Author Topic: Escape the diet trap by Dr. John Briffa  (Read 2553 times)

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Offline Paulines7

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Re: Escape the diet trap by Dr. John Briffa
« Reply #15 on: 03 February 2016, 01:01:25 AM »
If you grow tired and drop off to sleep during the day, is there any possibility that you might have sleep apnea?  Sometimes people have sleep apnea and are not even aware of it.  I know I was not aware but after a sleep study and I was diagnosed - I feel much better after using a cpap machine.

I suppose there is always that possibility.  I think a lot of my problems are caused by having a dry mouth and not being able to breathe properly through my nose.  I wake up every 40 - 60 minutes and have to have a drink as my mouth feels as though it is about to fragment.  I often go to the loo too at this time but not because I am desperate, but because I feel better with an empty bladder.   

I have an appointment with my GP on Friday to discuss these issues and other concerns that I have regarding my tiredness, statins and my diabetes.
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline Pattidevans

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Re: Escape the diet trap by Dr. John Briffa
« Reply #16 on: 03 February 2016, 09:11:38 AM »
Pauline


Has the Dr warned you that two of the main side effects of Oxybutynin are dry mouth and drowsiness?  I did not receive a patient leaflet with mine, but the Dr warned me of these very side effects when she prescribed it for me, it's why she only gave me 2 weeks prescription to see how I get on with it.  So far I have suffered only a very mildly dry mouth, usually after lunch and a cup of tea seems to sort it out (I never drink milk in tea, so it is more thirst quenching and usually drink Lady Grey or herbal tea).




Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Paulines7

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Re: Escape the diet trap by Dr. John Briffa
« Reply #17 on: 03 February 2016, 11:19:33 AM »
Patti, the GP didn't warn me about side effects of Oxybutynin, though I have read about them on the leaflet that came with them.  Thinking back, my dry mouth began about the time I started taking them.  However, it's only when I am sleeping that I suffer with it and although Oxybutynin probably plays a part, not being able to breathe properly through my nose doesn't help.  I cannot blow my nose very well as it leads to a nose bleed, though I only get it from one nostril.  I am making notes of everything I need to discuss with the GP, just in case I forget to mention something during my consultation.   
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline Pattidevans

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  • It's ONLY Diabetes. It could be something worse!
Re: Escape the diet trap by Dr. John Briffa
« Reply #18 on: 03 February 2016, 12:40:51 PM »
Oh, good luck on your GP visit.  Let us know what she/he says.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: Escape the diet trap by Dr. John Briffa
« Reply #19 on: 03 February 2016, 02:46:05 PM »
My ma had that Pauline (bleeding from one nostril) and hers got to the stage after a while that it just used to pour suddenly with no prior warning so she was sent orf to ENT and had to have some veins up her snitch cauterised, which she hated having done and said was vile - BUT it did the trick.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Paulines7

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Re: Escape the diet trap by Dr. John Briffa
« Reply #20 on: 04 February 2016, 09:25:32 AM »
That sounds familiar, Sedge.  Mine comes on without warning, usually when I get up out of bed or when I stand up after dozing in a chair.  It comes on suddenly and I grab a tissue because it feels like my nose is running but then I see it is bright red blood.  It stops as quickly as it comes when I pinch the nostril.  The strange thing is that it never actually bleeds when I am in bed because I have never found blood on my pillows or sheets! 
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline GrammaBear

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Re: Escape the diet trap by Dr. John Briffa
« Reply #21 on: 04 February 2016, 01:12:38 PM »
Wishing you the best on your GP visit and hope you get some helpful answers to your queries.
Type 1
Tandem Tslim pump Oct 2015
Dexcom G4 CGM Sep 2007
A1C 6.5%~ Sep 2017

Offline sedge

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Re: Escape the diet trap by Dr. John Briffa
« Reply #22 on: 04 February 2016, 02:23:47 PM »
Urgghh  Pauline - took my mom ages to get hers sorted - she missed my cousin's wedding through it cos by that stage the 'pinching' didn't sort it.

But that was absolutely yonks ago and hopefully - like cataracts - things happen more quickly now.  And maybe with less  'orrible treatments!
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Paulines7

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Re: Escape the diet trap by Dr. John Briffa
« Reply #23 on: 05 February 2016, 12:59:38 AM »
Wishing you the best on your GP visit and hope you get some helpful answers to your queries.

Thank you GrammaBear.  The bit that I am most dreading tomorrow is telling my GP that I will not be going back on statins whatever my cholesterol readings are.  Then it will be a matter of going through my other concerns and hope that she can help me.

Sedge, sorting my bleeding nose is perhaps the least of my worries at the moment, unless she says it is connected with my dry mouth problems.
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline sedge

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Re: Escape the diet trap by Dr. John Briffa
« Reply #24 on: 05 February 2016, 12:31:18 PM »
Well exactly Pauline, I do know precisely that feeling.  {{{Hugs}}}
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline GrammaBear

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Re: Escape the diet trap by Dr. John Briffa
« Reply #25 on: 05 February 2016, 11:42:35 PM »
Wishing you the best on your GP visit and hope you get some helpful answers to your queries.

Thank you GrammaBear.  The bit that I am most dreading tomorrow is telling my GP that I will not be going back on statins whatever my cholesterol readings are.  Then it will be a matter of going through my other concerns and hope that she can help me.

Sedge, sorting my bleeding nose is perhaps the least of my worries at the moment, unless she says it is connected with my dry mouth problems.

Pauline - I really do understand your concern about telling your GP how you feel about taking statin drugs.  I have debated for a long time whether or not I should see an Endocrinologist - mostly because people kept telling me that a mere GP can't handle a patient with diabetes and especially a patient with a pump.  So I finally bit the bullet so to speak and made an appointment with the new Endo in our town.

Appointment rolled around and my blood sugar climbed as did my blood pressure.  I was feeling terribly anxious but my husband went with me so to keep me company.  The first thing the Endo said when I asked him how to adjust my basal rates for exercise was :  "Give me your pump".....so I handed it to him.  He took one look at it, handed it back to me and said "I don't like your pump."  Then he proceeded to give me grief for not taking statin drugs.  I think he couldn't find anything else to complain about, so he chose to complain because I am allergic to statins.

I told him that I wanted a better quality of life and I felt I would not have that if I took statin drugs.  You are a intelligent lady and you know what you can take and what you cannot take.  Will be thinking of you and wishing for the best possible outcome.  Be strong.
Type 1
Tandem Tslim pump Oct 2015
Dexcom G4 CGM Sep 2007
A1C 6.5%~ Sep 2017

Offline Paulines7

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Re: Escape the diet trap by Dr. John Briffa
« Reply #26 on: 06 February 2016, 12:49:54 PM »
Right, where do I start?  I had a very helpful and interesting consultation with my GP yesterday and covered all my concerns. She had the copy of the T and F report regarding statins, which I left at the surgery for her two weeks ago, with a covering letter from me. She had read it all through.   (This report which Avocado kindly posted a link to, can be found at: http://diabetes-support.org.uk/diabetes_forum/index.php/topic,6479.0.html).

The T and F report suggested that CoQ10 and selenium supplements could help reverse heart failure but my GP said that, unfortunately, they are not available on prescription.   I will ask again when I go to the Heart Failure Clinic.

I had blood tests done a week before this consultation and she gave me the results.  My total cholesterol was 6 with an HDL of 1.11 and a non HDL of 4.9.  I didn't ask any more about the breakdown as I had already made my mind up that I was not going to take any more statins.  The T and F report had shown that statins could cause heart failure and other complications such as high blood sugar and raised levels of creatinine.  I have all three of these!  My GP did not argue and took the Atorvastatin off my repeat prescription along with the quinine tablets which I have also decided to give up.  In fact I stopped taking them a few weeks back.  I was pleased to be told that my creatinine levels had gone down some more and were now at the normal level of 92.

We then came onto the HbA1c result and my worry about "Dawn Phenomenon".  My latest reading was 53 so had crept up another three points.  My GP said how pleased she was that I had managed to control my diabetes without medication since diagnosis.  She spoke about Metformin but as I had experienced problems with my kidneys in the past, she did not want to put me on them unless absolutely necessary.  She suggested that I have another HbA1c blood test taken in May.   

We then spoke about my tiredness and dry mouth problems and she does not think it is the Oxybutinin, as I have been taking it for a while now.  She said that any side effects would have made themselves known at the beginning.  She prescribed Beconase nasal spray and will give me a ring in 2 weeks to see how things are going.  Once I can breathe through my nose, my dry mouth problem may not be so bad.  We will just have to wait and see how things go now.     

Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline sedge

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Re: Escape the diet trap by Dr. John Briffa
« Reply #27 on: 06 February 2016, 01:06:36 PM »
Pauline -  sounds like a good appointment - you were able to have quite a discussion by the sound of it.

I'm using a Beconase nasal spray at the mo, I have 'post nasal drip' and it often blocks my breathing, through nose AND mouth when it drops into my throat, esp when lying down.  I got into a bit of a panic over it, after being told I'll have to lie flat on my back for 20 mins to have each cataract done, and obv you cannot move your head!  Even slightly.  Ooer.

Does shift it though, but not sure the effect will last.  It's really to get rid of any inflammation in your passages - it is steroidal but I haven't noticed it has increased my BG.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: Escape the diet trap by Dr. John Briffa
« Reply #28 on: 06 February 2016, 02:45:05 PM »
Pauline

It must have been hugely satisfying for you to have been able to have an intelligent and adult conversation with your GP on the subject of statins, well done!  Sorry, if that sounds patronising, it's not meant to... it's just rare that patients are allowed to have that sort of conversation without the GP "knowing better".  You have a keeper there.

As regards CoQ10 being on prescription - well, Lamberts Co-Enzyme Q10 Capsules appear on the NHS Electronic Drug Tariff Part XVIIIA Products K-L
http://www.drugtariff.nhsbsa.nhs.uk/#/00299312-DD/DD00298895/Part%20XVIIIA%20Products%20K-L
so if they are there then surely they are prescribable?  FWIW Lamberts Selenium tablets appear on the same page.  It might be worth pointing this out to your GP, though if push comes to shove presumably you could fund them yourself?  Trouble is knowing the correct dosage, so many over the counter supplements are woefully below the optimum dose.  Certainly worth asking at the Heart Failure Clinic.
Quote
She prescribed Beconase nasal spray and will give me a ring in 2 weeks to see how things are going.  Once I can breathe through my nose, my dry mouth problem may not be so bad.  We will just have to wait and see how things go now. 
I've been using Beconase nasal spray since last October.  I can't say it's made any difference to my BGs but it is certainly effective for the problem I had, which was not a congested nose - quite the opposite, it was a constant drip - just like water - that never stopped.  I used so many tissues that I might have had shares in Kleenex and my nose had constant cold sores on it because of it being wet all the time and the non-stop wiping.  It was incredibly sore.  I still get a bit of runniness but usually only when I am out in a stiff cold wind, not constantly irrespective of temperature.  I hope it will work as well for your problem.   
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: Escape the diet trap by Dr. John Briffa
« Reply #29 on: 06 February 2016, 04:15:27 PM »
Yes - cardiac clinic.  I mean I take it that you'd like to give em a go anyway Pauline even if you had to pay for them, which seems logical to me - but there again you need (same as the rest of us) to know if there are any snags, bearing in mind your own partic health.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4