Author Topic: To Speak Up, or Not to Speak Up? That is the Question.  (Read 1083 times)

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Offline Alan

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To Speak Up, or Not to Speak Up? That is the Question.
« on: 11 October 2011, 07:36:59 AM »
Last weekend I travelled interstate to attend a family memorial service for my uncle by marriage, who passed away at the age of 91.
 
We were not close, but the service itself was a sad occasion as he was much loved by his family and community. I also found it interesting as he was an active member of a Jehovah's Witness congregation and brought up his family in that faith. I won't mention religion any further, apart from finding the service interesting and the family support from the congregation impressive.
 
My reason for mentioning it here is that instead of a service I could have been attending a convention for sufferers of obesity and diabetes. The venerable gentleman himself was slim and non-diabetic, as is his widow, but all of his children are either diabetic or pre-diabetic and the signs in the grand-children and great-grandchildren are already there with cases of GD in the grandchildren and obesity in some of the great-grand-children. His widow, like my mother her sister, is non-diabetic but both seem to have passed on the genes. Don't let anybody tell you this is not a genetic condition.
 
I had promised my wife that I would not mention diabetes or my book during the gathering. I tried; I really tried.
 
But I failed. When my cousin's daughter brought the subject up over coffee between the service and the wake I mentioned my book and she asked for a copy for him. Later, he brought up the subject first, mentioning five daily injections and many failed weight loss attempts in between requests for his wife (also diabetic and also large) to get more delicacies from the table groaning under the weight of cakes and cookies supplied by the congregation.  I can't recall ever before seeing as much carbohydrates in one place as I saw at the wake. First the two large tables were full of sandwiches, lasagne and pasta in various forms and after that was cleared they were filled with cakes. There was also one small plate of salad, which I commandeered. He mentioned that he weighs 160Kg (350lbs). Several of his children and grandchildren will catch up with him eventually if they do not change something.
 
It became clear that he and all the others with diabetes have been advised to follow the "healthy whole, grains low fat" way of eating. He has to eat to match his set insulin doses, or he risks lows. Not surprisingly his weight keeps going up rather than down. You've heard it all before. So, after I gave him the book as a gift, the guy who promised his wife that he wouldn't mention diabetes spent most of the next three hours giving an impromptu presentation on test, review, adjust with a long Q and A session. Every time I tried to change the subject, someone would ask another question. Well, that's my excuse anyway.
 
They may not invite me back for the next funeral, but I hope that I may have dropped a few seeds to possibly delay at least one or two of those occasions.
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
Type 2 Diabetes - A Personal Journey (latest: George's Story
Born Under a Wandering Star (latest: Inle Lake, Myanmar, Markets, Crafts and Villages)

Offline Moby

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Re: To Speak Up, or Not to Speak Up? That is the Question.
« Reply #1 on: 11 October 2011, 07:43:20 AM »
well, others brought the subject up first. i suspect it may have been on their agenda tbh.

hope you helped a least one person. polish your halo alan, dont hide it away!
bw
Moby

T2 since 2002.
metformin 2000mg. humalin I and humalog

©Martin Cronshaw 2012

Offline Alan

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Re: To Speak Up, or Not to Speak Up? That is the Question.
« Reply #2 on: 11 October 2011, 07:45:44 AM »
well, others brought the subject up first. i suspect it may have been on their agenda tbh.

hope you helped a least one person. polish your halo alan, dont hide it away!
Thanks Moby.

I think the halo is hiding somewhere under the horns...
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
Type 2 Diabetes - A Personal Journey (latest: George's Story
Born Under a Wandering Star (latest: Inle Lake, Myanmar, Markets, Crafts and Villages)

Online Pattidevans

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Re: To Speak Up, or Not to Speak Up? That is the Question.
« Reply #3 on: 11 October 2011, 09:29:13 AM »
Well done Alan if it only helps one or two.  At least it sounds as though they were open and receptive (whilst stuffing carbs). 
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Always on insulin, now on Levemir/Apidra, Lisinopril, Thyroxine, Liothyronine and now 1500mg Glucophage SR. Last Hba1c 6.5 - getting worse!

© 2011 Patti Evans

Offline Idreamofchocolate

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Re: To Speak Up, or Not to Speak Up? That is the Question.
« Reply #4 on: 11 October 2011, 11:25:52 AM »
Well done, Alan, you definitely did the right thing. I tried to educate my brother in law who is type 2, and although he seemed to take in what I was telling him, and took a couple of my books home with him to read, he hasn't changed anything remotely. But, I hope, like you say, that the seed has been planted, somewhere deep in his couple of brain cells (sorry, couldn't resist) and that's all we can do I think. And just hope that the seed starts to grow.


I had to convert 350lbs to stones, to get more of an idea of the scale of the problem, and it's 25st. That's scary, and needs sorting out from all angles. The information in your book, and that we all know now on here, just makes SO much sense. How can there be any other way??
Maureen

Type 2 diagnosed June 08. HbA1c 5.7 (July 2012) Diet and exercise controlled. Taking Doxazosin 2mg/Lercanidipine 7.5mg.

“When having a smackerel of something with a friend, don't eat so much that you get stuck in the doorway trying to get out.” A. A. Milne

Offline Venomous

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Re: To Speak Up, or Not to Speak Up? That is the Question.
« Reply #5 on: 11 October 2011, 12:42:21 PM »
Omgoodness Alan hope your wife forgives you! I'm sure she knows how important the whole subject is to you and why, but I can just imagine what she must have felt to have pre-warned you and then you go ahead anyway lol

The tale you reiterated to me in the car that time about the friend who followed all the health advice regarding carbs is probably the clearest most memorable thing I have to show me that eating carbs is dangerous for diabetics. You help many of us Alan.

Strange isn't it how theres clearly a genetic element to diabetes. And family relationships with meals are interesting too. Yet slim people have diabetic children and overweight parents have slim non diabetic kids. Since I've stopped eating carbs my poor husband has put on around 2 stone in weight! Our meal structures have changed and now I eat a small protein meal he seems to have gone the other way and eaten double carb portions!! I take comfort in my skinny children, somehow I'm not passing on the "carbs are good" message they get from the NHS. I tell them, well, "the carbs are just the fillers, eat the green stuff, more vitamins!".
T2 and PCOS.

Levemir and Novorapid started Feb 2012 after hba1c of 90.

Offline sedge

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Re: To Speak Up, or Not to Speak Up? That is the Question.
« Reply #6 on: 20 October 2011, 11:45:03 PM »
Late to this, but IDOC's phraseology made me laugh - '...... from all angles'.

The guy HAS no angles, Maureen, he's entirely comprised of curves!!  ROFL
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4

Lipids - 7/09 - TChol 5.3 HDL 1.8 LDL 3.0 Trigs 1.0  Trigs/H 0.56
- 7/10 - T 5.6 H 1.9 L 3.3 T 0.9  Trigs/H 0.47
- 2/11 - T 5.3 H 2.1 L 1.46 T 0.6  Trigs/H 0.29
- TChol 01/13 - 4.5

BP - Losartan 20mg

TSH - 7/10 5.1, 2/11 8.7  2/12 5.7 11/12 3.9 01/13 6.1  Thyroxine 50mg

Offline GrammaBear

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Re: To Speak Up, or Not to Speak Up? That is the Question.
« Reply #7 on: 21 October 2011, 04:41:34 PM »
Also late to this, but I still want to add my two pence worth.  Alan, If I was you, I would never, ever feel regret that you shared your knowledge and experiences as a diabetic person with someone else.  I wish I had met someone like you early on in my life as a PWD (person with diabetes).  Maybe I could have avoided some of the complications I now suffer if only I had known then what I know now.  Nay.....my friend - don't have regrets.  You may have saved someone from a lifetime of pain from something like neuropathy.

And I do know how the tables at these affairs literally "groan" with the loads of carb laden foods placed upon them as several of my husband's family belong to the JW congregation.
Kathy

Type 1 ~ diagnosed 21-4-2003
Medtronic Revel 723, Dexcom Gen4 cgms (self-funded)
Micardis, Toprol XL, HCTZ,Synthroid, Alprazolam, Metformin ER
A1C ~ 5.7 (12/3/2013)

Offline Bill Harborne

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Re: To Speak Up, or Not to Speak Up? That is the Question.
« Reply #8 on: 21 October 2011, 05:05:24 PM »
As an aside, is it not the jehovas witnesses who refuse blood transufions? so how do they square that with human sourced insulin?
Dx Type2 1996, 4 500mg metformin, 1 20mg Lisinopril, Novomix30 40 units in 2 doses, 1 Adizem xl 300mg, 1 100mg CQ10, Victoza,  1 100g Toblerone (Monthly),,
 HbA1c (7/11) 11.3%. (11/11) 7.3%. (1/12) 6.6%.


My Poetry:
Latest poems.  Love On The NHS and \ Ode To A Bottom .
NEW!

Offline sedge

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Re: To Speak Up, or Not to Speak Up? That is the Question.
« Reply #9 on: 21 October 2011, 05:23:30 PM »
Err, they don't melt down pancreases Bill.  It's sort of 'copied' artificially.

You know like they sort of worked out the recipe for the insulin from a human or 100 and then found ways of replicating it.

Bit like Alchemists trying to recreate gold, but more successful!

Did read years ago though of some fanatical people refusing injections enitrely so if you were Type 1 you were completely knackered.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4

Lipids - 7/09 - TChol 5.3 HDL 1.8 LDL 3.0 Trigs 1.0  Trigs/H 0.56
- 7/10 - T 5.6 H 1.9 L 3.3 T 0.9  Trigs/H 0.47
- 2/11 - T 5.3 H 2.1 L 1.46 T 0.6  Trigs/H 0.29
- TChol 01/13 - 4.5

BP - Losartan 20mg

TSH - 7/10 5.1, 2/11 8.7  2/12 5.7 11/12 3.9 01/13 6.1  Thyroxine 50mg

Offline GrammaBear

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Re: To Speak Up, or Not to Speak Up? That is the Question.
« Reply #10 on: 21 October 2011, 05:28:43 PM »
As an aside, is it not the jehovas witnesses who refuse blood transufions? so how do they square that with human sourced insulin?

When I asked the same question of one of my husband's rellies, I was told that they do accept the blood plasma, just not the whole blood cells.
Kathy

Type 1 ~ diagnosed 21-4-2003
Medtronic Revel 723, Dexcom Gen4 cgms (self-funded)
Micardis, Toprol XL, HCTZ,Synthroid, Alprazolam, Metformin ER
A1C ~ 5.7 (12/3/2013)

Offline Alan

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Re: To Speak Up, or Not to Speak Up? That is the Question.
« Reply #11 on: 21 October 2011, 10:21:08 PM »
Also late to this, but I still want to add my two pence worth.  Alan, If I was you, I would never, ever feel regret that you shared your knowledge and experiences as a diabetic person with someone else.  I wish I had met someone like you early on in my life as a PWD (person with diabetes).  Maybe I could have avoided some of the complications I now suffer if only I had known then what I know now.  Nay.....my friend - don't have regrets.  You may have saved someone from a lifetime of pain from something like neuropathy.

And I do know how the tables at these affairs literally "groan" with the loads of carb laden foods placed upon them as several of my husband's family belong to the JW congregation.

Thanks for the comment. SWMBO has forgiven me long ago and accepted that I am who I am :)
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
Type 2 Diabetes - A Personal Journey (latest: George's Story
Born Under a Wandering Star (latest: Inle Lake, Myanmar, Markets, Crafts and Villages)

Offline Bill Harborne

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Re: To Speak Up, or Not to Speak Up? That is the Question.
« Reply #12 on: 22 October 2011, 07:20:01 AM »
Err, they don't melt down pancreases Bill.  It's sort of 'copied' artificially.


Lol, yes i realise that but as its a synthesesis of a human hormone i wondered if they objected to its use, once you go down the route they do there is no end to the complicated ethical stands they have to take. i didnt think we farmed humans to milk them of insulin.

Dx Type2 1996, 4 500mg metformin, 1 20mg Lisinopril, Novomix30 40 units in 2 doses, 1 Adizem xl 300mg, 1 100mg CQ10, Victoza,  1 100g Toblerone (Monthly),,
 HbA1c (7/11) 11.3%. (11/11) 7.3%. (1/12) 6.6%.


My Poetry:
Latest poems.  Love On The NHS and \ Ode To A Bottom .
NEW!

Offline sedge

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Re: To Speak Up, or Not to Speak Up? That is the Question.
« Reply #13 on: 22 October 2011, 10:41:23 AM »
I just had a mental picture of exactly what you said, bearing in mind I started on piggy insulin and knowing that came from real piggies, ditto the beef.  Quite amused me!
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4

Lipids - 7/09 - TChol 5.3 HDL 1.8 LDL 3.0 Trigs 1.0  Trigs/H 0.56
- 7/10 - T 5.6 H 1.9 L 3.3 T 0.9  Trigs/H 0.47
- 2/11 - T 5.3 H 2.1 L 1.46 T 0.6  Trigs/H 0.29
- TChol 01/13 - 4.5

BP - Losartan 20mg

TSH - 7/10 5.1, 2/11 8.7  2/12 5.7 11/12 3.9 01/13 6.1  Thyroxine 50mg

Offline Liam

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Re: To Speak Up, or Not to Speak Up? That is the Question.
« Reply #14 on: 22 October 2011, 01:26:05 PM »
I think the part of the Bible uses the word blood, so insulin wouldn't really count I don't think. I'm not 100% sure, it was talked about on the news when that baby was going to die until the high court ordered that the consultants could over rule the parents on medical treatment or something. Was quite awhile ago so I might not be remembering 100% here.

Here is a link to their own website that gives all the details needed http://www.watchtower.org/e/hb/article_06.htm
DX Type I 1994.    Levemir      Novorapid
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%)