At first I was so mad about my GP's and I still am a bit. However each health authority has it's own guidelines on treatment and where I live I am told it is out of date and incorrect by the charities. What happens is the lab reports on the blood test and tells the doctor how to treat it. So with mine it was 5 loading doses and test again in 6 months. This didn't take account of my symptoms which are mostly neurological ones. The GP's have refused to believe my symptoms are neurological but the 2 charities have said they most definitely are.
So if the GP decided that I have neurological symptoms, the guidelines are injections every other day until no further improvement. In addition the test for intrinsic factor was negative however that test is very unreliable and it even states that on the print out. Also there is no evidence in other blood tests that my red blood cells are abnormal in shape and size. So the drs are saying this is even more evidence that I do not have much of a problem. They totally ignore the fact that I can hardly walk and am in agony. One said modern life can make you feel like that! I can't believe modern life (and mine is relaxed) could put me in a wheelchair, because I am close to needing one now.
All the books and articles I have read state that symptoms can often begin before there are changes to the blood cells and early treatment MUST begin as soon as possible based on symptoms to prevent the nerve damage from being irreversible. So this is why I took the decision to inject myself, I am terrified I will have to spend the rest of my life in a wheelchair.
I am told that there is no possibility of overdosing on this vitamin and that is all it is - not some toxic drug.
So as it stands I've had 5 loading doses from my GP and there was a small improvement in some symptoms but then I had several weeks with nothing apart from sublingual pills every day which wont help any one with a deficiency much but I was worried and desperate. During that time any improvement went. I have now given myself 4 injections. One every other day, the last one being yesterday. I've had this pain since April and have not been able to sleep through the night at all and everyday I take co codamol which maybe takes the edge off the pain.
So last night was the first night I slept through the night without waking in pain. Every night since April I have had to get up, go to another room, sit in a chair and try to sleep again. I have pain right now and took pain killers this morning but I don't feel quite so exhausted.
I am told it could take months before I feel normal again but just staying asleep all night was a step forward for me.
If there is anyone who contemplates self injecting like me I can't stress enough that the first one at least MUST be done by a health professional. Also I strongly suggest you should contact one of the charities for advice. You need to have print outs of all your blood tests so you can tell them all the results.
As I mentioned before it is an awareness week for this problem.
I hope my information helps anyone else with this difficulty. This morning I found a template for a letter that I could send to my GP. I'm going to spend a few days tinkering with it to fit my experiences.
Oh and Liam it is fine to edit my posts. When I wrote most of them I was tired and suffering from Brain Fog. I am a little more alert today so that is progress too.