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General discussion / Re: Type One
« Last post by GrammaBear on Yesterday at 09:36:51 PM »
Glad you now have a proper diagnosis Blueduck. A friend was recently diagnosed Type 1.5. Sadly this only occured after he collapsed and was rushed to hospital. Despite it being obvious, to me, from his Bags that something else was going on his GP, and the surgery DSN, continued on the Type II track. If you are low carbing and taking Metformin and your BGs continue to rise it should be taken seriously! They probably assumed he was cheating!  :(

The GP who originally diagnosed me accused me outright of not taking my medicines (oral) that he had prescribed for me.  It was only when I made an appointment with an Endocrinologist that I got insulin and a Type 1 reclassification.
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General discussion / Re: Type One
« Last post by Dr DeEath on Yesterday at 07:30:25 PM »
Glad you now have a proper diagnosis Blueduck. A friend was recently diagnosed Type 1.5. Sadly this only occured after he collapsed and was rushed to hospital. Despite it being obvious, to me, from his Bags that something else was going on his GP, and the surgery DSN, continued on the Type II track. If you are low carbing and taking Metformin and your BGs continue to rise it should be taken seriously! They probably assumed he was cheating!  :(
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General discussion / Re: Moving house and a clinical trial
« Last post by Pattidevans on Yesterday at 06:40:18 PM »
It's curious to have no responsibility as in a house.... we are currently enjoying a break in Bath with the intention of visiting Ikea in Bristol on the day we leave to inspect some shelving to turn a large cupboard into a larder.  We do not have to worry about the house whilst we are away... I mean to a degree one always does.


Today we have visited the Roman Baths in the morning and (after a delicious venison pie lunch)the Fashion Museum this afternoon.  My feet are killing me, but I am sitting in a hugely comfortable sofa in the apartment we have rented for 3 nights, with a nice cuppa.  Off for dinner in a French restaurant this evening and tomorrow the Thermal spa experience. 


Solicitor is on holiday this week, so nothing could be done anyway.

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General discussion / Re: Type One
« Last post by Pattidevans on Yesterday at 06:29:56 PM »
Sadly you have to make your voice heard sometimes.  How is your control at the moment?  Cos unless it is truly good then as a T1 you should be on a more modern insulin.  I would start by asking for Levemir instead of Humalin.  Once they realise you have surpassed them in knowledge they should refer you on to a fully qualified DSN, which the surgery nurses are not.


Sorry I just get so hot under the collar to hear of 2nd rate treatment.
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General discussion / Re: Type One
« Last post by nytquill17 on Yesterday at 03:57:56 PM »
Have they told you you're not likely to see the consultant since your diagnosis was changed? Or was that something you were told in the beginning? It can be really surprising (and shocking and saddening) how differently things might be handled now that you are T1.

Of course if there's no money / no doctor with enough time in the day to see you, then there isn't, regardless of what type you are. But T1 or 1.5 is more usually recognized as a condition that actually requires specialist involvement from the start, while T2 is often thought of as a "simple" condition (although frankly T2 is just as complex if not moreso) that can be managed by a GP in the initial stages. If memory serves, I have never had a GP be wholly and solely responsible for my T1 on anything more than a temporary basis while I was waiting for a referral. Most GPs in my experience actually don't want to mess with it if they can help it and are happy to leave it to a specialist!

If you really want to be seen by the consultant, I suspect there may be some NICE guidance to the effect that they are required to refer you if you so desire, especially as a T1, regardless of what their official or unofficial policy is locally. If you're not that bothered by it, or depending on the quality of the consultant, then it may not be worth the hassle for you though.
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General discussion / Re: Type One
« Last post by Liam on Yesterday at 02:49:04 PM »
That is terrible Cheryl. You really should be getting referred. It really is a bit of a stumbling block not being. I'll not list all the advantages again. I wonder what they would have done if you'd been say 12 and got a type I diagnosis, I'll be you would have been referred then. 
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General discussion / Re: Weight Loss Surgery And Diabetes Reversal
« Last post by Dr DeEath on Yesterday at 01:38:53 PM »
My understanding is that liquidised food is necessary for at least a month as you have had fairly major stomach surgery. After that solids are gradually re-introduced bit like baby! :)

The diabetes reversal is interesting as it is immediate compared to "gastric band" surgery where things improve (not always) as weight is lost. I cannot get my head around this level of overeating but then it seems very much like a form of addictive behaviour!
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General discussion / Re: Moving house and a clinical trial
« Last post by Blueduck on Yesterday at 12:07:49 PM »
Hope all going well now, on the house moving, and that it wont be long until you get into the new one.

The good thing about moving is the clearing out, we still have boxes in our loft from when we moved, 30 years ago, but now we have a brilliant loft ladder installed, and I am slowly ploughing through it all.  I am a woman on a mission ;D

How rude of the check out girl.  So many people are so ignorant of diabetes.  Maybe we should all have leaflets to pass out to people like that, although maybe they would not read them.  Or a sharp stick!

 
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General discussion / Re: Type One
« Last post by Blueduck on Yesterday at 12:00:18 PM »
That's sounds brilliant Patti, not so confident about getting that treatment...sadly money always seems to be the deciding factor.  We have got a more experience DN in the next town, who comes out to our surgery when needed, so I maybe able to get a visit from her.  Its the old story though, too many patients, not enough nurses.  No one is refered to the hospital here any more, all treatment is surgery/doctor based.  When I asked for the C Peptide, the surgery did have to check with the diabetic consultant at the hospital, and he gave the go ahead, but unless I have any serious complications I am unlikely to see him. So I have to hope that I don't see him!!

Thank you all for your kind comments and thoughts, as always, I really appreciate them. :D
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General discussion / Re: Weight Loss Surgery And Diabetes Reversal
« Last post by Blueduck on Yesterday at 11:51:20 AM »
OMG, cant imagine liquidised food for the rest of your life, how terrible. A very high price to pay.  But maybe worth it to some people...I'm not sure.  Wonder if the  diabetes reversal is permanent.
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