Author Topic: He returns  (Read 1042 times)

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Offline John

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Re: He returns
« Reply #15 on: 27 April 2017, 02:02:44 PM »
HI Patti
There are times when a ton of bricks are needed  :D

Having just read your post and gone back and read mine again I now realise there is some important information about my diet at the moment that I mentioned but didn't go into detail of, I will correct that shortly with a separate post.

Biscuits at bed time, this is also part of the current trial but the reason for it goes back to just after I was diagnosed. After a few months I had a good level of control over my BG but I was getting the dreaded dawn phenomenon which was really annoying me, waking up in the early hours boiling hot and sweating. SO I embarked on a mission to try and sort it out by trying different foods and combination of foods and I found that either two digestive or hobnobs gave me the best results and I was only getting the dreaded dawn phenomenon about 1 night in every 10. I do stop it at times but if it starts happening again I go back to it.


You are correct I take statins every night and have done in one form or another for the last 15 years. Steroids , in their pure form, I have been taking on and off for years for various reasons and at the moment I take them for a week every 3 months or so as a booster, my doctor said he would like to put me on them permanantly but they have too many side effects for him to do that unless absolutely necessary.


Doctors change my meds every now and then but my current list is


Amiodarone
Amlodipine
Atorvastatin
Bisoprolol
Digoxin
Pizotifen
Ramipril
Ranitidine
Warfarin


Pain killers - Codeine, tramadol and naproxen not all at the same time but in some sort of rotation so I dont get addicted to any one, also depending on the current level of pain.


And of course diabetes meds which currently are Metformin SR and Gliclazide.


I am very lucky with my DSN as she knows her subject very well and is extremely helpful and doesnt always follow NHS guidelines. I did ask her if she was diabetic herself but she says she isnt just very interested in the subject.


Of to type that other post now.


regards
john


PS how do I do my signature and read my messages please.  :)
John

Type 2, diag 2006, Metformin sr 1000mg, Gliclazide 160mg, Levemir 16units

Offline Liam

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Re: He returns
« Reply #16 on: 27 April 2017, 03:49:58 PM »
PM / sigs are locked for 'new' members, keep active on the forum and the software will give you access to them. 
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline John

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Re: He returns
« Reply #17 on: 27 April 2017, 04:10:39 PM »
PM / sigs are locked for 'new' members, keep active on the forum and the software will give you access to them. 

Thank you Liam I thought that was the case.

john
John

Type 2, diag 2006, Metformin sr 1000mg, Gliclazide 160mg, Levemir 16units

Offline John

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Re: He returns
« Reply #18 on: 27 April 2017, 05:31:18 PM »

Firstly thank you for all you help and suggestions it is appreciated and normally I would be acting on them, however, as I mentioned above things are slightly different at the moment. I should have explained exactly what is going on with my diet and trying different meds earlier on so apologies for not doing so.


With regards to trying a different diet I did this about 18 months ago and for 12+ months with help/suggestions from my DSN. I am sure you all know the procedures and do them yourselves every day that wonderful routine of testing BG then having something to eat or drink then testing at regular intervals to see what happens. That wonderful adventure that keeps us interested and stops us from getting bored. Unfortunately it made no difference to my BG and at the next HBA1c it had gone up again.


So 3 months ago when I had my last check up we decided to try out different meds to see if we could get them down again, but there was a small problem in that we needed a base line to judge their effectiveness against. So it would be a case of sticking to a standard diet of my choice and measuring my reaction to it with the different meds. At this point I mentioned to her the food diary I had found a couple of months beforehand, when clearing out the box room, which I had recorded 5 1/2 years ago which is a different story all by itself.


So into the time machine and back 5 ½ years. Whoo whoo whoo


2011
I was approaching the point of diabetes burnout and I was just fed up with all the finger pricks, the little black dots covering my fingers and missing out on things I liked. At my check up my HBA1c was the lowest I had ever been at 5.6 which made me feel better and I had a long chat with the DSN about how I was feeling and went home feeling a lot better. Over the next two weeks though things deteriorated again until I got to the point where I said enough and put my blood meter away. I continued to take my meds but I allowed myself treats and I wasn’t bothered what it did to my BG, gradually I felt a lot happier. Everything seemed to be OK and then we went on holiday for a week to Cornwall and all those wonderful things such as pasties, cream teas, clotted cream fudge and ice cream etc, I think I slightly overdid it.


We came home up the M5 onto the M4 stopped off in north London to see my mum and then back up the A1. I am not sure how many services there are on the M5 & M4 but I think I stopped at every one either to use the toilet or buy something to drink or both and the itching drove me mad I think I wore a hole in the drivers seat trying to get comfortable. It was about Bristol I decided to go back on my diet and start testing again. By the time we got home and I had fished my meter out from where I had chucked put it away and taken a reading it was quite high somewhere north of 25, so considering I had been driving for about 8 hours and not had a lot to eat I hate to think what it was at its highest.


So to help get back on track I kept a food diary with everything I ate or drank and the associated BG readings in it for the next 2 months. I got back on track but kept things a bit easier for myself and aimed at an HBA1c between 6.5 and 7.5.


So back in the time machine whoo whoo whoo


And back to the present day, so I had this document which we decided to use for comparison so what I am eating now is the same as I did back then, but unfortunately the BG results are not the same.


Eating the same food at the same portion sizes is producing very different readings where a meal used to raise my BG by 5 points and return to the before readings in about an hour and a half it now raises my BG by about 15 points and takes hours to come down again.


One thing I have noticed today is the effect that tea and coffee currently has on me. According to the diary it didn’t use to raise it at all but now it does by about 2 points over the next hour and it was stable beforehand. This could be due to the milk we use, I was diagnosed with Lactose intolerance about 30 years ago which was not fun as there was not a lot of products out there for me. I grew to hate goat and sheep milk and cheese. Back when I was doing the diary things had changed and you could get Lactaze enzine pills from some places which I took when I had any dairy and still do. These days we use Lactose free milk which has 3g carbs per 100mil. I thought this wouldn’t matter as I only use a small splash but it seems it does. We have one of those pod machines, which is wonderful and I highly recommend if you like fresh coffee, this afternoon I had a latte with their milk and a pill and my BG went down by 3.5 points over about an hour after I had drunk it and it was stable beforehand. I have ordered some normal semi skimmed milk and will go back to this and taking a pill to see what happens and how it compares to the diary.


This is the reason I am sticking to my current diet so apologies again if you think I am just ignoring your advice I am not and will act on it once it is decided what we are going to do.


I see the insulin getting closer but there are some changes happening but I will give it a few days before I say anything in case it is just a blip and not a change.


john

John

Type 2, diag 2006, Metformin sr 1000mg, Gliclazide 160mg, Levemir 16units

Offline Pattidevans

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Re: He returns
« Reply #19 on: 27 April 2017, 07:08:17 PM »
Hi John

Just did a quick check on your meds and I can see nothing that would raise BGs except the steroids which you take occasionally.  However any pain or physical stress e.g. inflammation etc can cause raised BGs due to the body producing cortisol which is a natural steroid.  Members are often very surprised at how much this can affect BGs.

You've certainly experimented with your diet and you've seen for yourself after your holiday in Cornwall what all those evil goodies can do to you  ;) ;)

Apart from that your DSN seems quite clued up.  Perhaps your diabetes has just progressed and you're not producing enough insulin yourself.  You can only try what she suggests I guess.  Insulin isn't the worst thing to go onto.  I'd be wary if she tries to put you on mixed insulin, but it does suit some people, especially if they have a fairly rigid timetable and eat more or less the same amount of carbs at each meal per day.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Paulines7

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Re: He returns
« Reply #20 on: 28 April 2017, 10:37:23 AM »

HI

Just read your sig and see you have a pacemaker as well, how are you getting on with it? I find mine wakes me up at night if I lie on it wronglly still as the doctor said having a lump of metal in you and disturbed sleep is better than the alternative.

I only have the orange juice as a treat maybe once every 2 months not sure why I included it in the list.

Thanks for the links very interesting I hadnt got that far into the forum yet.

regards
john

Hello again John.  My pacemaker was inserted 8 years ago as I had a very low pulse rate.  Since having it fitted, I have not had any problems with it and I am not aware that it is there.  The battery now has about 12 months before it has to be replaced, so they are checking it every three months. When they do replace it, I will probably be fitted with a more up to date one so I am not sure how that one will be. 

I am on Tramadol too for my arthritis.  My GP said it was better to take it daily to keep the pain away than to just have it when the pain is there.  I have 2x50mg in the morning and the same at night, but I can take up to 8 a day when the pain is severe.  Fortunately, that is not very often now so the regular dose seems to be working. 

We holiday in Cornwall  a couple of times a year and I too get tempted with the occasional pasty. Ice cream is also a weakness of mine but I limit the damage by having a small tub rather than a cone.  A sugar cone is 8.41 carbs and a wafer one 3.16 and that is without the ice cream!
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline John

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Re: He returns
« Reply #21 on: 02 May 2017, 12:56:56 PM »
HI Patti

Sorry for the delay in answering but it has been a busy weekend with lots of visitors and trips out, plus also I have a bee in my bonnet about one of my drugs which might be causing the problems, but more about that in a different thread,

Cortisol, I thimk I must produce bucket loads of that every day ;D


yes my DSN is very good and it could be that it has gone downhill she explained what might be happening with my pancreas etc a couple of weeks ago, have to see what she says on Friday.


john
John

Type 2, diag 2006, Metformin sr 1000mg, Gliclazide 160mg, Levemir 16units

Offline John

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Re: He returns
« Reply #22 on: 02 May 2017, 01:07:47 PM »
HI Pauline

When you get the new one hopefully it will be better fitted than mine, it seems to be in slightly the wrong place looking at various diagramme and a couple of other peoples I know with them. Still the specialist is happy with it and it is doing the job so no real complaints.

I am currently on codeine as my hip has flared up again but will probably go back to tramadol in a couple of weeks time. Like wise I take a dose in the morning and one just before I go to bed plus one or two during the day as/if needed. I got addicted to codeine a several years ago and it wasn't very nice coming of it so we chop and change the pain killers to stop this happening again. Also I have found that after a while of taking them they become less effective so a change every now and then keeps them working well.

john
John

Type 2, diag 2006, Metformin sr 1000mg, Gliclazide 160mg, Levemir 16units

Offline Alan

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Re: He returns
« Reply #23 on: 02 May 2017, 11:49:13 PM »
Hi Patti

Its good to be back.
G'day John and welcome back.

Quote
Yes there are a number of people I remember still here but also a lot of new ones, some of them might be people I recommended your site to,  ;)

Gliclazide is basically a hail Mary attempt as I have tried some of the other drugs with no effect other than nasty side effects. I really should check the doses of things I am currently on, I am taking 1000mg of sr metformin, up to about 3 months ago I was on 2000mg but the side effects were causing me problems in other areas of my health. Along with my DNS we dropped the dose to 1000mg and monitored the situation and it made virtually no difference to my BG  and the side effects have almost gone away so good all round.

I have tried a number of other drugs over the last few months and been warned about the side effects and to stop taking the drugs immediately if I got them, none of them worked but all of them were horrendous. My DNS is currently going over things again to see if there is anything else we can do before we go down the insulin route.

I am resigned to taking insulin and realise that it is the best if not only way I can continue to live symptom and complication free. It is just the thought of the steep learning curve needed to get on top of the treatment, plus all the additional stuff I will have to add to my too go bag.  :D  And of course to find room in the fridge for insulin supplies.

Based on your description of the recent increases and your drug trials I would suggest you stop avoiding the insulin decision. However, until that time, a review of your menu may help.
Quote
Diet is a whole story all by itself as I have been trying all sorts of variations, but at the moment I am keeping to a standard one which is not the best but is a good base to tell if the drugs are having any effect.

Breakfast, either a glass of orange or apple or toast or eggs and bacon.

Lunch, A sandwich or low carb crackers and meat or meat and a bit of salad.

Evening, Cooked meal consisting of meat, a small portion of potatoes and peas.

Bedtime, a couple of digestive or hobnobs.

Patti has already indicated some problem areas there. I consider the only legitimate use for fruit juice for a diabetic is as a hypo corrector. I notice a lack of variety in veges; I suggest an increase in leafy greens and other low-starch veges if you can. For the rest please read this: Test, Review, Adjust

One word of caution. As you are on glic if you decide to give that a try do not make drastic changes to the menu. Modest changes made consistently will still work without risking hypos. You may need to discuss reducing meds or changing dose timing with your doctor as you reduce the carbs. It works most efficiently if you do a little extra testing to discover when your peak occurs after meals and use that timing. If you are not sure, use one hour after your last bite until you discover your peak.

If dietary improvement does not help your next step should be insulin, not another oral med, IMO.

PS. Just noticed this:
Quote
Steroids , in their pure form, I have been taking on and off for years for various reasons and at the moment I take them for a week every 3 months or so as a booster

Are you able to check from your records if there is a relationship between your steroid intake and increases in BGs? They can lead to dramatic spikes in some people. As a side issue I would not take a statin if I was paid to, despite high LDL.
Cheers, Alan, T2, Australia.
--
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Type 2 Diabetes - A Personal Journey (latest: Small New York Baked Low Carb Cheesecake)
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Offline John

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Re: He returns
« Reply #24 on: 07 May 2017, 01:07:00 PM »
HI Alan

Sorry I missed your post before, not sure how.

Thank you for the welcome.

I should have said that I have not had pure steroids for about 8 years now, in the past it did cause spikes as you say but hopefully I wont be taking them again.

john
John

Type 2, diag 2006, Metformin sr 1000mg, Gliclazide 160mg, Levemir 16units