Author Topic: Hypo  (Read 2066 times)

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Offline NicWalker

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Hypo
« on: 27 May 2014, 02:46:51 PM »
My daugther has been diagnosed with type 1 for 4 years, she is 8 years old and for the past year her BG levels have become very unstable, She has severe constipation but have been told by diabetic team that this has no relevance to her condition, she has also had 6 hypo's where after treatment of glucotabs she has gone even lower still, also been told medically impossible. My daughter often complains of feeling full during her meals, and a swollen stomach. anyone else had similar problems as would really appreaciate some info. Thanks

Offline sedge

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Re: Hypo
« Reply #1 on: 27 May 2014, 04:44:24 PM »
Ni Nic

That doesn't sound right at all.

Have you tried treating the hypo with anything else instead of glucotabs?  They aren't actually the easiest thing to chew, and especially when you are hypo.  When I'm properly hypo, I have severe difficulty chewing.  However - chewing is good, because the glucose starts to be absorbed through the inside of the cheeks direct into the bloodstream.

Does she like orangey drinks? cos my hypo treatment - and it works! - is Orange flavour Lucozade - it doesn't have the 'slightly strange' or rather 'unique' flavour of Original at all - it's just mega- orangey - and orange pop has always been my favourite since I was your daughter's age.  100ml of it is 15g carb.  100ml is a good drink and it's best if she isn't too hypo, if she swills it round a bit before swallowing.  Failing that there are some good fruity flavoured glucose gels about these days - can't give you names but people like the Tour de France cyclists use them for energy whilst on the road, some have screw caps.  Diabetics running marathons and that sort of sport, use them along the way - prevents them going hypo for starters and also provides extra glucose when their BG is OK.

So OK maybe the constipation isn't anything to do with the diabetes - it's not a usual scenario - but it's certainly caused by something - or lack of something, eg does she eat plenty of fruit and veg, and is she active, getting plenty of exercise, does she drink enough water and all the usual suspects?  And what does your GP suggest?

The only other thing I can possibly think of which is D related is gastroparesis, which could account for hypos and constipation at different times -  but as it's autonomic neuropathy that causes it for us (though non-D's cab get it too) it would be most unusual I think in a child of her age with D of only 4 years duration - and I wouldn't get jumping to any conclusions.

Finally you may have observed, we don't actually specialise in kiddies and there may well be something else a child might get, that I wouldn't know about. as I never had D as a child, have never personally known a diabetic child and I'm relatively ancient.  There is however a UK mailing list of Childrenwithdiabetes, and you might perhaps have more success having a trawl round that or asking your question there?

I hope you find your answers.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: Hypo
« Reply #2 on: 27 May 2014, 05:16:15 PM »
Hi Nic and welcome to the forum

Reading your message I was wondering if your daughter was having a growth spurt which can cause unstable BGs, but reading on about the full feeling and the constipation the only thing I could think of was gastroparesis.  As Sedge says though, it's unlikely after such a short time being diabetic.  It might equally be some other childhood ailment.

We certainly aren't trying to chase you away, but you well might find answers at http://www.childrenwithdiabetes.com  It's a US based site but they do have a UK forum here http://forums.childrenwithdiabetes.com/forumdisplay.php?34-UK

We have one or two mums on board here and hopefully they'll be along soon to respond to you.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline NicWalker

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Re: Hypo
« Reply #3 on: 27 May 2014, 06:16:27 PM »
Thank you for the information. she is a very active girl who loves her friut and veg, drinks plenty of fuilds. She is on up to five sachets of movicol a day to help with bowel movements as without it she could go 3-4 days without going. We have asked for her to be tested for gastroparesis, we feel that she isnt absorbing her carbs properly because of her bowel been full. regarding the hypos weve never had an issuse with them as we treat her with orange lucozade but school treat her with 3 gluco tablets and we feel that the gluco tablets are not getting in her system quickly enough like the lucozade. thank you for the links i will also have a look at them.

Offline Liam

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Re: Hypo
« Reply #4 on: 27 May 2014, 06:22:06 PM »
Is there a reason she can't have a liquid at school? If it is a dose thing you can get glucose shots (pretty expensive) but are the 'right' amount.
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline Dollyrocker

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Re: Hypo
« Reply #5 on: 27 May 2014, 08:29:30 PM »
Has she been checked for coeliac disease? That can be common with diabetics and may cause tummy issues. Also it might be worth checking her dosages, if she's having a growth spurt her basal might need tweaking


7/2014 7.2 (55) / 4/2015 7.3 (56) 1/2016 7.0 (53)
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Offline sedge

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Re: Hypo
« Reply #6 on: 27 May 2014, 09:51:27 PM »
Well as you must have agreed to her Care Plan at school, then the time has come for you to change it!  They'll have to do all these things more formally now with the new laws, it's a good opportunity!

Does she do her own testing, I wonder if they only test at certain times and they are the wrong times?
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline himtoo

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Re: Hypo
« Reply #7 on: 27 May 2014, 10:16:58 PM »
this may be irrelevant but i have episodes of a hypo that do not go away after say 20 gram of fast acting carbohydrate.
they can last throughout the course of an evening where i cannot get my blood sugar above 4.0 for a period of over an hour.
admittedly i wont just overdose but eat in measured 10gr and 20gr doses but this is not unheard of for blood sugar not to rise all the time with glucose immediately.
the testing is the most important way to determine what is happening - completely agree with sedge on that.
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
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laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline NicWalker

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Re: Hypo
« Reply #8 on: 28 May 2014, 08:05:12 AM »
thanks for all your replys we have tried her on the gluco shots and she  doesnt really like them and i want her to be happy with the treatment imm giving her so at the moment they are out of the question. the diabetic nurse that goes to school has told them to use glucos tablets so they wont change unless she tells them so and because 90% of the time the glucos tablets work she has told them to keep to them. she has been tested for coeliac disease as my dad has got it and tests come back clear so thats ruled out. she does check for own bloods at set times during the day unless she feels low she asks for her bloods to be done, she checks for bloods breakfast, 10am, dinner time, 2pm, half 3, tea time, supper times and then we test her at 10pm before we go to bed so we know how she is going to be throughout the night. its just very fustrating with not knowing how to stop them dropping even more

Offline Pattidevans

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Re: Hypo
« Reply #9 on: 28 May 2014, 09:01:27 AM »
As a matter of interest what insulins is she on Nic?  It's a long shot, but some people can have strange reactions to Lantus.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline NicWalker

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Re: Hypo
« Reply #10 on: 28 May 2014, 05:06:44 PM »
She has Novarapid and Lantus, but looking back now she was on Levemir from been diagnosed up until february 2013 when they changed her to lantus to try and stop the peaks.

Offline NicWalker

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Re: Hypo
« Reply #11 on: 28 May 2014, 05:43:46 PM »
can you tell me how you find out what kind of strange reactions some people get please.  Thank you x

Offline Pattidevans

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Re: Hypo
« Reply #12 on: 28 May 2014, 08:19:09 PM »
Sorry Nic, meant to answer your post earlier but got distracted away from the computer.  You could google "Lantus side effects" or something similar.  It's just that I've heard a number of people on different forums saying that they couldn't get on with Lantus for quite serious reasons, not just the fact that it stings, but it puts their whole system out.

Does your daughter have it injected once a day and if so when?  Has it helped with the peaks at all? 

OK I googled it - see this thread here on another forum http://www.diabetes.co.uk/forum/threads/lantus-allergy.2775/
Janabelle and Totsy both report strange "hypo days" and Totsy reports constipation.  I'm none too keen on linking to that place as the tone cam be very argumentative, but the thread does illustrate problems with Lantus.  It can be very difficult to get the medical profession to believe you when you report such problems.

Most of us on here have found Levemir much more biddable and easier to live with.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline NicWalker

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Re: Hypo
« Reply #13 on: 28 May 2014, 09:09:22 PM »
thank you so much for your reply its really helpful. she has one injection of it and its at 7pm never been allowed to do it at any other time so i dont know if this would help or not. reading the posts though have been helpful to think it could be something as simple as the lantus. thank you

Offline sedge

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Re: Hypo
« Reply #14 on: 28 May 2014, 09:17:56 PM »
What do you mean Nic 'never allowed' - are her doctor and DSN resident at your house holding a gun to your heads?  or the police?  Who ?

Who treats your daughter's diabetes?

YOU DO.

Just the same as I treat mine.  It's MINE.

And my DSN is married to a T1 diabetic (been married 30+ or so years) and says she NEVER gives him advice on treating HIS diabetes. 'Don't be ridiculous - wouldn't dare!' she said when asked by my husband.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4