Author Topic: What a weekend!  (Read 1423 times)

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Offline Paulines7

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What a weekend!
« on: 21 February 2016, 10:43:13 AM »
I had to take my hubby John into hospital on Friday afternoon as he had blood clots again and hadn't passed water since 8am that morning.  This time he was in the Surgical Assessment Unit rather than A&E.  They fitted a three way catheter and flushed him out and I was able to collect him yesterday afternoon.  He is very sore and tired and has gone back to bed again this morning. 

The clots seem to have been dislodged and cleared out of the urethra for the time being, but this is an ongoing problem from when he had radiotherapy following his prostatectomy.  The blood vessels in the urethra are damaged and the consultant does not know if and how they can be repaired.  John had a CAT scan on 8th February, so I hope it's not too long before they call him in and decide on the next course of action. 

Poor John, he really going through it at the moment.   
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline Quantum Learning

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Re: What a weekend!
« Reply #1 on: 21 February 2016, 12:46:37 PM »
Sorry to hear this Pauline, best wishes to you both.
Type 2 dx Nov 2012 with fasting BG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
June 2017 51/6.8% Chol 6.1
Oct 2017 52/6.9% Chol
Metformin SR 2000mg, Doxazosin 1mg, Omeprazole 20mg, Fexofenadine 180mg Co-Codamol 30/500g when needed. Amitriptyline 20mg
Toujeo/NovoRapid, Allergic to Levemir.

Offline Liam

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Re: What a weekend!
« Reply #2 on: 21 February 2016, 03:52:31 PM »
Sounds horrid and isn't helped by the fact they don't seem to have a plan of action. Hope all goes well and they come up with something.
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline himtoo

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Re: What a weekend!
« Reply #3 on: 21 February 2016, 03:59:02 PM »
just sending a hug [hug] to you both !
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline Pattidevans

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Re: What a weekend!
« Reply #4 on: 21 February 2016, 04:53:09 PM »
Oh Pauline

What a blooming awful time for John.  Please tell him that Julian and I send wishes that things will improve for him very soon!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline nytquill17

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Re: What a weekend!
« Reply #5 on: 21 February 2016, 06:21:24 PM »
Oh that all sounds very painful and stressful. I hope they will take action soon to try and treat this, seems like no way to live!
T1 DX 1995
Levemir + Novorapid
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline sedge

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Re: What a weekend!
« Reply #6 on: 21 February 2016, 06:53:57 PM »
Oh Pauline - just {{{Hugs}}} to both of you.

I believe this has influenced both of our original thinking (if definitely has mine -- Pete hasn't made a final decision yet) about the advisability of entering the clinical trial - the Jury is currently still out and Pete has the blood taken for his next PSA later this week, and his next apt with the oncologist will be the middle of March ........ of course should it have risen - the question mark will still be there as to whether he goes for it 'now' or not ....
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Paulines7

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Re: What a weekend!
« Reply #7 on: 21 February 2016, 07:17:35 PM »
Thank you all for your best wishes for John's recovery and the hugs you have sent.  They are very much appreciated. 

Sounds horrid and isn't helped by the fact they don't seem to have a plan of action. Hope all goes well and they come up with something.
They probably do have a plan of action by now but just haven't told John yet.  The nurse at the Surgery Assessment Unit said that John's case was discussed at the weekly team meeting a few days ago.  This was only a day or so before his emergency on Friday.  His case file has been marked up for his Consultant to see, so hopefully they will call him in soon to discuss what can be done. 

Sedge, we are thinking of you both and hope that Pete's next PSA test has not risen.

I am pleased to say that John is feeling a lot better this evening and his plumbing is working better.
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline Venomous

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Re: What a weekend!
« Reply #8 on: 21 February 2016, 11:50:31 PM »
I am glad to hear John is feeling a little more chipper.
T2 and PCOS. Just had large serous adenofibroma removed with ovary and fallopian tube. Bp is now normal!

Novorapid, levemir, trulicity, metformin.

Offline Alan

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    • Type 2 Diabetes - A Personal Journey
Re: What a weekend!
« Reply #9 on: 22 February 2016, 12:31:49 AM »
Thank you all for your best wishes for John's recovery and the hugs you have sent.  They are very much appreciated. 

Sounds horrid and isn't helped by the fact they don't seem to have a plan of action. Hope all goes well and they come up with something.
They probably do have a plan of action by now but just haven't told John yet.  The nurse at the Surgery Assessment Unit said that John's case was discussed at the weekly team meeting a few days ago.  This was only a day or so before his emergency on Friday.  His case file has been marked up for his Consultant to see, so hopefully they will call him in soon to discuss what can be done. 

Sedge, we are thinking of you both and hope that Pete's next PSA test has not risen.

I am pleased to say that John is feeling a lot better this evening and his plumbing is working better.
Happy to see he is feeling better. Wish I could offer more than just sympathy.
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
There is nothing I could eat I like more than my eyes.
Type 2 Diabetes - A Personal Journey (latest: Small New York Baked Low Carb Cheesecake)
Born Under a Wandering Star (Latest:Dambulla, Sigiriya and Polonuwarra, Sri Lanka)

Offline Pattidevans

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Re: What a weekend!
« Reply #10 on: 22 February 2016, 09:06:38 AM »
Fingers crossed the improvement continues
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Paulines7

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Re: What a weekend!
« Reply #11 on: 22 February 2016, 12:35:27 PM »
John is now back to normal but the question as always is "for how long?"  It could happen again tomorrow, six months time or in a year or so.  If something can be done to prevent future episodes, John will not have to go through this painful experience again.  We are hoping we hear from the hospital soon.

Thanks again for more good wishes.
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline sedge

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Re: What a weekend!
« Reply #12 on: 22 February 2016, 11:42:37 PM »
Oh God, I know how painful the 3 ways catheters are, on top of the pain from a too-full bladder as Pete had exactly the same when his bladder exit or urethra was blocked but his was a dried blood clot, which he never passed until the following afternoon and they took the catheter out again - and it looked exactly like dead spiders do after you drown them!

These catheters are VERY wide folks - I guess I'd liken it to a girl having a drainpipe inserted where a speculum usually might be ..... but of course at the time, the inner walls of the urethra are likely to be pretty unlubricated, cos the chap hasn't passed water for quite a while by this stage........

NOT nice.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Paulines7

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Re: What a weekend!
« Reply #13 on: 23 February 2016, 01:01:39 AM »
It was all a bit of a fiasco.  We arrived at the Surgical Assessment Unit and a nurse took note of John's name and date of birth.  We were asked to take a seat in the waiting area.  No-one examined John and two hours later, the duty doctor arrived and I heard him question the nurse as he came in "John......... has arrived has he?". My thoughts were that maybe someone should have told him that he was there!  He knew John was coming in as our GP had been in touch with him. It could be that he had a more serious patient to deal with so we didn't query the wait.

The doctor fitted the catheter and irrigation bottles and made sure that everything was flowing before he left the ward.  I sat in the waiting area when John was having it fitted as there wasn't much room and I didn't want to stay and watch.  I came back in later and all was well, but one of the bottles was now only about one eighth full.  I decided to go to the shop to buy a few things and go back to the car to get John's overnight bag as he had been told he would have to stay in.  Whilst I was gone, the bottle ran out and John shouted several times for the nurse but no-one came.  The doctor had said that the water should flush through continuously to wash out the clots. 

When I returned, John was very worried that the water had run out.  I told the sister who said she knew and would see to it in a minute and that they were going to move John from the trolly into a proper bed. There were about 5 nurses in their station and they did not appear to be very busy, but they weren't in any hurry.  About 20 minutes later, they moved John into a proper bed but the catheter had now blocked.  The nurse had to use a Pyston Syringe on John at least 20 times to unblock all the clots that had formed again and John was in so much pain with it.  Had the nurse just switched over to the spare bottle when the other one ran out, this may not have happened! 

I have always admired nurses but these ones appeared to be very lazy.  Switching the bottle over would have taken seconds as it was full and ready to go.  Instead of that John had to go through an hour or so of torture as the nurse used the syringe.  We have talked about complaining but then John may find himself in that ward again very soon and they could take it out on him. 
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline Alan

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    • Type 2 Diabetes - A Personal Journey
Re: What a weekend!
« Reply #14 on: 23 February 2016, 03:47:21 AM »
We have talked about complaining but then John may find himself in that ward again very soon and they could take it out on him.
So sad to read all that. Totally unprofessional.

The other side of the decision as to whether to complain has the same problem: John may find himself in that ward again very soon. And they may be equally unprofessional.

If they know a formal complaint will be lodged if that happens, just like this one, that may lead to a more professional service. The squeaky wheel...

If you decide to complain I suggest the method I use. Complain via their official channels but send info copies to every possible other interested party: the doctor, the hospital administration CEO,  the head of nursing care, the NHS chief, whoever you can think of but always at the highest level.

The higher-ups may file it in the bin but the underlings can't be sure of that when they notice the carbon copy addresses.

But I know there is the risk you are concerned about. Tough decision.
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
There is nothing I could eat I like more than my eyes.
Type 2 Diabetes - A Personal Journey (latest: Small New York Baked Low Carb Cheesecake)
Born Under a Wandering Star (Latest:Dambulla, Sigiriya and Polonuwarra, Sri Lanka)