Author Topic: argh, more small leaks  (Read 276 times)

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Offline nytquill17

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argh, more small leaks
« on: 12 July 2018, 01:58:23 PM »
Well like the title says!

In my big pump start post I had mentioned that I was having issues with pods leaking a bit, usually on day 2 or 3. Not like a flood or anything, but the adhesive around the cannula would be damp and smell of insulin. I haven't been keeping an exact count but it's definitely happened on at least 5-6 pods in the past month (so about half of them, maybe more). It's happened on my lower back, upper and lower abdomen, and on my thigh so I don't think it's a "bad site" issue.

I did some reading, discovered the concept of "tunnelling" with teflon cannulas and started making sure that I never bolus more than 5u at a time - if I need more than 5u of insulin I extend the rest of the bolus for 30-60 minutes so it goes in gradually. When I first started doing this, the very next pod I tried never developed a leak, so I thought ta-daa! I have found the solution. Except the two pods after that one have both done it, the latest being this morning after a correction bolus of 2.75u.

So BGs are not a total disaster when this happens, I don't think I'm losing more than half a unit, and probably less than that. So it isn't exactly an emergency. But it is frustrating and a bit worrying - because if overlarge boluses aren't the issue, then it seems like it's more down to the cannula getting jostled too much or just not being the right length/angle/type for me. And that would mean that Omnipod just won't work with my body/lifestyle (I sleep on my stomach and both sides; I do yoga and cardio - I try to put them "out of the way" but there is just nowhere I can put the pods that they won't experience ANY movement or jostling through the 3-day lifespan). And that would put me in a really tough spot, because I really do not want to have to deal with a tubed pump, but I also don't really want to lose the benefits I've gained thus far by going back to MDI. So I am putting a lot of pressure on these little pods to WORK DAMN YOU  ;D

I'm due touch base with my CDE tomorrow, and I'll discuss it with her again. So far the solutions that I know of are

(1) try and secure the pods more firmly (so with Skin-tac or a "tape sandwich") but frankly the pods feel pretty securely attached to me, and no amount of tape is going to keep them from moving if they get bumped or laid on, plus I really don't want to deal with MORE tape if I can help it.

(2) Change pods every 2 days instead of 3. That would be slightly more expensive (after government assistance + insurance, $50/month instead of $20) and a bit of a hassle, but I think doable. As far as I can see, I'm not having problems with highs at pod change so it wouldn't have too much effect on BGs to change more often and since most of my problems occur on day 2 or 3 could be a viable solution.

And of course (3) Lump it.  :P  I mean, as I've said, it doesn't seem to be having disastrous results, it's more just a pain that it throws another variable in the mix (am I sat at 11.0 because I'm getting sick, because I missed a drop or two of bolus/the site is going off, because the insulin is going off, because my settings need adjusting, because I made a mistake in my carb counts...?). And other than this one issue, Omnipod is working pretty well for me, still better than MDI or, for me personally, a tubed pump. No system will be perfect, right, so maybe I can just work around this.

Anyway, just putting this out there first of all to hear your thoughts if you have any, and second for anyone who might be lurking now or in the future that's having similar problems to know they're not alone! :)
T1 DX 1995
Omnipod since 06/04/18 (Novorapid)
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline sedge

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Re: argh, more small leaks
« Reply #1 on: 12 July 2018, 03:22:29 PM »
I've never ever heard of 'tunnelling' either personally, on here or on the Diabetes UK forum - and haven't experienced it personally during the 9 years I have used Teflon cannulas.

I have however heard of iffy absorption for larger doses on insulin whatever mode of delivery we use.  In that case all the 'experts' eg John Walsh, Gary Taubes, Ragnar Hanas etc, say to split doses over 7u.  That suits me fine since I never eat 70g carb in one go LOL

Liam has a much higher ratio than me so it's possible that he uses 'higher' doses and it may affect him.

Is there an Omnipod Users group - or - have you spoken to the Helpline at Omnipod?
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline nytquill17

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Re: argh, more small leaks
« Reply #2 on: 12 July 2018, 03:45:37 PM »
My CDE has previously contacted the Omnipod rep in charge of my case, but the rep just said "maybe try skin-tac?" but even she didn't seem very convinced about it.

So far I haven't called the helpline yet - I haven't had a pod outright fail or really NEED to be changed early because of it (I changed one 12 hours early of my own volition, but it probably would have been fine if I left it), and anyway I feel like if it's user error, i.e. me putting the pods in places where they're getting bumped, there's not a lot they can do except to say "don't do that" or "stick it down better."
T1 DX 1995
Omnipod since 06/04/18 (Novorapid)
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Online Liam

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Re: argh, more small leaks
« Reply #3 on: 12 July 2018, 06:58:20 PM »
Sorry I can't really help. You would think they'd do two pod types, one with a longer cannula. Guess it isn't too common of an issue?

How long are omnipod cannulas? I did think about trying longer ones (using 6mm I think now) because I had a run of cannulas being filled with blood when I first started. My body seemed to get used too it or something as it just stopped happening.

I don't bother breaking up bolus unless I know what I'm eating will need extending. My Endo did suggest it. Mostly before bed as I'm pretty resistant then, so often bolus 10-20u
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline nytquill17

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Re: argh, more small leaks
« Reply #4 on: 12 July 2018, 07:23:43 PM »
I'm wondering if a variety of cannula types isn't in the pipeline. The thing is that since the cannula and the inserter are self-contained in the pod itself, any changes to these might well mean changes to the design of the pod to make room for them, so I imagine it's easier to focus on getting ONE design into something efficient, reliable and with a good market share first before branching out!
T1 DX 1995
Omnipod since 06/04/18 (Novorapid)
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline GrammaBear

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Re: argh, more small leaks
« Reply #5 on: 12 July 2018, 08:02:29 PM »
I am probably in a unique position to put my two cents worth into this discussion, but here goes anyway.  As you might remember, or not, I used the Omnipod for 3-1/2 yrs and I had many issues including 'slight leaking'.  I questioned whether or not the length of the cannula could be responsible, but I was told that Omnipods are made so that they fit all body types.  Really?  Not everyone is the same body size, so why not have a pod for the short cannula and another for the longer cannula?  No one was ever able to provide me with a satisfactory answer.

I am inclined to agree with Jenni in that it could possibly be 'iffy absorption' and for me I ended up having to change the pods every 2 days instead of every 3 days.  It was just the way my body worked for the pods and it is still the way it works now with a tubed pump.

Just an aside thought about the pods sticking better - Have you possibly changed body wash or bar soap?  Some of the soaps these days have a lot of moisturizers in them which makes our skin a bit more 'slippery'.  I hope you find your answer.
Type 1
Tandem Tslim pump Oct 2015
Dexcom G5 CGM Sep 2007
A1C 6.5%~ Sep 2017

Offline Pattidevans

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Re: argh, more small leaks
« Reply #6 on: 12 July 2018, 10:58:55 PM »
Nothing to add really.  On a tubed pump I find 6mm teflon cannulas brilliant.  I did have the steel ones, but they were terrible and poked me whenever I bent over.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline GrammaBear

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Re: argh, more small leaks
« Reply #7 on: 13 July 2018, 03:02:03 PM »
I agree Patti, the steel ones poked me as well.  During my time on the OmniPod I could never figure out why they didn't offer two different cannula lengths.  After all a small child might not need the same length cannula that an adult would need.  I think if Insulet (the company that makes the Pod) would do that, they might eliminate some problems people are experiencing.
Type 1
Tandem Tslim pump Oct 2015
Dexcom G5 CGM Sep 2007
A1C 6.5%~ Sep 2017

Offline himtoo

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Re: argh, more small leaks
« Reply #8 on: 13 July 2018, 03:57:09 PM »
i get the "leaky issue" occasionally...........so i suppose once i smell that smell i become more vigilant in looking at BG's...........i took a pod off a few days ago that smelled a bit and much to my horror the whole underside of the pod was soaked in blood as well as insulin.............but my BG's weren't affected for the entire 3 days of that pod.

i dont split my doses all the time.....

other people i know using omnipod ( on IG ) that do a lot of exercise all seem to use additional adhesive
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline nytquill17

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Re: argh, more small leaks
« Reply #9 on: 13 July 2018, 04:56:07 PM »
It's just weird because I'm not having any problems with the adhesive coming up or the position of the pod changing, I'm not walking into doors or yanking them unexpectedly when going to the loo, cannula isn't moving, sites aren't painful, no blood...if it weren't for the small leaks I'd have no sense at all that I needed to *increase* adhesion in any way. But it seems like perhaps, for me at least, just the normal jostles and jiggles of everyday life is enough to "bother" the cannula and create backflow.

I definitely wouldn't say I do a lot of exercise! Just 15-30 minutes on weekdays, not that intense (I get a little sweaty, but not enough to cause adhesive problems), but a lot of different moves and combinations where any part of your body could be moving, bending, twisting, etc. from one day to the next.
T1 DX 1995
Omnipod since 06/04/18 (Novorapid)
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline nytquill17

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Re: argh, more small leaks
« Reply #10 on: 13 July 2018, 08:19:30 PM »
Update: have just heard from CDE. She suggested possibly changing pods every 2 days; I'm due to visit the clinic in person end of this month, so we'll talk more about it then!
T1 DX 1995
Omnipod since 06/04/18 (Novorapid)
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline himtoo

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Re: argh, more small leaks
« Reply #11 on: 13 July 2018, 08:23:56 PM »
we all know that D doesn't behave .......i think it is deffo worth persevering with for the benefits of background control
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline nytquill17

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Re: argh, more small leaks
« Reply #12 on: 13 July 2018, 08:50:11 PM »
Agree, Paul! I still have a long road with the mealtime control (just a lot of experience to gain with how to handle different meals on a pump + regaining the self-discpline to eat more reasonably!) but the background control is already so worth it.

Loooove having the Libre with it. I sit on my couch all morning while I work from home and just scan and "steer" between the lines every few hours. I think it would be really hard to be doing as well as I am (not that I'm perfect, but CDE keeps saying I'm doing great, so I'll take her word for it!) if I were having to do fingerstick tests every time I needed BG data, with no idea what was going on in between. I really do hope that CGM funding / coverage becomes more and more the standard of treatment for everyone!
T1 DX 1995
Omnipod since 06/04/18 (Novorapid)
 
  ~-~-~-~
"If you can't ride, can you fall?"
"I suppose anyone can fall," said Shasta.
"I mean can you fall and get up again without crying, and mount again and fall again and yet not be afraid of falling?"
"I - I'll try," said Shasta.
  ~C.S. Lewis, The Horse and His Boy
  ~-~-~-~
"There is no answer; seek it lovingly."

Offline Pattidevans

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Re: argh, more small leaks
« Reply #13 on: 16 July 2018, 02:32:49 PM »
Quote
Loooove having the Libre with it. I sit on my couch all morning while I work from home and just scan and "steer" between the lines every few hours. I think it would be really hard to be doing as well as I am (not that I'm perfect, but CDE keeps saying I'm doing great, so I'll take her word for it!) if I were having to do fingerstick tests every time I needed BG data, with no idea what was going on in between. I really do hope that CGM funding / coverage becomes more and more the standard of treatment for everyone!
Wouldn't that be lovverly?  Seriously though, in the relatively short time I've had D there have been leaps and bounds in technology and availability of that technology.
   
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline himtoo

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Re: argh, more small leaks
« Reply #14 on: 17 July 2018, 10:52:00 PM »
having done this most of my life i am positive that all advancements have not been universally introduced on any single date...........the same goes for meds to prevent complications.......
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 06/2013 6.1 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014