Author Topic: Re: Heart Disease  (Read 2253 times)

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Offline Lucy

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Re: Re: Heart Disease
« Reply #30 on: 20 August 2016, 08:22:42 AM »
unfortunately I don't have the luxury of getting the testing strips on the NHS
Why can't you get testing strips from your GP ?

I thought it was normal for t2 not on medications that cause hypos to be refused test strips from GP?
Type: Lucy. A1C 44 / 6.0% Jan17.
Lantus, Victoza and Apidra. Metformin XR, Bisoprolol (for SVT). Dexcom G4 with xdrip and nightscout.

Offline Quantum Learning

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Re: Heart Disease
« Reply #31 on: 20 August 2016, 10:58:12 AM »
Absolutely normal, I funded my own on Ebay for 4 years. I've even heard of type 1's being refused them now, don't know how they'll get away with that.
Type 2 dx Nov 2012 with fasting BG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
June 2017 51/6.8% Chol 6.1
Oct 2017 52/6.9% Chol
Metformin SR 2000mg, Candesarten Cilexetil 4mg Omeprazole 20mg, Fexofenadine 180mg Co-Codamol 30/500g when needed. Amitriptyline 20mg
Toujeo/NovoRapid, Allergic to Levemir.

Offline heather1957

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Re: Re: Heart Disease
« Reply #32 on: 20 August 2016, 01:18:53 PM »
unfortunately I don't have the luxury of getting the testing strips on the NHS
Why can't you get testing strips from your GP ?

I never had been able to freely get them, even when first diagnosed I had to make a special request so decided to just get the myself.

As a type 2 yes it is good to keep some sort of log of when you spike or when you drop but I don't think it is as important as being a type 1, I have to keep taking the metformin for now and change my eating habits and hopefully the levels will drop (which they have started to do) I find it is more for me that I take the readings than anything else so am happy to continue as I am for now.
T2 since 8/12 HbA1c HIGH!!
Medication 4 x 500mg Metformin SR at tea time

Offline Pattidevans

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Re: Heart Disease
« Reply #33 on: 21 August 2016, 05:51:46 PM »
Sorry Heather, I only asked because I have heard of some T2s who are given small amounts of test strips from the GP and been told only to test a few times a week and when you ask it would appear that the times they test with the precious strips are completely random and do not give them any valid information at all.  I should have known that you would test at times when it provided some proper information for you.

I don't know which strips you use, but some are cheapest direct from the manufacturers.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline heather1957

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Re: Heart Disease
« Reply #34 on: 21 August 2016, 07:35:53 PM »
It appears that all doctors feel the same regarding issuing the strips to type 2 diabetics, I can actually see that it isn't as important as for type 1 who MUST have them IMHO.

I really do it for some reassurance that with changes in diet they are coming down, for me the main HbA1c test will show what is actually going on but with changes to my doctor I have no clue when the next one will be taken but as I have taken some control (thank goodness) I am not so concerned as I know they are coming down.
T2 since 8/12 HbA1c HIGH!!
Medication 4 x 500mg Metformin SR at tea time

Offline Avocado

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Re: Re: Heart Disease
« Reply #35 on: 25 August 2016, 11:09:31 AM »
unfortunately I don't have the luxury of getting the testing strips on the NHS
Why can't you get testing strips from your GP ?

I never had been able to freely get them, even when first diagnosed I had to make a special request so decided to just get the myself.
I've just been refused testing strips ! First time in over nine years since I first started testing. This must be a new thing.......just started a thread about it......
Anne

Atypical Type 2, thin, not insulin resistant, diagnosed March 2007. Very low carb (30 - 50g per day) Paleo diet and exercise - Prandin (Repaglinide) 0.5mg. Aortic Valve Replacement Jan 2014, Osteoporosis, Small airways disease, probable coeliac - Strontium Ranelate 2g/d, Omacor 2g/d, vitamin K2 300mcg/d, Aviticol (vit D3) 20,000 IU every week, Qvar 100 2/day.

Current HbA1c 33 Current total cholesterol 7, HDL 3.5, LDL 3.2, triglycerides 0.4

Offline Alan

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Re: Heart Disease
« Reply #36 on: 27 August 2016, 02:58:14 AM »
Hi Alan, I had the fasting bloods taken on 4th July and got the result a week later. To be honest I have been more concerned about my heart so really can't remember exactly what the results were but think they were about 18 or 19 mmol/L  :eek: I have been taking Metformin 2000mg & 100 mg of Januvia, goodness knows what they would have been without them.

I am now self testing about 3 times a day and am averaging 8.5 mmol/L although for some reason I had a reading of 12. 4 mmol/L early this week, but it dropped within a few hours, so slowly dropping and I have decided to drop the Januvia, my reasoning is that when I was first diagnosed 4 years ago I was only on 1000 mg of Metformin and within 6 months and a diet change I had a HbA1c reading of 5.5 mmol/L so want to try and manage with just the Metformin, I am still unhappy with being on 2000 a day so will drop 500 mg when I start getting into the 6 mmol/L
My apologies for the long delay in replying, Heather. Sometimes life gets in the way :(. I saw the later comments on test strips. If you can find a way please invest in some and then use them more systematically. As you've read my other link I'll offer two ways:
Please read this one too: When To Test?
Quote
As for our trip to Australia we fly into Brisbane on the 9th Feb and will drive North to Hervey Bay, have visited there a few years ago but for a whale watch and didn't stay, so this time we've rented a lovely little house (with pool) for a 1 week stay it'll be a week of relaxation. It's out of whale watching season so the place should be quite quiet. I am also a huge fan of 'My Kitchen Rules' and was a supporter of Dan & Steph who won series 13 and have opened a cafe in Hervey Bay so we plan to visit there too.

From there we drive down to Main Beach and stay at Xanadu in an ocean front apartment, we stayed there in 2014 and loved the place, it is a bit expensive but we decided too 'go for it'.

A long drive to Forster for a 5 night stay and then another 5 nights in Lake Macquarie with a day (or 2) visiting the Hunters for a few tasters and no doubt buy a few bottles of wine!  ;)

We will the drive to North Shore where my friend's uncle lives and we will be staying with them for 3 days then off to Tasmania for a week. I have visited Australia about 6 times but have yet to visit Tasmania so it will be a bit of a whistle stop taster and I am really looking forward to that week.

Then flying to Christchurch and South Island for 10 days, it started as a quick trip to visit my nephew who is working in Queenstown but we decided to extend it a little. I was in NZ in 2010 for a Wales rugby tour but my friend hasn't been for a few years so we decided just to stick with the South Island which is my favourite of the 2.

We then fly to Perth for 2 weeks, our last stop before coming home. We are staying in the City for 3 nights then travelling South with a couple of stopovers including 4 nights at Margaret River for some more wine tasting.
Wow! A big trip. Xanadu is about an hour north of my place in Pottsville, which is about 20km south of the border. Are you renting a car one-way? Possibly you could drop in en-route to Forster-Tuncurry. I also know it well, as Mum lived in Forster until she moved in next door. Beautiful town. Consider spending a night en-route to break the journey somewhere between Coffs Harbour and Port MacQuarie.

It is nearly forty years since I visited Tasmania and I've been to the North Island but not the South Island; I'm envious. You are certainly hitting a wide range of locations. Have a wonderful time.
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
There is nothing I could eat I like more than my eyes.
Type 2 Diabetes - A Personal Journey (latest: Small New York Baked Low Carb Cheesecake)
Born Under a Wandering Star (Latest:Dambulla, Sigiriya and Polonuwarra, Sri Lanka)

Offline heather1957

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Re: Heart Disease
« Reply #37 on: 17 October 2016, 11:16:39 PM »
Have been really busy work wise and pretty  :'( :'( at the moment over my on going heart problem saga!

Having it now confirmed that after my ECG, which was on the 30th August I DO have Angina I now have to have an Angiogram. Normally I wouldn't be too bothered (well of course I am bothered) but time wise where does this leave my insurance and my holiday.

When I first saw the nurse she kind of played down my holiday with  'I am sure that'll be fine now', as I will have to have surgery to see how bad the Angina is AND if needed a stent fitted I am not sure how my insurance will be effected which means the holiday may be off!  :-[

I went and spoke to my GP this morning who was superb and armed with the info he gave me I phoned the hospital, I was told that my Angiogram was marked 'Urgent' and was pencilled in for the 10th November (not so urgent then) but the real issue for me is that the hospital I am going to for this Angiogram does not fit stents so if it is decided I need one I would have to go on the waiting list for a hospital in Cardiff who have the facility for inserting a stent then and there if needed.  The trouble is that it is not my Health area so I cannot be referred! I like things to be logical so I quizzed the nurse in the cardiac day clinic and asked where I would go to have the stent fitted if needed, of course the answer was the hospital in Cardiff!!! It appears if I need a stent I can go there but they need to find out if I need one first. I was extremely annoyed by this farce, undergoing 1 procedure for me is enough but undergoing 2 when they can be done at the same time is just crazy - As well as putting the holiday at risk possibly unnecessarily.

The good news (kind of) was that after my rant (which probably didn't do my heart any good) she said she would speak to the doctor (I have now been allocated a cardio surgeon) and she phoned me back an hour later and said that he would see me at 10 am on Wednesday at the hospital so I can ask him all the questions especially why I can't get the procedure done at the Cardiff hospital.

I have my diabetic MOT tomorrow so am also 'sweating' on my HbA1C being within the range for the procedure, I am hopeful as I have been really good and my daily tests show a drop but whether it has happened quickly enough I don't know.

Sorry for the rant, just need to release the stress somewhere.

It is enough to make me very depressed and I am not the depressed kind of person, I would normally eat chocolate but can't even do that.

Rant over - wish me luck for tomorrow.
T2 since 8/12 HbA1c HIGH!!
Medication 4 x 500mg Metformin SR at tea time

Offline sedge

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Re: Re: Heart Disease
« Reply #38 on: 18 October 2016, 12:19:31 AM »
Heather = this is no doubt ALL about money.  Why should your hospital pay Cardiff money to do a procedure which they can do themselves?  Oooh yes I forgot, because you would find it more convenient.

This isn't about YOU though, is it?  It's about MONEY.

I do believe we all need to get used to this happening - TG I live in a city with a teaching hospital which carries out all sorts but not as far as I know, any transplants - except we always have to wait quite a long time for our consultations and treatments because they have so many people to treat.  Pete had to wait 2 years for the same op Patti's husband is having on Wednesday - nothing serious though, only cancer.

It's pot luck mate.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline heather1957

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Re: Heart Disease
« Reply #39 on: 18 October 2016, 08:16:18 AM »
That is no doubt true sedge!

When I asked why I couldn't have the angiogram done in the Cardiff hospital in the first place she said well you may not need the stent but as I replied to her, I may not need it but the thing I know for sure is if I did I won't have it at the local hospital as they don't fit them.

I really do appreciate the added complications of inserting a stent and the need for a more 'specialist' department but I don't understand why they would carry out a procedure knowing they may well have to do a follow up at the Cardiff hospital when if I went to the hospital in Cardiff in the first place they could insert the stent (if needed) at the same time as doing the initial Angiogram.

One of the phrases I used when working was 'Work smarter, not harder' and it makes no sense to have a situation where 2 procedures may be needed if you go to one hospital yet in another it can all be done at the same time seems a waste of money AND obviously double the risk for the patient.

Hopefully the doctor tomorrow will be able to explain this to me so I can make sense of it.
T2 since 8/12 HbA1c HIGH!!
Medication 4 x 500mg Metformin SR at tea time

Offline Pattidevans

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Re: Heart Disease
« Reply #40 on: 18 October 2016, 01:56:53 PM »
It seems absolutely ludicrous that you should have to undergo two operations when one would achieve the same result.  I expect it IS about money.  I hope the Doc you speak to tomorrow can clarify issues and hopefully enable you to side step one of the procedures.


The health Trust that covers the area we live in is something like 41million in debt, but the service both hubby and I experience is first class.  Even sending hubby out of County for his forthcoming operation.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline heather1957

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Re: Heart Disease
« Reply #41 on: 18 October 2016, 09:56:43 PM »
It seems absolutely ludicrous that you should have to undergo two operations when one would achieve the same result.  I expect it IS about money.  I hope the Doc you speak to tomorrow can clarify issues and hopefully enable you to side step one of the procedures.


The health Trust that covers the area we live in is something like 41million in debt, but the service both hubby and I experience is first class.  Even sending hubby out of County for his forthcoming operation.

It is great to read something positive about the service you have received! I was somewhat surprised that the doctor has asked me to go in tomorrow to talk about my wanting to go to the Cardiff hospital I am impressed already.

Now time is the enemy I am more miffed than ever about the 6 week wait at the start when apparently my referral letter from the GP went missing, those 6 weeks now could be really important.

I will update tomorrow with what is happening fingers crossed it'll be good news!
T2 since 8/12 HbA1c HIGH!!
Medication 4 x 500mg Metformin SR at tea time

Offline Pattidevans

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Re: Heart Disease
« Reply #42 on: 18 October 2016, 10:28:23 PM »
Fingers crossed!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline heather1957

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Re: Heart Disease
« Reply #43 on: 19 October 2016, 02:17:35 PM »
Well that was a very productive meeting with the Cardio doctor and to think it wouldn't have happened if I had't have been to my GP on Monday and armed with what he told me I then badgered the hospital.

Dr Ellis was lovely although not at all sympathetic to my holiday issue (I absolutely do understand this) he didn't go into detail but did say that it was a political reason why hospitals in our health region could not insert stents while the main hospital in Cardiff could.

After an unhurried chat where he was open and honest with me about all possibilities which could include a heart bypass (gulp) as the worse case scenario. This has to be considered due to my diabetes. He also was prepared to answer all my questions and listen to my concerns, as I said he was lovely. He is obviously very popular as my meeting with him was on the cardio day ward which is where the patients for angiograms stay, and a few patients called him over and I heard one say (after he had gone) he was a very nice doctor and a nice man so a thumbs up from me.

So the decision I came to which he completely supported was that I would now be transferred to the Cardiff list and he has recommended the stent inserted at the same time as the angiogram (if needed) TBH even if I wasn't under time pressure I would prefer it all done at the same time, who would want 2 surgeries when they can do it in 1  :eek: :eek:

It is now a waiting game and I hope and pray they will be doing it this side of Christmas which will give me a month to get myself back to normal (whatever my normal is  ;) ) But I suppose when I get the appointment from the Heath in Cardiff I will know for sure where I stand as far as the holiday is concerned.

I should add that Dr Ellis said if I wanted his advice I should cancel the holiday just to reduce the stress of worrying about it, I will not make that decision until I get a date for the angiogram from Cardiff.

The doctor was a little annoyed that my GP had not prescribed me any medication, he said I had the classic signs of angina and therefore they should have prescribed me a spray and Beta Blockers   :( , he prescribed them for me and even though he and I had a discussion about weight loss he did say it was still possible to lose weight with them so not to give up! Luckily I have no intentions of giving up but am worried that I will become demoralised if I am cutting out carbs and generally eating healthier yet not losing weight. Time will tell!

So watch this space - can you all please keep fingers and toes crossed for me that my appointment comes through before the year is up so I have a chance of sticking to my plans.
T2 since 8/12 HbA1c HIGH!!
Medication 4 x 500mg Metformin SR at tea time

Offline sedge

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Re: Re: Heart Disease
« Reply #44 on: 19 October 2016, 11:13:21 PM »
I don't think an angiogram (with or without stents) is under GA, is it? - so not like a heart bypass LOL  Presumably if they don't so stents, your local wouldn't do the major op either?   Just thinking if you needed something that needed a GA, you wouldn't want to go on a flight, let alone a long haul flight that soon afterwards because of the risk of DVT.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4