I was on the Omnipod for four years and it was faultless. Unfortunately my borough doesn't support it so I was forced to choose another patch pump being the Cellnovo (the only other patch pump currently available in the UK). I had issues with it from the start and on a daily basis!.....and lets not talk about all the additional paraphernalia required for this ineffective pump! The final straw was day two of my holiday in Sept....the pump stopped and I went into DKA!!!!! It's unforgiveable that the NHS is supplying dangerous pumps. The feedback for the Cellnovo on all diabetic the social media sites, is appalling! So why is the NHS funding it and failing us? The cost to fund an Omnipod is marginally more but the long term prevention of Diabetic complications will save the NHS significant amounts of money. The NHS is not fulfilling its responsibilities but more importantly, following the guidelines of the NHS Constitution:
The NHS belongs to the people.
It is there to improve our health and wellbeing, supporting us to keep
mentally and physically well, to get better when we are ill and, when
we cannot fully recover, to stay as well as we can to the end of our
lives....Part of the NHS's commitment to us as patients:
You have the right to receive care
and treatment that is appropriate to
you, meets your needs and reflects
You have the right to make choices
about the services commissioned by
NHS bodies and to information to
support these choices. The options
available to you will develop over
time and depend on your individual
I find it unacceptable that my/our longevity of health is being dictated to by local CCG's that cannot/will not look at an individual's circumstances and provide suitable pumps that are not dangerous!
I am looking to establish if there are other diabetics out there who are frustrated with how the funding is disproportionately managed for these life-saving pumps. It appears that only select boroughs provide a pump that should be available to all Type 1 Diabetics!
The point is, everyone is different but we should have a right to choose
If anyone is willing to join the campaign please let me know.