Author Topic: Anyone suffer from gastroparesis  (Read 1216 times)

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Offline static192

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Anyone suffer from gastroparesis
« on: 23 January 2016, 04:39:19 PM »
Hi wanted to find out anyone here suffer from gastroparesis or slow bowel movment as im suffering from these kind of problems and its driving me crazy i feel as theres no light at end of the tunnel i also find my sugars to be erratic sometimes also if i go low i find even if my sugar is low and i drink a sugary drink sugar doesnt go higher or goes high very slowly i want to find out how other people are coping and did your condition improve are you able to do stuff such as driving and everything as i know it can affect bloodsugars
T1 DX 2001 Novorapid Levemir
HbA1c 02/13 8.1% 07/13 7.3% 04/15 7.7%

Offline Pattidevans

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Re: Anyone suffer from gastroparesis
« Reply #1 on: 23 January 2016, 06:54:38 PM »
Hi static

Have you actually been diagnosed with gastroparesis?  Or have you at least spoken with your consultant about it?

I don't know what sugary drinks you refer to, but be warned that anything with sugar in it needs digesting before it gets into your system.  Therefore it's quicker to have something with glucose in it (rather than sugar) as this will start to be absorbed into your system directly from your mouth and does not need to be digested.

There was a gastroparesis society, but I understand the charity is being dissolved.    Sorry I can't be of more help.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: Anyone suffer from gastroparesis
« Reply #2 on: 23 January 2016, 08:02:41 PM »
One thing I know helps, because of course it is a stomach-emptying problem, is to split boluses, so you don't have it all in one go or all upfront since the insulin will get there quicker than the carbs, equals hypo.

Assuming you are T1, a pump can really help with this, because one can either drip the bolus in over an hour or several, or a multi-wave where you have some upfront and drip the rest in over a while.

What treatment are you on for D and the gastro?
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline static192

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Re: Anyone suffer from gastroparesis
« Reply #3 on: 24 January 2016, 12:44:40 PM »
I havent offiacly had gastroparesis confirmed by my doctors from symtoms im guessing i have it. I was having heartburn acid but thats gone now but i find it extremly diffcult to go toilet i feel as theres no bowel movement at all however i still can eat and i dont feel sick which i find wierd as its what you normally get with gastroparesis also i find it hard to urniate or have no urge to urinate also sugars have been funny feel as thow sometimes my insulin doesnt affect my sugar at all tried using constipation medication such as macroherm physillium husk doesnt help at all
T1 DX 2001 Novorapid Levemir
HbA1c 02/13 8.1% 07/13 7.3% 04/15 7.7%

Offline nytquill17

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Re: Anyone suffer from gastroparesis
« Reply #4 on: 24 January 2016, 02:33:06 PM »
I'm the first person to read up on symptoms of a thing and decide whether or not I have it, so I'm not saying that's necessarily a bad thing to do, but in this case I really think you should see a doctor about these symptoms you're having. It doesn't sound as though you have gastroparesis to me at all, but something is definitely going on. Gastroparesis does not cause problems you do have, such as problems with urination to my knowledge, and it doesn't cause insulin resistance like what you're describing. It usually does cause inability to eat for feeling full or nauseated, which are all symptoms you don't have. So - bearing in mind I'm not a doctor - to me, that doesn't seem like a good fit.

It could be nothing, or it could be serious, but better to risk seeing the doctor for what turns out to be nothing, than to risk NOT seeing the doctor for something that turns out to be serious! Please don't spend any more time trying to figure it out online and make an appointment instead!
T1 DX 1995
Levemir + Novorapid
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline Pattidevans

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Re: Anyone suffer from gastroparesis
« Reply #5 on: 24 January 2016, 02:45:13 PM »
Quote
I havent offiacly had gastroparesis confirmed by my doctors from symtoms im guessing i have it. I was having heartburn acid but thats gone now but i find it extremly diffcult to go toilet i feel as theres no bowel movement at all however i still can eat and i dont feel sick which i find wierd as its what you normally get with gastroparesis also i find it hard to urniate or have no urge to urinate also sugars have been funny feel as thow sometimes my insulin doesnt affect my sugar at all tried using constipation medication such as macroherm physillium husk doesnt help at all
That was why I asked if you had been officially diagnosed with it, because it's easy enough for us to blame everything on diabetes, when in fact other things can be going on in our bodies.  I can only echo Nytquill when she says get an appointment with your Dr asap to see what's really going on.  If it IS gastroparesis (and as Nytquill so rightly says, that doesn't normally affect urination) then you will get the best treatment for it.

You say that insulin doesn't affect your sugar... another member said that, but when she tested her basal as we suggested (see intsructions half way down this page http://www.diabetes-support.org.uk/info/?page_id=120) it appears that she was on insufficient Levemir and is now sorted.  I stress that basal testing is mega important because your basal needs do not stay the same all year round.  Every so often they need tweaking.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline static192

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Re: Anyone suffer from gastroparesis
« Reply #6 on: 24 January 2016, 10:13:58 PM »
I will be seing diabetic specialist on the 27 so in about 3 days i really appreciate everybody that replyed and thank you all i really appreciate it alot for you guys to reply to me as not many reply back or help on other places i asked same question please pray for me i hope this is somthing that will get better. And i hope all you guys health is good.
T1 DX 2001 Novorapid Levemir
HbA1c 02/13 8.1% 07/13 7.3% 04/15 7.7%

Offline Pattidevans

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Re: Anyone suffer from gastroparesis
« Reply #7 on: 24 January 2016, 10:48:58 PM »
Good luck with the appointment Static, don't forget to mention this problem to him will you?  ...and do let us know what he says please! 
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline static192

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Re: Anyone suffer from gastroparesis
« Reply #8 on: 25 January 2016, 02:51:41 PM »
I will make sure i let you guys know what happens thanks for all the help guys wish me luck and pray that i get better
T1 DX 2001 Novorapid Levemir
HbA1c 02/13 8.1% 07/13 7.3% 04/15 7.7%

Offline static192

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Re: Anyone suffer from gastroparesis
« Reply #9 on: 07 October 2016, 05:57:28 PM »
Hey just wanted to update you guys I had a ultra sound and sigmoidoscopy they said that everythings seems fine on both test when I spoke to gastrologeist they told me they think its maybe diabetes related Im still having same symptoms as before hard to manage sugar levels also food not digesting earlier today my sugar droped to 3.8 even though I had half a glass of lemonade and I ate a slice of toast sugar only went to 6.0 after 40 mins I dont understand even liquids are not brining my sugar up.
T1 DX 2001 Novorapid Levemir
HbA1c 02/13 8.1% 07/13 7.3% 04/15 7.7%

Offline JillT

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Re: Anyone suffer from gastroparesis
« Reply #10 on: 08 October 2016, 12:51:30 AM »
Dr Bernstein has written quite extensively on gastroparesis in his book and part of the chapter is posted on his website:
http://www.diabetes-book.com/controlling-gastroparesis/

He also has a couple of videos about it on his Youtube channel:
https://www.youtube.com/watch?v=MwKLwpYsJbw
https://www.youtube.com/watch?v=Q3qw7CEIP2o

A couple of tips I remember from his book are (1) chewing sugarless gum after eating as it helps produce more digestive enzymes and (2) some yoga moves that can help transit.

Also, there is a functional medicine doctor called Dr Datis Kharrazian who has some unusual exercises that he uses to help people reactivate their vagal nerve (covered in his book called "Why Isn't My Brain Working?"). These are:
(1) loud singing
(2) strong gargling with water several times a day (strong to the point of causing tears)
(3) using a tongue depressor to activate the gag reflex (governed by the vagus nerve) <-- (can't imagine trying this one myself!)

Hope you're able to get some relief  :-*

I'm Not Dead Yet
66yo Female, Western Australia
T2 DX'd 7/3/12 - GTT: Fasting 6.4 - 1 hr 14.2 - 2 hrs 12.9
BMI 7/3/12 = 30.4 –> 24.3 (20.18% weight loss)
HbA1c - 12/3/12: 6.2% - 25/1/16: 5.2% - 33
Idiopathic Interstitial Lung Disease/Pulmonary Fibrosis - DX'd Oct 09
No medications
Eating to my meter & Eating real food – Low carb/no grains works for me

Offline Pattidevans

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Re: Anyone suffer from gastroparesis
« Reply #11 on: 08 October 2016, 10:10:08 AM »
Hey just wanted to update you guys I had a ultra sound and sigmoidoscopy they said that everythings seems fine on both test when I spoke to gastrologeist they told me they think its maybe diabetes related Im still having same symptoms as before hard to manage sugar levels also food not digesting earlier today my sugar droped to 3.8 even though I had half a glass of lemonade and I ate a slice of toast sugar only went to 6.0 after 40 mins I dont understand even liquids are not brining my sugar up.


Have you asked the Dr specifically about gastroparesis?  I am unsure how they go about diagnosing it.


Are these lows you are having right after meals?  Or perhaps I should ask what the timing of them is in relation to meals.  To be honest if you want something to bring your sugars up fast then Lucozade would be far better as the pure glucose starts to enter your bloodstream whilst it is still in your mouth.  Toast is really the last thing I would use, Particularly if it was buttered.

Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline everydayupsanddowns

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Re: Anyone suffer from gastroparesis
« Reply #12 on: 10 October 2016, 11:05:09 AM »
I believe small particle diet is supposed to help some cases of Gastroparesis. As can grazing, I think? Fat seems best avoided as it tends to slow digestive transit. If they do confirm gastroparesis I half wonder whether an insulin pump would be a really useful tool. That way you can fade in an insulin dose over several hours with a dual/combo or square wave bolus. I wonder too whether some (occasional?) 24 hour monitoring - the cheapest most likely to be Freestyle Libre or possibly Dexcom G4 (if you stretch the sensors). They are not cheap, you are unlikely to be NHS funded, but if you can afford even occasionally then it might really help you watch what is going on as it happens.

A member on 'was pink' (the DUK forum) has had some success managing her gastroparesis with a pump. It's still not easy though, I'm afraid.
Mike

Type 1 since: 1991 Last HBA1c: 45 (6.3%)  Total Chol 5.0 (1.9HDL / 2.8LDL / Trigs 0.7)
Pumping NovoRapid in a MiniMed 640G
Blogging at: www.everydayupsanddowns.co.uk

Offline static192

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Re: Anyone suffer from gastroparesis
« Reply #13 on: 24 October 2016, 05:55:01 PM »
hi i havent had a doctor officially say its gastroparesis  say but from everything thats happening i carnt seem to think what else it could be doctors arent really helping unless something in my brains not signaling for my digestive system to stop working lol
T1 DX 2001 Novorapid Levemir
HbA1c 02/13 8.1% 07/13 7.3% 04/15 7.7%

Offline Pattidevans

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Re: Anyone suffer from gastroparesis
« Reply #14 on: 24 October 2016, 06:12:35 PM »
How are you feeling now?  Have you thought about asking for a pump as suggested by Mike?
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans