Author Topic: Don't know where to turn!  (Read 1305 times)

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Offline Pattidevans

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Re: Don't know where to turn!
« Reply #15 on: 03 February 2017, 03:39:12 PM »
Actually I was unable to ascertain the relevant chapters in the book and I have checked both "Using insulin" and "Pumping Insulin".  I am probably being dim!

As it happens I have gone back onto Metformin, though so far only 1000mg per day and BGs have fallen into place... although I have really got to readjust a bit cos I have had a few hypos.

Kathy, yes, I did know about the Neuropathy cocktail, I used it early on (I also had to re-type that whole page on the website before posting it  :) ).  Oddly since BGs have fallen I have had no recurrences, but whether that's down to better control or the B12 injection I had on 5 Jan I don't know.  Vit B12 deficiency can also cause peripheral neuropathy.

Am eating much less as I get full easily again now, but so far I cannot shed any of the lbs I put on!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline everydayupsanddowns

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Re: Don't know where to turn!
« Reply #16 on: 06 February 2017, 10:40:11 AM »
Hi Patti

In my copy (4th ed) it is in Chapter 10, "Find your starting TDD Basals and Boluses' as a section entitled 'Change your TDD to solve a major control issue'.
Mike

Type 1 since: 1991 Last HBA1c: 45 (6.3%)  Total Chol 5.0 (1.9HDL / 2.8LDL / Trigs 0.7)
Pumping NovoRapid in a MiniMed 640G
Blogging at: www.everydayupsanddowns.co.uk

Offline Pattidevans

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Re: Don't know where to turn!
« Reply #17 on: 06 February 2017, 08:19:43 PM »
Hi Mike

Thank you for that info.  I have the fifth edition and chapter 10 is entitled "Find an improved TDD for better control", so may well be the same info re-hashed?  Chapter 11 is "Select, test and adjust your basal rates", 12 is "select test and adjust your carb rates".  Haven't had time to read it yet, but I will.  At the moment BGs seem to be going quite smoothly.  In contrast to my BG average over 90 days being 8.3 with a 3.3 SD, the last 14 days it has been 6.2 with an SD of 1.9 which is a vast improvement.  I guess that's due to being back on the metformin!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: Don't know where to turn!
« Reply #18 on: 06 February 2017, 10:07:33 PM »
Does sound like it Patti, on the face of it.

Err, not sure whether you're exactly pleased or hacked off cos you appear to do so much better on the Met?  I'm not exactly sure how I'd feel - except well at least it solves one problem, deep sigh ...  sort of thing.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: Don't know where to turn!
« Reply #19 on: 06 February 2017, 10:47:51 PM »
Ehhhh Sedge.. it's a balance.  In the night I have been having abdominal pain caused by the diverticular disease and no doubt the met is upsetting it.  I am therefore taking Fybogel Mebeverine which is fibre but also incorporates an anti-spasmodic drug which helps.  Met inhibits B12 absorption which is a problem, but I am having injections (not frequently enough IMHO) OTOH Whilst not on met I piled on 9.5 lbs although I had not changed my diet - I just finished my plate instead of fidgeting with it and leaving half of it.  The extra weight needed more insulin, and also the extra insulin resistance through not taking met increased my dose.  Go figure... I have no idea but at least my numbers have dropped back to "very acceptable" on 1000mg met.

Mostly hacked off because I hate pills all of which have side effects...
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline GrammaBear

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Re: Don't know where to turn!
« Reply #20 on: 07 February 2017, 06:01:53 PM »
Patti - I also have the 5th edition of Pumping Insulin and while the book is most helpful, I think it also raises a few questions that are not addressed or maybe they can't be addressed.

I also take Metformin ER and sometimes I get weary of popping 'another' pill, so I will quit taking it for several weeks.  The only thing I accomplish by stopping the Metformin is that I have one less pill to take, and a different set of problems without it.

Your statement about 'balance' pretty much describes how it is for me.  Right now I'm struggling with this balance.  And like you, I have put on about 9-10 lbs which I most definitely did not need.  When I approached the Endocrinologist about losing weight whilst taking insulin his only comment was "starve yourself."  Oh well, and for this I paid a hefty office visit charge?
Type 1
Tandem Tslim pump Oct 2015
Dexcom G4 CGM Sep 2007
A1C 6.5%~ Sep 2017

Offline Pattidevans

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Re: Don't know where to turn!
« Reply #21 on: 07 February 2017, 08:05:55 PM »
Arghhhhh.... Honestly Kathy I'd really not worry about metformin again.  At least since I started taking it again I have put on no more weight and I have not changed my way of eating.

I do not eat lots.  I rarely have brekkie and if I do it's a slice of Burgen spread with butter and Marmite (other spreads are available but Marmite is virtually no carb - 0.8g per serving and you seriously cannot overdo it as it's fierce stuff!).  Lunch, some sort of home-made soup in this weather, with 2 slices buttered Burgen (12g per slice).  Soup might be carrot and ginger, pea and mint, broccoli and blue cheese, roasted squash, mushroom with a dash of sherry.  Nothing that comes up much over 15g carb per portion.  Dinner will be meat or fish with a good selection of veggies inc green leafy ones and since Xmas I have cut out all potatoes/starch and am doing things like celeriac dauphinoise, swede mash, cauli mash or rice etc.  Tonight I have gone a little OTT with home made Chicken Tikka Masala and Tarka (Lentil) Dahl, but I shall only have a small portion. Cannot seem to lose though so you do have my sympathy!

Particularly since I caught sight of my back in a mirror in a changing room this afternoon whilst I was buying a nice tent!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: Don't know where to turn!
« Reply #22 on: 08 February 2017, 12:46:17 PM »

Particularly since I caught sight of my back in a mirror in a changing room this afternoon whilst I was buying a nice tent!

You have to look for the upside Patti - the time to really start to worry, surely - is when it's a ruddy great MARQUEE !!!
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: Don't know where to turn!
« Reply #23 on: 08 February 2017, 08:52:13 PM »
It's getting there Sedge, it's getting there!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: Don't know where to turn!
« Reply #24 on: 08 February 2017, 10:54:54 PM »
I'm never likely to buy another mountain tent in my lifetime either Patti.  My brief sojourn into them is gone forever, and I'm firmly back into the 6-man patrol tents that were in my wardrobe prior to the escape.  Saw that some girl somewhere was having a whinge on Twitter about shop sizing - think it was a River Island garment where the 14 fitted her, but an 18 from elsewhere was about 4 inches smaller.

She didn't actually care much what the size label said, so good for her! but merely thought they ought to be somewhat nearer to each other if they both said the same size.  She's right of course - Wallis things, you always needed one size down from anywhere else, and they were the only firm that did that then, but now it's absolute pot luck until you try something on.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline GrammaBear

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Re: Don't know where to turn!
« Reply #25 on: 09 February 2017, 01:45:31 AM »
I'm not meaning to hijack your thread Patti-during my diabetes check with the CDE who works for the Endo where I go, I asked her about losing weight whilst taking insulin.  She says......"Well, the official position is 45-60 carbs with each meal..........and I swallowed hard (to keep from laughing) and then I asked her "How do you think I got to looking like I do now?"  She had offered to write me a referral to a dietitian which I politely declined. 

She is a nice young lady but she doesn't know squat about how to manage weight whilst taking insulin.  I think maybe when the weather improves and we can get outside for a nice walk in the evening, that perhaps we will make an improvement in how we feel about ourselves.
Type 1
Tandem Tslim pump Oct 2015
Dexcom G4 CGM Sep 2007
A1C 6.5%~ Sep 2017

Offline Pattidevans

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Re: Don't know where to turn!
« Reply #26 on: 09 February 2017, 10:17:24 AM »
Ha ha 45 - 60 carb per meal.  My evening meal may be 60g at times, due to fruit.  Hope I do not have to cut that out.


Must get out and walk more.... yesterday my friend and I had a choice of a walk or going to the cinema.  We chose the cinema, though to be fair the cinema is in the next village, so 2 miles walk from my house.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline GrammaBear

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Re: Don't know where to turn!
« Reply #27 on: 09 February 2017, 04:01:59 PM »
You are already way ahead of me in the walking department.  At the suggestion of the young CDE that I saw yesterday, I found an app for my phone that counts steps.  I was dismayed to find that I actually walk far less than what I thought I did.  So, for me anyway, that is a place to start.

I also love fruit, especially the fresh citrus that is available here during the winter months.  But I've kind of slacked off testing my bg after I eat the fruit - so I probably need to start doing that.

The way I see it, you made a good choice when you and your friend chose the cinema....you both had a nice walk and perhaps some conversation in addition to relaxing at the cinema before the walk back home.   

Type 1
Tandem Tslim pump Oct 2015
Dexcom G4 CGM Sep 2007
A1C 6.5%~ Sep 2017

Offline sedge

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Re: Don't know where to turn!
« Reply #28 on: 09 February 2017, 05:12:39 PM »
It's absolutely bitter here today and not set to change until next week.  Worse - it's coming from the East (ie the general direction of flippin Siberia) - and where are we going for the weekend in our motorhome? - yes - the Lincolnshire Fens (that's a very flat, generally boggy bit abutting the East coast of England with 'not a lot' sticking up a bit, to stop the wind or weather)

Hey ho - it is at least - a get-together with various friends.  Who all prefer it to be at least a bit warmer.  All the walks around there seem to be long ones (the ways the drainage channels to create the farmland were done way back in history force you to walk miles to get to anywhere even though it may only be a mile away as the crow flies !) so I can't see us getting much done of that.  Even in warm weather - when I was far fitter - I wouldn't have started off on a 5 mile walk by choice for pleasure!  Last time we actually did that - must be 15 years ago - at least it was all downhill coming back and the view from the top in the middle was worth it - but I did seriously wonder if I'd live to see it, a few times!  And it turned out to be very interesting - so we were pleased we went in the end.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4