Author Topic: Very high glucose and illness  (Read 1224 times)

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Offline sedge

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Re: Very high glucose and illness
« Reply #30 on: 10 January 2017, 02:24:20 PM »
What is the point indeed - they won't even be open tonight!

Can you not ring the clinic direct and say tonight's not much help to you - what you actually need is URGENT dosing advice, in fact you've needed it all over the weekend and still haven't got any proper expert help with it - you don't even need to physically SEE them -  is there really absolutely nobody who could have a conversation with you about it, available?

If you're met with another brick wall - ask to be transferred to PALS since you obviously need to start an official complaint.

(Each hospital has an official, independent, Patient Advice and Liaison Service - via whom complaints are channelled - that's PALS)
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: Very high glucose and illness
« Reply #31 on: 10 January 2017, 03:04:17 PM »
Funny... we have had several members in the East Anglia area and we have not heard good things about the service there in the past.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Filobabe

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Re: Very high glucose and illness
« Reply #32 on: 10 January 2017, 04:01:43 PM »
I'd have to say they are normally very good in the centre. However, accident and emergency care is usually pretty poor.
Who let's an Ill diabetic with possible dka (turned out not to be) sit with no drink, bms or insulin for 3.5 hours before doing anything?
I work in health care and I'm shocked.
Will see what DSN says when ring later 😕

Offline Avocado

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Re: Very high glucose and illness
« Reply #33 on: 10 January 2017, 07:13:36 PM »
I daren't think how a diabetic not so knowledgeable about DKA as you, Filobabe, would fare if they went into DKA. I know several diabetics who are clueless about their blood glucose, even some on insulin. Fightening.
Anne

Atypical Type 2, thin, not insulin resistant, diagnosed March 2007. Very low carb (30 - 50g per day) Paleo diet and exercise - Prandin (Repaglinide) 0.5mg. Aortic Valve Replacement Jan 2014, Osteoporosis, Small airways disease, probable coeliac - Strontium Ranelate 2g/d, Omacor 2g/d, vitamin K2 300mcg/d, Aviticol (vit D3) 20,000 IU every week, Qvar 100 2/day.

Current HbA1c 33 Current total cholesterol 7, HDL 3.5, LDL 3.2, triglycerides 0.4

Offline Pattidevans

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Re: Very high glucose and illness
« Reply #34 on: 10 January 2017, 08:56:21 PM »
I'd have to say they are normally very good in the centre. However, accident and emergency care is usually pretty poor.
Who let's an Ill diabetic with possible dka (turned out not to be) sit with no drink, bms or insulin for 3.5 hours before doing anything?
I work in health care and I'm shocked.
Will see what DSN says when ring later 😕

I have to qualify that the members who were dissatisfied were T2 and really I do think a lot of the time T2s get the rough end of the stick re: care and so on.

Do let us know what the DSN said to you.  It's possible that the Diabetes department need to have words with A&E on how to treat T1s with possible DKA
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: Very high glucose and illness
« Reply #35 on: 11 January 2017, 12:07:16 AM »
You wonder - and I meant to say this earlier - what messages actually got through to the Diabetes Clinic.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Filobabe

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Re: Very high glucose and illness
« Reply #36 on: 11 January 2017, 04:10:00 PM »
Went to diabetes centre today.
They gave me new rules for sick days when on steroids and changed my background insulin. They think glucose will settle once steroids are out of myself system in a day or so.
I told DSN about accident and emergency and she said they were busy felt bit disappointed in that response though. Poor care is poor care. :eek:
Have to go back in couple of weeks and review again. Positive note glucose is staying below 27.8 today. Yaya!


Offline sedge

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Re: Very high glucose and illness
« Reply #37 on: 11 January 2017, 05:12:12 PM »
Glad you have some guidance at last!

Would you like to share the 'steroid use' advice - any of us might find it helpful to have somewhere to start.

I'm disappointed as well but OTOH I wouldn't think she would be able to have any input into changing it; there again as long as nobody mentions it nobody will know there's anything wrong with it.   Like I said - PALS.

What about ketone testing?
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: Very high glucose and illness
« Reply #38 on: 11 January 2017, 06:56:32 PM »
Quote
I'm disappointed as well but OTOH I wouldn't think she would be able to have any input into changing it; there again as long as nobody mentions it nobody will know there's anything wrong with it.   Like I said - PALS.

Exactly!  I had to point out to the Dentist that I had had a very serious hypo in their waiting room after treatment, because the anaesthetic contains adrenaline and it's a fairly common reaction with T1s and NO ONE knew how to help me.  Lots of people fussing and wanting to give me glasses of water.  As it happened I did have my own glucose tabs and so on, but I was so bad I could not speak, though I managed to get the tabs and eat them (only just).  I said their staff needed training and after that I believe they did get some training.  You do need to make it known what bad treatment you had.  As Sedge suggests, PALS is probably the best route.

Very glad you are a little more confident now that you are on the mend.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Alan

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Re: Very high glucose and illness
« Reply #39 on: 18 January 2017, 10:09:13 PM »
Went to diabetes centre today.
They gave me new rules for sick days when on steroids and changed my background insulin. They think glucose will settle once steroids are out of myself system in a day or so.
I told DSN about accident and emergency and she said they were busy felt bit disappointed in that response though. Poor care is poor care. :eek:
Have to go back in couple of weeks and review again. Positive note glucose is staying below 27.8 today. Yaya!

G'day. I'm T2 so I won't offer any advice, especially as you have met some very wise T1s here. Just wanted to say welcome and glad you've survived a nasty experience.
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
There is nothing I could eat I like more than my eyes.
Type 2 Diabetes - A Personal Journey (latest: Small New York Baked Low Carb Cheesecake)
Born Under a Wandering Star (Latest:Dambulla, Sigiriya and Polonuwarra, Sri Lanka)

Offline GrammaBear

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Re: Very high glucose and illness
« Reply #40 on: 18 January 2017, 11:18:10 PM »
Patti - A similar thing happened to me whilst at the same clinic where my Endo has his office.  People at the receptionist desk offered me water when I said I was have a low blood sugar.  Why do people think water will solve that particular problem?
Type 1
Tandem Tslim pump Oct 2015
Dexcom G4 CGM Sep 2007
A1C 6.5%~ Sep 2017