Author Topic: Blood tests, bit of a rant.  (Read 679 times)

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Offline Pattidevans

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Blood tests, bit of a rant.
« on: 31 October 2017, 03:11:22 PM »
As I posted before, I was recalled to have a load of blood tests after the diabetic bloods were done recently.  Liver function, kidneys etc and the repeat tests all came back "normal".  However, certainly since about the middle of August I have been having on/off stomach pain in my lower abdomen, sometimes almost unbearable.  It comes and goes and after having a bout which goes on for days I make up my mind to see the GP and it miraculously disappears.  Sometimes I feel nauseous with it, sometimes not so much, but it's wearing and debilitating.  I've been blaming it on a diverticulitis flare up and thinking "Oh it'll pass". 

Anyway after a rather miserable bout last week I finally went to the GP and saw a young chap.  Very nice, mentioned IBS etc.  Asked for urine samples, and sent me for a blood test for all sorts.  Said it did need investigating, so he was not dismissing me.  Got a phone call today from the surgery saying whatever they tested for, inc liver function, kidneys etc were normal but that there was some sign of an infection.  I thought it odd cos whatever this thing is, when I really think about it, it's been going on for over a year to some degree.  I'd have thought that a long time for an infection.

Meantime after a conversation between 2 friends, one of whom is Coeliac I had a lightbulb moment and looked up the symptoms.  Quite a lot of which I have.  Diarrhoea, interspersed with constipation, bloating, nausea, stomach pain, tiredness, B12 deficiency, hair loss, rash on face, anaemia and ataxia (I lose my balance and fall easily).  Other indications are Type1 Diabetes, hypothyroidism, skin disorders because yes, it's another autoimmune disease.  I also realised that a lot of the attacks occur (quite quickly) after I go out for lunch with my friend once a week which is the only time I ever eat any bread other than Burgen.  Twice recently I've had to return home early because of being miserable with tummy pain.   Julian said he'd been trying to tell me it might be Coeliac for ages..

So when the receptionist phoned this morning telling me they want me back for more bloods in 2 weeks' time I mentioned that I thought a test for Coeliac might be in order (apologising all the time for looking things up and no disrespect to the Dr etc) and she'd said that she'd email him and if he agreed she'd ring back and make the appointment for me at the same time as the other bloods (for which we made an appmt).  She's not rung back, so I dunno... What I am asking I suppose is whether it's difficult to get the Coeliac test, or expensive or something.

Believe me I don't want to have Coeliac disease.  I just want to feel better as soon as possible cos it has gone on too long!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: Blood tests, bit of a rant.
« Reply #1 on: 31 October 2017, 06:13:19 PM »
I've no idea how expensive it is - it shouldn't be, should it?  Think you need to ask your doctor for the test quite honestly and think also he'd be utterly unreasonable to refuse!
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: Blood tests, bit of a rant.
« Reply #2 on: 31 October 2017, 06:38:09 PM »
I eat my words!  She rang me back at 5:45 to say the Dr thought it was very reasonable to do the test and gave me an appointment at 3pm tomorrow!  In lots of ways I hope it is negative, but on the other hand I need some answers.  Having Cous Cous tonight and will eat some of Julian's bread tomorrow before the appointment!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: Blood tests, bit of a rant.
« Reply #3 on: 31 October 2017, 10:42:19 PM »
Excellent.  Yup - Pumper Sue's always telling folk to eat gluten before being tested (I mean not to limit it otherwise the tests could be neg when they're really pos) .  So just hugs for the pain!

It would be , relatively, easy if it is coeliac.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Venomous

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Re: Blood tests, bit of a rant.
« Reply #4 on: 01 November 2017, 05:29:45 AM »
good luck
T2 and PCOS. Just had large serous adenofibroma removed with ovary and fallopian tube. Bp is now normal!

Novorapid, levemir, trulicity, metformin.

Offline Paulines7

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Re: Blood tests, bit of a rant.
« Reply #5 on: 01 November 2017, 10:30:33 AM »
I am sorry to hear about your pains and other symptoms, Patti and pleased that your GP is trying to get to the bottom of it with all the tests. 

One of the benefits of the prebiotic Bimuno that I take, is reducing inflammation in the gut.

See: https://www.bimuno.com/probiotics-prebiotics/benefits-of-prebiotics

I am not suggesting that you start it now but it may be worth considering at a later date.

Good luck with the results of your test for Coeliac.
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline himtoo

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Re: Blood tests, bit of a rant.
« Reply #6 on: 01 November 2017, 10:50:48 AM »
fingers crossed for you lovely xxxx
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline Dr DeEath

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Re: Blood tests, bit of a rant.
« Reply #7 on: 01 November 2017, 01:11:16 PM »
Might it be worth trying a wheat/gluten fee diet after the blood tests? I have been told symptoms can improve after 24/48 hours.
T1 for over 50 years.  MDI on Porcine insulin.  Lisinopril and Atorvastatin.

Offline Pattidevans

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Re: Blood tests, bit of a rant.
« Reply #8 on: 01 November 2017, 05:04:58 PM »
That would indeed be nice.  I have had ordinary toast this morning and naughtily ate up last night's leftover cous cous.  Then went to a meeting, then had an hour to spare so went and had a toasted ciabatta with brie and tomato in a cafe for lunch before the blood test.  Within half an hour after the ciabatta I developed bloating and belly ache which I have still got.

Forgot, the HCA managed to stick the needle into a nerve and I nearly shot out the chair!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: Blood tests, bit of a rant.
« Reply #9 on: 01 November 2017, 09:05:25 PM »
Oh ow at the blood test Patti - it's impossible NOT to shoot 3 feet in the air when anyone hits a nerve anywhere.

How long for results?
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: Blood tests, bit of a rant.
« Reply #10 on: 02 November 2017, 08:49:27 AM »
TBH I forgot to ask Sedge.  i’ll Find out.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Venomous

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Re: Blood tests, bit of a rant.
« Reply #11 on: 02 November 2017, 02:19:48 PM »
Just checking in to see if you've heard anything yet.
T2 and PCOS. Just had large serous adenofibroma removed with ovary and fallopian tube. Bp is now normal!

Novorapid, levemir, trulicity, metformin.

Offline Liam

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Re: Blood tests, bit of a rant.
« Reply #12 on: 02 November 2017, 03:22:12 PM »
Hopefully not but at least it would be an answer. I'm sure it wouldn't change your diet that much anyway?
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline Pattidevans

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Re: Blood tests, bit of a rant.
« Reply #13 on: 02 November 2017, 05:56:55 PM »
no news yet.

Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Paulines7

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Re: Blood tests, bit of a rant.
« Reply #14 on: 03 November 2017, 10:49:58 AM »
Ow!! the nurses have never hit a nerve when taking my blood but very occasionally I end up with a huge bruise that lasts for a couple of weeks or so. 

Good luck with your results, Patti.
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"