Author Topic: Do you have T1 or T2 diabetes? Please help with survey  (Read 574 times)

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Offline Pattidevans

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Do you have T1 or T2 diabetes? Please help with survey
« on: 19 October 2017, 01:29:06 PM »
Quote
Do you sometimes feel worn down self-managing yourself? Do you find that receiveing the results of blood sugar tests such as HbA1c is stressful or anxiety-inducing?
 
 Hello all, I am looking for some people to take part in another one of my research projects. I'm developing an intervention designed to boost mood and encourage healthier behaviours in people with diabetes and I would like your help testing it. This can be all done online by clicking the following link https://ljmupsych.qualtrics.com/jfe/form/SV_cAaPkJYy41hAUwB?var=548430367&ggd=vsdgfhasbb where you will be randomly put into one of two groups and asked to complete some brief questionnaires. This will take about 10 minutes. The group you're in will determine whether you receive the intervention straight away or at a later point. The intervention itself has been designed to be quick and easy to use and more details about it can be found by clicking on the link. I will then email you 4 weeks later to follow up and present you with some more questionnaires (which, again, will take about 10 minutes).
 
 If you have any questions, you can email me at B .Gibson@2016.l jmu.ac.uk. (remove the spaces to contact Ben)
 All the best, Ben.

Received the above from Ben who we have helped before.  Please can you help him again?

Many thanks

Admin.
 
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline benpsych49

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Re: Do you have T1 or T2 diabetes? Please help with survey
« Reply #1 on: 24 October 2017, 07:25:45 PM »
Hi all, I've made an account just to make things a bit easier. If you have any questions about this study you can now also ask me about it here!

Offline Avocado

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Re: Do you have T1 or T2 diabetes? Please help with survey
« Reply #2 on: 24 October 2017, 09:43:21 PM »
Hi Ben - is the survey specifically for those who "sometimes feel worn down self-managing" themselves ? I'm happy to do a survery but not sure if you only want those peeps who are okay with their self management.
Anne

Atypical Type 2, thin, not insulin resistant, diagnosed March 2007. Very low carb (30 - 50g per day) Paleo diet and exercise - Prandin (Repaglinide) 0.5mg. Aortic Valve Replacement Jan 2014, Osteoporosis, Small airways disease, probable coeliac - Strontium Ranelate 2g/d, Omacor 2g/d, vitamin K2 300mcg/d, Aviticol (vit D3) 20,000 IU every week, Qvar 100 2/day.

Current HbA1c 33 Current total cholesterol 7, HDL 3.5, LDL 3.2, triglycerides 0.4

Online sedge

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Re: Do you have T1 or T2 diabetes? Please help with survey
« Reply #3 on: 24 October 2017, 10:03:50 PM »
Hey Ben - that was odd.  The first lot of questions sound like I'm wound up like a coiled spring and the second lot say I'm not!

There again it's true - cos I found the last week exceedingly stressful but it is the first such week I've ever had in my life LOL
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: Do you have T1 or T2 diabetes? Please help with survey
« Reply #4 on: 24 October 2017, 10:26:49 PM »
OMG!  Forgot to do this!  Sorry, still rushing around like a loony with the house!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Pattidevans

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Re: Do you have T1 or T2 diabetes? Please help with survey
« Reply #5 on: 24 October 2017, 10:35:53 PM »
Having done it I am unsure as to whether all the answers should relate to diabetes or general life.  Not long moved house... some stress due to that, but little to do with the D.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Venomous

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Re: Do you have T1 or T2 diabetes? Please help with survey
« Reply #6 on: 25 October 2017, 10:05:53 AM »
I was assigned to the waiting list
T2 and PCOS. Just had large serous adenofibroma removed with ovary and fallopian tube. Bp is now normal!

Novorapid, levemir, trulicity, metformin.

Online sedge

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Re: Do you have T1 or T2 diabetes? Please help with survey
« Reply #7 on: 25 October 2017, 01:03:44 PM »
I was under HORRIFIC stress last week - only a very small amount of it diabetes related and I felt I had back-up there once they'd involved the hospital D team, so it was OK.  Consequently the Qnr shows two totally different people apparently - first the one wound up like a coiled spring and the second one fairly relaxed! 

I'm on the waiting team too, V.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: Do you have T1 or T2 diabetes? Please help with survey
« Reply #8 on: 25 October 2017, 04:55:20 PM »
How do you know which "team" you are on?
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Venomous

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Re: Do you have T1 or T2 diabetes? Please help with survey
« Reply #9 on: 25 October 2017, 08:27:11 PM »
it told me.
T2 and PCOS. Just had large serous adenofibroma removed with ovary and fallopian tube. Bp is now normal!

Novorapid, levemir, trulicity, metformin.

Offline Pattidevans

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Re: Do you have T1 or T2 diabetes? Please help with survey
« Reply #10 on: 25 October 2017, 11:06:34 PM »
Oh.. I got an email.  Apparently I need to spend 10 minutes writing about my diabetes twice a week to make me feel better about it.  OMG Ben... I don't have either the time nor the inclination and frankly I feel OK about my diabetes.  Stressed about other stuff maybe... but I realise I am amongst probably the top 10 - 15% of controlled diabetics and what blips I have are no more than any other T1.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline benpsych49

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Re: Do you have T1 or T2 diabetes? Please help with survey
« Reply #11 on: 04 November 2017, 06:50:19 PM »
Hi all, my apologies for the late response but signing up last week turned out to be *terrible* timing on my behalf as I've basically been sick for the last 10 days. Bleurgh. I'll do my best now though to answer as many questions as I can! I'll be more responsive in the future, I promise!

I was under HORRIFIC stress last week - only a very small amount of it diabetes related and I felt I had back-up there once they'd involved the hospital D team, so it was OK.  Consequently the Qnr shows two totally different people apparently - first the one wound up like a coiled spring and the second one fairly relaxed! 

I'm on the waiting team too, V.

Having done it I am unsure as to whether all the answers should relate to diabetes or general life.  Not long moved house... some stress due to that, but little to do with the D.

Don't worry too much about the questionnaires. We wanted to get a feel for how you were doing generally in case other non-diabetes-related stress was having an effect on anything. We'll see what what the results show but it might be that we just look at diabetes-related emotions next time.

Hi Ben - is the survey specifically for those who "sometimes feel worn down self-managing" themselves ? I'm happy to do a survery but not sure if you only want those peeps who are okay with their self management.

Hi Avocado! I'm happy for anyone to take part (so long as they have diabetes, of course). Those who "sometime feel worn down self-managing" simply may benefit more from the self-management aid that you get for taking part in this study. Feel free to do the survey if you'd like, I'm still recruiting :)

Hey Ben - that was odd.  The first lot of questions sound like I'm wound up like a coiled spring and the second lot say I'm not!

There again it's true - cos I found the last week exceedingly stressful but it is the first such week I've ever had in my life LOL

Hey Sedge - I've had it called worse, haha. It's certainly going to be a bit different to what most people have tried but we've tried to make it as accessible and easy to do as possible. It gets more normal the more you do it, I promise!

Oh.. I got an email.  Apparently I need to spend 10 minutes writing about my diabetes twice a week to make me feel better about it.  OMG Ben... I don't have either the time nor the inclination and frankly I feel OK about my diabetes.  Stressed about other stuff maybe... but I realise I am amongst probably the top 10 - 15% of controlled diabetics and what blips I have are no more than any other T1.

I appreciate that, Patti. Not sure where you've seen that you need to do it twice a week though? We're not telling people how much to use it - we wanted to leave it under your control as much as possible so that it never becomes a burden.

Offline Avocado

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Re: Do you have T1 or T2 diabetes? Please help with survey
« Reply #12 on: 04 November 2017, 08:01:42 PM »
Hi Avocado! I'm happy for anyone to take part (so long as they have diabetes, of course). Those who "sometime feel worn down self-managing" simply may benefit more from the self-management aid that you get for taking part in this study. Feel free to do the survey if you'd like, I'm still recruiting :)
Hi Ben - I've done the survey now. But my feelings that I had to assess were not at all related to my diabetes but to another health problem I have. Not sure how useful therefore my participation is, plus, of course, there's nowhere to give the cause for various feelings.
Anne

Atypical Type 2, thin, not insulin resistant, diagnosed March 2007. Very low carb (30 - 50g per day) Paleo diet and exercise - Prandin (Repaglinide) 0.5mg. Aortic Valve Replacement Jan 2014, Osteoporosis, Small airways disease, probable coeliac - Strontium Ranelate 2g/d, Omacor 2g/d, vitamin K2 300mcg/d, Aviticol (vit D3) 20,000 IU every week, Qvar 100 2/day.

Current HbA1c 33 Current total cholesterol 7, HDL 3.5, LDL 3.2, triglycerides 0.4

Offline Pattidevans

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Re: Do you have T1 or T2 diabetes? Please help with survey
« Reply #13 on: 07 November 2017, 03:56:34 PM »
Ben
Quote

Hi all, my apologies for the late response but signing up last week turned out to be *terrible* timing on my behalf as I've basically been sick for the last 10 days. Bleurgh.

Sorry to hear that and hope you are now fully recovered.
Quote
I appreciate that, Patti. Not sure where you've seen that you need to do it twice a week though? We're not telling people how much to use it - we wanted to leave it under your control as much as possible so that it never becomes a burden.

Sorry... I misinterpreted the instructions.  It said " at least twice over the next four weeks"  I thought it meant twice a week for 4 weeks.

As an aside I think you might find this thread of interest:-

http://diabetes-support.org.uk/diabetes_forum/index.php/topic,7286.0.html
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Online Paulines7

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Re: Do you have T1 or T2 diabetes? Please help with survey
« Reply #14 on: 19 November 2017, 09:24:47 AM »
Hi Ben - I've done the survey now. But my feelings that I had to assess were not at all related to my diabetes but to another health problem I have. Not sure how useful therefore my participation is, plus, of course, there's nowhere to give the cause for various feelings.

I am the same Avocado, none of my answers were related to my diabetes.  The problems I have are related to the fact that my husband's cancer has returned and that my son who has mental health issues and is difficult to live with, has had to return home to live. 
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"