Author Topic: What a weekend!  (Read 1422 times)

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Offline sedge

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Re: What a weekend!
« Reply #15 on: 23 February 2016, 12:53:19 PM »
It is a dilemma indeed Pauline.

Why don't you ring PALS, have a chat, and take it from there?  Another day and the staff are likely to be entirely different people.  Better - or worse - or the same.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: What a weekend!
« Reply #16 on: 23 February 2016, 05:37:10 PM »
Hi Pauline
Quote
When I returned, John was very worried that the water had run out.  I told the sister who said she knew and would see to it in a minute and that they were going to move John from the trolly into a proper bed. There were about 5 nurses in their station and they did not appear to be very busy, but they weren't in any hurry.  About 20 minutes later, they moved John into a proper bed but the catheter had now blocked.  The nurse had to use a Pyston Syringe on John at least 20 times to unblock all the clots that had formed again and John was in so much pain with it.  Had the nurse just switched over to the spare bottle when the other one ran out, this may not have happened! 

OUCH!  Poor John!  I would seriously consider complaining, but I second Sedge's suggestion of going through PALS, after all, that's what they are there for.  Plus it makes the staff more accountable.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: What a weekend!
« Reply #17 on: 23 February 2016, 09:51:52 PM »
I thought an informal chat to begin with - what usually happens when/if ?  And THEN see if you want to proceed.

Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Paulines7

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Re: What a weekend!
« Reply #18 on: 24 February 2016, 10:29:26 AM »
.... Another day and the staff are likely to be entirely different people.  Better - or worse - or the same.

The staff that were on duty the following day couldn't have been more helpful, so it was really only the one in charge on Friday that we had problems with.  We can't remember her name and whether she was a sister or staff nurse.

John doesn't want to take it further but we will if we get problems with her again, at a future date. 

Thanks all for your helpful advice.  It is good to have friends on here that I can chat to and release my tensions.

Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline Liam

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Re: What a weekend!
« Reply #19 on: 24 February 2016, 10:52:53 AM »
Glad to hear that posting here lets you release some of the tensions over this type of thing. :)
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline sedge

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Re: What a weekend!
« Reply #20 on: 24 February 2016, 06:58:16 PM »
Pauline - do you and John belong to any local P cancer support group?  - just thinking - yeah we all do it whatever it is when we need to - ie come here for some sympathy and understanding - which we normally get. 

BUT where do John and Pete get it, other than directly from us?  Has he got good friends who he can share all this with and get it off his chest and who are NOT family and therefore have 'family baggage' ?  I mean for instance Pete is really good mates with his son-in-law the same as I am with his No 1 daughter.  However - they have a home, they have kids, they have jobs, they have their health ups and downs exactly as everyone does - AND they are 20/30 years younger - so it really isn't 'quite' the same, because they aren't 'from the same place' as us, had our upbringing or lifestyle ........

Tomorrow night we plan to attend a bi-monthly meeting of our local P cancer one - as it happens Pete's surgeon is speaking.  No idea what it's like, what the people are like, etc etc.  But it's just a collection of people with the same health thing - so they all know what it's actually like PERSONALLY - just like DSF - so that's a hard act to follow indeed !!!
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Paulines7

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Re: What a weekend!
« Reply #21 on: 25 February 2016, 11:55:17 AM »
Sedge, we have never been told of any cancer support groups and have assumed that they are mainly for people with terminal cancer who haven't long to live and not for those in remission.

John has never been one for making a lot of friends.  He gets on really well with people and chats to neighbours and others in our village but he has never been one for getting into a close friendship with anyone.  He doesn't like to chat about his health problems either which makes it extra difficult for me as I like to be able to talk things over.  Our youngest son has mental health problems and John doesn't like to talk about him either and sometimes I feel things need to be discussed.  John's attitude is that if we don't talk about it, it will go away.  I don't like to burden our other son too much with our problems as he has enough of his own.  I can talk to him about anything though and he is very good with his brother and helps him as much as he is able.

I have had five really good friends in the past that I could chat to about things, but sadly, they have all passed on.  They are friends that were the same age as myself and four of them I had known for about sixty years.  They all died of one form of cancer or another and I really miss them.  I don't make friends easily but when I do, it has been for life.  The only people left I can chat to now are my brother and his wife who live in the USA, our two sons and a cousin.   

Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline sedge

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Re: What a weekend!
« Reply #22 on: 25 February 2016, 03:07:30 PM »
Pauline - nobody told us either but they are find-able from the Charity website - http://prostatecanceruk.org/get-support/find-local-support

Just enter your location and click the 'Local support' box, then Search.

The websites for the individual groups tell you where and when and what's available - and it's perfectly clear they aren't just for end of life support.

When I read your post I wondered if our local group was the odd one out but if I stick Coventry in the box I get a choice of either the one that meets in Nuneaton or the Solihull one.  I'd never clicked the Solihull website, so I just have and actually, they have a meeting every month instead of every 2.  But - similar speakers and subjects and the same 'open to all' welcome.  'To support the men who ... and their families'
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Paulines7

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Re: What a weekend!
« Reply #23 on: 25 February 2016, 05:42:37 PM »
Thanks for the link, Sedge, but there is nothing around Salisbury.
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline sedge

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Re: What a weekend!
« Reply #24 on: 26 February 2016, 01:26:52 AM »
Oh that's a shame.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Paulines7

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Re: What a weekend!
« Reply #25 on: 29 February 2016, 12:29:24 PM »
John had a call from the hospital this morning.  He has an appointment on Friday to have a biopsy using the abdominal aspiration method.  We are pleased that things are progressing and fingers crossed that it doesn't start the bleeding again or he could end up with the same problems as he had ten days ago.
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline sedge

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Re: What a weekend!
« Reply #26 on: 29 February 2016, 01:44:22 PM »
Well glad things are moving - but yeah re bleeding  .....

So, is that a fine needle biopsy Pauline, done through the abdomen as opposed to the undercarriage etc?  Where are they actually aiming for to take the biopsy from - the bladder wall or ???
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: What a weekend!
« Reply #27 on: 29 February 2016, 02:12:51 PM »
I'm glad things are moving for him Pauline and hope it doesn't cause any more damage.  Both Julian and I sending best wishes and positive thoughts his way.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Paulines7

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Re: What a weekend!
« Reply #28 on: 29 February 2016, 05:09:18 PM »
Thank you both for your best wishes.

Well glad things are moving - but yeah re bleeding  .....

So, is that a fine needle biopsy Pauline, done through the abdomen as opposed to the undercarriage etc?  Where are they actually aiming for to take the biopsy from - the bladder wall or ???

I assume that they will be aiming for the area where the radiotherapy damage is i.e. where the urethra joins the area next to where the prostate was situated.  We will ask for more information on Friday.
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline Venomous

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Re: What a weekend!
« Reply #29 on: 01 March 2016, 02:30:52 PM »
I am pleased for you both that they will soon do the biopsy, I was rather angry reading about the blocked catheter. That really is basic dignity and they should have seen to it, not to mention the pain and discomfort of all sorts it caused. I know it feels awful when things are in limbo and they don't seem to be doing much so I hope the aspiration procedure is quick, efficient and as painless as possible. Such a shame there are no support groups around Salisbury.
T2 and PCOS. Just had large serous adenofibroma removed with ovary and fallopian tube. Bp is now normal!

Novorapid, levemir, trulicity, metformin.