Author Topic: Unfolded Aorta  (Read 999 times)

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Offline Quantum Learning

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Unfolded Aorta
« on: 22 January 2018, 09:17:57 PM »
In early Dec I still had the BP meds dry cough which has plagued me now thru 3 different BP meds so my DSN said let's do some checks to make sure it is defo that & not something more sinister. So she gave me the 'blow in the tube' test which said I had good lung function & a 'lung age' of 51 which I was pleased with as I'm 58 & have been fairly stationary in a wheelchair for the last 25 years. She then decided to make absolutely sure that everything possible has been checked out & booked me for a chest x-ray. All it showed was an unfolded aorta  :o

I've googled it of course & it appears it's quite common as one gets older or it could be a sign of atherosclerosis in the aorta. So I've had to book an appt with the GP to discuss these findings. I'm convinced he's going to give me the statin talk and I'm not sure how to respond. There is no way unless hell freezes over (and even then) am I going to take statins but do I tell him that backed up with a few salient points re these awful drugs or do I just accept the script & then not take them?

My last chol test 3 months ago was 6.9 but no breakdown (I know, I know but I had a lot of stuff going on at the time) I'm quite happy with that at my age & the DSN doesn't argue with me as I've made it clear that while I'm quite happy to work very hard to try & keep my A1c low and the BP lowering is still a work in progress, I have no intention of taking statins.

I'm pretty sure he will want it to be below 4 as per NICE guidelines & have a fit at 6.9. I am aware of other peeps who have been told if they don't take them & lower their chol they will refuse them any more treatment. So, argue or accept the script & throw it in the bin?

I'm having my A1c/lipids done again the week after the GP appt so he may wait for those results I suppose.
Type 2 dx Nov 2012 with fasting BG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
June 2017 51/6.8% Chol 6.1
Oct 2017 52/6.9%
Jan 2018 51/6.8% Chol 5.9
Metformin SR 2000mg, Doxazosin 4mg, Lansoprazole 30mg, Fexofenadine 180mg Co-Codamol 30/500g when needed. Amitriptyline 20mg
Toujeo/NovoRapid, Allergic to Levemir

Offline nytquill17

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Re: Unfolded Aorta
« Reply #1 on: 22 January 2018, 10:01:57 PM »
I totally understand the rehearsing the argument in your head thing, I do that too. But there are a lot of conditionals going on in this post (if your chol is still what it was, if you're still ok about the breakdown, if he suggests a statin, if he refuses further treatment...) You may be getting ahead of yourself - I mean, probably not. But expectations are the thing that do us the most damage usually. So maybe have an idea of an argument you might make, and then go in with a "hang loose" mentality? He may not bring up the subject of statins, or you may feel so harangued by the time it gets to that point that you're not up to arguing. He may be a very reasonable person and willing to hear you out or he may even say all the right things! So my method would be to prepare for a number of different outcomes and then play it by ear on the day.
T1 DX 1995
Levemir + Novorapid
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline nytquill17

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Re: Unfolded Aorta
« Reply #2 on: 22 January 2018, 10:02:32 PM »
Oh and I hope that cough gets better and that you get some good info out of your discussion with the GP and it's nothing to worry about!
T1 DX 1995
Levemir + Novorapid
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline sedge

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Re: Unfolded Aorta
« Reply #3 on: 22 January 2018, 10:55:42 PM »
Since I've been diagnosed with PAD nobody has insisted I take a statin either.

HOWEVER!!! - the 'nice' cardiac nurse who deals with intermittent claudication did actually tell me that no way pedro would 'they' put a stent in, unless I took them.  (and especially in my case packed up smoking, but that doesn't apply in your case, and anyway if it looks like I need a stent a) I will have to pack up smoking, there will be an urgent need which I'll have to respond to!  but b) I'd wait and see what the cardiologist himself said about statins and ask him if he thinks longevity is more important than QOL (cos I don't if you needed me to tell you that!)

The nasty nurse I saw once was enough.  She asked me why she should 'waste her time' seeing me if I wasn't going to help myself.  I didn't answer, presumably they have to see me every 12 months cos that's the NHS rules for hardening of the arteries, cos actually after the very first time I ever saw her when she measured all the pulses and took Doppler readings and explained about the right exercises to try and get new blood vessels to grow and then 3 months later to see how I was getting on, there's never been any other examination nor anything new.  There again it's never got any worse as yet, but what I will find when I can walk better, remains to be seen.  So, I dunno why they do waste their time really!  LOL  (I approve of being checked up on occasionally, means I'm still 'in the system' so presumably might get seen quicker if I had a problem, though 'quicker' is not actually a word one can use in connection with the NHS at the moment !)

Anyway - whilst obviously you will think about the various nuances of whatever you re told by whoever you see, rumours and threats by those lower down the food chain than the actual expert, only need to be borne in mind, not taken as Gospel!
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Quantum Learning

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Re: Unfolded Aorta
« Reply #4 on: 22 January 2018, 11:21:39 PM »
Thanks guys, actually I'm an idiot, I looked at my sig for my last chol result as I couldn't remember what it was & mis-took my last A1c result as 6.9% for my chol which I didn't even get, doh! Those 3 hypos I had in 24 hrs last week are still affecting my brain somewhat (unless I've suddenly developed dementia since last Tuesday).

I need to speak to the DSN again re 2 other small matters this week so I'll get the last chol result from her then. I just would like all the info I can have before I go into battle  ;)  and yes I will play it by ear as to how it goes but will have the arguments ready should I need them.  :)

Sedge, I hope you never have to see that  :nursey: again, nasty piece of work, I'm sure sometimes they must think things like that at times but I don't think it's right to say them  >:(
Type 2 dx Nov 2012 with fasting BG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
June 2017 51/6.8% Chol 6.1
Oct 2017 52/6.9%
Jan 2018 51/6.8% Chol 5.9
Metformin SR 2000mg, Doxazosin 4mg, Lansoprazole 30mg, Fexofenadine 180mg Co-Codamol 30/500g when needed. Amitriptyline 20mg
Toujeo/NovoRapid, Allergic to Levemir

Offline Alan

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Re: Unfolded Aorta
« Reply #5 on: 23 January 2018, 01:25:29 AM »

My last chol test 3 months ago was 6.9 but no breakdown (I know, I know but I had a lot of stuff going on at the time)

Is the breakdown available from your surgery? (oops - saw later post - ignore :) )

I cannot see what benefit the doctors may claim for statins for an unfolded aorta.
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
There is nothing I could eat I like more than my eyes.
Type 2 Diabetes - A Personal Journey (latest: Slow Cooked Beef Brisket)
Born Under a Wandering Star (Surviving Long-haul Flights in Cattle Class)

Offline Pattidevans

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Re: Unfolded Aorta
« Reply #6 on: 23 January 2018, 09:12:43 AM »
Sorry I am late to this, just wanted to say good luck as I think others have reassured you not to fight your battles before you need to!


FWIW I do think some GPs are seeing the light that Statins are not the cure all they have been thought to be.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline BBarb

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Re: Unfolded Aorta
« Reply #7 on: 23 January 2018, 12:16:42 PM »
I haven't been following this story so forgive me if I have made some incorrect assumptions.
Firstly - do you check your own blood pressure at home?  About 15 years ago I went into hospital for minor day surgery and they took my blood pressure - had several fits - called for a 'specialist' who promptly sent me home with a fistful of pills and instructions to see my GP re blood pressure.  Cutting a long story short I spent years on different meds and couldn't get rid of the cough.  I had a 24hr moniter and all that carry on (which proved my BP to average at 130/80) but the results were ignored.

Then I got my own little moniter and took my BP every morning, it was steady at around the 130/80 mark - day after day after day.  I showed my readings to my GP and he said I had white coat syndrome but to keep taking the pills as the reading in his surgery was 198/(I forget what it was over).   I continued this regime but still had the cough although I finally got my cataract operations by showing the home readings at every visit.

I got rid of the cough by gradually weaning myself off the BP meds - my GP washed his hands of me and more of less told me not to blame him if I died   ;D

Offline Quantum Learning

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Re: Unfolded Aorta
« Reply #8 on: 23 January 2018, 06:02:10 PM »
I too have white coat syndrome so have my own BP monitor at home which the DSN checked against hers so we know it's accurate. Unfortunately by the end of a year of zero exercise (in a wheelchair in lots of pain including neck muscles that keep going into spasm, the main reason for zero exercise last year) and large amounts of Toujeo (insulin) I have put on 2 stone and my BP has recently been 150 something over 90 something.

Because of the cough that Ramipril gave me we tried Candesarten which worked well for over a year but then the cough came back so we changed it recently to Doxazosin but my BP was still up so before Xmas we doubled it from 2mg to 4mg which unfortunately totally upset my dyspepsia and I could barely eat anything for around 4 days, one of which was Xmas day. As I couldn't get hold of her till after Xmas I decided to drop back down to 2mg but it still took 4 days to calm down. I told her after Xmas what had happened & so we're now trying 3mg to see if I can tolerate that before increasing up to 4mg.

Still got the cough though which hurts my neck & threatens to put my neck muscles in spasm again but now have a terrible dry mouth too.  ::)

I have managed to restart my walking in the pool which is the only exercise I can do, twice last week, 30 mins each time & once already today @ 35 mins. Hopefully that will bring my BP down so I don't have to keep increasing the meds. The irony is if I keep coughing like this I am risking my neck muscles seizing up & then I won't be able to exercise again, round & round we go  :banghead:
Type 2 dx Nov 2012 with fasting BG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
June 2017 51/6.8% Chol 6.1
Oct 2017 52/6.9%
Jan 2018 51/6.8% Chol 5.9
Metformin SR 2000mg, Doxazosin 4mg, Lansoprazole 30mg, Fexofenadine 180mg Co-Codamol 30/500g when needed. Amitriptyline 20mg
Toujeo/NovoRapid, Allergic to Levemir

Offline Pattidevans

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Re: Unfolded Aorta
« Reply #9 on: 23 January 2018, 07:14:11 PM »
Q

I see you are on Amitriptyline.  I got prescribed that once as a pain killer (can't recall what for), but I had to stop taking it as the main side effect was a dry mouth.  Couldn't be that giving you the cough could it?
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline Quantum Learning

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Re: Unfolded Aorta
« Reply #10 on: 24 January 2018, 03:02:39 AM »
Yes it's a muscle relaxant for my neck, don't know if it has a cough as side effect, I'll look tomorrow. Looks like my exercise is once more gonna be delayed as I missed the bottom stair this evening, fell down 2 & crashed into the wall, trapping my right arm against my ribs. The pain was so bad I couldn't breathe properly for a few minutes. Don't think I've broken anything but can barely move at all without a sharp stabbing pain around my ribs. Couldn't cook anything for myself & OH is on a night shift. You couldn't make it up could you?  :(
Type 2 dx Nov 2012 with fasting BG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
June 2017 51/6.8% Chol 6.1
Oct 2017 52/6.9%
Jan 2018 51/6.8% Chol 5.9
Metformin SR 2000mg, Doxazosin 4mg, Lansoprazole 30mg, Fexofenadine 180mg Co-Codamol 30/500g when needed. Amitriptyline 20mg
Toujeo/NovoRapid, Allergic to Levemir

Offline Pattidevans

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Re: Unfolded Aorta
« Reply #11 on: 24 January 2018, 11:38:35 AM »
Hi Q

OMG!  What a nasty experience you had!  I hope you've had someone look at your ribs as you could easily have broken one.  Hope you feel better soon.

I haven't seen coughing as a side effect of Amitriptyline, dry mouth certainly is and I was thinking if your mouth was so dry then possibly the throat too causing an irritating cough.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline Quantum Learning

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Re: Unfolded Aorta
« Reply #12 on: 24 January 2018, 05:25:34 PM »
I couldn't face 15hrs in A&E only to be fobbed off & I don't think they do anything for broken ribs anyway. Pain's not so bad today, only stabs me if I reach for something quickly/take a deep breath/burp?/and get up & down off a chair. Fingers crossed I'll be able to go walking in the pool Friday, determined not to disrupt it this time.
Type 2 dx Nov 2012 with fasting BG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
June 2017 51/6.8% Chol 6.1
Oct 2017 52/6.9%
Jan 2018 51/6.8% Chol 5.9
Metformin SR 2000mg, Doxazosin 4mg, Lansoprazole 30mg, Fexofenadine 180mg Co-Codamol 30/500g when needed. Amitriptyline 20mg
Toujeo/NovoRapid, Allergic to Levemir

Offline Quantum Learning

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Re: Unfolded Aorta
« Reply #13 on: 25 January 2018, 05:32:48 PM »

My last chol test 3 months ago was 6.9 but no breakdown (I know, I know but I had a lot of stuff going on at the time)

Is the breakdown available from your surgery? (oops - saw later post - ignore :) )

I cannot see what benefit the doctors may claim for statins for an unfolded aorta.

It appears the last test I had in June was a total chol test so 6.1 but no breakdown. I'm having my next lipids test with my A1c next Wed so will post results. Unfortunately she's circled the non-fasting which I've googled and a total chol test can be non-fasting but a lipids test should be fasting. I spoke to her today and she said it can be non-fasting but I think she's wrong so I might change it on the form & get a fasting one anyway as I'd like a breakdown.

Gp's appt is tomorrow and if he does press the statins it'll be cos the unfolded aorta can be caused by atherosclerosis lower down in the aorta. Got a few answers for that  ;)
Type 2 dx Nov 2012 with fasting BG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
June 2017 51/6.8% Chol 6.1
Oct 2017 52/6.9%
Jan 2018 51/6.8% Chol 5.9
Metformin SR 2000mg, Doxazosin 4mg, Lansoprazole 30mg, Fexofenadine 180mg Co-Codamol 30/500g when needed. Amitriptyline 20mg
Toujeo/NovoRapid, Allergic to Levemir

Offline Pattidevans

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Re: Unfolded Aorta
« Reply #14 on: 25 January 2018, 06:33:39 PM »
Good luck!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans