Author Topic: Diabetic retinopathy changes  (Read 403 times)

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Offline Pattidevans

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Diabetic retinopathy changes
« on: 10 May 2017, 10:43:03 AM »
Went for my yearly check today and for the first time I have a minor change in my right eye.  Very small bleed.  The technician said "It's through having your BG too high"... so evidently I should lower it, though the Endo has said to raise it!  To be perfectly honest I think the damage was done when I came off Metformin and was running BGs in the teens for a period last year and earlier this year.  I had a whinge about it in the forum at the time.

Anyway he did say it was "very minor" and that my letter should say so and that I have a good chance of reversing it if I stay in range.

I have been pretty stable since about last Sat - so hopefully I can reverse it!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline colette3

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Re: Diabetic retinopathy changes
« Reply #1 on: 10 May 2017, 01:06:13 PM »
Of bloomin' course you can!!  You're our role model and even role models get a blip from time to time.  One step at a time and don't stressxxx

Offline Liam

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Re: Diabetic retinopathy changes
« Reply #2 on: 10 May 2017, 04:17:52 PM »
Sorry to hear this Patti. I'm sure even if it doesn't heal totally it is just a blip. I've never managed to totally heal mine (mine came after rapidly getting good control from bad) but it hasn't changed in all that time either.
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline Pattidevans

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Re: Diabetic retinopathy changes
« Reply #3 on: 10 May 2017, 07:15:49 PM »
Thanks both!  I have to say I am not mega-worried!  Maybe simply because I have too many other things on my mind, but hey..... I am sure it will be OK long term if I can maintain good control.  FWIW I had another hypo late afternoon/early evening today 2.4 despite the basal tweaks the Endo asked me to do.  BUT... it was about half an hour after visiting the Physio who did some sonar treatment on my lower back and buttocks and the last time she did that I hypoed all evening!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline nytquill17

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Re: Diabetic retinopathy changes
« Reply #4 on: 10 May 2017, 07:46:40 PM »
Have you been doing a lot of rollercoastering with all these hypos? Might be that too - in fact I'd bet money on it. Stable but slightly higher is better than constant downs and ups.

Glad to hear you aren't worried! I'm sure it will sort itself out, you already know all the "success stories" around these parts about this sort of thing!
T1 DX 1995
Levemir + Novorapid
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline Pattidevans

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Re: Diabetic retinopathy changes
« Reply #5 on: 10 May 2017, 08:01:48 PM »
Quote
Have you been doing a lot of rollercoastering with all these hypos? Might be that too - in fact I'd bet money on it. Stable but slightly higher is better than constant downs and ups.

That occurred to me too Nyt!  Thanks for your support!

Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Liam

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Re: Diabetic retinopathy changes
« Reply #6 on: 10 May 2017, 09:16:50 PM »
I thought about that too. I decided not to point it out :) I should have known you'd take it well Patti

DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline sedge

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Re: Diabetic retinopathy changes
« Reply #7 on: 10 May 2017, 10:57:47 PM »
Yup - minor blip like the one I had a few years ago.  Had completely disappeared again on the next visit.  Yours will have, too !
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Paulines7

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Re: Diabetic retinopathy changes
« Reply #8 on: 11 May 2017, 10:19:19 AM »
I am sorry to hear about your retinopathy changes, Patti, but hope it has completely disappeared by the time of your next visit.

Now they have found changes, will they see you more frequently or will you still have to wait for 12 months?
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline Pattidevans

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Re: Diabetic retinopathy changes
« Reply #9 on: 11 May 2017, 11:32:02 AM »
Apparently they will not see me for 12 months Pauline.


Really I count myself lucky that after 14 years and appalling control for the first 9 months and however long before diagnosis that this is the first adverse incident.

Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: Diabetic retinopathy changes
« Reply #10 on: 11 May 2017, 03:34:26 PM »
As you know, it was 20+ years before my optician saw anything (and I saw him every 12 months same as I do the current encumbent - but before that event - it was only a year or two after they'd even suggested looking at my eyes in the D clinic - and everyone did it just with their own eyesight and an Opthalmoscope - a good few years before I'd even met one of those slit lamp machines, let alone the magic camera! - so 20-odd years for me - but there again - I was 30+ years younger than you when I was diagnosed anyway, and I wasn't ever treated as anything other than T1 from my initial GP's visit to report the symptoms!  Hence, I regard the 14 years as much the same as my 20.

It's a bugger - finding out that we aren't totally immune to the 'progressive' things they tell us about on Day 1- a severe blow to the ego indeed I recall vividly - so I do sympathise now you know you're 'normal' too LOL - but let's face it if you can then progress another 20 odd years and still need no treatment for it same as me - I don't honestly feel you ought to waste any time worrying !

One of the regular technicians - who I'd seen in previous years 3 or 4 times before,from the service at their base at Rugby said to me 2+ years ago about what she could see in my eyes was 'that a few odd teeny effects always happened after about 10 years' - in response to which me and Pete both burst out laughing!  So, actually, we're both 'rather good' aren't we - if that's what they're used to seeing ?
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: Diabetic retinopathy changes
« Reply #11 on: 11 May 2017, 03:51:55 PM »
Yes, we are indeed "rather good".  Oh well... am trying desperately not to roller coaster now!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans