Author Topic: INPUT Diabetes event at manchester  (Read 2203 times)

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Offline Liam

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Re: INPUT Diabetes event at manchester
« Reply #30 on: 12 June 2016, 09:50:58 PM »
And I'm intrigued about there being psych issues with pumping.  I know a pump can help if you have gastroparesis cos of the delayed stomach emptying - but what other eating disorders can diabetes cause then?  Or do you mean these were sessions that weren't actually part of their brief but they just added in to provide something different?

I was thinking diabulimia when I read eating disorders but not sure how a pump would help with that.
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline sedge

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Re: INPUT Diabetes event at manchester
« Reply #31 on: 12 June 2016, 10:41:08 PM »
Totally forgot about diabulimia. but I tend to agree with you - not really a subject I'd expect to be included at a pumping-specific event.

Plus of course, I don't really identify with psychological problems - although I do understand a little of what causes some of them.  Was only 'interested' in discovering my mother was most likely responsible for me being a perfectionist in the past - thought it was hilarious really.

Pete will tell you though, I'm obviously not bearing the effects into my retirement from work!  (It was, more or less, only at work)
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: INPUT Diabetes event at manchester
« Reply #32 on: 13 June 2016, 07:09:13 AM »
Ah yes, DWED, she was, briefly, a member here.


The other Jackie (surname) Jacombs from CWD, she has twins, one is T1 the other not.  They must be about Uni age by now.


Lesley Jordan is CEO of Input.
if your lesley jordan is a 50 year old woman with a bob and glasses and been type 1 for almost her whole life than I said hello to her ( that's about all )
That's her.

Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline himtoo

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Re: INPUT Diabetes event at manchester
« Reply #33 on: 13 June 2016, 09:00:56 AM »
hi all
it was not a pump specific event at all. I know INPUT are a strong advocate for access to technology for Diabetics
ok about 50 or so peeps were on a pump but there were 15 or so that weren't. there were MDI'ers with CGM as well.

and as for a pump helping with diabulimia Jacq Allen said that a pump actually completely changed her life because it was a tool that allowed her to move a big majority of her focus away from injecting all the time which is a constant reminder of the need to eat.


and that actually a fair few young ladies are already on pumps with eating disorders and that they disengage partly due to the wrong kind of suport -- being offered by DSN's.
( like threatening to take pumps away and all of the rest of the "you're a bad diabetic" rubbish that emanates from some of their mouths -- as I am sure others have had that experience as well -- forum members I mean )
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline himtoo

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Re: INPUT Diabetes event at manchester
« Reply #34 on: 13 June 2016, 09:12:52 AM »
Glad you enjoyed it. What did you learn about psychological issues?
generally speaking that psychological support is lacking badly in many areas of the country and that multi disciplinary teams such as a team to deal with people that score highly with the combination of diabetes stress , general anxiety issues , and high HbA1c issues -- fall through the system
because there isn't anyone really connecting all of those dots together.

it also seems that it is in the transitional care areas after a child leaves paediatric care , moves away to university , or the adult clinic is poorly rescourced on mental health support that a lot of the food issues start. ( an average age diagnosis of an eating disorder is in the mids 20's)

there is according to Jacq ( who is doing her doctorate currently ) general consensus there is an increased incidence of eating disorders in people with Type 1 diabetes.
and with the addition of insulin omission as a clinical symptom in anorexia and bulimia nervosa incidence rates increase even further.
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline Venomous

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Re: INPUT Diabetes event at manchester
« Reply #35 on: 13 June 2016, 09:33:02 AM »
It's no surprise that people are most stressed during transitional periods in their life for sure.

Imagine a world where we all got the support we needed to get through the most difficult times in our lives.....if only eh.  It's shocking how underfunded most areas are regarding mental health issues.
T2 and PCOS. Just had large serous adenofibroma removed with ovary and fallopian tube. Bp is now normal!

Novorapid, levemir, trulicity, metformin.