Author Topic: Vit D studies  (Read 696 times)

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Offline Pattidevans

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Re: Vit D studies
« Reply #15 on: 14 January 2017, 09:42:29 AM »
Avocado


I have been thinking over what you said about overdosing on 4,000iu and am definitely going to order the test.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Quantum Learning

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Re: Vit D studies
« Reply #16 on: 14 January 2017, 12:23:10 PM »
Quote
Hi Quantum - I think your OH's GPs are incompetent, they've obviously not understood what the specialists say or understood your OH's problem with D.

Anne, you're not wrong there  :( Funny thing is every time he goes to see them with a new symptom (of anything) they say oh it's probably due to your malabsorption condition, so they do know but apparently have fixated on giving nobody D on script regardless.

Quote
I fear I might be about to fight a battle over B12 as 3 monthly injections are clearly not enough, but we shall see on Monday when I phone the surgery.  Fingers crossed my surgery are usually very good.

Good luck Patti, we've been reading an awful lot re B12 and have found out that the NHS generally undertreats if they condescend to treat at all, many horror stories out there, Lizzie53 was only one of them. A friend of ours has been on injections 3 monthly for over 15 years & says towards the end of the 3 months he starts to feel really ill but they won't do them any more frequently. Apparently it's one of the few vits that can't be overdosed but they seem ignorant of that fact.  :(
Type 2 dx Nov 2012 with fasting BG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
June 2017 51/6.8% Chol 6.1
Oct 2017 52/6.9% Chol
Metformin SR 2000mg, Doxazosin 1mg, Omeprazole 20mg, Fexofenadine 180mg Co-Codamol 30/500g when needed. Amitriptyline 20mg
Toujeo/NovoRapid, Allergic to Levemir.

Offline Avocado

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Re: Vit D studies
« Reply #17 on: 18 January 2017, 11:45:03 AM »
Another option, Quantum, which a friend of mine who has a problem with absorption is considering (she has to take Creon before meals but still tricky to absorb fats and therefore vitamin D) is to get a lamp which supplies light at the wavelength for vitamin D, just like the sun, and so the vitamin D is made in the skin and is not a problem for those with malabsorption. They are pretty pricey though. Here's one on Amazon, 'Dermfix 3000 UV-B Lamp for Vitamin D': https://www.amazon.co.uk/d/Health-Personal-Care/Dermfix-3000-UV-B-Lamp-Vitamin/B004NOPC9S/ref=sr_1_2_a_it?ie=UTF8&qid=1484739250&sr=8-2&keywords=vitamin+D+lamp  I can't vouch for it but it's the only one I've seen.....note this is not one of those tanning lamps, this is just for vitamin D production ! Just like they used to use for kids in olden days who had rickets.
Anne

Atypical Type 2, thin, not insulin resistant, diagnosed March 2007. Very low carb (30 - 50g per day) Paleo diet and exercise - Prandin (Repaglinide) 0.5mg. Aortic Valve Replacement Jan 2014, Osteoporosis, Small airways disease, probable coeliac - Strontium Ranelate 2g/d, Omacor 2g/d, vitamin K2 300mcg/d, Aviticol (vit D3) 20,000 IU every week, Qvar 100 2/day.

Current HbA1c 33 Current total cholesterol 7, HDL 3.5, LDL 3.2, triglycerides 0.4

Offline Quantum Learning

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Re: Vit D studies
« Reply #18 on: 18 January 2017, 02:53:39 PM »
Wow, that's a hell of a price isn't it? I think we'll keep on hammering the gp's, after all they're not following their own guidelines so surely we can make them?
Type 2 dx Nov 2012 with fasting BG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
June 2017 51/6.8% Chol 6.1
Oct 2017 52/6.9% Chol
Metformin SR 2000mg, Doxazosin 1mg, Omeprazole 20mg, Fexofenadine 180mg Co-Codamol 30/500g when needed. Amitriptyline 20mg
Toujeo/NovoRapid, Allergic to Levemir.

Offline sedge

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Re: Vit D studies
« Reply #19 on: 18 January 2017, 08:48:18 PM »
They are GUIDE lines QL - not orders, rules or regulations.  It may well be best practice - after all we take advice from GPs - ie guidelines - but it's up to us whether we follow them or not - and nobody but nobody can make us actually DO whatever it is.

Be interesting to enquire though, for what reasons they don't - what research are they basing their decision on - bearing in mind if you delve deep enough into any NICE Guideline, you can actually find the whole list of which ones THEY considered in reaching their published decisions!
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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  • It's ONLY Diabetes. It could be something worse!
Re: Vit D studies
« Reply #20 on: 18 January 2017, 09:24:45 PM »
I ordered one kit, bearing in mind both of us are taking the supplement.  It arrived today.  I will do it and if I am over the top we will try for Julian to get tests on the NHS or we will buy another one.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans