Author Topic: Not what I wanted for Christmas  (Read 772 times)

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Offline Quantum Learning

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Re: Not what I wanted for Christmas
« Reply #15 on: 09 February 2017, 11:57:45 AM »
Okay had my eye appt yesterday, 2 different scans, 2 lots of stingy eye drops (that lasted well over 6 hours, wonderful starbursts when we went out in the car last night).

The result is I have 2 small background changes, 1 in each eye, that's the good news. The bad news is they're in a bad place, i.e the centre of the macular so if they worsened they may affect my sight. He said they were so small that he was discharging me back to the normal annual retinopathy check, phew.

He was so nice I decided to ask a lot of questions and he was very willing to answer them. I'd been confused over the conflicting results of past retinopathy checks, where one minute I have small background changes, next test they're gone, next test they're back but in a bad place, next test they're gone again, last test I now have maculopathy  :o

He explained it as the blanket term for all these eye issues is retinopathy but if the changes are near the centre of the back of the eye then it's maculopathy too. The reason I had so many conflicting results is down to the different technicians and their different interpretations of the results of the tests but basically if they think there's anything to worry about they refer you to the eye clinic which is where I ended up yesterday.

He asked me if my D is well controlled and I said it is at the moment but he didn't ask for any details so I don't think the question was worth much, after all how many peeps are going to admit their control is poor? What about all the peeps whose GP tells them 'everything is fine' when their A1c's are 85? I've lost count of the amount of type 2's I've met who have no idea what their A1c's are and have no interest in finding out  :(

Anyhoo good news, and although it's not possible to reverse these changes I have at least if I keep my BG's down they won't get any worse  :)
Type 2 dx Nov 2012 with fasting BG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
Metformin SR 2000mg, Candesarten Cilexetil 4mg Omeprazole 20mg, Fexofenadine 180mg Co-Codamol 30/500g when needed. Amitriptyline 10mg
Allergic to Levemir.
Toujeo 80 units at night.
NovoRapid when needed.

Offline Liam

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Re: Not what I wanted for Christmas
« Reply #16 on: 09 February 2017, 01:35:44 PM »
Glad to hear it was mostly good news. Must be a bit of weight off your shoulders. As great to speak to a doctor who is willing to answer your questions.
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline Venomous

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Re: Not what I wanted for Christmas
« Reply #17 on: 09 February 2017, 04:47:54 PM »
Thats good glad to hear some good news for you x
T2 and PCOS. Waiting for surgery on large ovarian masses.

Novorapid, levemir, trulicity, gliclazide, metformin.
Aspirin, Diltiazem.

Offline sedge

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Re: Not what I wanted for Christmas
« Reply #18 on: 09 February 2017, 05:17:29 PM »
Phew - bet you're (sort of!) pleased you got to grips with the insulin now, aren't you?

As you say - just got to keep on top of it now .....

I'm pleased the news wasn't as dire as you feared, anyway.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Quantum Learning

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Re: Not what I wanted for Christmas
« Reply #19 on: 09 February 2017, 08:20:11 PM »
Thanks guys, I think I realise now I assumed I had caused this 'much worse' condition during my 18 months hoo ha because of the previous 'all clear' diagnoses (not sure if that's a word). It's a relief to find that actually my eyes are very probably the same as they were on Dx and haven't got any worse.
Type 2 dx Nov 2012 with fasting BG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
Metformin SR 2000mg, Candesarten Cilexetil 4mg Omeprazole 20mg, Fexofenadine 180mg Co-Codamol 30/500g when needed. Amitriptyline 10mg
Allergic to Levemir.
Toujeo 80 units at night.
NovoRapid when needed.

Offline GrammaBear

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Re: Not what I wanted for Christmas
« Reply #20 on: 09 February 2017, 09:34:05 PM »
QL ~ I'm glad you were able to see a Doctor who was willing to take time to explain things to you and to answer your questions.  His explanations might have helped eased your mind a little bit.  Wishing you the best and your vision stays stable.  :)
Type 1
Tandem Tslim pump Oct 2015
Dexcom G4 CGM Sep 2007
A1C 6.5% ~ March 2017

Offline Pattidevans

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  • It's ONLY Diabetes. It could be something worse!
    • Patti and Julian
Re: Not what I wanted for Christmas
« Reply #21 on: 10 February 2017, 09:42:34 AM »
Hi Q


I am pleased for you that the Dr gave you his time and willingly answered all your questions, so often that is not the case.  Sorry to hear of the fact that the tiny background changes are in a bad place, but hopefully with your normal good control they will not worsen.  Never blame yourself - the 18 months when things worsened was hardly down to you, was it.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


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