Author Topic: Prostate Cancer News  (Read 2256 times)

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Offline Alan

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    • Type 2 Diabetes - A Personal Journey
Re: Prostate Cancer News
« Reply #15 on: 13 March 2017, 01:09:37 AM »
And you're not uncomfortable with what you are taking it to relieve?

I am, but it's all a matter of whether the cure is worse than the condition. My main symptom was the typical one (stop here if TMI is a problem :) ): restricted, slow and occasionally painful peeing.

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It's a bit like most things Alan - which is worse - the complaint you need relief from - or the possible side effects of any treatment for it?

These are the cause for my concern:
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Dutasteride Side effects Dutasteride may cause the following side effects:
 
  • Heart failure
  • Swelling of the eyelids
  • Skin rash
  • Impotence, decreased libido, and gynecomastia (breast enlargement)[/l][/l]
Tamsulosin is even less cheerful:

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Side Effects
Along with its needed effects, a medicine may cause some unwanted effects. Although not all of these side effects may occur, if they do occur they may need medical attention.
Check with your doctor immediately if any of the following side effects occur:
 More common
  • Cough or hoarseness
  • fever or chills
  • lower back or side pain
  • painful or difficult urination
Less common
  • Chest pain
Rare
  • Dizziness or lightheadedness
  • dizziness, faintness, or lightheadedness when getting up suddenly from a lying or sitting position
  • fainting
  • feeling of constant movement of self or surroundings
  • painful or prolonged erection of the penis
  • sensation of spinning
Incidence not known
  • Blistering, peeling, or loosening of the skin
  • blurred vision
  • confusion
  • diarrhea
  • difficult or labored breathing
  • fast, pounding, or irregular heartbeat or pulse
  • itching
  • joint or muscle pain
  • large, hive-like swelling on the face, eyelids, lips, tongue, throat, hands, legs, feet, or sex organs
  • red skin lesions, often with a purple center
  • red, irritated eyes
  • sore throat
  • sores, ulcers, or white spots in the mouth or on the lips
  • sweating
  • tightness of the chest
  • unusual tiredness or weakness
Some side effects may occur that usually do not need medical attention. These side effects may go away during treatment as your body adjusts to the medicine. Also, your health care professional may be able to tell you about ways to prevent or reduce some of these side effects. Check with your health care professional if any of the following side effects continue or are bothersome or if you have any questions about them:
 More common
  • Abnormal ejaculation
  • back pain
  • body aches or pain
  • congestion
  • headache
  • lack or loss of strength
  • sneezing
  • stuffy or runny nose
  • tender, swollen glands in the neck
  • trouble swallowing
  • voice changes
Less common
  • Decreased interest in sexual intercourse
  • decreased sexual drive or performance
  • drowsiness
  • inability to have or keep an erection
  • increased cough
  • loss in sexual ability, desire, drive, or performance
  • nausea
  • pain or tenderness around the eyes and cheekbones
  • sleepiness or unusual drowsiness
  • tooth disorder
  • trouble sleeping
Incidence not known
  • Constipation
  • hives or welts, skin rash
  • redness of the skin
  • vomiting
Other side effects not listed may also occur in some patients. If you notice any other effects, check with your healthcare professional.
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Blame the designer of a blokes urinary plumbing system to go smack through the middle of his reproductive bits - ladies were designed a good deal more sensibly really!  But there again, the designer had probably had time to reflect on the daft mistakes he made with the prototype, by the time he got round to us!

Too true :)[/list]
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
There is nothing I could eat I like more than my eyes.
Type 2 Diabetes - A Personal Journey (latest: Small New York Baked Low Carb Cheesecake)
Born Under a Wandering Star (Latest:Dambulla, Sigiriya and Polonuwarra, Sri Lanka)

Offline Pattidevans

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Re: Prostate Cancer News
« Reply #16 on: 13 March 2017, 09:51:57 AM »
As an alternative to taking some of these horrid drugs don't some chaps have a TURPS procedure aka "a bore"?
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: Prostate Cancer News
« Reply #17 on: 13 March 2017, 11:58:44 AM »
Yes Patti.  Possible side effects of TURPS are

Bladder injury.
Bleeding.
Blood in the urine after surgery.
Electrolyte abnormalities.
Infection.
Loss of erections.
Painful or difficult urination.
Retrograde ejaculation (when ejaculate goes into the bladder and not out the penis)

LOL

Anything involving that part of a bloke is risky.  End of story - you makes yer choice and if you have to pay for it you have to accept that.  However - there is still a fighting chance that you won't have to pay.

So - travel hopefully is my motto !
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline sedge

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Re: Prostate Cancer News
« Reply #18 on: 20 April 2017, 05:41:20 PM »
On the brighter side today LOL

Pete's January appointment with the surgeon was yesterday - his PSA is still 'undetectable'.  Great !
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: Prostate Cancer News
« Reply #19 on: 20 April 2017, 08:33:35 PM »
What lovely news for the pair of you!  So happy for you too!

J had his 2nd 3 month review earlier this month and ditto... undetectable! We were very happy and now he goes to 6 monthly checks.  :)
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: Prostate Cancer News
« Reply #20 on: 20 April 2017, 09:07:47 PM »
Yay!  Good they're both - or rather all three with John - doing well at the mo.

Long may this continue for all of them.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: Prostate Cancer News
« Reply #21 on: 20 April 2017, 10:32:45 PM »
Totally agree Sedge!  Best love to Pete!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Paulines7

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Re: Prostate Cancer News
« Reply #22 on: 21 April 2017, 11:08:43 AM »
I am very pleased to hear that Pete and Julian's PSA are again undetectable.  This is such good news.

John still hasn't had any problems with bleeding since his treatment to heal the blood vessels and you can imagine how pleased we are about that.  To think that the consultant he was under up to September last year wasn't going to do anything about it despite the fact that John was in and out of hospital for two or three days having to have the clots flushed out..... a very painful process.   Asking for a second opinion really paid off.
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline sedge

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Re: Prostate Cancer News
« Reply #23 on: 21 April 2017, 11:50:00 AM »
Well Pauline, someone we know from a local support group said to us that Pete shouldn't have left having his blood test till now, he should have gone and had it done in January.  But the only thing is, to find out the result he'd still have had to wait till he saw the consultant to get the flippin result since it wasn't from the GP.  Or he could have made a GP appointment in 5 weeks time, to get a GP PSA blood test form, then another appt to get the blood taken then have to remember to ring in the weekly 2 hour slot the following week to get the damned answer.

It's really SUCH a lot of hassle to achieve such a simple thing - that it was so much easier just to leave it and hope for the best.  I mean if it had shot up, he STILL wouldn't have been by the hospital any quicker.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: Prostate Cancer News
« Reply #24 on: 21 April 2017, 12:57:04 PM »
Pauline

Very pleased to hear John's news.

Sedge

Your area sounds horrendous with waiting times and GP's appointments.  I am very glad it's not like that here.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Paulines7

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Re: Prostate Cancer News
« Reply #25 on: 22 April 2017, 09:57:01 AM »
Well Pauline, someone we know from a local support group said to us that Pete shouldn't have left having his blood test till now, he should have gone and had it done in January.  But the only thing is, to find out the result he'd still have had to wait till he saw the consultant to get the flippin result since it wasn't from the GP.  Or he could have made a GP appointment in 5 weeks time, to get a GP PSA blood test form, then another appt to get the blood taken then have to remember to ring in the weekly 2 hour slot the following week to get the damned answer.

It's really SUCH a lot of hassle to achieve such a simple thing - that it was so much easier just to leave it and hope for the best.  I mean if it had shot up, he STILL wouldn't have been by the hospital any quicker.

Another problem to watch out for when having a PSA test at the GP surgery, is that they can say the result is "normal" when it is in fact high for a man who no longer has his prostate!  This happened to John.  When he rang for the result, he was told by the receptionist that a GP had marked his notes "normal" and filed them away. John insisted he was given the actual reading and it was high for someone in his situation.  When he pointed out the error to the receptionist, she arranged for a GP to call him.  He was then referred urgently to the hospital consultant who started him on hormone treatment straight away.
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline sedge

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Re: Prostate Cancer News
« Reply #26 on: 22 April 2017, 11:38:06 AM »
Well yeah Pauline - and it is precisely because of this happening (the curse of the receptionist) that our surgery have this 2 hour slot where you ring for results - the person manning the line needs to understand what it is that the caller really wants/needs to know - and actually to have sufficient standing at the surgery to be able to convey any queries to the correct person, and make sure the correct further action is taken.

A receptionist wouldn't understand why a 'normal' result ever could not be acceptable to a patient.  And with a good few of em you're wasting your time trying to explain - they are simply, not whatsoever interested.

Funnily enough the lady that womans the results phone - used to be one of the reception staff LOL  But when they re-organised they made sure her talents weren;t wasted.  She also deals with complaints up to a certain level.  She can be very firm indeed when people get belligerent!  She's lovely!  LOL
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Liam

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Re: Prostate Cancer News
« Reply #27 on: 22 April 2017, 12:38:01 PM »
Glad to hear how well all the blokes are doing right now. Guess that is just proof of them saying Prostate cancer is one of the most treatable if caught early. As diabetics I guess we are used to having to ask for the numbers from test results. I'm sure we have all come up against a receptionist that just wants to say 'normal' or 'within range' rather than give the numbers. I guess on the other side of that, you don't want a receptionist to say to someone 'oh your fasting BG test, has been marked type II diabetes', should be someone that knows what they are talking about saying that to someone.
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline Idreamofchocolate

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Re: Prostate Cancer News
« Reply #28 on: 22 April 2017, 12:49:43 PM »
Just catching up with some threads, sorry I'm late to this one. I have to say I'm surprised to read how many people on the forum who are affected by prostrate trouble. Patti, Sedge and Pauline with hubbies who are having problems, and Alan - are there more I have missed?


My husband had tests a couple of years ago because he was finding it difficult to wee. I had to cajole him into going to a weekend general 'invitation' to anyone for assessment at the hospital, and he only went then because his brother in law went too. A 'safety in numbers' thing. All was deemed OK, but he still doesn't go to the toilet properly in my opinion. I don't think I've heard him pass water normally for ages now; he's constantly straining. But he won't be moved and refuses to be tested again. If it's not prostate enlargement, what could cause the difficulty in passing water?


I'm so pleased that all is going well for the four of you, and I hope it long continues
Maureen

Type 2 diagnosed June 08. Taking Amlodipine 10mg, Doxazosin 12mg and Propranolol 20mg

“When having a smackerel of something with a friend, don't eat so much that you get stuck in the doorway trying to get out.” A. A. Milne

Offline Pattidevans

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Re: Prostate Cancer News
« Reply #29 on: 23 April 2017, 09:04:18 AM »
Just catching up with some threads, sorry I'm late to this one. I have to say I'm surprised to read how many people on the forum who are affected by prostrate trouble. Patti, Sedge and Pauline with hubbies who are having problems, and Alan - are there more I have missed?


Yes, Himtoo has it, not been seen since he went off to the USA to visit his parents.  He's going down the "watch and wait" route.  Funnily enough there were 5 blokes at the DSF meet and 4 of the 5 blokes were affected, though we did not know about Julian until 2 days later when the GP rang us whilst we were on our way home.


Quote

My husband had tests a couple of years ago because he was finding it difficult to wee. I had to cajole him into going to a weekend general 'invitation' to anyone for assessment at the hospital, and he only went then because his brother in law went too. A 'safety in numbers' thing. All was deemed OK, but he still doesn't go to the toilet properly in my opinion. I don't think I've heard him pass water normally for ages now; he's constantly straining. But he won't be moved and refuses to be tested again. If it's not prostate enlargement, what could cause the difficulty in passing water?


I'm so pleased that all is going well for the four of you, and I hope it long continues


The problem is often the interpretation of "normal" Maureen.  When Julian had a test 5 years ago he was told "normal" as his PSA was 5.9.  Had it been 6 it would have been abnormal - so really he should have at least tested annually.   When it was finally diagnosed his PSA was 13.  Having said this many men die with prostate cancer and have had it years without knowing, but they die of other, unrelated causes.  However, if it was my hubby I should be concerned f he was having waterworks problems.  It could just be benign prostate enlargement but it must be uncomfortable for him.  Can you persuade him to have another check?
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans