Author Topic: Blood tests, bit of a rant.  (Read 677 times)

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Offline sedge

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Re: Blood tests, bit of a rant.
« Reply #15 on: 03 November 2017, 11:20:10 AM »
Nor me Pauline but you do realise we're both tempting providence !!  LOL
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline plumb

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Re: Blood tests, bit of a rant.
« Reply #16 on: 06 November 2017, 06:55:06 PM »
I have been worrying about your tummy pains and think that all though you have a wonderful knowledge have you ruled out Gastroparesis I hope you don’t think that I am interfering just a thought.
T1 DX1977 pumping Novorapid  and 3 BP Medds s

Offline Pattidevans

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Re: Blood tests, bit of a rant.
« Reply #17 on: 06 November 2017, 07:22:45 PM »
Plumb

It's very sweet of you to worry!  I am really very touched  :)

I did rule out gastroparesis for the folowing reasons.  I have no evidence that my stomach is emptying slowly.  Insulin absorption very much seems to deal with what I eat in a reasonable time frame.  The pain is in my very low gut and I have a known diverticular condition, it's common for the pouches to get inflamed from time to time and it is the same pain that I've experienced when this happens, except this time it's gone on longer.

The reason I suspect that it may (or may not - no results yet) be coeliac is because of the other symptoms I have:

Vitamin B12 deficiency
Ataxia - poor balance, poor muscle co-ordination leading to a number of falls.
Hair loss, not in patches so much, it's pretty thin all over - to near baldness in places.
Fatigue (after a good 8 hours sleep)
Diarrhea alternating with constipation and a general feeling a lot of the time that I've not emptied my bowels enough.
Skin rash, though that may be Rosacea - I am on 12 weeks of antibiotics for that.


Still, if it's not Coeliac the Dr said he felt it needed investigation and knowing the lovely people at my surgery, it will be!  I'll ring tomorrow to see if there are any results and post in the forum.

Thank you so much for your concern Plumb


Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline BBarb

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Re: Blood tests, bit of a rant.
« Reply #18 on: 07 November 2017, 10:26:29 AM »
I've sent a PM Patti, but it doesn't tell you anything except stuff I could write on here.  CD can be diagnosed by a simple blood test now which I'm sure isn't a hugely costly business, you then used to have to go for a gastroscopy (which I'm sure was expensive), but most enlightened GPs now don't require you to undergo this somewhat unpleasant experience.  You are doing the right thing in continuing to eat gluten in the meantime (but a slice of bread a day is sufficient) to avoid a false negative.
Try http://members2.boardhost.com/glutenfree/index.html?1410816035     or type 'The Coeliac DH and gluten free message board' into your search engine. 

Offline Pattidevans

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Re: Blood tests, bit of a rant.
« Reply #19 on: 07 November 2017, 04:01:13 PM »
Thank you Bbarb so informative and I'll check out the link you gave.

However, I rang the surgery this afternoon for results and the test came back negative, so not Coeliac.  Doesn't alter the fact that I still feel unwell and leaves me with no answers.  I have another blood test on 14th, so I will see what transpires from that. I keep having these blood tests that say something is wrong, and go for repeats only to be told that everything is "normal". 

Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Venomous

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Re: Blood tests, bit of a rant.
« Reply #20 on: 07 November 2017, 05:47:10 PM »
I'm glad it's not coeliac. I hope you find out what it is soon, I know it must be frustrating to want to improve things and not be able to until you know how.
T2 and PCOS. Just had large serous adenofibroma removed with ovary and fallopian tube. Bp is now normal!

Novorapid, levemir, trulicity, metformin.

Offline BBarb

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Re: Blood tests, bit of a rant.
« Reply #21 on: 07 November 2017, 08:03:58 PM »
It is a long drawn out business and frustrating to have to keep on eating something that you suspect is making you ill - but in the long term its only a few weeks out of your life and worth getting a diagnosis.
Of course there is a condition called 'non-coeliac gluten sensitivity' which can be as distressing and give the same uncomfortable and inconvenient symptoms as CD, which are alleviated by cutting gluten from your diet completely (not just when you feel like it).  Its not at all uncommon.
Some doctors deny that it exists, but if you get no help with your digestive symptoms you can do what a lot of people do which is to cut all gluten from your life for a period (say a month) and see if it helps.  If you're still getting the painful stomach cramps, bloating and alternating diarrhea/constipation I certainly would give it a try - it can't do any harm and its really not difficult especially as you're already following a low carb regime.
I do hope its not CD but something benign and easily cured (like a bacterial infection of the gut which can be treated with antibiotics) so fingers crossed.

Offline Pattidevans

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Re: Blood tests, bit of a rant.
« Reply #22 on: 07 November 2017, 10:25:21 PM »
BBarb


At the back of my mind I recalled something like gluten sensitivity.  I am wondering-how strict would I have to be?  Did a supermarket shop today and spent some time inspecting labels -seems every damn thing has gluten in it.  Frankly we don’t eat processed food, but even some packs of basic grains you wouldn’t suspect come with warnings.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline TerryJ

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Re: Blood tests, bit of a rant.
« Reply #23 on: 08 November 2017, 07:31:52 AM »
Wheat, barley, rye and oats all contain gluten but they each contain slightly different forms so you may not be sensitive to all forms of gluten. YMMV !

Rice, corn, buckwheat, quinoa amd millet are all gluten free.

Info taken from here -

https://www.livestrong.com/article/522560-gluten-content-of-grains/
Type 2 since 1999. Current meds Gliclazide
HbA1c Feb10 10.9, May10 7.7, Oct10 6.6, Oct11 6.7, Dec12 6.4, Nov13 6.9

Offline everydayupsanddowns

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Re: Blood tests, bit of a rant.
« Reply #24 on: 08 November 2017, 10:45:59 AM »
Glad coeliac has come back negative, but sorry that you don't have any clarity as to what it actually is yet :(
Mike

Type 1 since: 1991 Last HBA1c: 45 (6.3%)  Total Chol 5.0 (1.9HDL / 2.8LDL / Trigs 0.7)
Pumping NovoRapid in a MiniMed 640G
Blogging at: www.everydayupsanddowns.co.uk

Offline Paulines7

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Re: Blood tests, bit of a rant.
« Reply #25 on: 08 November 2017, 12:10:35 PM »
I hope you feel better soon, Patti and that you find out what is causing it.  {{{hugs}}}
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017.  Pacemaker fitted 2008.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline sedge

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Re: Blood tests, bit of a rant.
« Reply #26 on: 08 November 2017, 12:44:54 PM »
I'd say it's a PITA, but in this case it's a PITS (stomach) I guess.

Whatever the heck it is, hope you can find some relief Patti.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline BBarb

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Re: Blood tests, bit of a rant.
« Reply #27 on: 08 November 2017, 06:54:54 PM »
Basically being celiac or gluten intolerant means gluten damages the villi in your small intestine.  Dr Google explains it better than me.  Even if you are 'only' gluten sensitive any gluten you eat will still be damaging these villi even if you aren't showing any symptoms.  This is a fact of life for you and you have to deal with it by not eating any gluten at all, ever, for the rest of your life. Sorry you can't be just a little bit gluten sensitive, its like being a little bit pregnant.
Its up to you, eat a little gluten if you choose but you are still damaging your gut and after all your guts are yours to damage as you choose.
Why eat poison that is shortening your life?

Offline Alan

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Re: Blood tests, bit of a rant.
« Reply #28 on: 08 November 2017, 07:30:01 PM »
I'm glad it isn't coeliac but I do hope they swiftly discover the true cause of your symptoms.
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
There is nothing I could eat I like more than my eyes.
Type 2 Diabetes - A Personal Journey (latest: Small New York Baked Low Carb Cheesecake)
Born Under a Wandering Star (Latest:Dambulla, Sigiriya and Polonuwarra, Sri Lanka)

Offline Avocado

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Re: Blood tests, bit of a rant.
« Reply #29 on: 08 November 2017, 09:00:13 PM »
At the back of my mind I recalled something like gluten sensitivity.  I am wondering-how strict would I have to be?
Hi Patti - as you know I don't eat anything with gluten in as I'm possible coeliac (test doesn't work because I don't eat gluten) or, if not, certainly gluten sensitive. I avoid all grain foods - it's that simple - and I don't eat any processed foods so none slip in. Check any Paleo websites or cookery books - and that wonderful 'Real Meal Revolution' cook book by Tim Noakes.

You also mentioned diverticulitis which I also have - the diverticula have been identified on colonoscopy. They can flare up from time to time and cause real problems.

Hope you find some answers soon. Why not try going gluten free as an experiment ? If things don't settle then you'll know it's not that but something else. The other advantage of going gluten free is that it cuts out a whole load of pretty unnutritious carbs :)
Anne

Atypical Type 2, thin, not insulin resistant, diagnosed March 2007. Very low carb (30 - 50g per day) Paleo diet and exercise - Prandin (Repaglinide) 0.5mg. Aortic Valve Replacement Jan 2014, Osteoporosis, Small airways disease, probable coeliac - Strontium Ranelate 2g/d, Omacor 2g/d, vitamin K2 300mcg/d, Aviticol (vit D3) 20,000 IU every week, Qvar 100 2/day.

Current HbA1c 33 Current total cholesterol 7, HDL 3.5, LDL 3.2, triglycerides 0.4