Author Topic: prostate update  (Read 932 times)

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Offline himtoo

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Re: prostate update
« Reply #30 on: 13 November 2017, 08:06:20 PM »
thanks all xxx
your continued kindness is very much appreciated.

patti -- all I can say is eeeek !!!!!!!!!  i am absolutely sh*t scared of staying overnight in hospital following anaesthetic --- ( i don't trust ward nurses full stop for my D )
I have told my consultant of my unwillingness to become part of what i call -- the inpatient diabetic circus
plus i don't like anybody but me to be in control of my D ( ever )  call me weird -- LOL

T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline Claireabell2

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Re: prostate update
« Reply #31 on: 13 November 2017, 09:13:36 PM »
Sorry to read about your health issues Paul. It's not weird to want complete control over your diabetes at all. I've had terrible experiences on wards until last year where it appears this particular SAU were more than happy for me to be left alone with my pump...no slide and scales anymore. 

Offline Alan

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Re: prostate update
« Reply #32 on: 13 November 2017, 09:52:27 PM »
thanks all xxx
your continued kindness is very much appreciated.

patti -- all I can say is eeeek !!!!!!!!!  i am absolutely sh*t scared of staying overnight in hospital following anaesthetic --- ( i don't trust ward nurses full stop for my D )
I have told my consultant of my unwillingness to become part of what i call -- the inpatient diabetic circus plus i don't like anybody but me to be in control of my D ( ever )  call me weird -- LOL

Have you ever seen Dr Bernstein's Letter to The Hospital? Would it be effective in an NHS hospital?

My wife knows where I store my own version but I haven't needed to use it yet as preliminary discussions with hospitals have always been sufficient for me. I have had several overnight stays in the past couple of years. Bear in mind I don't use insulin so my requirements are basically "don't even think of feeding me a 'diabetic diet!'"
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
There is nothing I could eat I like more than my eyes.
Type 2 Diabetes - A Personal Journey (latest: Small New York Baked Low Carb Cheesecake)
Born Under a Wandering Star (Latest:Dambulla, Sigiriya and Polonuwarra, Sri Lanka)

Offline himtoo

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Re: prostate update
« Reply #33 on: 13 November 2017, 10:14:38 PM »
hey alan !! -- the diabetic diet is a big concern -- because most of us would starve on the food provided.( or be in the high teens BG wise )

hey claire -- I am all good thanks -- the Big C is just being monitored for the time being -- so I just get on with living
totally agree about the total control aspect -- I think I do pretty good with my control and I don't really trust anyone else to do an adequate job.
my biggest fear is being in a state of coming out of anaesthetic and not really able to care for myself yet knowing I have to because I don't trust the ward nurses -- it is why i call it the diabetic circus.

the bottom line there are not enough of us ( Type 1's ) to constitute a blip on the ward nurse radar -- so they get no specialist training to keep us in range through a critical period when we need them.
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline sedge

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Re: prostate update
« Reply #34 on: 13 November 2017, 11:13:34 PM »
Have to say Paul - my hospital were brill actually. The Ortho consultant insisted on a scale being set up whilst I was 'under' - but I played my face like HELL when I learned the rate of delivery was t be set at TWO UNITS AN HOUR !!   :eek:    :eek:    :eek: - and we'll adjust the glucose as necessary.  They rang a diabetes consultant wasn't in, but the Senior research nurse was and he adjusted it down for me.  Phew.

I was only on it until breakfast the following day from approx. 3 pm and I see no reason why you'd need any longer.  The difficulty is always going to be - adjusting pump delivery to match hugely elevated BG - and it will be, it's a very long time to be hoisted up and hanging almost upside down (4 hours +/-) and you WILL have bruises you didn't expect in some rather odd places!

But hey! - hopefully you'll never even have to consider doing that - but if Mr Gleason decides to up the ante - getting the subject matter OUT asap is far far more important than rotten BG for a few das, in the overall scheme of things, I believe!
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline himtoo

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Re: prostate update
« Reply #35 on: 14 November 2017, 10:45:34 AM »

thanks sedge for those gory details   :eek:




hopefully mr Gleason will stay low and not cause trouble.
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline BBarb

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Re: prostate update
« Reply #36 on: 14 November 2017, 11:01:35 AM »
Alan's letter inspired by Dr Bernstein is a really superb idea and I've copied it off to use should the need for hospitalisation arrive again.  Perhaps an extra copy you keep with you to show the ward sister or staff nurse in charge of your care might be useful too, as you say, you need to be able to relax without the constant fear of being force fed unsuitable foods.

Offline Pattidevans

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Re: prostate update
« Reply #37 on: 14 November 2017, 11:02:04 AM »
Quote
but if Mr Gleason decides to up the ante - getting the subject matter OUT asap is far far more important than rotten BG for a few das, in the overall scheme of things, I believe!

Precisely my thoughts.  Of course J didn't have to cope with BG issues I agree, but I wanted to reassure Paul on the fact that he's not incontinent or anything.  I know that was one of Paul's fears.

Sedge... Two units an hour?  Fr*ckin ell... Even if your BGs are likely to be raised....
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: prostate update
« Reply #38 on: 14 November 2017, 01:45:55 PM »
I nearly had a heart attack there and then!
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Dr DeEath

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Re: prostate update
« Reply #39 on: Yesterday at 01:42:06 PM »
This is a repeat of my missing post.

In another thread I mentioned that a good friend had a high PSA and was awaiting a biopsy but there was a debate as there was concern about an undiagnosed heart condition. Anyway the biopsy went ahead and he was moving 'gingerly' for about two weeks. The results are clear but he is not out of the woods. They want to repeat the PSA blood test in three and six months, and then review the situation. Another friend of the same age is undergoing investigation as he gets an irregular heartbeat under stress, and has fainted on more than one occasion (inconvenient!).
T1 for over 50 years.  MDI on Porcine insulin.  Lisinopril and Atorvastatin.

Offline Pattidevans

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Re: prostate update
« Reply #40 on: Yesterday at 02:28:25 PM »
As far as I can see, it's a good thing that they are monitoring the PSA on a regular basis.  Julian's PSA was at the very top end of normal (in fact, I'd have said that for a man of his age a PSA of 4.9 should have been followed up) that was 3 years before he was diagnosed and he was not monitored meantime.  I was only by chance when he saw a dr about something in the same area that he got another test and was subsequently diagnosed and operated on.

Not sure about irregular heart beat.  Have we touched on that in this thread?
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Dr DeEath

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Re: prostate update
« Reply #41 on: Yesterday at 03:05:05 PM »

Not sure about irregular heart beat.  Have we touched on that in this thread?

N, just an observation that three friends of the same age have developed heart problems this year! A bit scary!
T1 for over 50 years.  MDI on Porcine insulin.  Lisinopril and Atorvastatin.