Author Topic: New med  (Read 1223 times)

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Offline feejee

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New med
« on: 22 October 2015, 07:03:52 PM »
I've just been to GPs to try to sort out my levels, he's prescribed me Januvia. I didn't get much info out if him regarding side effects etc.  just all medicines have side effects line.

Does anyone know is a tablet that has immediate effects or does it build up like metformin?

he also prescribed me 100 test strips when I pointed out the diffeerence in hA1c with/without me testing.   

Type 2. Diagnosed Feb 2012.  On metformin 2 * 1000mg. Invokana (Canagliflozin) 100mg
hbA1c on diagnosis: 128 mmol/mol or 13.8%
6/12: 60 mmol/mol or 7.8%, 
10/12: 6.6%, 03/12: 6.5% Cholesterol: 4.16 (HDL:0.88, LDL: 2.6, 3G's: 1.56)
10/14: 5.6%
02/16: 7.5%
02/16
6/13: 6.6%
4/14@:5.7%

Offline Pattidevans

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Re: New med
« Reply #1 on: 22 October 2015, 07:49:03 PM »
Good news on the test strips.

You may like to read this about side effects (or not) http://www.januvia.com/sitagliptin/januvia/consumer/about-januvia/side-effects-of-januvia.xhtml
I know it has caused respiratory problems for both Libra and Sami.  Sami's reaction was quite severe, but it did pave her way to insulin.

How are you in general Feejee?
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline feejee

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Re: New med
« Reply #2 on: 22 October 2015, 08:05:42 PM »
Fasting bg hover around 9, seem to be between 8-14 most of the time. still feeling a bit despondent with the diabetes, food, weight, feet etc.  I'm dubious as to whether I should start taking the Januvia as I'm still breast feeding (not very often now, but still occasionally trying to wean him). I just can't seem to kickstart my healthy eating to any great extent, I restart each day though and keep on trying.

Sounds a bit worrying the respiratory problems, I do have a history of asthma so I'd hate that to be triggered.
Type 2. Diagnosed Feb 2012.  On metformin 2 * 1000mg. Invokana (Canagliflozin) 100mg
hbA1c on diagnosis: 128 mmol/mol or 13.8%
6/12: 60 mmol/mol or 7.8%, 
10/12: 6.6%, 03/12: 6.5% Cholesterol: 4.16 (HDL:0.88, LDL: 2.6, 3G's: 1.56)
10/14: 5.6%
02/16: 7.5%
02/16
6/13: 6.6%
4/14@:5.7%

Offline Pattidevans

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  • It's ONLY Diabetes. It could be something worse!
Re: New med
« Reply #3 on: 22 October 2015, 08:09:30 PM »
Ouch!  FBGs are worrying and I can understand you not wanting to start Januvia whilst breast feeding.  Did the Dr know that when he prescribed it?

As to food.... it's hard.  It's constant and it does require some motivation which I can sympathise with as I have been trying to lose some weight for the last couple of weeks with no motivation and no results!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline feejee

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Re: New med
« Reply #4 on: 22 October 2015, 08:33:44 PM »
Yes I did say to him, but the only option safe is insulin and that's still not an option they will consider for me it seems.

Yes the bgs are a worry patti, more worrying is that when I wake up my feet feel odd which terrifies me. Had my retinopathy test last week so also worrying About that letter landing on the doorstep.
Type 2. Diagnosed Feb 2012.  On metformin 2 * 1000mg. Invokana (Canagliflozin) 100mg
hbA1c on diagnosis: 128 mmol/mol or 13.8%
6/12: 60 mmol/mol or 7.8%, 
10/12: 6.6%, 03/12: 6.5% Cholesterol: 4.16 (HDL:0.88, LDL: 2.6, 3G's: 1.56)
10/14: 5.6%
02/16: 7.5%
02/16
6/13: 6.6%
4/14@:5.7%

Offline himtoo

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Re: New med
« Reply #5 on: 23 October 2015, 07:21:31 AM »
Hi feejee
try not to worry ( hard I know) -- sending you a hug [[hug]]

I know 2 people( Type 2) on Januvia and neither of them have any side effects.
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6) 04/18 46 (6.4)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline Pattidevans

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Re: New med
« Reply #6 on: 23 October 2015, 07:54:15 PM »
Feejee have they done the filament tests on your feet?
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline Alan

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Re: New med
« Reply #7 on: 25 October 2015, 12:36:48 AM »
I've just been to GPs to try to sort out my levels, he's prescribed me Januvia. I didn't get much info out if him regarding side effects etc.  just all medicines have side effects line.

Does anyone know is a tablet that has immediate effects or does it build up like metformin?

he also prescribed me 100 test strips when I pointed out the diffeerence in hA1c with/without me testing.
I can't help with Januvia advice, I've never taken it, but I'm glad he helped with the strips.
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
There is nothing I could eat I like more than my eyes.
Type 2 Diabetes - A Personal Journey (latest: Slow Cooked Beef Brisket)
Born Under a Wandering Star (Surviving Long-haul Flights in Cattle Class)

Offline binky21

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Re: New med
« Reply #8 on: 25 October 2015, 01:38:54 AM »
I have tried it and it does work well.  May take your  FBGs down 2 to 3 points eg: 13 to 10.  I had no obvious side effects and in fact I liked that it stopped my irritable bowel type symptoms which I get from metformin.  Having said that, you need to note there is what they call a black box warning on it from the States linking it to Pancreatic Cancer. 

I didn't want to take it but like you, they wouldn't let me take the insulin. I did take it for about a month (Works best for FBG taken at night) but then a friend sent me a link to the UCLA study which for me brought it stunningly into focus.  Google Januvia/Onglyza and UCLA, it should come up or go to a website called BloodSugar 101 and there is a link there.

The study autopsied diabetic patients who had died from head injuries or strokes.  Every diabetic autopsied that had taken Onglyza for a year or more was found to have Pancreatic Tumours (every single one) so that's a little scary but what makes it even more scary is that every diabetic autopsied who wasn't on Januvia had no tumours.

To put it in perspective, the tumours were I think all benign? but it is a fact that benign tumours can be a precursor to malignant pancreatic tumours.  So maybe scary, maybe not.  But for me, what is scary is that pancreatic cancer is possibly the one cancer you do not want to get.  The survival rate is under 10% (from memory) and you generally get very little time from diagnosis to demise.  It is just one of those very nasty cancers as I understand it.

I am no expert at all, this is just the decision I came to.  I gave it a month so I could say to the doctor I had tried it and then I demanded the insulin.  They try this approach because it does seem to work and it is a simple pill to take.  One small pill at night - very few obvious side effects for most people.  But one potentially very bad insidious one which may be more common than they currently realise.

When I switched to insulin and it hasn't been long (maybe 6 weeks??) I did see an even better response but my FBG seems to be responding to day time rapid insulin rather than overnight basal (No idea why that way round exactly).  I have put on a little weight with the insulin so there are pros and cons there too.

No one can decide for you except you.  Nothing is totally safe  and if you are gestational only? you wont be taking Januvia long so that's another possible consideration.  We could probably scaremonger about most of the medications open to us and there are always risks but for me personally, that was one I couldn't accept.  I have school age children.

Offline feejee

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Re: New med
« Reply #9 on: 25 November 2015, 06:03:10 PM »
Thanks Binky21 for the info - i am going to look into the research.  I was aware it was linked to pancreatitis, but not pancreatic cancer (or are they the same thing?).  Given that my grandmother died from pancreatic cancer it doesnt sound good.   

I haven't started taking it yet, as im so undecided.  Definitely decided not to take it whilst im still breastfeeding even though its very rarely now (fingers crossed he will forget that milk doesnt just come out of a bottle soon). 

Im just trying to find a way to live as long as possible with as few side effects as possible, as i dont want my little boy mum-less any time soon. 
Type 2. Diagnosed Feb 2012.  On metformin 2 * 1000mg. Invokana (Canagliflozin) 100mg
hbA1c on diagnosis: 128 mmol/mol or 13.8%
6/12: 60 mmol/mol or 7.8%, 
10/12: 6.6%, 03/12: 6.5% Cholesterol: 4.16 (HDL:0.88, LDL: 2.6, 3G's: 1.56)
10/14: 5.6%
02/16: 7.5%
02/16
6/13: 6.6%
4/14@:5.7%

Offline Pattidevans

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  • Posts: 24,717
  • It's ONLY Diabetes. It could be something worse!
Re: New med
« Reply #10 on: 25 November 2015, 06:16:06 PM »
A very difficult decision to make Feejee.  How are the BGs now a month on?
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline feejee

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Re: New med
« Reply #11 on: 25 November 2015, 08:39:58 PM »
about the same Patti, still struggling to take hold of my diet. 
Type 2. Diagnosed Feb 2012.  On metformin 2 * 1000mg. Invokana (Canagliflozin) 100mg
hbA1c on diagnosis: 128 mmol/mol or 13.8%
6/12: 60 mmol/mol or 7.8%, 
10/12: 6.6%, 03/12: 6.5% Cholesterol: 4.16 (HDL:0.88, LDL: 2.6, 3G's: 1.56)
10/14: 5.6%
02/16: 7.5%
02/16
6/13: 6.6%
4/14@:5.7%

Offline Venomous

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Re: New med
« Reply #12 on: 04 December 2015, 01:53:16 PM »
I tried Januvia but it didn't help me much at all, I think it was one of the final oral meds they tried me with before prescribing insulin.

Hope you're doing okay
T2 and PCOS. Just had large serous adenofibroma removed with ovary and fallopian tube. Bp is now normal!

Novorapid, levemir, tibolone, estrogel.

Offline Alan

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    • Type 2 Diabetes - A Personal Journey
Re: New med
« Reply #13 on: 12 December 2015, 10:54:59 PM »
about the same Patti, still struggling to take hold of my diet.
Could you expand on that? You were doing well early on, looking at your sig. What is a typical brekky, lunch and dinner?
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
There is nothing I could eat I like more than my eyes.
Type 2 Diabetes - A Personal Journey (latest: Slow Cooked Beef Brisket)
Born Under a Wandering Star (Surviving Long-haul Flights in Cattle Class)