Author Topic: Vit D studies  (Read 697 times)

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Offline TerryJ

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Vit D studies
« on: 11 January 2017, 02:51:25 PM »
Type 2 since 1999. Current meds Gliclazide
HbA1c Feb10 10.9, May10 7.7, Oct10 6.6, Oct11 6.7, Dec12 6.4, Nov13 6.9

Offline Pattidevans

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Re: Vit D studies
« Reply #1 on: 11 January 2017, 07:08:09 PM »
Well that is very interesting.  Hubby and I take 5,000iu per day in the form of Vit D gel caps (pills are apparently useless) and have for some years now.  We do forget on the odd day, and we do not bother when we are on holiday in a hot climate where we are exposed to the sun a lot of the time.  However, I have been unable to get a blood test for the levels in my blood.  I know Sedge takes supplements prescribed by the GP and that is surprising in a way that she should be deficient, bearing in mind she and her hubby spend a lot of time in the Mediterranean areas and are naturists to boot!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Venomous

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Re: Vit D studies
« Reply #2 on: 11 January 2017, 07:20:08 PM »
Mine is prescribed by the GP too, but I hadn't realised it would help with all that also, thanks, that was interesting.
T2 and PCOS. Just had large serous adenofibroma removed with ovary and fallopian tube. Bp is now normal!

Novorapid, levemir, trulicity, metformin.

Offline sedge

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Re: Vit D studies
« Reply #3 on: 11 January 2017, 10:58:59 PM »
No I don't Patti - I only ever had one box.  I wasn't allowed any more because 'It has come back up again now - so you don't need them any more'.

Further some time later when the urge to kick someone in the goolies had subsided, I examined to another doc why I was asking, but she also said no - because we don't do that test any more.'

So - I've simply given up.  There is absolutely no point whatsoever continually banging ones head on a brick wall.

Mind you my hips hurt more and more - so I think I may have to gird up m loins again but don't hold your breath - I needed to make a drs apt for something else on Monday and the VERY first one available to anyone, both on the phone and on the internet, was 16th February.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Lucy

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Re: Vit D studies
« Reply #4 on: 11 January 2017, 10:59:23 PM »
I havent had tests for vitamin d deficiency and mine isnt prescribed, but after many years of teeth problems (i'm only 29 and hardly have any back ones left which is awful) since taking an occasional multivitamin and more regular extra vitamin d i have had "all okay no treatment needed" for my last two six month checkups. Never had that before and i know vitamin d can be related to bone strength so i'm thinking maybe its helped my teeth. If its helping other things too then great. I'm sure that assuming i'd be deficient especially in winter is a safe assumption as i dont get much sunlight. Even when i am outside i have jacket etc on.
Type: Lucy. A1C 44 / 6.0% Jan17.
Lantus, Victoza and Apidra. Metformin XR, Bisoprolol (for SVT). Dexcom G4 with xdrip and nightscout.

Offline Pattidevans

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Re: Vit D studies
« Reply #5 on: 11 January 2017, 11:25:43 PM »
Quote
Mind you my hips hurt more and more - so I think I may have to gird up m loins again but don't hold your breath - I needed to make a drs apt for something else on Monday and the VERY first one available to anyone, both on the phone and on the internet, was 16th February.

Blooming heck Sedge, that is truly appalling!

Lucy glad to hear that VitD may be helping!

Sedge... try these http://uk.iherb.com/Healthy-Origins-Vitamin-D3-5-000-IU-540-Softgels/55823
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: Vit D studies
« Reply #6 on: 12 January 2017, 11:34:46 AM »
Can you OD on D ?
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: Vit D studies
« Reply #7 on: 12 January 2017, 12:43:19 PM »
Yes, I understand you can OD.  Cannot recall where I read that 5000iu was a safe and effective dose, cos it was years ago.  Avocado knows a lot about the subject.


How awful, not being able to get an appointment until 16 Feb.  We can usually get a same day appointment regardless of the time we phone up (within reason).  The surgery operates a triage system.  You ring up and they like you to tell the receptionist a bit about what's wrong with you.  GP on duty rings you back and either makes an appointment with your GP (or at least one of theGPs), directs you to make an appointment with a nurse, if appropriate, gives advice over the phone or issues a scrip.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Avocado

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Re: Vit D studies
« Reply #8 on: 12 January 2017, 06:31:00 PM »
Yes, I understand you can OD.  Cannot recall where I read that 5000iu was a safe and effective dose, cos it was years ago.  Avocado knows a lot about the subject.
Yes you can OD on vitamin D, though apparently it takes an awful lot and over a period of several months......however, when I first started take D I was taking 4,000 IU per day over the winter months. My D test came back at 384 nmol/L which is OD (upper lab reference range usually 150nmol/L or 200nmol/L depending on the lab). MY GP freaked. No harm was done though and all I needed to do was to stop taking it for two months and stay out of the sun. I now take 2,500 per day in winter and that dose every other day in summer. I am prescribed vitamin D by GP but have decided to buy my own because that way I get a steady dose each day rather than one big dose once a week (apparently it is more beneficial for the heart to take a dose each day). The only way to be sure of the correct amount of D for you is to get tested and pay for the test if necessary as some do - you can send away for one.

This video by Dr Michael Holick is well worth the hour long watch: https://www.youtube.com/watch?v=2lRtx-4_FOY Also talks about OD and how rare it is. Dr Holick is American so the level of D is measured in ng/ml, something like that, conversion: divide nmol/L by 2.5 to change to ng/ml, and multiply by 2.5 to change ng/ml to nmol/L.

It can take up to five or six weeks to get an appointment at our GP surgery. Atrocious. Patients can see a nurse practitioner for five minutes in a sit and wait clinic but even that gets booked up. Patients are advised to go to a walk-in centre or A&E - so there, you know why A&Es are so busy as GPs are sending patients to them :(
Anne

Atypical Type 2, thin, not insulin resistant, diagnosed March 2007. Very low carb (30 - 50g per day) Paleo diet and exercise - Prandin (Repaglinide) 0.5mg. Aortic Valve Replacement Jan 2014, Osteoporosis, Small airways disease, probable coeliac - Strontium Ranelate 2g/d, Omacor 2g/d, vitamin K2 300mcg/d, Aviticol (vit D3) 20,000 IU every week, Qvar 100 2/day.

Current HbA1c 33 Current total cholesterol 7, HDL 3.5, LDL 3.2, triglycerides 0.4

Offline sedge

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Re: Vit D studies
« Reply #9 on: 12 January 2017, 08:27:35 PM »
Thanks Anne - will have to try and find out how to go about getting a test done myself.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Avocado

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Re: Vit D studies
« Reply #10 on: 12 January 2017, 09:08:10 PM »
Here's a company that someone on the osteoporosis forum I'm on uses whose GP won't test her: http://vitamindtest.org.uk That company works for the NHS too. My GP still does my test every six months along with all my other blood tests at the same time.
Anne

Atypical Type 2, thin, not insulin resistant, diagnosed March 2007. Very low carb (30 - 50g per day) Paleo diet and exercise - Prandin (Repaglinide) 0.5mg. Aortic Valve Replacement Jan 2014, Osteoporosis, Small airways disease, probable coeliac - Strontium Ranelate 2g/d, Omacor 2g/d, vitamin K2 300mcg/d, Aviticol (vit D3) 20,000 IU every week, Qvar 100 2/day.

Current HbA1c 33 Current total cholesterol 7, HDL 3.5, LDL 3.2, triglycerides 0.4

Offline Pattidevans

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Re: Vit D studies
« Reply #11 on: 13 January 2017, 11:12:49 AM »
I think I am going to order 2test kits from there!  Will let you know how it goes.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Quantum Learning

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Re: Vit D studies
« Reply #12 on: 13 January 2017, 08:38:10 PM »
Latest awful tale of NHS incompetence, Vit D this time.

OH who has that rare malabsorption condition was found to be very deficient of several things when finally Dx, one of which was Vit D. On the advice of his immunology consultant & his dietician his GP prescribed 30,000 iu weekly and he was supplementing these himself with 2,000 iu every day that he bought over the counter. This has been for the last 2 years and finally his Vit D levels just cleared the lower threshold of what is acceptable. As soon as they did the GP took them off script claiming Vit D is a lifestyle choice and he must buy them. At the level he was taking them it's more a treatment than a lifestyle choice but he's spoken to 3 different GP's at the surgery now and they all refuse to put them back on script. They're choosing to ignore the recommendations of both immunology and dietician who have written to say he needs them and are in fact ignoring their own 'rules' which say "Vitamin D- when on a dose of 1000 units daily (up to 2000 units daily) you will be given lifestyle advice and advised to purchase over the counter". He's pointed out that 2 years of taking 44000 weekly have only just brought him up to the lowest acceptable level but they won't listen. Apart from the difficulty in getting 30,000 iu Vit D other than on script his specialists are backing him but say they can only recommend not demand. How is it fair that he & others I have read about have to make themselves ill before they're listened to? He has 5 more weeks of the 30,000 iu left but after that his Vit D levels will start to fall and it took 2 years to get them to where they are now. At a loss really as to what to do next.  :(
Type 2 dx Nov 2012 with fasting BG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
June 2017 51/6.8% Chol 6.1
Oct 2017 52/6.9% Chol
Metformin SR 2000mg, Doxazosin 1mg, Omeprazole 20mg, Fexofenadine 180mg Co-Codamol 30/500g when needed. Amitriptyline 20mg
Toujeo/NovoRapid, Allergic to Levemir.

Offline Avocado

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Re: Vit D studies
« Reply #13 on: 13 January 2017, 09:31:42 PM »
Hi Quantum - I think your OH's GPs are incompetent, they've obviously not understood what the specialists say or understood your OH's problem with D. Key in vitamin D 10,000 in Amazon, a page full of different makes of that strength comes back. Here's one: 10,000IU x 365 capsules for £12.49: 10,000IU x 365 capsules for £12.49 https://www.amazon.co.uk/Vitamin-Softgels-Year-Supply-Nutravita/dp/B01EAPTLOG/ref=sr_1_1_a_it?ie=UTF8&qid=1484342128&sr=8-1&keywords=vitamin+D+10%2C000 Taking 30,000 IU per day that would be 4 months worth for £12.49 - that’s not bad I think. But there are several others on that page. Other than that a referral to an endocriniologist ? But if the GPs ignore the specialists it has to boil down to self help.
Anne

Atypical Type 2, thin, not insulin resistant, diagnosed March 2007. Very low carb (30 - 50g per day) Paleo diet and exercise - Prandin (Repaglinide) 0.5mg. Aortic Valve Replacement Jan 2014, Osteoporosis, Small airways disease, probable coeliac - Strontium Ranelate 2g/d, Omacor 2g/d, vitamin K2 300mcg/d, Aviticol (vit D3) 20,000 IU every week, Qvar 100 2/day.

Current HbA1c 33 Current total cholesterol 7, HDL 3.5, LDL 3.2, triglycerides 0.4

Offline Pattidevans

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Re: Vit D studies
« Reply #14 on: 14 January 2017, 09:33:52 AM »
Q, what a terrible situation, it's not as though they are such an expensive drug that they are a huge drain in the surgery's budget.


FWIW I usually find them a bit cheaper on eBay.  Here are some 20,000iu capsules x 30 for £7.61  http://www.ebay.co.uk/itm/HuxD3-20-000IU-Colecalciferol-Vitamin-D3-500mcg-30-Capsules-/252463948903?hash=item3ac8062467:g:nzgAAOSwe7BW0hlX That you could supplement with 10,000 gel caps x 365 for 12.49.  I know it's not right having to fund them yourselves in your hubby's case, but his health is too important not to.


I fear I might be about to fight a battle over B12 as 3 monthly injections are clearly not enough, but we shall see on Monday when I phone the surgery.  Fingers crossed my surgery are usually very good.



Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans