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Offline susie1953

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i have no energy
« on: 10 May 2016, 03:36:55 PM »
hi I have been type 2 for 2 years now I use insulin ,about a year ago I had terrible tummy problems my gp said I wasn't producing enough enzynes for me to digest food so im on creon now and it is helping but ive put on so much weight my skin is dry and I have no energy I sleep fine :(

Offline Pattidevans

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Re: i have no energy
« Reply #1 on: 10 May 2016, 05:11:07 PM »
Hi Susie

A lot of things may be affecting your energy levels.  Firstly when do you test and what numbers do you get when you do?  What insulin regime are you on?  Were you by any chance on Metformin when you had the tummy issues?

What with piling on weight, dry skin and lack of energy I think I might suspect an underactive thyroid issue.  Have you been tested for thyroid issues and if so do you know what the result of the test was (in exact numbers, not "normal" which can vary from person to person).
Can you tell us more about your treatments, diet and so on?
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline susie1953

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Re: i have no energy
« Reply #2 on: 10 May 2016, 07:26:41 PM »
hi ok I will try to explain  :)when I was first diagnosed with type 2 my sugar levels was 69 I kept going to see my gp about my thirst vomiting and feelingvery unwell only to be told it was a tummy bug .I was sent for a blood test at my surgry where I started to vomit bllod so I was rush to hospital to hdu unit .they put me on metaforin but it didn't suit me and insulin .my stomach problems were very nasty back and fore the toilet fat is my enemy I cant manage to much of that but creon helps .my sugars are between 5 and 8 but at night it can go up to 12 .im on vitamins and minerals ,my hair is so dry and my legs im only 5ft 2 and weigh 14 stone not good im seeing my diabetes nurse in july so I will ask her to test my thyroid I hope this helps you  many thanks sue

Offline Venomous

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Re: i have no energy
« Reply #3 on: 10 May 2016, 07:34:19 PM »
Hi Susie, welcome x

Like you I am on insulin (novorapid and levemir). I also find it difficult to stomach metformin. My sympathies. My skin (and hair) are pretty dry too. I too struggle with lack of energy. I am tired even after a full nights sleep!

You can always ask the diabetes nurse to bring forward your appointment if you don't want to wait till July.

What types of insulin do you take?
T2 and PCOS. Just had large serous adenofibroma removed with ovary and fallopian tube. Bp is now normal!

Novorapid, levemir, trulicity, metformin.

Offline susie1953

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Re: i have no energy
« Reply #4 on: 10 May 2016, 07:42:03 PM »
hi  :)im on hummilin kwick pen ,I think I will try and see my nurse sooner get my thyroid tested how are you now :) take care sue

Offline Pattidevans

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Re: i have no energy
« Reply #5 on: 10 May 2016, 10:45:35 PM »
hi ok I will try to explain  :)when I was first diagnosed with type 2 my sugar levels was 69 I kept going to see my gp about my thirst vomiting and feelingvery unwell only to be told it was a tummy bug .I was sent for a blood test at my surgry where I started to vomit bllod so I was rush to hospital to hdu unit .they put me on metaforin but it didn't suit me and insulin .my stomach problems were very nasty back and fore the toilet fat is my enemy I cant manage to much of that but creon helps .my sugars are between 5 and 8 but at night it can go up to 12 .im on vitamins and minerals ,my hair is so dry and my legs im only 5ft 2 and weigh 14 stone not good im seeing my diabetes nurse in july so I will ask her to test my thyroid I hope this helps you  many thanks sue

Sue

69?  In mmol/l?  I presume you are in the UK and that is correct.  It sounds like you were in Diabetic Ketoacidosis so why on earth did they diagnose you T2?  Sounds much more likely you are T1.  No wonder you had tummy probs.

Yes you definitely need Thyroid tests and if the GP surgery and GP nurse are managing you then you need a referral to a proper Endocrinologist at the local diabetes clinic because neither GPs nor their nurses are experts in T1.

The Kwikpen is used to deliver various types of Humulin.  It would be useful to know which one you are on - it should be on the packaging of your pen.  How many injections a day do you have?
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Alan

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Re: i have no energy
« Reply #6 on: 10 May 2016, 11:41:41 PM »
hi ok I will try to explain  :)when I was first diagnosed with type 2 my sugar levels was 69 I kept going to see my gp about my thirst vomiting and feelingvery unwell only to be told it was a tummy bug .I was sent for a blood test at my surgry where I started to vomit bllod so I was rush to hospital to hdu unit .they put me on metaforin but it didn't suit me and insulin .my stomach problems were very nasty back and fore the toilet fat is my enemy I cant manage to much of that but creon helps .my sugars are between 5 and 8 but at night it can go up to 12 .im on vitamins and minerals ,my hair is so dry and my legs im only 5ft 2 and weigh 14 stone not good im seeing my diabetes nurse in july so I will ask her to test my thyroid I hope this helps you  many thanks sue

G'day Susie and welcome to the forum. I also read your other posts.

Your situation is difficult because of the dietary restrictions from your other condition. It may help if you tell us a little more about your insulin regimen and the foods you can and cannot eat.
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
There is nothing I could eat I like more than my eyes.
Type 2 Diabetes - A Personal Journey (latest: Small New York Baked Low Carb Cheesecake)
Born Under a Wandering Star (Latest:Dambulla, Sigiriya and Polonuwarra, Sri Lanka)

Offline himtoo

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Re: i have no energy
« Reply #7 on: 11 May 2016, 08:27:54 AM »
Hi Susie
welcome from me.
if you are hitting BG's of 12 -- that on it's own can be enough to make you feel lethargic and tired.

agree with others that you really should press for appointments sooner than july.
sounds as though you are suffering quite badly :(



T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline Venomous

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Re: i have no energy
« Reply #8 on: 11 May 2016, 09:09:19 AM »
See if you can get the appointment brought forward and let us know how you get on   :)
T2 and PCOS. Just had large serous adenofibroma removed with ovary and fallopian tube. Bp is now normal!

Novorapid, levemir, trulicity, metformin.

Offline sedge

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Re: i have no energy
« Reply #9 on: 11 May 2016, 02:42:22 PM »
Hi Susie - sounds a nightmare.

Very odd (to me) that a GP should stick you on Creon without hospital intervention since the ONLY people I have ever heard of, who need and take Creon have all had total Pancreatactomies - ie cancer of the pancreas, so they have had all, or most of, their pancreases removed surgically. (and therefore also then become insulin dependent diabetics)
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline susie1953

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Re: i have no energy
« Reply #10 on: 11 May 2016, 02:47:18 PM »
hi and many thanks for your replys ,patti im on humulin m3 I have 3 in the morning but even with that low dose my sugers drop when im on the move I carry glucose tabs and my meter whenever I go out .at night I have 18 insulin but I have to be carefull my sugars don't rise to much .I live in Scotland yes my glucose was 69 at the hospital they were shocked my gp hadn't picked up on my diabetes I told him I couldn't stop drinking weeing I was being sick but he said oh you will be fine its just a bug >:( patti why do you think I might be type 1 ,I see a diabetis specialist my next visit is in dec and ive managed to get my appointment with the nurse in june I will also get my thyroid tested .as with my tummy I cant digest fat like butter cheese ect I take creon before each meal .im not a big eater really but my weight now is a problem I just don't know what to eat it all gets a bit to much at times thank you for your help    :)

Offline susie1953

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Re: i have no energy
« Reply #11 on: 11 May 2016, 03:02:00 PM »
hi sedge sorry I just read your post my gp spoke to someone at the hospital over the phone he thought creon might help me ,my diabetes specialist thought I should increase the dose so I could get more goodness from my food

Offline Liam

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Re: i have no energy
« Reply #12 on: 11 May 2016, 03:39:00 PM »
I think Patti is thinking type I because of what you told us. It sounds  like diabetic ketoacidosis which is very common for type Is at diagnoses but fairly rare for type IIs. They are also bad for thinking if you are a 'certain age' that it must be type II. We as a forum have many members that have misdiagnosed type II then me correctly diagnosed as type Is.

The sad thing is you'll get better treatment if you are diagnosed a type I, not just insulin wise but generally better treatment from doctors and nurses.  It might be worth asking your doctor next time about your diagnoses and why with a blood sugar of 69 and symptoms of DKA (diabetic ketoacidosis) they picked type II. There are a couple of tests to check your type. They are GAD 65 antibody and C peptide, these are fairly rarely used and a bit costly so you might have to fight to get them. It depends on the doctor.

Insulin wise you are on a mixed insulin. This means you inject the long acting (covers all your needs for energy during the day) and short acting (covers the energy from meals) Many people find this difficult to balance and you cannot change how much you need in the background without also changing the amount for eating. The advantage is it is only two injects.

Most of us use long acting insulin which is injected once or twice a day, with a short acting insulin that you inject before meals which is matched to the amount of carbohydrates in the meal. This type is much more flexible but does mean injection more often. Normally 5+ times a day.
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline Pattidevans

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Re: i have no energy
« Reply #13 on: 12 May 2016, 02:45:13 PM »
Hi Sue

Sorry meant to respond yesterday then hubby wanted my help with something and it slipped my mind when I got back to the computer.

Quote
hi and many thanks for your replys ,patti im on humulin m3 I have 3 in the morning but even with that low dose my sugers drop when im on the move I carry glucose tabs and my meter whenever I go out .at night I have 18 insulin but I have to be carefull my sugars don't rise to much

It doesn't really sound like the regime of mixed insulin is suiting you very well.  Too much in the mornings and not enough at night.  Mixed insulin is very tricky to control.  Basically as Liam says, you can't adjust the insulin to suit the food you are about to eat, so you have to adjust the food to match the insulin and have the same amount of carbs at the same time of day every day.  It sounds like you aren't eating enough carbs at breakfast if you are going hypo in the day, and you are probably eating too many at night.  I couldn't get on with mixed insulin and switched to a basal/bolus regime as quickly as I could.  This means I can eat when I like and vary the amounts if I wish.  Perhaps ask your nurse about it when you see her next month.

Quote
Scotland yes my glucose was 69 at the hospital they were shocked my gp hadn't picked up on my diabetes I told him I couldn't stop drinking weeing I was being sick but he said oh you will be fine its just a bug :(" title="Angry" class="smiley"> patti why do you think I might be type 1

As Liam said, it sounds to me like you had all the symptoms of Diabetic Ketoacidosis at diagnosis (vomiting etc.) see this explanation of DKA http://www.diabetes-support.org.uk/info/?page_id=797
Type 2s only very rarely get DKA because they usually still have some of their own insulin floating around.  However, as Liam also says, they often just look at your age and label you T2 because of it.  Particularly if you were a bit overweight at the time.  I had a similar experience and had to really push to get the proper diagnostic tests, proving I was T1 and, also as Liam says, immediately I got better treatment.

Quote
.im not a big eater really but my weight now is a problem I just don't know what to eat it all gets a bit to much at times thank you for your help    :)

Can you list what you eat in a typical day?  Everything... for breakfast, snacks, lunch and dinner.  That might help us to help you a bit in knowing what to eat.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline susie1953

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Re: i have no energy
« Reply #14 on: 13 May 2016, 09:53:23 AM »
good morning :)firstly thank you for your replys ,for breakfast I always have porrage made with full fat milk and a spoon of sugar to give my sugar a boost before I walk my dog. dinner time I have a sandwich with some salad and ham ,tea time I love salad jersy royals and chicken ,before bed I have 2 Weetabix .because of my tummy problems I try to be carefull with my food .I will have a word with my nurse but because I see a specialist I don't know if she will change my insulin he wants me off insulin but hes concerned my sugars will go to low :-\