Author Topic: 2 nightmares ( pump related ) in 1 week  (Read 923 times)

0 Members and 1 Guest are viewing this topic.

Offline himtoo

  • Member
  • Posts: 2,457
  • Prince of Protein
2 nightmares ( pump related ) in 1 week
« on: 27 October 2017, 09:49:05 AM »

Hi All
Just thought I would quickly relate my week in pumping  -- starting with last Thursday afternoon


My Bloods rose unexpectedly from 7.0 prior to lunch ( 11:00am ) and after a sandwich had risen to 13.9 by 4pm
so inspected the pod as best I could -- and due to placement had to ask for help in inspecting where I could not see-- this confirmed a stain and a slight damp spot.


so at 4:35pm -- a quick pod change and a 4u pen inject and by 7pm back down to 8.2 and ready to eat the extra special and lovely shepherds pie I had made.
( 1/2 swede 1/4 cauli , 1/4 potato topping ) so lowish carb  :)


okay -- so broc steaming on the hob , a further test at 7:25 for bolus purpose ( 6.9 ) hit the bolus confirm button , turned away to look at the broccoli , and about 30 seconds later my PDM (personal diabetes manager  -- the remote unit that runs things )  -- well it started screeching like a banshee -- and the screen was telling me the unit had failed
NIGHTMARE !! :eek:   so straight on the phone to customer support , left a message , took 9 units with a pen and sat down to eat.


5 minutes later phone rings -- pump support -- so they gave me all the help in what buttons to press to get the unit reset -- but here is the killer-- I had to input every single setting again
( I have them written down as advised by the omnipod peeps ) but it takes about 15 minutes to reload everything
( dinner is getting cold now )


so - all done just finishing the last few bites of warm shep's pie and felt a crunchy bit ( thought it was crusty parmesan on the topping ) but just to top the evening off -- I had lost a filling
aaaarrrrrgggghhhhhhh !!!!!!!!!!!!




fast forward to this morning at 5:47am ( fast asleep )
my pod starts beeping ( meaning it has stopped delivering insulin)
so out of bed , downstairs , change pod , test -- 12.3 -- new pod on , correction bolus of 4.25 units and I set a TBR of +30% for 1/2 an hour to get me boosted back down into range.

T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline sedge

  • Global Moderator
  • Posts: 13,785
Re: 2 nightmares ( pump related ) in 1 week
« Reply #1 on: 27 October 2017, 12:16:53 PM »
Just LOL Paul - no it isn't at all hilarious of course and I do obviously sympathise - but it's just one (or two!) of those things that make you want to hurl diabetes into the centre of a volcano, isn't it?

Everything's ticking along perfectly fine not a care in the world - and it sticks a foot out and trips you up.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline GrammaBear

  • Member
  • Posts: 1,731
Re: 2 nightmares ( pump related ) in 1 week
« Reply #2 on: 27 October 2017, 03:04:53 PM »
When I used the Pod, one Sunday afternoon I had 5 of them buggers, one after another fail on me.  All of them, in turn, started screaming so loud that I chucked the spent ones into a plastic zip bag and stuffed them in the freezer.  The customer service people got tired of me calling 5 times in one day and finally sent a whole new system.  I hope your troubles settle down and the Pod behaves itself from now on.
Type 1
Tandem Tslim pump Oct 2015
Dexcom G4 CGM Sep 2007
A1C 6.5%~ Sep 2017

Offline Pattidevans

  • Administrator
  • Posts: 23,650
  • It's ONLY Diabetes. It could be something worse!
Re: 2 nightmares ( pump related ) in 1 week
« Reply #3 on: 27 October 2017, 07:24:55 PM »
oopsie!  When pump malfunctions happen it is always at a critical time when you really do not want it. I remember being on a weekend break to Exeter and my damn pump screaming occlusions in a restaurant... though I had everything with me (pens etc) they were back in the hotel room. I also remember you (Paul) looking askance at me at a DSF meet when I tested 16.9 right before indulging in the picnic... transpired later that a full change of the pump sorted things, but you were aghast that I did not have on me a pen to correct with, though I had one back in the hotel room  LOL!.

Oddly we also had a cottage pie last night, it did not push me above 8.5

Sympathies for the oddities and ups and downs.  Hopefully you are completely sorted now! 
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

  • Global Moderator
  • Posts: 13,785
Re: 2 nightmares ( pump related ) in 1 week
« Reply #4 on: 27 October 2017, 09:06:19 PM »
Funnily enough I hadn't got a Novorapid pen to hand last week when my BG was in the 20s and my ketones were 2.8 or something.

Ssshhh happens !  LOL
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline himtoo

  • Member
  • Posts: 2,457
  • Prince of Protein
Re: 2 nightmares ( pump related ) in 1 week
« Reply #5 on: 28 October 2017, 10:16:02 AM »
as it happens

( and thanks for the nice responses too everyone )

when my PDM blew up -- I realised I did not have a back up BG meter  - well not strictly true( I have a glucomens BG meter that does ketones as well ) - but I didn't have any in date test strips -- cuz I only need them about once every 2 years -- and they have obviously fallen off my repeat prescription
so the next day I phoned abbott -- who do the strips that are used in my pump PDM -- and they kindly sent me 2 spare meters

T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline Pattidevans

  • Administrator
  • Posts: 23,650
  • It's ONLY Diabetes. It could be something worse!
Re: 2 nightmares ( pump related ) in 1 week
« Reply #6 on: 28 October 2017, 02:03:26 PM »
Abbott are very good like that Paul.  Which meter did you get?  Cos the Insulinx meter, which uses the Freestyle strips can calculate doses for you and also you can get ketone strips for it.  ISTR going back before that, the Optium Exceed also has relevant ketone strips.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Liam

  • Global Moderator
  • Posts: 3,032
  • We live to fight another day.
Re: 2 nightmares ( pump related ) in 1 week
« Reply #7 on: 28 October 2017, 03:38:19 PM »
I use the Optium Neo myself. Got a couple of them. I know I'd never have ketone testing when I needed it if I didn't use a meter that does them too as my main meter. Guess that is one upside of my pump not having a meter / remote.
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline sedge

  • Global Moderator
  • Posts: 13,785
Re: 2 nightmares ( pump related ) in 1 week
« Reply #8 on: 28 October 2017, 08:41:43 PM »
Proud new owner of an Optium Neo myself, Liam.

I said to the nurse who got me it, I'd always sort of thought it was overkill for me and will probably feel guilty re-ordering the strips for it when the unused ones had just gone out of date.

She said 'Just STOP! - nobody ever needs to test ketones until they need to test them - and paying for repeat strip prescriptions is cheaper for the NHS than blue lighting you to A&E and treating DKA !'

So - I'm trying to stop, LOL
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

  • Administrator
  • Posts: 23,650
  • It's ONLY Diabetes. It could be something worse!
Re: 2 nightmares ( pump related ) in 1 week
« Reply #9 on: 28 October 2017, 09:30:59 PM »
My ketone strips are way out of date, but they still work.

Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline himtoo

  • Member
  • Posts: 2,457
  • Prince of Protein
Re: 2 nightmares ( pump related ) in 1 week
« Reply #10 on: 29 October 2017, 08:54:03 AM »
they sent me 2 Freestyle Freedom Lite meters.

haha sedge -- My DSN said the exact same thing to me regarding the ketone strips , and the pen insulin cartridges too  :nurse: 
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline sedge

  • Global Moderator
  • Posts: 13,785
Re: 2 nightmares ( pump related ) in 1 week
« Reply #11 on: 29 October 2017, 11:56:35 AM »
It's hard though, isn't it Paul?

We all probably have our own silly little ways of 'trying to save the NHS money' whether it's re-using lancets or anything else.  I know I used to buy my own dispersible aspirin when I had them prescribed, mainly cos I could buy so many more at a time for pence than the 28 in the NHS blister packs and it seemed obscene paying a dispensing fee for the things in the first place.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline himtoo

  • Member
  • Posts: 2,457
  • Prince of Protein
Re: 2 nightmares ( pump related ) in 1 week
« Reply #12 on: 29 October 2017, 01:56:44 PM »
it can be difficult with so much stuff ( prescriptions ) required every month.

my 12 tablets per day plus vials of insulin for the pump , all the testing strips
and then much more sporadic the insulin pen cartridges , the lancets , the pen needles , ketone strips , and barrier spray ( cuz I am a wimp and prevents the red welt from the pump adhesive )
I used to buy my own dispersible aspirin when I took it , and I buy my own adhesive remover wipes to take off each pod.

I come out of my surgery every month with a carrier bag full , which makes me think I have been to the supermarket , not the GP surgery.
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline Pattidevans

  • Administrator
  • Posts: 23,650
  • It's ONLY Diabetes. It could be something worse!
Re: 2 nightmares ( pump related ) in 1 week
« Reply #13 on: 29 October 2017, 03:34:09 PM »
it can be difficult with so much stuff ( prescriptions ) required every month.

my 12 tablets per day plus vials of insulin for the pump , all the testing strips
and then much more sporadic the insulin pen cartridges , the lancets , the pen needles , ketone strips , and barrier spray ( cuz I am a wimp and prevents the red welt from the pump adhesive )
I used to buy my own dispersible aspirin when I took it , and I buy my own adhesive remover wipes to take off each pod.

I come out of my surgery every month with a carrier bag full , which makes me think I have been to the supermarket , not the GP surgery.

I am much the same, with 8 tablets a day (+temporarily for 12weeks 4 x AB tablets).... all the other stuff too.  However mine do not all fall due at the same time e.g. I get 55 Liothyronine tablets which I have to cut in half, so 110 days supply, whereas other stuff is 28 days or 42 days.  Gets muddley.  I have changed pharmacies since we have moved to a Lloyds situated in the local Sainsburies as it's much closer and OMG they are so efficient compared to the old one.  I liked the staff there, but they were overworked and scripts were never ready.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

  • Global Moderator
  • Posts: 13,785
Re: 2 nightmares ( pump related ) in 1 week
« Reply #14 on: 29 October 2017, 05:18:57 PM »
I often wonder about that - however it's the length of time it takes to actually get the scrip to the pharmacy that takes the time with ours.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4