Author Topic: starting Toujeo  (Read 338 times)

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Offline himtoo

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Re: starting Toujeo
« Reply #15 on: 07 January 2018, 08:34:49 AM »
when I was on Lantus Nyt , I too found it did not last the full 24 hours-- and I also had a "spot "around 7 hours post injection - where I was vulnerable to hypos
I always injected at 6:30pm and 1:30am was a contender for the " most hypos time slot ".

 
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline sedge

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Re: starting Toujeo
« Reply #16 on: 07 January 2018, 11:40:49 AM »
Well I can truthfully say that a number of things I've been asked to do where I've thought, this will never do anything - have actually worked in the past, so maybe it will!

It is better to travel hopefully, eh !
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline nytquill17

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Re: starting Toujeo
« Reply #17 on: 07 January 2018, 04:31:40 PM »
Interesting Paul! So far you're the only other person I've seen who had it at 7 hours! I took mine in the evening, around 9:30. If I went to bed on anything like a decent number, I would invariably wake up hypo at 4:30. At first I tried lowering the dose, but that caused problems elsewhere. Meantime I was having highs in the late morning to early evening regardless of what I ate or didn't, but I couldn't very well increase the basal dose to help sort those, what with it already causing me hypos overnight.

I thought that since the 3-4 timeslot is when many people are vulnerable to hypos anyway, perhaps it was just the peak of the insulin coinciding with a natural dip in IR. So I tried moving the dose forward to 11:00 so it would coincide instead with the start of DP around 6ish...nope, having hypos at 6 a.m. now! I tried moving it backwards to 7:00 to see if that would do anything...having hypos at 2 a.m. thereafter! I thought maybe the dose was just too much for overnight and anyway I was soaring high by evening because it was wearing off, so I tried splitting it so I could manipulate night and daytime separately...now I was having hypos twice a day and highs the rest of the time!

It was a nightmare time of basal testing every 2-3 days and just nothing working, ever, meantime I was with a different clinic then who were very resistant to doing ANYthing I asked them to (didn't want to test my TSH, didn't want to increase my thyroid meds when I said I was still symptomatic, tried to avoid additional injections like the plague even after I said I didn't mind at all, didn't want me changing my basal doses by myself, and of course, didn't want to change me over to Levemir!) So the first thing they said was that Lantus was intended to be only once a day and I should reunite my split dose. I told them that that would just leave me without full coverage for the day, but they wouldn't budge. So I had to walk through the whooooole trial and error process again with them just so they would believe what I had already worked out on my own, and when they had tried everything that I had also tried and knew wouldn't work, they suggested...splitting the Lantus dose! (Grrr). At that point I said well if I'm to take two basal shots a day anyway, I'd rather do it with an insulin that is designed to be taken twice a day, so NOW can I have Levemir please? And they didn't really have an argument for that!  ;D


Nice to think back on that time and realize what a vastly different team I have now. With them I'm confident enough to try new insulins because I feel like they would really listen to me if I told them something wasn't working or asked to change back. Even for the dreaded cholesterol discussion last appointment, they talked me through my results and then told me what they would normally do in this situation and asked me how I felt about it and what I wanted to do going forward. When I said I wanted to try diet first before statins because I was nervous about taking a statin they were fine with that (compared to my last doctor who just said "oh that will never work, but ok"). The dietician pulled the cholesterol diet sheet and looked over it and said "wow they have really changed things up lately!" And then said "well there are some things I'll just skip over because there's new research out now that says different things, I'll just stick to the stuff we know really works: eat more fish and more fibre!" (ok they do generally believe in the 150g carb per day and she did say use less butter, but nobody's perfect!  ;D  ) Plus they actually download my meter every time, and not only do they not scold me if there's not a lot of readings or not a lot in range, but they actually LOOK at what is happening instead of just scoffing at whatever I say.


It makes SUCH a difference having actual helpful HCPs. I'm really glad to be in this situation but it also makes me sad and angry for all the people who aren't so lucky -- I just want to ask the HCPs WHY?? why are you in this field if you don't actually care about your patients as people? Do you really feel good about yourself when you go home at night after treating your patients like naughty children all day in service of some target or other, or of your own authority?  :banghead:
T1 DX 1995
Levemir + Novorapid
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline Pattidevans

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Re: starting Toujeo
« Reply #18 on: 07 January 2018, 04:53:40 PM »
Quote
Do you really feel good about yourself when you go home at night after treating your patients like naughty children all day in service of some target or other, or of your own authority?  :banghead:

That is so true!  Should be asked by patients more often!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline himtoo

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Re: starting Toujeo
« Reply #19 on: 07 January 2018, 11:04:37 PM »
my overriding thought nyt , is that you are fortunate in being a young lady with a long future ahead of you -- my issues with lantus were before the internet existed -- and nobody in the D nurse department were able to offer direction.
I am fortunate to be here -- happy to help -- and pleased that younger members can be offered options should their current regime not totally suit them

go you !!!!!!
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline sedge

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Re: starting Toujeo
« Reply #20 on: 08 January 2018, 01:01:18 AM »
I don't wish to get into a fight, but I think you are wrong about Lantus and the internet.  I say this because the researchers at Warwick Uni were on the radio praising this new insulin and what it did, around the same time as Virgin were running their cables along our street and into our old house!
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: starting Toujeo
« Reply #21 on: 08 January 2018, 09:11:47 AM »
Hi


To settle the timeline I googled.  Lantus was first made available in 2000. ]https://en.m.wikipedia.org/wiki/Insulin_glargine
 I first got access to the Internet via CompuServe in 1994. albeit it wasn’t really the Internet we know and love now.  However,  by the time we sold our hotel in Feb 2000 we would certainly have recognised the Internet as we know it.  By that time I had built a website for the hotel which had brought in £80,000 worth of business during the previous financial year.  I was very proud and so not likely to forget.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline Pattidevans

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Re: starting Toujeo
« Reply #22 on: 08 January 2018, 09:22:52 AM »
Ps, I add a caveat that This forum celebrated it’s 11th birthday on 3 Jan.  It was launched in 2007. Prior to that there wasn’t much in the way of UK forums, though there were a number of US based ones.  In 2004 when I first started looking online for diabetes related information it was hard to find anything much.  I eventually found the newsgroups (where I met Alan) but they were rather hard to find and rather difficult to access.  Alan recommended me a piece of software called Agent which made them easier to access.  So in the most important sense Paul is right -although the Internet did exist, diabetes related groups weren’t really any where near as accessible as they are now.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 April 2016.


© 2015 Patti Evans

Offline sedge

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Re: starting Toujeo
« Reply #23 on: 08 January 2018, 12:15:25 PM »
Yeah those dates work for me as we moved in here in Jan 1999 and had internet before we moved.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4