Diabetes Support Forum

Living with diabetes => General discussion => Topic started by: Dr DeEath on 06 September 2017, 01:33:59 PM

Title: My Heart Operation
Post by: Dr DeEath on 06 September 2017, 01:33:59 PM
I thought it was worth a new thread as the original one is getting rather long and at times off-topic at times. After I posted yesterday I got a somewhat puzzling phone call (very bad line). When I got a chance a bit later in the afternoon I rang the hospital as I had caught the words "heart" and "procedure".  It appears that I have now been referred to the Royal Brompton for triple bypass (is that a motorway). It was a bit of a shock as everyone has  been talking stents for over three months. Apparently I have been sent a letter which I imagine is in the post as the letters for some reason are posted around 100 miles away with a 2nd class stamp.

I am now wondering if I will have to go through the various angio/cardio grams again?

Wonder if I will spot Avocado there?
Title: Re: My Heart Operation
Post by: Avocado on 06 September 2017, 04:04:40 PM
The Royal Brompton is the best heart hospital so you will be in good hands there. I would hope they send copies of your recent scans to the hospital so you don't have to have them all over again.


When I next have surgery the Brompton is the place where I think I wil get the best level of aftercare and nursing which is most important after heart surgery, as the hospital is dedicated just to heart and lung.


The food is very good too - at least it was when I was a day patient there in June. Of course they do all the low fat stuff but I managed to get a very good omelette with cheese and fresh green vegetables - and I asked for butter to put on them, apparently they try to source the veggies locally and try to get organic ! That's what I read any way. Mind you, you might not feel like much food after your op, at least not for a few days. They will obviously be aware of your diabetes when it comes to the surgery and how that will affect your diabetes.

Do keep us posted !
Title: Re: My Heart Operation
Post by: Pattidevans on 06 September 2017, 06:23:07 PM
Oh goodness, what a shock for you!  Any idea when?
Title: Re: My Heart Operation
Post by: Liam on 06 September 2017, 07:06:17 PM
Glad Anne (Avocado) was on to see your post. I know we can offer support but some first hand knowledge is much more helpful I'm sure!
Title: Re: My Heart Operation
Post by: Paulines7 on 06 September 2017, 08:51:00 PM
Wishing you all the best and hoping that you do not have to wait too long for your op.

I go in to Cardiology at Salisbury District Hospital on 27th September as my pacemaker battery is now reaching its limit.  I have had a scan but they haven't told me yet whether they will just be changing the battery or fitting in a completely new pacemaker. 

We live in the age now when heart operations, triple bypasses and stent insertions is all routine.  It's just as well we aren't all living in the 19th Century!  Good luck Dr DeEath.
Title: Re: My Heart Operation
Post by: Venomous on 06 September 2017, 10:31:38 PM
Good luck for your operation, I'll be thinking of you!
Title: Re: My Heart Operation
Post by: Dr DeEath on 07 September 2017, 02:01:41 PM
Thank you fr the good wishes. I will let you know when I get an appointment through.

Personally I would have thought that I would have been given a appointment t discuss the test results and treatment options. The good side is that I was referred quickly - I just hope things move forward as I tire more easily than\n just a few months ago!
Title: Re: My Heart Operation
Post by: Venomous on 07 September 2017, 08:52:45 PM
I hope the operation is sooner rather than later.
Title: Re: My Heart Operation
Post by: Alan on 07 September 2017, 11:44:44 PM
Sorry about the shock. Best wishes, it appears you will be at a good hospital.
Title: Re: My Heart Operation
Post by: Dr DeEath on 03 October 2017, 01:20:08 PM
Had hoped I would find an appointment for my initial consultation when I got back but still nothing. I have heard stories of people waiting 3 - 4 months for an appointment after referral to the major heart hospitals. It's hard not to let it get you down!
Title: Re: My Heart Operation
Post by: Quantum Learning on 03 October 2017, 02:07:02 PM
We have to wait 3-4 months for any referral to see anybody. Then you get there and they send you for a blood test & say see you in another 3 months, so much time wasting.  :(
Title: Re: My Heart Operation
Post by: sedge on 03 October 2017, 02:13:29 PM
I'd be ringing up to find out what's going on, after this length of time Dr D.
Title: Re: My Heart Operation
Post by: Venomous on 04 October 2017, 08:57:33 AM
One of my daughter's coworkers had a triple heart bypass at Barts a couple of weeks ago. He is 51, a little extra weight, but not diabetic. He was in ICU for 2 days..then they sent him home! He doesn't have anyone living with him so we were very worried and I cooked and sent round meals. He soon didn't need them and went into work 7 days following his operation just to say hi to everyone and show them his chest scar and a long scar on his leg where I think they took veins or something?

I hope your operation goes as smoothly!
Title: Re: My Heart Operation
Post by: Pattidevans on 04 October 2017, 03:56:49 PM
It's strange, another post code lottery I suppose.  J's elder brother who lives on the south coast (Worthing) went for a treadmill test, next day he was in London having a triple by-pass op.  Think it was University College Hospital.
Title: Re: My Heart Operation
Post by: Dr DeEath on 05 October 2017, 01:28:12 PM
It's strange, another post code lottery I suppose.  J's elder brother who lives on the south coast (Worthing) went for a treadmill test, next day he was in London having a triple by-pass op.  Think it was University College Hospital.

Yes it seems so especially as one consultation said I was to have no stress tests (exercise or drug induced) as it would provide no useful information and could be dangerous!
Title: Re: My Heart Operation
Post by: Avocado on 05 October 2017, 03:21:48 PM
I read on the BHF website a story by patient who had surgery at the Brompton. She lived in Cornwall, had all her cardiac tests at Truro Hospital and was referred to the Royal Brompton for valve surgery. She didn't go to the Brompton for any more tests as they'd all been done in Truro. When her appointment for surgery came through from the Royal Brompton they sent a van/ambulance car to pick her up ! She met the surgeon the next day and then had surgery. So fingers crossed Dr DeEath that it's as simple as that for you - no more tests, just the surgery when the date comes through. But do chase it - perhaps your GP has a copy of the referral letter ?
Title: Re: My Heart Operation
Post by: Blueduck on 06 October 2017, 08:20:29 AM
Good luck DrD, my mums had a triple heart by pass and she is now 83, it was about 5 years ago, she was like a new woman after the op. And for a lady of her age got over it it very well and quickly. They do normally take a veins from somewhere, in my mum it was her leg, like some one said previously, my aunt also had THB and they took her vein for the repair from her arm. She was quite a bit younger, but in both cases they did really well.  :D
Title: Re: My Heart Operation
Post by: Dr DeEath on 06 October 2017, 05:04:45 PM
Have been told they will use arm or chest blood vessels because of the PAD!
Title: Re: My Heart Operation
Post by: EdmundK on 20 October 2017, 08:47:35 AM
I hope everything goes well and you have a speedy recovery Dr DeEath!
Title: Re: My Heart Operation
Post by: Dr DeEath on 01 November 2017, 01:17:01 PM
The upset stomach I had a few weeks ago has come back a couple of times accompanied by dizziness. For the moment I have dropped the Vitamin C but am looking into the buffered variety. My pharmacist said it might be getting the GP to review my meds as I am on three different tablets that reduce BP, including the nitrate. The only appointment available this week was tomorrow when I am at ophthalmology. As the latter is four weeks overdue I will just have to go with next Monday!
Title: Re: My Heart Operation
Post by: Pattidevans on 02 November 2017, 08:50:54 AM
It sounds like a good idea to me Dr D.  Let us know what happens on Monday.  Oh, and at the ophthalmologists.
Title: Re: My Heart Operation
Post by: Dr DeEath on 09 November 2017, 01:49:22 PM
Monday was one of my more constructive appointments. I waited a few days before posting and so far so good. After checking my BP (105/62) he took me off the slow release diltiazem hydrochloride which can cause dizziness and nausea. My last attack was on Sunday morning and it got to the point my partner was on the verge of calling the paramedics. I need to contact him if the angina returns but hope the mono-nitrate I was prescribed at the same time will do the trick. I also asked for an Lp(a) blood test - that will not happen so I will ask a cardiologist next time I see one.

I am also off the Vitamin C for the time being as it can also be a cause of acidity. If there is no return of the acidity/reflux he suggested restarting with the buffered variety although he is skeptical about the inflamed arteries theory but says it can do no harm as ling as I stick to the RDA. After leaving I went into a well known health food/supplements shop.Nobody including the manager had a clue of what I was talking about. I will ask my pharmacist when I collect my repeat on Saturday.
Title: Re: My Heart Operation
Post by: Avocado on 09 November 2017, 02:50:05 PM
I am also off the Vitamin C for the time being as it can also be a cause of acidity. If there is no return of the acidity/reflux he suggested restarting with the buffered variety although he is skeptical about the inflamed arteries theory but says it can do no harm as ling as I stick to the RDA. After leaving I went into a well known health food/supplements shop.Nobody including the manager had a clue of what I was talking about. I will ask my pharmacist when I collect my repeat on Saturday.
Here is the buffered vitamin C I take, it's made by BioCare and I get it at my local health food shop or online, here: https://www.amazon.co.uk/Biocare-Vitamin-C-Powder-60g/dp/B0013G340I/ref=sr_1_1_a_it?ie=UTF8&qid=1510238820&sr=8-1&keywords=biocare+vitamin+c+powder&dpID=41WpSw5iHXL&preST=_SY300_QL70_&dpSrc=srch (https://www.amazon.co.uk/Biocare-Vitamin-C-Powder-60g/dp/B0013G340I/ref=sr_1_1_a_it?ie=UTF8&qid=1510238820&sr=8-1&keywords=biocare+vitamin+c+powder&dpID=41WpSw5iHXL&preST=_SY300_QL70_&dpSrc=srch)  It says: "Biocare vitamin C powder contains magnesium ascorbate which is a low acid form of vitamin C, produced by our unique solvent free freeze dried method. It is free from additives and excipients. This form of vitamin C is more gentle on the stomach. It provides a readily absorbable form of vitamin C and magnesium. It is buffered, low acid form of vitamin C to reduce stomach irritation."
Title: Re: My Heart Operation
Post by: Dr DeEath on 11 January 2018, 01:21:06 PM
Spent some time on the phone on Tuesday and now have my first consultation with the cardiology surgeon in a couple of weeks. It has been a long time coming!

Doing fine with the buffered Vitamin C BTW.
Title: Re: My Heart Operation
Post by: Liam on 11 January 2018, 01:40:01 PM
Glad to hear you are making some progress. Hope the appointment goes well.

Title: Re: My Heart Operation
Post by: sedge on 11 January 2018, 02:03:09 PM
That's better news then - isn't it a PITA that so much of sorting out appointments is down to us chasing, rather than HCPs having a reminder system in place?

Wouldn't last 5 minutes in a normal commercial office, would they?
Title: Re: My Heart Operation
Post by: Venomous on 11 January 2018, 07:14:00 PM
glad to hear you have an appointment
Title: Re: My Heart Operation
Post by: Dr DeEath on 31 January 2018, 01:39:18 PM
Well I had my first appointment at RB a couple of days ago.I did not post yesterday as I was still getting my head around things after endless months in limbo. My operation will be in about five months but prior to that I need to pass the pre-op and have further tests. The further tests are slightly annoying as they could have been done by my local hospital or RB during the limbo period.

The consultant also examined my legs because of the PAD and concluded I really needed a bypass.Now is not the time as any procedure might dislodge something which is undesirable.Post-op I am crossing my fingers crossed that I might get some support for sorting out the blood flow in my leg as this will restrict me exercising and hence my recovery!
Title: Re: My Heart Operation
Post by: Dr DeEath on 13 February 2018, 01:39:17 PM
Things seem to be moving now - not fast but moving. Got my pre-op in a month's time.
Title: Re: My Heart Operation
Post by: Avocado on 13 February 2018, 06:58:03 PM
Normally the pre-op is done a week or two before surgery so it's a good sign you have been given your pre-op appointment date !
Title: Re: My Heart Operation
Post by: sedge on 13 February 2018, 10:14:17 PM
Ordinary pre-ops stay in date for up to 6 months Ann - Pete had to have his re-done cos his prostatectomy was overdue - my pre-op for my cataract op was done on 4th December last year so they wouldn't need another unless it was after 4th June I had it done.

If they need other specialist tests to be done within a different timescale then these aren't part of the pre-op process cos they require specialised staff to do them.
Title: Re: My Heart Operation
Post by: Avocado on 14 February 2018, 07:29:25 AM
It might be different for cardiac surgery Jenny as six months would be too long between some of the tests and surgery, at least everyone I've know of whose had cardiac surgery has had their surgery done within a few weeks of the the pre-admission test. Since Dr DeEath is having surgery at the Brompton I've got a link to their pre-admission test page: http://www.rbht.nhs.uk/patients/condition/heart-surgery/heart-surgery-pre-admission/ (http://www.rbht.nhs.uk/patients/condition/heart-surgery/heart-surgery-pre-admission/)  Of course they might find something else wrong and that would delay things....
Title: Re: My Heart Operation
Post by: Venomous on 14 February 2018, 08:12:32 AM
Maybe it's hospital based. My surgery was meant to be done within 2 weeks after the pre-op too.