Author Topic: Omnipod is GO!  (Read 1950 times)

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Offline himtoo

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Re: Omnipod is GO!
« Reply #90 on: 01 July 2018, 09:52:08 AM »

time for the hearty man defence........................haha .. maybe next time as i am well outnumbered   ;D ;D


and the thread sort of appears hijacked...


do we get a 4 weeks on the pump update Nyt !!! :)
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6) 04/18 46 (6.4)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline nytquill17

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Re: Omnipod is GO!
« Reply #91 on: 01 July 2018, 02:44:19 PM »
I'm fine with hijacks - puts the community in support community, and that's what keeps me going! :)

So, 4 weeks on! I've done a full row of sites across the upper abdomen (above the navel) and am partway through doing a row across the lower abdomen. Sites on the lower abdomen are healing a lot quicker (still have the adhesive issues to deal with, starting by ordering some Cavilon spray next time we buy something off Amazon). I dunno if that's my body getting used to things, maybe my technique is improving, or - I'm leaning towards - the upper abdomen was always a more "bruisy" site for me on MDI and lower abdomen was always more comfortable, probably lower abdomen is just better suited to this sort of thing overall. I'm also curious to see if not bolusing over 5u at a time will help the sites feel and look better too - the current pod will be the first one where I've instituted that policy from the beginning of the site. Interested to see if it gets less sore by the end!

Still waiting on reimbursement cheque from ADP (province of Ontario's Assistive Devices Program) which provides $600 per quarter. Then I can submit the remaining $300 or so to my insurance which has said they will cover 80%, leaving me out of pocket for only $60 for 3 months-ish of pods. But currently am out $900 til that cheque comes in. They did say at my pump start appointment that ADP was quite slow-moving so I'm not terribly concerned, but if I've heard nothing from them by the time my next appointment rolls around I'll mention it to my CDE. Of some concern is the newly-elected conservative government in Ontario which is looking to roll back some of the policies of the previous liberal government; as far as I know the ADP is not on their radar (fingers crossed!) but any kind of shakeup in policy or staff higher up can create delays downstream.

Pod changes still take me 15-20 minutes - I thought I might pick up some speed with practice! But I am getting more confident, at least. I no longer drag out the quick-start guide to remember all the steps!  ;D

I've had some good results with extended boluses and am starting to feel like I have some useful predictive intuition again ("oh I bet this meal will need a good 4-5 hours of extension, but not so much up front"). I'm also feeling a bit less vulnerable - less paranoid that every high BG means the pump is failing or is about to fall off or the insulin has gone bad or... When you start out, and even before that, just reading people's posts about their pumps, there really is an overwhelming number of points of failure and you feel very fragile, like anything could go wrong at any time. In practice I find that while that is technically true, the reality is that most of the time things work fine and you can put it out of your mind.

I still feel that my correction factor needs to be a lot tighter and there is definitely still work to do on overnight and morning basals. But I really need to get my evening eating under control to be able to see more clearly what's going on overnight and in the morning, i.e. what is and is not food-related. I need to do that anyway, because I have something like 50 lbs to lose now - this is getting ridiculous! The trouble is that the month of June is full of occasions to celebrate, which for us means FOOD! My birthday, then the Quebec national holiday (not a holiday in Ontario, but still a long weekend for our family as OH's work is based in Quebec so he gets a day off), then Canada Day...all in a span of 3 weeks. It is so hard to buckle down and eat reasonably in between!

Looking back, I can see that I'm past the point of bargaining with myself ("just stick with it for the 3-month trial, and then see how you feel"). I'm no longer thinking I might need to give it back or it might not be for me. I feel like I have yet to reap the full benefits though, but I think getting the correction factor in line will make a big difference to that (because one of the main struggles I have right now is that when I do miscalculate and end up high, it still takes hooooours and multiple rounds of corrections before it comes down). My CDE reminded me last time I saw her that "you know, an A1c of 7.0 means an average BG of about 9" - her point being that I don't have to achieve perfection in order to see significant improvement. Trying to keep that in mind for now!


I have to say, at this point I'm kind of looking forward to not being under such close surveillance by my clinic. Of course I appreciate their support and the amount of contact they have with me as it has been SUPER helpful. But I feel confident enough to make changes on my own now, like bringing down that correction factor, but I kind of don't want to do it because I know they will see that I've done it and maybe will think that I've gone rogue? Haha! But I know that they are starting to stretch the times between check-ins and appointments, with an eye towards putting the whole thing in my hands eventually, so I feel it's best to be patient for now! But I think it's a good sign that I'm starting to get restless and wish they would just leave me to it! :)
T1 DX 1995
Omnipod since 06/04/18 (Novorapid)
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline Pattidevans

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Re: Omnipod is GO!
« Reply #92 on: 01 July 2018, 05:48:27 PM »
Well, well, well! Apart from the funding issues, the stages you have described above mirror almost exactly how everyone has felt when first pumping.  FWIW the first change I did took over 45 minutes, which included wandering around the house in my undies crying because I didn't know how to prime the cannula.  DSN was not answering her mobile and in the end I had to ring Roche to get a long description of how to put into the handset the amount of carbs needed for a 1u bolus.  I soon found out that the easiest way to do it was to just prime and carefully watch until you'd done 1u in ten 0.01u steps.  Today I decided to change the pump... it's not time, but after testing 17.4 3 hours after a small wholemeal bacon roll I realised the insulin was probably off.  It's been as hot here as it was in Corfu, where I was carefully changing the pump every two days, and I've been sitting out in it every day here and it's 4 days since I changed.  So whilst changing the pump I also conducted a series of text messages with a friend.  That contrasts with the early days of at least half an hour spent concentrating fiercely over every change  ;)
Really pleased to hear how you are getting on with it now!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline himtoo

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Re: Omnipod is GO!
« Reply #93 on: 01 July 2018, 08:18:35 PM »

haha Patti -- did we really need to know you were wandering around in your undies.............but the truth is often the best story........  :) :)

T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6) 04/18 46 (6.4)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline himtoo

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Re: Omnipod is GO!
« Reply #94 on: 01 July 2018, 08:21:38 PM »
Nyt...... i have a method for pod changes that minimises the time change

get all the kit needed out on the table
get new pod out and fill with insulin
hit the change pod button and the prime button ... remove old pod while new pod is priming
stick new pod on new site and press insert button

( total change time about 4 minutes )
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6) 04/18 46 (6.4)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline nytquill17

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Re: Omnipod is GO!
« Reply #95 on: 04 July 2018, 01:54:51 PM »
4 minutes! That's impressive. I can do it in about 10-15 now. The bulk of the time is getting the old pod off because that requires copious amounts of baby oil, and time for it to work, and then washing up after because everything is greasy! (Cavilon spray is ordered and should be in tomorrow, lol). Of course some extra time is dedicated to getting the Pump Peelz on and off too. Vanity! And I still follow the steps in the order the PDM tells me to, to make sure I don't forget anything important - so that's deactivate first, then remove, then fill, prime, prep site, attach, insert, and check cannula. Still, very user-friendly process overall!

Nothing really to report at this point. Sticking to bolusing 5u at a time and extending anything over that has so far been working well, but I want to go through a few more successful pods before I say for sure that the problem hasn't recurred. CDE has put in a word to...actually she didn't say to who, I assume the Omnipod rep though, about the large bolus/leaking issue. As far as I'm concerned it seems to be sorted until evidence to the contrary, but I'm curious to see what the official word is on this.

Still tweaking basals - well I mean I'll be tweaking them for the rest of my life, that's diabetes! But I mean still trying to get a nice baseline established from which to make adjustments later on. Overnight and morning aren't 100% yet but are coming along very nicely, provided I behave myself at dinner the night before. Need more practice in how to handle things when I don't behave, but knowing me there will be plenty of opportunities for that! Also getting the hang of bolusing for my morning workout although I need more experience with different types/lengths of workout to feel like I really know what I'm doing.

Next big thing to tackle will be afternoon and evening basals. This is usually when I do errands and eat most of my day's calories so there is a lot going on there that makes it hard to know what basal is doing. I'll have to change my usual schedule for a few nights to get a clearer look, which isn't very appealing! Especially as during the day I'm on my own more or less whereas in the evening whatever choices I make to eat/not eat or walk/not walk also affect OH who is with me then!

Today I'm off for an eye screening. Came back with retinopathy last year (which because I had moved to a new province and was getting my driver's license changed over at the time, ended up being a whole faff with 3 different doctors' appointments and about $200 outlay for a series of fancy tests to convince the Ministry of Transport that "mild non-proliferative retinopathy not affecting vision" really DOESN'T affect my vision  :rolleyes:  ) and I haven't been on the pump long enough to really improve my A1c yet, let alone long enough to heal back any damage, so I'm not terribly hopeful for good news and not particularly motivated to ride the bus for an hour all the way across town to the community health place that does the screenings. But ah well, these things are important anyway. Hopefully by the time the next one rolls around I'll get a bit of encouraging news! :)
T1 DX 1995
Omnipod since 06/04/18 (Novorapid)
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline himtoo

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Re: Omnipod is GO!
« Reply #96 on: 04 July 2018, 05:10:53 PM »
hi Nyt-- that is the beauty of the adhesive remover wipes -- they work to make removal really fast -- and there is no oil involved so nothing to wash hands .... or body parts after.
i followed "their" instructions for the first few pods but picked up my own way of doing it "my way" fairly early on.....


mainly because i panic having no insulin dripping inward while the change is taking place ( paranoid )  :eek:

T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6) 04/18 46 (6.4)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline Pattidevans

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Re: Omnipod is GO!
« Reply #97 on: 04 July 2018, 05:54:11 PM »
Quote
Today I'm off for an eye screening. Came back with retinopathy last year (which because I had moved to a new province and was getting my driver's license changed over at the time, ended up being a whole faff with 3 different doctors' appointments and about $200 outlay for a series of fancy tests to convince the Ministry of Transport that "mild non-proliferative retinopathy not affecting vision" really DOESN'T affect my vision  :rolleyes:  ) and I haven't been on the pump long enough to really improve my A1c yet, let alone long enough to heal back any damage, so I'm not terribly hopeful for good news and not particularly motivated to ride the bus for an hour all the way across town to the community health place that does the screenings. But ah well, these things are important anyway. Hopefully by the time the next one rolls around I'll get a bit of encouraging news! :)
Good luck with that.  I will keep my fingers crossed for you.  I have my screening on 17 July.  Last year I had evidence of a small bleed.  Doubt it's mended as not been particularly good over the past year.  :-[
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline nytquill17

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Re: Omnipod is GO!
« Reply #98 on: 04 July 2018, 06:15:25 PM »
I'll try those next if the barrier spray doesn't cut it. I have another appointment at the clinic in a few weeks, I may bring it up again there. Not sure that I can get any of this on prescription so that insurance will cover it, but I can see what they say!

You've got your method down and there's no reason to change it! But you know, people on tubed pumps have to disconnect their insulin supply to shower, among other things, and it doesn't seem to do them any harm, so you're probably fine ;)
T1 DX 1995
Omnipod since 06/04/18 (Novorapid)
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline nytquill17

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Re: Omnipod is GO!
« Reply #99 on: 04 July 2018, 06:20:40 PM »
Patti - attended eye appt. and saw the pictures. This is just a community health centre that takes the pictures and sends them off to be checked by a specialist so of course they can't tell you anything on the spot. But they let me look at them and I think I saw a few little dots like what were pointed out to me last time so I will not be surprised if I get the same result. Fortunately what I have is the most mild kind you can have - tiny, not growing, and not in the center of the eye (not in the field of vision). Of course I'd like to get that back down to nothing like it has been in years past! Wouldn't be the first time a small bleed has healed for me, so fingers crossed. With a pump now hopefully I can make it stick!

Funny moment, when she put the numbing agent in my left eye, I blinked and a drop splashed out and ran down into the corner of my mouth. My tongue felt funny for the next 20 minutes or so!
T1 DX 1995
Omnipod since 06/04/18 (Novorapid)
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline Pattidevans

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Re: Omnipod is GO!
« Reply #100 on: 04 July 2018, 06:27:17 PM »
Quote
Patti - attended eye appt. and saw the pictures. This is just a community health centre that takes the pictures and sends them off to be checked by a specialist so of course they can't tell you anything on the spot. But they let me look at them and I think I saw a few little dots like what were pointed out to me last time so I will not be surprised if I get the same result. Fortunately what I have is the most mild kind you can have - tiny, not growing, and not in the center of the eye (not in the field of vision). Of course I'd like to get that back down to nothing like it has been in years past! Wouldn't be the first time a small bleed has healed for me, so fingers crossed. With a pump now hopefully I can make it stick!
That's the way it works for us too... and you get a letter in about 6 weeks.  Really Nyt... drinking the drops!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline nytquill17

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Re: Omnipod is GO!
« Reply #101 on: 04 July 2018, 06:37:56 PM »
Mmm...tingly...  :rofl:


Here we have both options, just depends how the place you go to is set up. Normally I just go to an optometrist but my Ontario GP referred me to the community screening place, which is free although I have to travel across town to the lowest-income neighbourhood in the city (fine by day if you have errands to run, wouldn't want to live there or hang out there after dark though!). On the other hand it's always really heartening to see the kinds of work that they do in the community health centre, getting help to the people who need it the most.
T1 DX 1995
Omnipod since 06/04/18 (Novorapid)
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline himtoo

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Re: Omnipod is GO!
« Reply #102 on: 05 July 2018, 08:47:19 AM »
I'll try those next if the barrier spray doesn't cut it. I have another appointment at the clinic in a few weeks, I may bring it up again there. Not sure that I can get any of this on prescription so that insurance will cover it, but I can see what they say!

You've got your method down and there's no reason to change it! But you know, people on tubed pumps have to disconnect their insulin supply to shower, among other things, and it doesn't seem to do them any harm, so you're probably fine ;)
hi nyt -- the barrier spray is to protect the skin in case it is sensitive to the adhesive.... it is nothing to do with removal.... the remover wipes are an alcohol based wipe that dissolves the adhesive upon contact........hope this helps to make clear
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6) 04/18 46 (6.4)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline nytquill17

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Re: Omnipod is GO!
« Reply #103 on: 05 July 2018, 11:56:23 AM »
Hmm...it says it helps to prevent "tape trauma" and make removal easier though. If it doesn't make a difference, I'll try the remover wipes next, but they're more expensive and longer to get in (not sold directly by Amazon) so they were less appealing as a first choice.
T1 DX 1995
Omnipod since 06/04/18 (Novorapid)
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."