Author Topic: Fingers crossed  (Read 695 times)

0 Members and 1 Guest are viewing this topic.

Offline sedge

  • Global Moderator
  • Posts: 14,236
Re: Fingers crossed
« Reply #15 on: 09 April 2018, 11:16:28 AM »
I also assumed that plumb meant adjust his pump Alan - those for whom Libre gives believable results, can then use them instead of having to do fingerprick tests when Basal insulin testing.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline plumb

  • Member
  • Posts: 121
Re: Fingers crossed
« Reply #16 on: 18 June 2018, 09:27:34 PM »
Sorry I was gone so long but all was going well prescription for 2 months supply, only another 3 months untill the revew at the end of the trial. Keeping my fingers crossed did not work I had a phone call from my GP to say that the Libre has not been approved by the local CCG, so there would be no more prescriptions for the Libre. I was just wondering why some CCG think more of their Diabetics than others. But What can we do it should be all, or no one as we are in a National health service and we all contribute the same.If they were of little use why does the PM Teresa May have one.

The address for the academy I have is   www.FreeStyleAcademy.co.uk if you have trouble ring
0800 170 1177.
T1 DX1977 pumping Novorapid  and 3 BP Medds s

Offline nytquill17

  • Global Moderator
  • Posts: 6,769
  • It's all in the balance.
Re: Fingers crossed
« Reply #17 on: 19 June 2018, 01:39:33 AM »
Ugh, I'm so sorry to hear this, Plumb. Any chance you can challenge the CCG's ruling? Maybe you can't get it overturned but you at least deserve to know WHY they are denying you something that is clearly a desirable health care pathway (as you say, if the PM has one...!). And though I don't claim to understand much about either finance or politics, and I wouldn't want to be in the shoes of the people having to make these kinds of decisions, I do think that if they're going to deny you something that helps with your medical care, someone ought to have to look you in the eye and tell you why that is, it's the least they can do.
T1 DX 1995
Omnipod since 06/04/18 (Novorapid)
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline Pattidevans

  • Administrator
  • Posts: 24,486
  • It's ONLY Diabetes. It could be something worse!
Re: Fingers crossed
« Reply #18 on: 25 June 2018, 09:44:16 AM »
Plumb


Sorry, meant to respond ages ago... can you not talk to your team at the clinic about this, rather than your GP?


Oh, the link you gave takes me to a Chinese self-defence site in Camberley!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline plumb

  • Member
  • Posts: 121
Re: Fingers crossed
« Reply #19 on: 26 June 2018, 11:36:57 AM »
Thanks for reply I did not make this link up but I also had trouble to get in so I recommend a phone call and they do help  I had to use a different email addresse to my usual one to get in and get the diploma. I have added a page from the guide to gain access.
Apparently the CCG, that my surgery is under have refused to have the Libre on prescription The GP has applied on my behalf to have it funded so we will wait and see. May be I was lucky that the GP didn’t know and I got 2 months before big brother CCG stepped in.
T1 DX1977 pumping Novorapid  and 3 BP Medds s

Offline Pattidevans

  • Administrator
  • Posts: 24,486
  • It's ONLY Diabetes. It could be something worse!
Re: Fingers crossed
« Reply #20 on: 26 June 2018, 11:50:05 AM »
Plumb
Paul just posted a link  The correct link is https://www1.libreview.com/Accounts/AccountCreate?lang=en
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans