Patti: Interesting! I was looking around yesterday and came up with a figure of something like 2% of all diabetics being affected. I guess we are just a bunch of outliers on this forum!
As to moving, well it's all very up in the air. I am here at least until I finish my PhD, so another 3-4 years. After that, it depends if I want to continue in academia, and then you have to go where the job openings are. Of course, the Toronto area has a good number of colleges and universities so there's every chance I will find work here, although probably not any permanent or tenure-track positions, but probably plenty of contract work if I want it. Or I may end up in a para-academic field (working as an editor or writing tutor/teacher are pretty high on the list of possibilities), or freelancing or self-employed. It's really a wait and see thing...if your plans are too firm you are likely to wind up disappointed! Anyway, as to whether I will ever move back to Quebec, well I'm not opposed to the idea in theory, I mean if that's where there's a university job for me then that's where there's a job for me, you know? But definitely the state of health care will factor in to that decision in a big way!
Everyone has remarked how quickly I was able to get a family doctor though, and none of the rest of this would have happened without him referring me to this and that service. So it isn't as if the state of health care in Ontario and Toronto is miraculously better. I think I got a bit lucky with the timing, showing up right when this GP had spots open for patients. And it probably helped me being T1, skip to the front of the line and all that
But definitely there is a wider network of services and it is SO wonderful to be with a clinic that is used to working with T1s and calls the fear-motivated type of health care I was getting before "the old way"!
In terms of control, I haven't mentioned this yet (just haven't got around to it) but my insurance has finally approved the Libre sensors (out in Canada in September) so they are now covered to 80%. My first order arrives this afternoon
So that should help a lot I think! And I have talked about possibly starting on a pump over the summer - don't want to do it during term time, and still a bit nervous about doing it at all, but it's on the table as an option now for sure, as the Ontario gov't has a program that covers pumps and a part of supplies for all ages. I have been putting it off as something that, well, put ME off, but now knowing that I do have some complications starting to show, I think the idea of good control for its own sake, as opposed to something to please my doctors, is growing on me and beginning to outweigh some of the inconveniences
And a pump plus Libre will definitely be the best combo for that, even if there are other elements of it I'm not keen on (having stuff stuck to me). Provided I don't get too crazy and perfectionistic about it! So baby steps, first with the Libre, see how I get on with having the sensors on and having all that extra information.
I have had other "skin weirdnesses" that have faded with time...in fact they may have been NLD too, now I think about it. Hopefully this one will too, but as you say it takes years. I don't mind too much having it showing in terms of my looks, it is what it is, and anyway "no body" is perfect! But I worry that people will think it's contagious or otherwise "gross" and I don't really want to have to face that sort of reaction, so I just keep it covered. Anyway in Canada it's only really shorts / short dress weather for 3-4 months of the year!
I mentioned to him also having had the pilonidal cyst, and he said how odd it was for a woman to have one. So yep, got the rare diabetic skin condition and the cyst I wasn't "supposed" to get either, plus all the other weird skin stuff I've had in the past. I'm just a weirdo, me!
And the past year or two I've noticed I've been scarring more easily from little things (cat scratches mainly, as we've been raising a kitten in that time!) plus I have mild edema in my lower legs...I guess skin and vascular conditions are going to be my weak point. Bring on the fatty fish, I suppose!