Author Topic: Pregnancy and retinopathy  (Read 928 times)

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Offline KarinaC

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Pregnancy and retinopathy
« on: 09 October 2015, 04:55:58 PM »
Hi all I am currently 22 weeks pregnant (type 1 diabetic) an I have retinopathy. I have just had my 2nd lot of laser to disperse fluid in my eyes. I have been told that I may have to have a c section due to not being able to put added pressure on my eyes.
Has anyone any experience with this an what is the healing process like ?
Type 1 Diabetic
Novorapid & Lantus Insulin
Carbohydrate Counting
Diagnosed 5th Dec 1997

"Diabetes is like a rollercoaster. It has its ups and downs, but only you can decide to scream or enjoy the ride"

Offline Pattidevans

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Re: Pregnancy and retinopathy
« Reply #1 on: 11 October 2015, 12:25:44 PM »
Sorry Karina

Everyone seems to have missed this post.  I do know one lady who was a member whilst pregnant with twins.  She had the laser treatment and hasn't looked back.  Another member Winni had problems with her eyes during pregnancy, but I think it was glaucoma.  I think she had a C section.  Have a look at her older posts here http://diabetes-support.org.uk/diabetes_forum/index.php?action=profile;area=showposts;u=36
Often when mums have given birth and they have new babies to look after they don't have time to come on the forum and they drift away.

I do wish you all the best of luck and please let us know how you get on!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline gemsa

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Re: Pregnancy and retinopathy
« Reply #2 on: 21 October 2015, 08:58:29 PM »
Hi Karina. I can't comment on the retinopathy, but can do the c section and healing if that helps? I found it didn't take the full 6 weeks to heal, but I started doing too much to soon and delayed the healing longer than it needed to be. Days 1-7 are, well I'm glad I can't remember them much! Pain killers offered in hospital worked fab, paracetamol and ibuprofen at home didn't always hit the mark. But you have so many new baby hormones rushing around to not care. Days 7-21 felt a lot better but this was the time I started to do more. If you have friends/family that can help with the washing etc then please don't be precious - accept their help with open arms.  Days 21-27 I felt strained having done too much. Days 27-35 I felt so close to almost being ready to drive again and so loopy at the prospect of being housebound. Days 35-42 I felt ready to drive and and get back to 'normal life' but I didn't want to push myself again so waited till the 6th week.

Biggest tip beyond accepting any help offered is making sure your cot/crib is a Co-sleeping one - being able to reach sideways and scoop little one out what feels like a hundred times a night is much less painful on the scar than sitting yourself up and then leaning over what feels like a hundred times a night!
T1 diagnosed 1985, DAFNE Oct 2012 (HBA 9.2%), started pumping April 2013.
HBAs: Feb 2013 8.6%, Jan 2014 7.4%, June 2014 5.9%, Jan 2015 7.5%
Healthy baby delivered Nov 2014 predicted 97th+centile but actually 50th centile.

Offline feejee

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Re: Pregnancy and retinopathy
« Reply #3 on: 22 October 2015, 07:15:19 PM »
I also can't comment on the retinopathy but can on c-section. I think if it's a planned c section rather than emergency you can prepare beforehand a bit better too.  At my hospital they had me up and walking after 12 hours (overnight) which was hard but I do believe it was the best thing for me.  Had to have an arm to lean on though.  I was able to walk up and down my steep stairs at home within 2 days.  It wasn't comfortable, but it was doable.  I was only allowed ibuprofen at the hospital just kept on taking them as much as allowed to keep the pain down.  Just a tip (use one of the mega maternity pads stuck in the front your pants to stop the stitches rubbing). Once my stitches were taken out on. Day 5 I felt loads more comfortable and stood up properly instead of bending forwards.  Didn't do too much for first 3 weeks but after that was much more able to go for a walk etc.  by week 6 absolutely fine and out and about in the car.

My changing table was a godsend as no kneeling down to change nappies. 
Type 2. Diagnosed Feb 2012.  On metformin 2 * 1000mg. Invokana (Canagliflozin) 100mg
hbA1c on diagnosis: 128 mmol/mol or 13.8%
6/12: 60 mmol/mol or 7.8%, 
10/12: 6.6%, 03/12: 6.5% Cholesterol: 4.16 (HDL:0.88, LDL: 2.6, 3G's: 1.56)
10/14: 5.6%
02/16: 7.5%
02/16
6/13: 6.6%
4/14@:5.7%

Offline Pattidevans

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Re: Pregnancy and retinopathy
« Reply #4 on: 22 October 2015, 07:39:53 PM »
Unfortunately Karina hasn't been in since 9 Oct.  I will try to alert her to new responses.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline KarinaC

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Re: Pregnancy and retinopathy
« Reply #5 on: 22 October 2015, 09:49:15 PM »
Thanks for the info. Anything helps. I've seen those cots that sit beside the bed so must look into getting one :)
Type 1 Diabetic
Novorapid & Lantus Insulin
Carbohydrate Counting
Diagnosed 5th Dec 1997

"Diabetes is like a rollercoaster. It has its ups and downs, but only you can decide to scream or enjoy the ride"

Offline Liam

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Re: Pregnancy and retinopathy
« Reply #6 on: 23 October 2015, 12:24:11 PM »
Glad to see you got to read the replies Karina. It is the nature of this section that the ladies tend to be very busy (with little ones) so it can be a bit slower to get answers. The rest of us can reply but it isn't as good as the first hand experience of the mothers.   
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline Pattidevans

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Re: Pregnancy and retinopathy
« Reply #7 on: 23 October 2015, 12:55:45 PM »
It would be worth you going into your profile and turning on notifications Karina.  That way you will get an email alert when someone adds to your thread  :)
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans