Author Topic: Pump failure  (Read 426 times)

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Offline Liam

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Pump failure
« on: 21 August 2017, 04:17:42 PM »
So my pump vibrated and when I went to check the error the message, the pump was unresponsive. I try changing the battery and find the battery cap keeps turning instead of stopping and there is a crack there. The pump is making a low noise unlike anything it has done before.

I then call Animas. They answer quickly. After I explain the above he asks me to put another battery in. This time it beeps a bit before going back to making the low unusual noise. After a few questions he says it is under warranty and I'll have a replacement on Wednesday.

Now I'm left going back onto MDI. I have backup insulin like I should (thank gawd) The advice is basal rate + 20% divide by 2 in my pump pack. I've got that worked out at 30 unit basal (it was really 29.5 or something but I rounded)

You know I can't remember what time of night I took my Levemir! I'm assuming it was 10ish but I could be wrong lol That is when I take my evening pills anyway. I guess I just fire fight with boluses until then. 
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline nytquill17

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Re: Pump failure
« Reply #1 on: 21 August 2017, 05:08:49 PM »
Seems very stressful, but you're handling it well!

FWIW I take my Levemir basically "whenever I go to bed" and "whenever I get up" and I get on pretty well like that even when my schedule isn't always the same day to day. Of course if I know I'll be doing an all-nighter I try to take my Levemir around what is more usually my bedtime (10-11 p.m.), but if I end up staying up til 1 a.m. or something on the odd Friday night it's never been a problem to just take it on my way to bed.

Long story short, do whatever is convenient for you, I think! Anyway it's just for a couple of days so you won't really have time to get in much of a routine, so firefighting is probably your best bet.
T1 DX 1995
Levemir + Novorapid
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline GrammaBear

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Re: Pump failure
« Reply #2 on: 21 August 2017, 07:43:45 PM »
So my pump vibrated and when I went to check the error the message, the pump was unresponsive. I try changing the battery and find the battery cap keeps turning instead of stopping and there is a crack there. The pump is making a low noise unlike anything it has done before.

I then call Animas. They answer quickly. After I explain the above he asks me to put another battery in. This time it beeps a bit before going back to making the low unusual noise. After a few questions he says it is under warranty and I'll have a replacement on Wednesday.

Now I'm left going back onto MDI. I have backup insulin like I should (thank gawd) The advice is basal rate + 20% divide by 2 in my pump pack. I've got that worked out at 30 unit basal (it was really 29.5 or something but I rounded)

You know I can't remember what time of night I took my Levemir! I'm assuming it was 10ish but I could be wrong lol That is when I take my evening pills anyway. I guess I just fire fight with boluses until then. 


Liam, I'm sorry your pump took a vacation without you.  The same type of thing happened to me about 3 weeks after I changed from Medtronics to Tandem.  They over nighted me a new pump but in the meantime I took my Levemir injections about 12 hrs apart give or take a little bit of time. 

I hope you receive your replacement pump on time and things go smoothly for you from now on.
Type 1
Tandem Tslim pump Oct 2015
Dexcom G4 CGM Sep 2007
A1C 6.5%~ Sep 2017

Offline Pattidevans

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Re: Pump failure
« Reply #3 on: 21 August 2017, 10:13:05 PM »
OMG Liam... nightmare, thank goodness you have the insulin back ups for pens.  I do keep the stuff in and sometimes wonder if it's OTT and wasteful, but it is clearly not!


Good luck!  FWIW my Levemir was also very forgiving about when I took it, which was normally whenever I went to bed or got up which varied a lot.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Liam

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Re: Pump failure
« Reply #4 on: 22 August 2017, 01:24:33 AM »
Well things were smooth longer than I expected. I've just done a +3 correct to a 15, was 10 when I tested at 10 and I didn't correct. I took the Levemir at 10pm with my pills. I seem to be super awake tonight, wondering if that is stress I don't really feel.
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline ingrid

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Re: Pump failure
« Reply #5 on: 22 August 2017, 01:41:13 AM »
Noooo! I'm actually in Edinburgh at the mo & have a spare Vibe with me which you are more than welcome to borrow but guess you're prob sorted by now and not long till Weds. And don't know how far away from Ednburgh you are anyway?!

I've been having issues with antibodies/insulin resistance ?? to Humalog on & off recently, having to more than double all of my rates for periods of time. I got scared this could get even worse whilst on hols in Scotland so I asked GP day before going for script for either Apidra or Novorapid, just in case I needed to ditch the Humalog totally - she prescribed Apidra. I won't fill the script unless I need to for worst case scenario but was wondering if it's poss to get an English prescription filled in Scotland, do you know? Am I being stupid asking this? Altho there's a big overlap, NHS England and NHS Scotland are separate entities so I'm really not sure. After this week in Edinburgh we're bumming around northwards in a camper van for another week so it might be easier at this stage to 'pop back' over the border to get the insulin rather than risk an emergency with a badly ineffective fast-acting (like you, I have long-acting on hand). I'm panicking!!! Failed cannula this a.m. (scar tissue as I use metal) and horrendous prolonged hypo in busy street this afternoon, propped up against a shop for ages knowing I'd fall over/pass out if I moved...I'm just waiting for the next diabetes delight to occur now.


Offline Liam

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Re: Pump failure
« Reply #6 on: 22 August 2017, 02:00:38 AM »
Thank you for the offer Ingrid but I'll just wait for Wednesday now. I'm not that far from Edinburgh really.

I'm unsure if you'd be able to get your prescription here or not. I'd think you could, but can't guarantee it. I know maybe 10 years ago I ran low of fast acting insulin while on holiday in England. I had to have my GP fax a prescription to a local chemist.

Is there a reason you haven't changed insulin yet? I forgot if you have had issues with other rapid insulin before? I'm just wondering as I'd have likely changed right away if I thought I had your issue.
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline ingrid

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Re: Pump failure
« Reply #7 on: 22 August 2017, 03:45:08 AM »
Hi Liam, errrr yes mental health - been too depressed in a very bad way. Just got out of hospital a week ago in time for hols with 2 days to spare thank goodness! I missed both diabetes consultant & DSN appts earlier this year due depression (we did cancel consultant on the day) & have so far been offered a new consultant appt 7 months' later in Nov - had no oomph to try get an earlier one despite loads of, and worsening, diabetes probs in last few months. And DSN didn't contact me to find out what was up or offer another appt. And they all knew I'd been going downhill again since my diabetes soulmate of 30 years - Emma - died suddenly in March, she was only in her 40s and had many severe complications but still shouldn't have died (it's complicated but I and others believe a certain amount of medical negligence was involved and may still put in complaints). I've been devastated. Still am. I find MH services/hosps don't get diabetes & diabetes clinic/staff don't really get MH even when they claim to. No allowances made for either by each other nor do they ever bother to phone the other to collaborate. Terrible care psych inpatient, they even removed my glucose tabs from me one random eve after I'd already been there 2 weeks?!?! had to fight (verbally) over & over for a few hours til I got those returned eventually in the middle of the night by a different nurse who saw sense. My GP has been trying her best with non specialist knowledge to prescribe for my worsening neuropathy and now a possible alternative to Humalog - she admitted she knew practically nothing about the different insulins. I'm also having these increasing problems with scar tissue & unusable areas which she can't help with. I really just haven't felt able to face anything or get anything changed or get sooner appts requested..and had 2 useless MH Care Coordinators in the last 6 months!!!! On to no.3 now who is lovely and whom I have a lot more faith in. Oh, and when I turned up to my podiatry appt recently, I was told it had been cancelled and I've been discharged. No reason given. GP re-referring me but could take ages & I need to be seen every 6 weeks. Sorry for long reply! You'll wish you'd never asked! I really hate my diabetes and have been in diabetes burnout for a long time, stuck in a rut. No one in MH or diabetes services seems to want to help find a way to break the vicious cycle.

Apologies for taking over your thread.

Offline Liam

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Re: Pump failure
« Reply #8 on: 22 August 2017, 04:09:52 PM »
Well my new pump arrived already. Lucky there was someone in to receive it. I've already taken Levemir this morning so plan to put it on tonight around 8. About 12hrs since I last injected the Levemir.

I'm sorry to hear of your depression Ingrid. My experience with mental health is it never really joins up with other NHS services very well. I'm glad to hear you have finally got a MH Care Coordinator that you like. That can be a big part of it, having a good relationship with them.

Shocking to hear they took your glucose tabs. I can't think of any reason they would do that. Pretty dam dangerous thing to do when they clearly don't understand what they are for. I've not be in hospital in a long time but I wouldn't be letting them have my meter or things like they have in the past these days. 
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline nytquill17

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Re: Pump failure
« Reply #9 on: 22 August 2017, 07:16:47 PM »
Oh Ingrid, I'm so sorry to hear of your mental health struggles. I'm glad things seem to be looking up with your new coordinator and I really hope it continues in that direction as it sure sounds like you could use some good news. And I'm so sorry to hear of the loss of your friend. It truly ISN'T fair, this disease. And so young. No wonder you've been devastated by it all, I think anyone would have been. And on top of that you've got your own diabetes to deal with, and on top of the usual relentlessness of that your diabetes is, as we say where I come from, "being a butt".

In my experience, I have found that there isn't really any special trick to getting out of the cycle - no magic code that someone else has that you don't. Diabetes just kind of...sucks. Sometimes more, sometimes less, but it sucks. Well, I mean, people can find good in it at least some of the time, maybe it's empowering, it motivates them to make changes they never had the motivation for before, it helps them think about life in a different way, doesn't stop them doing what they want. For some people that's enough that it doesn't feel like a burden, more just a hassle. But it still IS a hassle and it still kind of sucks. And the thing is, too, that feeling like it IS a burden and it IS ruining your life is actually a perfectly valid response. Because for some people it does that too. But I think we look at other people who are posting pics of their pump kit from the top of Kilimanjaro or whatever and saying how diabetes never stopped them leading a normal life and we feel so much guilt if that isn't how we feel too. Like not only is our insulin response broken but our response to diabetes itself is somehow broken because we're supposed to just be able to power through it and be fine.

I'm not fine, I can tell you that. I try to be matter of fact about it, because it IS a matter of fact, I have diabetes. I just do. But I also hate having it, I hate the extra hoops I have to jump through everywhere in life, I hate how it bleeds into everything that I do and everything that I become, I hate how it makes me feel like I'm constantly failing, just these tiny little failures all day long, all adding up, and so SO little actual encouragement from anyone, so few excuses to actually feel good or proud about anything I do diabetes-wise. UGH.

I have learned to deal with it mostly by being, frankly, a "bad" diabetic. I don't take care of myself "properly", the way many people see it. But I take care of myself in the ways that I need to, to get through the day. So sometimes that means not testing as often, not eating as strictly, and of course higher blood sugars - and there are added risks with that, sure. It's not that I'm not afraid of that, I am. But the other option is that I burn myself out trying to do it "right" and then I just stop caring or having any energy to care and I do nothing at all. It's one of the reasons I actually don't want a pump - I know it would give me better control, but it would also give me dozens more different points in the day where I feel like I "should" be doing this or that and am not living up to my responsibility or my ability, and I think I would just go insane with it. So "half-assing" it is still, overall, a better strategy. Diabetes is only a part of the things I need to ration my energy to be able to manage in my life, and it's certainly not the one that's most important to me personally (even if it may be the thing that is the most urgent). But it's a damn shame that so few other people see it that way - not my doctors, not most other diabetics (present company excepted!), certainly very few non-diabetics.

All that to say, I think the only way out, really, is through. And to get through, for me what works is to let go of perfect. To even let go of good. And just go for "enough."  Focus on the things that make a tangible difference for you - for me my goal is mainly to avoid day-to-day symptoms (lethargy and moodiness are the big show-stoppers for me). A day where I did enough on the diabetes front that I didn't fall asleep after lunch or had enough energy to do two or three tasks that were important to me - that's enough. And when the depression and the anxiety kick in, well that threshold of "enough" gets lower. That's what being kind to yourself is, "let this be enough for today" and instead of feeling guilty that you couldn't do more, feel love for yourself that you did as much as you did, with everything you've got on your plate. See the strength and the real work that you do day to day where no one else sees it or realizes how much work it really is.

If there's ever anything we can do, even just listen and sympathize, please let us know. It's what the forum is here for: you are not alone. I can't carry this for you, and I don't think anyone else ever truly can - but you don't have to carry it alone, either.
T1 DX 1995
Levemir + Novorapid
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline Pattidevans

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Re: Pump failure
« Reply #10 on: 22 August 2017, 10:29:35 PM »
Nyt


That is a beautiful post. 


Ingrid, forgive me, I have been avoiding answering because I don't "DO" depression, what I do is deny it, I have been dangerously close in the last few weeks though, whilst blood sugars have raged due to stress.  I have not been doing a lot to control them, apart from chAnging cannulas, changing insulin in case it was off and generally doing mechanical things ignoring on the whole the numbers in the teens because "I do not do stress".


Good for you to acknowledge it.  I do hope you will get on well with your new co-ordinator and things will improve for you.


I have to say that Apidra is brilliant to pump with- I have used it before pumping and for nearly 4 years on the pump and it's waay better than Humalog which I was on before.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline himtoo

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Re: Pump failure
« Reply #11 on: 22 August 2017, 11:11:25 PM »
totally agree with patti on "not" doing depression -- I force everything bad into a little box and keep it stuffed there unknown to the world -- but it is there !!!!!!
so I totally get it where you are at

hugs [[[[[hugs]]]]]
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline Pattidevans

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Re: Pump failure
« Reply #12 on: 23 August 2017, 07:57:55 AM »
Actually I am sorry... my post may have seemed patronising, though it wasn't meant that way.  Proper depression is a terrible illness, not a temporary state of mind due to transient circumstances.  I havre a friend who has suffered for years and should have known better than to have said what I did.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Liam

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Re: Pump failure
« Reply #13 on: 26 August 2017, 11:56:19 AM »
Well it took me longer than I'd care to admit to work out my pump wasn't keeping a record of IOB. This is because I'd not set insulin duration about 3 or 4 pages into advanced settings. Funny how doing it once almost 4 years ago I forgot all about it. A good part of the reason I hadn't noticed was I rarely snack. I had noticed IOD had --:-- instead of 00.00.

I sent off my old pump on Thursday and got proof of postage. I wonder if I'll hear anything back from Animas?
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline Pattidevans

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Re: Pump failure
« Reply #14 on: 26 August 2017, 01:24:55 PM »
I'd be interested in their response Liam.


Accuchek rang me this week, pointing out that my pump is due for renewal.  I said my clinic were no longer offering Accuchek because of so many complaints about the Insight.  They then offered to supply another Combi and the services of An "infusion expert" to set it up for me.  Your post about settings reminded me.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans