Author Topic: Update on John  (Read 1164 times)

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Offline Paulines7

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Re: Update on John
« Reply #45 on: 11 December 2017, 02:04:02 PM »
No snow here, I am pleased to say.   :)

John was allowed home about 7pm yesterday and is very tired today.  There is no further treatment planned at the moment but he will need to discuss it when he has an appointment with his consultant on 18th January. 

There are five consultants in urology plus registrars and house doctors.  Salisbury District Hospital covers a vast area which includes most of Wiltshire, as well as parts of Dorset and Hampshire. 
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017. 47 Feb 2018  Pacemaker fitted 2008 - replaced 2017.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline Pattidevans

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Re: Update on John
« Reply #46 on: 11 December 2017, 02:49:39 PM »
Glad to hear he's home Pauline.  Apologies my mistake about number of consultants.  I was going by the fact that for years we have only had 2 in the Diabetes and Endocrinology department that covers the whole of Cornwall.  I now see a new one has joined.

I hope John has no more bouts of bleeding before his appointment on 18th Jan.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.


© 2015 Patti Evans

Offline sedge

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Re: Update on John
« Reply #47 on: 11 December 2017, 03:35:32 PM »
Haven't a clue about Coventry - but Pete has only seen two.  I spose you could trawl through the whole alphabetical list (100s and 100s of names) and pick them out if you really wanted to know. 

My knee bloke specialises in 'upper limb' anyway (cos the Geo Eliot website does publish names etc) and a few of the staff have told me I must have made a mistake cos 'Mr P is the shoulder man' LOL - presumably he just happened to be the one on duty at the time so drew the short straw.  They always quickly say 'Well of course he's qualified to deal with all ortho surgery!' after - and he seems fine to me - but what do I know?
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Paulines7

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Re: Update on John
« Reply #48 on: 11 December 2017, 07:51:41 PM »
My knee bloke specialises in 'upper limb' anyway (cos the Geo Eliot website does publish names etc) and a few of the staff have told me I must have made a mistake cos 'Mr P is the shoulder man' LOL - presumably he just happened to be the one on duty at the time so drew the short straw.  They always quickly say 'Well of course he's qualified to deal with all ortho surgery!' after - and he seems fine to me - but what do I know?

When I had my first knee replaced, it was done in a private hospital (at NHS expense) by a knee consultant.  He was also a shoulder specialist in Bournemouth general hospital.  When it was time for my other knee to be done, I wanted the same consultant as he had done such a good job, so I asked my GP if she could refer me to him at Bournemouth.  She did and despite his being a shoulder specialist there, he replaced my other knee for me.  Maybe the two joints are similar in many ways.  He was a very dapper Irishman who wore a bow tie and he was easy to talk to.   
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017. 47 Feb 2018  Pacemaker fitted 2008 - replaced 2017.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline sedge

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Re: Update on John
« Reply #49 on: 11 December 2017, 11:11:42 PM »
I'm not sure whether any part of the shoulder ' floats' above the joint LOL BUT BOTH DO HAVE SHEDLOADS OF TENDONS Aaargh at the caps lock.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Paulines7

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Re: Update on John
« Reply #50 on: 19 January 2018, 10:50:06 AM »
Just an update on John as we went to see his Urology Consultant yesterday.   He is to have PSA tests every 3 months now and when the result reaches 3.0 or above, he has to ring the Consultant's secretary who will let him know, so he can book a PET scan for John.  He will need to go to Oxford for the scan to ascertain where the cancer cells are and then he would require chemotherapy. At the rate in which John's PSA is increasing, it will probably reach 3.0 in 3 to 6 months time.   

We spoke about John's ongoing haematuria and the Consultant is going to arrange some more treatment with iAluril, as it successfully stopped the bleeding for almost a year when used before. 

He mentioned that John should get plenty of exercise.  I said that we wanted to swim but it was not possible whilst John is bleeding.  He then said that as a cancer patient John is entitled to use the hospital pool and fitness suite.   He was pleased that John had lost weight through his low carb diet.  He now weighs 15 st 11 lbs and was about 18 st when he started dieting at the end of June.

Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017. 47 Feb 2018  Pacemaker fitted 2008 - replaced 2017.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline Pattidevans

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  • Posts: 23,988
  • It's ONLY Diabetes. It could be something worse!
Re: Update on John
« Reply #51 on: 19 January 2018, 03:17:26 PM »
Pauline

Much as no one wants it to be necessary, at least they are keeping a close eye on him now.  J and I are pleased to hear he will get more treatment for the Haematuria.  Hope it works well again.

That is great news about the hospital swimming pool!   Yaay!  Also well done John on the weight loss.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.


© 2015 Patti Evans

Offline Paulines7

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Re: Update on John
« Reply #52 on: 19 January 2018, 07:51:34 PM »
We were pleased too with the way things went yesterday, especially the offer of some more treatment for the haematuria.  We feel quite confident that it will work again.

We were pleased about the news that John could use the hospital fitness suite and pool free as he is having treatment for cancer.  We need to find out if I can go too even if it means paying for it.  if not, I could drop him off and go to the Leisure Centre in Salisbury.
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017. 47 Feb 2018  Pacemaker fitted 2008 - replaced 2017.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"