Author Topic: Prostate Cancer News  (Read 2366 times)

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Offline sedge

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Prostate Cancer News
« on: 06 March 2017, 03:19:32 PM »
Last Thursday evening we were lucky enough to meet someone new - A Prostate Cancer Specialist Nurse.  A MacMillan Nurse with VERY specialist training and skills, who works hand in glove with the three main prostate Oncologists at our hospital now.  As far as he knows - he IS the only one in the whole country - he actually runs some of the clinics and gets much more involved at a personal level with all new patients, more holistically, than any of the consultants can possibly do with the constraints placed on them.

He did a presentation and well, WOW.  Very detailed info presented at the right level for the patients (and their wives!)  What a lovely bloke - I said to him It's like a breath of fresh air listening to you speak - and explained how much I personally value specialist nursing skills - and if I'm any judge of character - he's really GOT it.  Very knowledgeable chap - and he's working his socks off - not only with his patients and consultants, but with the Urology consultants and trying to get the Urology clinic nurses more knowledgeable and helpful to their prostate cancer patients - and also spreading the word to other hospitals.

All the new patients now get access to him, his phone number and email address - and he also sees the 'watchful waiting' ones and the ones like Pete - following up after radiotherapy or like in Pauline's John's case - all the ongoing fallout - and can arrange blood tests and ensure the results get seen by consultants when they need to, and that the results are conveyed properly to the patient and they know upfront what happens next ...... recurrences, chemo - you name it, he can and does get involved, and does the 'hand holding'.  The only thing he can't do right now is prescribing, but that's in the pipeline too!   So if you happen to get in touch because say the plumbing's a bit awry - he can arrange all the necessary tests pdq and you're not hanging around forever waiting on someone without a name to bother to do something.

Fantastic.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Venomous

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Re: Prostate Cancer News
« Reply #1 on: 06 March 2017, 06:11:20 PM »
Glad you had a good appointment, its always nice to meet someone in medicine who seems to know what they're doing and how to do it without making patients lives harder.
T2 and PCOS. Just had large serous adenofibroma removed with ovary and fallopian tube. Bp is now normal!

Novorapid, levemir, trulicity, metformin.

Offline Pattidevans

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Re: Prostate Cancer News
« Reply #2 on: 06 March 2017, 07:27:59 PM »
He sounds like a real asset Sedge.  We have 2 specialist prostate cancer nurses who work in the urology department and we have always had their work mobile numbers.  Only had to ring once and lo and behold both were unavailable, but when we did speak to them they were absolutely fab.  I know they have been absolutely supportive with my friend's hubby who is  not able to have the op (too old and the cancer has spread a bit).

Glad to hear you have someone to support you, specially after all the shilly shallying around with Pete's appointment dates!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Paulines7

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Re: Prostate Cancer News
« Reply #3 on: 07 March 2017, 12:38:30 AM »
How is Pete now, Sedge?  I hope all is well with him.

John has another appointment to treat his blood vessels tomorrow and hopefully, he will find out how many more treatments will be necessary.  They were weekly to begin with in October, then fortnightly and are now monthly.  The nurses who give him his treatment have really got to know him now because he went in for an x-ray last week for a chest infection and ran into two nurses, at two separate locations, who said hello to him using his forename.  He seems to know all the nurses in urology now and knows which ones can perform the procedure and not cause too much pain. 

I don't thing the cancer nurse that we saw at the very beginning in 2010 is still there.  Maybe though, she just deals with newly diagnosed patients.
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline Paulines7

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Re: Prostate Cancer News
« Reply #4 on: 08 March 2017, 10:50:54 AM »
Good news.  John has finished his treatment at the hospital and the procedure seems to have worked.  Hopefully the blood vessels will not start bleeding again.  He had between 10 and 12 sessions altogether.  They insert a tube into the bladder and then using a syringe, they put in a chemical that is naturally found in the body.  It forms a coating over the damaged area.  This was caused when he had radiotherapy to the prostate area, five years ago. 

John was also told that the very slight rise in his PSA was probably due to this treatment and is nothing to worry about.
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline Pattidevans

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Re: Prostate Cancer News
« Reply #5 on: 08 March 2017, 03:07:53 PM »
Phew... what a relief Pauline.  So glad you have this good news!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: Prostate Cancer News
« Reply #6 on: 08 March 2017, 04:03:09 PM »
Ah - that's really good to hear Pauline - how lovely to have such positive news for a change.  What a relief.

XXX to you and John from me - and Man Hugs from Pete LOL
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline TerryJ

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Re: Prostate Cancer News
« Reply #7 on: 09 March 2017, 10:39:15 AM »
I stumbled across some prostate news online as per attached.
Type 2 since 1999. Current meds Gliclazide
HbA1c Feb10 10.9, May10 7.7, Oct10 6.6, Oct11 6.7, Dec12 6.4, Nov13 6.9

Offline sedge

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Re: Prostate Cancer News
« Reply #8 on: 09 March 2017, 01:34:41 PM »
Thanks Terry - however none of that is actually new LOL

A hell of a lot more men still die WITH prostate cancer they never even suspected, than die of it.  But as the latter is still 10,000 chaps a year (in the UK - plus everywhere else worldwide) it's a significant burden on society as a whole, including obviously the NHS here.  Once it gets to metastases stage, there's a new treatment they're currently trying before resorting to 'normal' chemo and which is much better tolerated by the majority of men and maintains a much better QOL for years - and they hope more years but it isn't that old yet! -  as opposed to months.  It's a jab once a week for X weeks rather than an intravenous infusion too so much simpler easier and less time consuming to administer.

Things move on apace it seems - the opposite of diabetes research!
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Alan

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Re: Prostate Cancer News
« Reply #9 on: 10 March 2017, 09:23:58 PM »
Last Thursday evening we were lucky enough to meet someone new - A Prostate Cancer Specialist Nurse.  A MacMillan Nurse with VERY specialist training and skills, who works hand in glove with the three main prostate Oncologists at our hospital now.  As far as he knows - he IS the only one in the whole country - he actually runs some of the clinics and gets much more involved at a personal level with all new patients, more holistically, than any of the consultants can possibly do with the constraints placed on them.

He did a presentation and well, WOW.  Very detailed info presented at the right level for the patients (and their wives!)  What a lovely bloke - I said to him It's like a breath of fresh air listening to you speak - and explained how much I personally value specialist nursing skills - and if I'm any judge of character - he's really GOT it.  Very knowledgeable chap - and he's working his socks off - not only with his patients and consultants, but with the Urology consultants and trying to get the Urology clinic nurses more knowledgeable and helpful to their prostate cancer patients - and also spreading the word to other hospitals.

All the new patients now get access to him, his phone number and email address - and he also sees the 'watchful waiting' ones and the ones like Pete - following up after radiotherapy or like in Pauline's John's case - all the ongoing fallout - and can arrange blood tests and ensure the results get seen by consultants when they need to, and that the results are conveyed properly to the patient and they know upfront what happens next ...... recurrences, chemo - you name it, he can and does get involved, and does the 'hand holding'.  The only thing he can't do right now is prescribing, but that's in the pipeline too!   So if you happen to get in touch because say the plumbing's a bit awry - he can arrange all the necessary tests pdq and you're not hanging around forever waiting on someone without a name to bother to do something.

Fantastic.

I can offer free accommodation in a lovely seaside village, excellent surf, quiet estuaries, good fishing by the creek, free sightseeing tours, if he'd like a holday down under.

Duodart appears to have improved the plumbing, PSA is good so at this stage aparently not cancer just 5x size :(.
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
There is nothing I could eat I like more than my eyes.
Type 2 Diabetes - A Personal Journey (latest: Small New York Baked Low Carb Cheesecake)
Born Under a Wandering Star (Latest:Dambulla, Sigiriya and Polonuwarra, Sri Lanka)

Offline Pattidevans

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Re: Prostate Cancer News
« Reply #10 on: 10 March 2017, 10:07:50 PM »
Glad to hear all seems well Alan!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: Prostate Cancer News
« Reply #11 on: 11 March 2017, 01:23:35 PM »
Hee hee - I had to look it up.  BPH is not a condition I know anything about apart from the obvious - it doesn't really get discussed so although you know when you Google that the flow problem doesn't automatically mean C - when your PSA indicates there's a chance of it, you do tend to concentrate your attention on the C - and of course, you don't qualify for Josh professionally cos you don't have C, so wouldn't even meet him.  But - I'm very glad you haven't !  and the C patients here don't want him to go to Oz just in case he likes it LOL
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Alan

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Re: Prostate Cancer News
« Reply #12 on: 11 March 2017, 10:55:55 PM »
Glad to hear all seems well Alan!

Thanks. I just looked up all the possible side effects of DuoDart. A little uncomfortable about some of those; between the devil and the deep blue sea...
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
There is nothing I could eat I like more than my eyes.
Type 2 Diabetes - A Personal Journey (latest: Small New York Baked Low Carb Cheesecake)
Born Under a Wandering Star (Latest:Dambulla, Sigiriya and Polonuwarra, Sri Lanka)

Offline sedge

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Re: Prostate Cancer News
« Reply #13 on: 12 March 2017, 12:49:13 AM »
And you're not uncomfortable with what you are taking it to relieve?

It's a bit like most things Alan - which is worse - the complaint you need relief from - or the possible side effects of any treatment for it?

Blame the designer of a blokes urinary plumbing system to go smack through the middle of his reproductive bits - ladies were designed a good deal more sensibly really!  But there again, the designer had probably had time to reflect on the daft mistakes he made with the prototype, by the time he got round to us!
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: Prostate Cancer News
« Reply #14 on: 12 March 2017, 10:36:07 AM »
You have a lovely turn of phrase Sedge.


I just had a google of Duodart, I see it is not to be used for women or children.  Wonder why not?
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans