Author Topic: Unfolded Aorta  (Read 1001 times)

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Offline nytquill17

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Re: Unfolded Aorta
« Reply #15 on: 25 January 2018, 06:34:43 PM »
I've always thought it weird that they test total chol non fasting now - I mean I understand the motivation to make it a non-fasting test so it's easier to do and people are more likely to accept having it done if they don't associate it with being starving on the day of! What I've seen/been told is that there are new methods of analyzing the blood taken from the test such that the results are more accurate and less affected by what you last ate. But trigs (all cholesterol is lipids, aka fatty particles, I assume you meant trigs?) are affected if you ate recently and trigs *contribute* to your overall cholesterol level, so seems like that would still be misleading.

Anyway if I know I'm having a chol. test I tend to make sure I'm fasted anyway, regardless of what it says on the form, because that's the result I actually want to see. I suppose this might skew my records somewhat, if it's noted down as a "non-fasting" test but the result shown on the paper is technically a fasting result. But honestly I think they are all pretty well sold on the idea that fasting no longer matters for chol. tests and unless you're seeing a specialist or something, I doubt they track the difference in a way where that information would be critical to care decisions. But the lab I go to now, when it says non-fasting on the sheet, they ask me to give the time of day I last ate and that info is included with my results. I don't know if that's the procedure everywhere though, but at least if I had fasted of my own accord vs. if I hadn't is written down somewhere if I ever need to track it!

Plus don't forget to abstain from any alcohol for 24-48 hours before as part of the fasting routine! (I always forget this part...)
T1 DX 1995
Levemir + Novorapid
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline nytquill17

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Re: Unfolded Aorta
« Reply #16 on: 25 January 2018, 06:37:57 PM »
P.S. depending on the breakdown 6.1 could be a perfectly respectable result. Shame they didn't run it! But that is one thing in your pocket for the appointment, in a way - you can at least refuse to make any health care decisions until they agree to a COMPLETE chol. test with breakdown, and you can make a fully informed decision rather than being railroaded into one.
T1 DX 1995
Levemir + Novorapid
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline Quantum Learning

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Re: Unfolded Aorta
« Reply #17 on: 25 January 2018, 09:34:03 PM »
Yes, quite happy to not eat for hours after I get up. Blood test is booked for 1400hrs next Wed & I very often don't eat till after that anyway so will change the form to fasting. I rarely drink alcohol anyway so abstaining from that won't matter.

1st the GP appt tomorrow and although I'm very happy with 6.1 the guidelines for people with D in the uk is under 4.0  :eek:
Type 2 dx Nov 2012 with fasting BG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
June 2017 51/6.8% Chol 6.1
Oct 2017 52/6.9%
Jan 2018 51/6.8% Chol 5.9
Metformin SR 2000mg, Doxazosin 4mg, Lansoprazole 30mg, Fexofenadine 180mg Co-Codamol 30/500g when needed. Amitriptyline 20mg
Toujeo/NovoRapid, Allergic to Levemir

Offline Quantum Learning

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Re: Unfolded Aorta
« Reply #18 on: 30 January 2018, 07:09:20 PM »
Okay, an update on Friday's GP appt. Sorry to take so long, been dealing with various family 'stuff'.

It went pretty well, he said there's nothing sinister on the x-ray re my lungs, which is why the chest x-ray was done originally and he's not concerned about the unfolded aorta. Re my chol being 6.1 he said that was a little high & OH who was there with me said he thought he was about to mention statins but I launched in & distracted him by talking non-stop so he didn't  ;) I've tried this tactic before & sometimes it works, sometimes it doesn't, depends on how stressed they are from previous patients.

As the x-ray was done because of this BP meds cough he suggested he double my Omeprazole to 40mg a day to see if that helps  ::) told him I would like to come off the Omep so that wouldn't be very helpful. In the end I agreed to switch to Lansoprazole @ 30mg a day to see if the cough goes away. Not happy about this as I want to be able to stop taking PPI's but he's not completely mad as when I googled what do the various colours of phlegm mean over Xmas when my cough was the worst it's ever been (other than with a chest infection) it said white phlegm (which was the only colour I coughed up and not very often at that) is to do with acid reflex  :o Sorry if that's TMI  :P

I also asked about the blood test for Helicobacter (the only test where you don't have to stop the PPI for 2 weeks beforehand) and he said it's not available on the NHS, no surprises there, I mean why have a simple blood test when you can have a whole team of people do an endoscopy and torture the patient at the same time by stopping their PPI for 2 weeks beforehand  :banghead:

Anyhoo a fairly successful appt, going for my A1c & chol breakdown tomorrow which will be nice to have but not expecting the results to be very good as my BG's were manic for the month I was ill over Xmas. Feel like it's one step forward & 3 back this D thing.

Type 2 dx Nov 2012 with fasting BG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
June 2017 51/6.8% Chol 6.1
Oct 2017 52/6.9%
Jan 2018 51/6.8% Chol 5.9
Metformin SR 2000mg, Doxazosin 4mg, Lansoprazole 30mg, Fexofenadine 180mg Co-Codamol 30/500g when needed. Amitriptyline 20mg
Toujeo/NovoRapid, Allergic to Levemir

Offline Pattidevans

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Re: Unfolded Aorta
« Reply #19 on: 31 January 2018, 10:02:21 AM »
Q

I’m just thinking, why do doctors refuse to acknowledge what are quite well known side effects from  Various meds?  For example the Ace cough.  Unless of course he’s worried about you coming off BP meds, though there are 2nd generation ACE meds.

 So far as I am aware the ACE cough is a dry irritating cough, as though you have an itch in your throat, although it can persist until you are gagging.  I have had it from two different BP tabs, both with the ‘pril ending.  I am currently on Losartan (second generation ACE apparently) which is not supposed to cause a cough.  However I suspect I am getting one!


Anyway, if you are going to continue with the PPI you should be aware it inhibits takeup of B12 and ask for a B12 test and also Magnesium - see https://drmalcolmkendrick.org/2018/01/29/what-causes-heart-disease-part-forty-five-b-an-addendum/. So maybe take a magnesium supplement?
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline TerryJ

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Re: Unfolded Aorta
« Reply #20 on: 31 January 2018, 11:47:34 AM »
I used to be on Lisinopril which did give me that annoying cough.

I was switched to Candersartan for a couple of years and then Losartan (cheaper). So far been on the -artan varieties for 5 years plus with no sign of any cough.

But YMMV !
Type 2 since 1999. Current meds Gliclazide
HbA1c Feb10 10.9, May10 7.7, Oct10 6.6, Oct11 6.7, Dec12 6.4, Nov13 6.9

Offline Pattidevans

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Re: Unfolded Aorta
« Reply #21 on: 31 January 2018, 12:21:53 PM »
Quote
So far been on the -artan varieties for 5 years plus with no sign of any cough.

But YMMV !

FWIW I was on Lisinopril for about 10 years before the cough started up.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline sedge

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Re: Unfolded Aorta
« Reply #22 on: 31 January 2018, 01:00:44 PM »
Ditto Patti, about 7 years in my case.  It was the Easter that Kate and Wills got married that the cough got ridiculous and in combination with the horrific pine tree/?maram grass pollen where we were (Berck sur Mer) in the mega heat (40+ degrees average every day) I coughed all day and all night.  The night time cough persisted for months after we got home so I swapped to 20mg Losartan and I'm still on that dose now.  (However I have lowish serum sodium which ~sartans can cause so they originally wanted me off them entirely but low dose Felodipine does nowt for my BP but makes my ankles swell horrifically and they can't prescribe a diuretic tablet when you have low sodium - so they tried Doxasozin but that wasn't enough - so after about 12 months of seeing the GP every 5 minutes I said if you asked me I had far less problems on Losartan - cos the lethargy caused by lower sodium isn't debilitating since I don't actually have a very active lifestyle anyway! - and if I need to get going I still can - just couldn't eg dig the garden all day but then I never could - so they let me resume taking it, with the addition of 4mg Doxasozin.)
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Quantum Learning

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Re: Unfolded Aorta
« Reply #23 on: 31 January 2018, 05:39:48 PM »
I am aware of the 'results' that PPI's give you & I've been on them for nearly 25 years so am desperate to come off them but that will have to be a work in progress. I do have my B12 checked regularly but it's pointless as they don't mean anything if you supplement and my multivit contains it.

As regards the BP meds I started on Ramipril which gave me the terrible cough and started my hair falling out even on a low dose (SIL takes the max dose & doesn't have any probs). I then switched to Candesarten which was fine for maybe 2 years, although my hair was still falling out at a tremendous rate, then the cough started up so they switched me to Doxazosin. I started on 1mg, upped it to 2mg then just before Xmas doubled it to 4mg. Unfortunately that upset my GERD so much I barely ate for 4 days, I was in agony. It was now Xmas so I took the decision to drop it back to 2mg mg & after speaking with the DSN after Xmas am now trying 3mg. My BP isn't good though, usually 150 something over 90 something. I took it the other day & it was 192 over 111  :eek: Might have been the pain of what I suspect is a cracked rib though, add in some family crises & it's not surprising. Also affecting my BG's again, last couple of days 9 something all day but too scared to correct much after those 3 unexplained hypos in 24 hrs I had a couple of weeks ago. In between the flu I had all over Xmas & until now with the rib problem, BG's were 5 something all day, so annoying.
Type 2 dx Nov 2012 with fasting BG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
June 2017 51/6.8% Chol 6.1
Oct 2017 52/6.9%
Jan 2018 51/6.8% Chol 5.9
Metformin SR 2000mg, Doxazosin 4mg, Lansoprazole 30mg, Fexofenadine 180mg Co-Codamol 30/500g when needed. Amitriptyline 20mg
Toujeo/NovoRapid, Allergic to Levemir

Offline Pattidevans

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Re: Unfolded Aorta
« Reply #24 on: 31 January 2018, 11:07:26 PM »
 
Quote
I am aware of the 'results' that PPI's give you & I've been on them for nearly 25 years so am desperate to come off them but that will have to be a work in progress. I do have my B12 checked regularly but it's pointless as they don't mean anything if you supplement and my multivit contains it.

Sorry, I didn't mean to be patronising, I do know that you know the side effects of PPI.  It was just that I read an article by Malcolm Kendrick yesterday (https://drmalcolmkendrick.org/) and it was the first I had heard of the magnesium problem caused by them.  BTW I myself was on PPIs for many years... though not for at least 20 years now.

However, could you not find any multivits that do not contain B12?  Since you cannot absorb it through your stomach it's not helping and that way you could actually have your levels tested after 2 months off the B12 supplement.  I am B12 deficient and feel much better now I have injections once every 8 weeks.  I looked into it a lot.  I could probably use more frequent injections, but I feel so much better than before diagnosis.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline Quantum Learning

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Re: Unfolded Aorta
« Reply #25 on: 01 February 2018, 02:25:30 AM »
Quote
I am aware of the 'results' that PPI's give you & I've been on them for nearly 25 years so am desperate to come off them but that will have to be a work in progress. I do have my B12 checked regularly but it's pointless as they don't mean anything if you supplement and my multivit contains it.

Sorry, I didn't mean to be patronising, I do know that you know the side effects of PPI.  It was just that I read an article by Malcolm Kendrick yesterday (https://drmalcolmkendrick.org/) and it was the first I had heard of the magnesium problem caused by them.  BTW I myself was on PPIs for many years... though not for at least 20 years now.

However, could you not find any multivits that do not contain B12?  Since you cannot absorb it through your stomach it's not helping and that way you could actually have your levels tested after 2 months off the B12 supplement.  I am B12 deficient and feel much better now I have injections once every 8 weeks.  I looked into it a lot.  I could probably use more frequent injections, but I feel so much better than before diagnosis.

I know you didn't mean to be patronising and I didn't intend my answer to be snippy  :)  I am feeling a bit 'out of control' at the mo, (sure sign of stress with me) just sick & fed up with having to deal with everything and things seem to be piling up, additional pain/loss of mobility not helping.
Type 2 dx Nov 2012 with fasting BG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
June 2017 51/6.8% Chol 6.1
Oct 2017 52/6.9%
Jan 2018 51/6.8% Chol 5.9
Metformin SR 2000mg, Doxazosin 4mg, Lansoprazole 30mg, Fexofenadine 180mg Co-Codamol 30/500g when needed. Amitriptyline 20mg
Toujeo/NovoRapid, Allergic to Levemir

Offline Pattidevans

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Re: Unfolded Aorta
« Reply #26 on: 02 February 2018, 08:59:33 AM »
Really sorry to hear that things are piling up on you.  I hope something “gives” in the near future and things get a bit easier for you.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline Quantum Learning

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Re: Unfolded Aorta
« Reply #27 on: 06 February 2018, 12:02:53 PM »
Thanks x

Think I've got a UTI now, incredible pain in my lower right abdomen, almost transcending the rib pain  ::)
Type 2 dx Nov 2012 with fasting BG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
June 2017 51/6.8% Chol 6.1
Oct 2017 52/6.9%
Jan 2018 51/6.8% Chol 5.9
Metformin SR 2000mg, Doxazosin 4mg, Lansoprazole 30mg, Fexofenadine 180mg Co-Codamol 30/500g when needed. Amitriptyline 20mg
Toujeo/NovoRapid, Allergic to Levemir

Offline Pattidevans

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Re: Unfolded Aorta
« Reply #28 on: 06 February 2018, 12:24:58 PM »
So sorry to hear that Q.  Sounds like you are thoroughly run down and one thing is leading to another.  You really do need to see someone.

Hope you feel better soon.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline Alan

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Re: Unfolded Aorta
« Reply #29 on: 06 February 2018, 08:21:52 PM »
Thanks x

Think I've got a UTI now, incredible pain in my lower right abdomen, almost transcending the rib pain  :rolleyes:

Another thing you didn't need. I wish I could help but all I can do is send healing wishes across oceans. Be well soon.
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
There is nothing I could eat I like more than my eyes.
Type 2 Diabetes - A Personal Journey (latest: Slow Cooked Beef Brisket)
Born Under a Wandering Star (Surviving Long-haul Flights in Cattle Class)