Hello to all of you,
I was wondering if anyone is experiencing autonomic neuropathy symptoms like irregular bowel habits, bladder problems (at almost self catherization level), feet/Hand quickly going numb when sitting down, burning thighs etc., and how you are managing it?
I have already tried FODMAP, excluding gluten and other things.
I got officially diagnosed a few months ago via an urodynamics test after I kept insisting on it as doctors just could not/still cannot believe it that it is possible with my hba1c to get it. Even nowadays they still cannot really believe it.
I have been T1 for soon 15 ys (age 29 nowadays) and my Hba1c has been around the 6,5 mark for the first 10 and for the last 5 around the 6 mark with the last 5.8.
During this time I was checking my levels 8-12 times a day. 6 months ago i got my first pump and for last 12 with libre. I started getting stomach problems 4 ys ago followed by bladder problems around 2 years ago. Nowadays I eat around 100 carbs a day max.
Admittedly I always had a bit of a too tight control with lows 2,3 times a day and highs up to 14. I always hated It when my sugars went above 8 therefore over corrected quite a bit.
Through the libre I could clearly see that for lunch and dinner, after around 2 1/2 hs after food intake, I almost always have to inject same insulin amount as originally injected to avoid another spike which for sure cost me 1000s of highs.
E.g inject 6 units at 2 pm eat at 2 30, 72 cabs, at 5 pm have a nice 6 and if I do not inject any insulin will go up to 12 or more within an hour with sugars peaking at around 16-18.
Also could see what impact a mackerel salad or so has, worst pizza, where I get like spikes after 2 1/2 and 5 hs.
Nowadays I got Libre plus Medtronic enlite to help me keep levels tight but ideally avoid Low sugars. I also got no hypo awareness left.
Thanks for your suggestions as it is having an enormous an effect on life quality and therefore appreciate all your input.
My previous entry can be found with below info.
Stomach problems - Colonoscopy did not detect any problems
« on: 19 October 2013, 12:23:02 PM »
Thanks for reading my entry.