THAT simple - nothing is.  And I also agree we should all try and eat a BALANCED diet and would say that the vast majority of humankind eat more of everything than they actually need, let alone what's good for 'em.

But some HCPs here do nothing but push whole grain and brown everything at T2s ad nauseam.  Eat anything you like as long as it's brown.  And we all know that doesn't work.

We ARE carb intolerant - there are no two ways about it!  But true, nobody can tell how intolerant they are to begin with, that only comes with test, test, test and experience.

OK as a T1 on insulin with nil resistance in theory I should be able to dose for all fast acting carb at my standard fast acting insulin formula of 1u per 10g - but I know if I ate 100g+ at one sitting, and just shoved in the appropriate units of insulin on that formula - it wouldn't work as well as eating 60g and injecting 6u - as you go up and up with the dose over c.7u, it becomes less effective.  And it isn't linear in its lack of effectiveness, it's random.

And that's without adding any fats or any slow release carb to the equation ......
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline nytquill17

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Re: Blog by Mum of Type 1 Diabetic
« Reply #6 on: 04 April 2014, 05:59:14 PM »
I totally agree with you Cora on the deprivation thing. In my own personal experience, my parents didn't go out of their way to deprive me of certain foods necessarily, but they were very nervous about allowing me any leeway even when my dietician explained to them that they could sometimes replace a given amount of starches in my meal plan with sweets. So I did end up sneaking around quite a bit to get sweets in other ways and when I got out on my own I had basically NO self-control! Of course in the end all of that is my responsibility and not theirs, but I think a big factor in my having such a hard time with self-control as an adult is that feeling of "HA! No one is here to tell me not to eat this now! Take THAT!"

But that said I think my parents were more relaxed about it than some. When I was in a school soccer tournament I met a little boy my age who was also diabetic, and his mother mentioned to me that sometimes, if he had really good BGs, she *might* let him have a "sliver" of lemon tart. If she was being truthful, I felt so bad for him! My parents did at least let me have sweets at church suppers and the like.

I often use the idea of "carb intolerant" myself, but it depends how it's done. I never thought of it as sayiing that "I only need insulin in order to cover carbs/all I have to do is avoid carbs and it's like I'm not diabetic." If it's presented in such a way that that's what people are made to think, then I agree it's misleading. But I think of it more as saying, "It's kind of like a food allergy, but not really. There are foods my body can't tolerate the way other people do, so I do have to avoid having too much, but it's not going to kill me if I eat them sometimes. I just have to be prepared to deal with the consequences!" And put like that it sounds a lot like an intolerance. I usually say that so people don't feel bad about offering me a cookie when they didn't realize I was diabetic, or when people are confused that I always order diet sodas but sometimes get dessert!
T1 DX 1995
Levemir + Novorapid
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline Cora

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Re: Blog by Mum of Type 1 Diabetic
« Reply #7 on: 04 April 2014, 09:48:46 PM »
Yup, I see where you are both coming from. Nytquill, I am from the time when food was both punishment (you can't eat that!) and reward (you're tests were good, let's get....). That said, my folks were great and I had a world class pediatric endo. Even in the 60s she taught us to take a bit more insulin for a kids birthday party or something like that. So I was never really deprived. But given some weird behaviors towards foods I'm lucky I didn't end up with an eating disorder (especially in the days before it was recognized).

As a T1, I kind of see the "carb intolerant" point, but still don't agree entirely. I could eat no carbs at all, and still need to bolus at least some for protein - as it will be converted to glucose. But I do agree that carb counting isn't anywhere near as simple as an I:C ratio. Especially larger boluses can sometimes "lose" as much as 40% of the dose through malabsorption. I was lucky to be very insulin sensitive and on my absolute biggest binge day would never take more than 5 units at a time. And don't get me started on how not all carbs are created equal!

Thanks for letting me rant a little.
Diagnosed type 1 1966
Dialysis 2001
Kidney transpant 2002
Pancreas transplant 2008

Offline sedge

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Re: Blog by Mum of Type 1 Diabetic
« Reply #8 on: 04 April 2014, 10:08:52 PM »
I've never got to grips with having to bolus for protein, I know that it can happen Cora but why does it happen to some and not others?
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Cora

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Re: Blog by Mum of Type 1 Diabetic
« Reply #9 on: 04 April 2014, 10:18:55 PM »
Jenny, I think for some folks (not all) they are actually eating some "plain" carbs and not really realizing it. Beans and legumes are carb. Tomatoes and dairy have carb too. So it is only really rare folks who are able to eat pure protein/fat and non-starchy veg.  I had a friend who would only eat some steak and a green leafy salad for evening meal - nothing else. And basically hadn't eaten much during the day. So in this case, the protein was converted to glucose and she had to bolus (although not much). Obviously it varies on a case by case basis. I suspect it also has to do with your glycogen stores and what else y ou've eaten during the day.
Diagnosed type 1 1966
Dialysis 2001
Kidney transpant 2002
Pancreas transplant 2008

Offline sedge

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Re: Blog by Mum of Type 1 Diabetic
« Reply #10 on: 04 April 2014, 11:13:21 PM »
Well I always thought your body wouldn't bother trying to convert protein and fat to glucose, as long as you kept eating carbs even if it was not many carbs - unless the body was actually starving despite whatever you ate.  Which is exactly why of course, you lose so much weight in such a short time pre-diagnosis of T1, with your body 'eating itself'.  But then I read things about folk who say they eat 'normal' carby food  (as opposed to what's in salad etc) - yet if they ate a ham or cheese omelette for a lunch in the middle of that diet - they would need to bolus.

I understand how and why that would happen for your friend, but I don't understand my example.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: Blog by Mum of Type 1 Diabetic
« Reply #11 on: 04 April 2014, 11:16:24 PM »
I still find it "confusing" from time to time, even though I think I have a fairly good handle on my own ability to cope with food.  At the weekends I normally have a "mainly protein" breakfast, with the addition of 1 slice of Burgen soya and linseed bread which is 12g carb.  But I bolus for 20g carb, otherwise I shoot up ridiculously just on egg and bacon.  Obviously the lack of other carbs means I process the protein into glucose.

I don't think we should totally deprive ourselves, I just think we should be careful, not stuff ourselves with sugar and carbs.  I try to stay under 120g per day, more often under 100g or I know I will suffer.

As to children, for god's sake isn't it better to let the child have a little stuff that makes him/her feel normal?  I didn't read much more than the recipes the mum posted.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline JillT

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Re: Blog by Mum of Type 1 Diabetic
« Reply #12 on: 05 April 2014, 12:18:42 AM »
I've only read bits and pieces of the blog myself and sorry to have stirred up controversy by posting it here.

In Australia we definitely have carbs, carbs, carbs pushed on us left, right and centre - both types from what I hear. Judging by the lush recipes, I don't think she's depriving her child of anything and when they're young, I imagine it's a lot easier to control than when they become teenagers. A lot will depend on the child and on how the ideas are presented to them and surely she knows her own child better than any of us?

Isn't there a strong correlation between Type 1 and coeliac? Is he really missing out by limiting that cr@p in his diet? I'd rather see a mother who is proactive and advocating strongly for her child and their health than someone who just accepts the script that a dietitian reads out to her. At least she's hopefully setting him up for a normal weight as he grows up and he's less likely to get into the whole diabulimia thing that seems to be scarily frequent among Type 1 teenagers?


I'm Not Dead Yet
66yo Female, Western Australia
T2 DX'd 7/3/12 - GTT: Fasting 6.4 - 1 hr 14.2 - 2 hrs 12.9
BMI 7/3/12 = 30.4 –> 24.3 (20.18% weight loss)
HbA1c - 12/3/12: 6.2% - 25/1/16: 5.2% - 33
Idiopathic Interstitial Lung Disease/Pulmonary Fibrosis - DX'd Oct 09
No medications
Eating to my meter & Eating real food – Low carb/no grains works for me

Offline Pattidevans

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Re: Blog by Mum of Type 1 Diabetic
« Reply #13 on: 05 April 2014, 12:25:01 AM »
I'm happy to see controversial posts Jill.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline JillT

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Re: Blog by Mum of Type 1 Diabetic
« Reply #14 on: 05 April 2014, 12:27:39 AM »
I'm happy to see controversial posts Jill.
Thanks Patti - I'm never 100% sure - so many different forums and so many different reactions to stuff  :eek:
I'm Not Dead Yet
66yo Female, Western Australia
T2 DX'd 7/3/12 - GTT: Fasting 6.4 - 1 hr 14.2 - 2 hrs 12.9
BMI 7/3/12 = 30.4 –> 24.3 (20.18% weight loss)
HbA1c - 12/3/12: 6.2% - 25/1/16: 5.2% - 33
Idiopathic Interstitial Lung Disease/Pulmonary Fibrosis - DX'd Oct 09
No medications
Eating to my meter & Eating real food – Low carb/no grains works for me