Author Topic: Any use?  (Read 309 times)

0 Members and 1 Guest are viewing this topic.

Offline Quantum Learning

  • Member
  • Posts: 1,337
Type 2 dx Nov 2012 FBG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
June 2017 51/6.8% Chol 6.1
Oct 2017 52/6.9%
Jan 2018 51/6.8% Chol 5.9
Sept 2018 47/6.4% Chol 4.8
Metformin SR 2g, Doxazosin 4mg, Lansoprazole 30mg, Fexofenadine 180mg Co-Codamol 30/500g  Amitriptyline 20mg
Toujeo/NovoRapid, Allergic 2 Levemir

Offline sedge

  • Global Moderator
  • Posts: 14,366
Re: Any use?
« Reply #1 on: 20 July 2018, 03:21:36 PM »
It is of use QL ! 

Medtronic, one of the leading insulin pump manufacturers, has been carrying out clinical trials in America on these for quite some time now.  A lot more T1s in the USA are able to have CGMs courtesy of their health insurance (or just their own wealth) than the NHS is willing to fund - some here do either pay for it themselves or if they meet the stringent criteria the NHS generally and/or their own CCG apply - have them. 

The same as everything - it's not the initial cost that is too much of a problem, it's the ongoing costs for the 'consumables' - with meters that's the strips, with pumps it's the cannulas, tubing and reservoirs, with CGMs (whether the most super duper or the more humble Libre) it's the sensors that are the drawback whoever is footing the bill.

Hence even if the likes of me or Patti could get hold of the computer gubbins we couldn't use it in the first place unless we also had the CGM - and the likelihood of that happening for virtually every T1 in the UK in my lifetime is Nil, IMHO.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

  • Administrator
  • Posts: 24,774
  • It's ONLY Diabetes. It could be something worse!
Re: Any use?
« Reply #2 on: 20 July 2018, 04:14:08 PM »
Pity about some of the nasty comments!
In actual fact I was sort of aware of this sort of development as there are a number of facebook groups dedicated to building these closed loop systems.  I belong to a Combo/Insight pump group and occasionally someone comes on asking if anyone has an unwanted Combo because they want to experiment with building one of these things.  As Sedge said though, regretfully the NHS is unlikely to fund CGMs for the likes of us, even if I had a clue how to build one of these machines.  However it's pointing the way to how the future of T1 will be - some years down the line. 
Quote
lot more T1s in the USA are able to have CGMs courtesy of their health insurance (or just their own wealth) than the NHS is willing to fund
And at the other end of the spectrum in the USA there are those for whom even getting the most basic insulin is a problem!  At least in the UK we do get our insulin on the NHS and I'm very grateful for my pump that they fund.


Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline Liam

  • Global Moderator
  • Posts: 3,237
  • We live to fight another day.
Re: Any use?
« Reply #3 on: 20 July 2018, 10:15:57 PM »
I think this is the future for all type Is. Maybe not any time soon but will be one day. The official channels are working on it. Nice to hear that these "home built" ones are open to help this become more mainstream.
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline sedge

  • Global Moderator
  • Posts: 14,366
Re: Any use?
« Reply #4 on: 20 July 2018, 10:52:42 PM »
Sedge wonders, there's a 'Thinks' bubble around the following - So Liam, is this nearer than the mythical cure, d'you think?

And of course - you are younger than me!
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Liam

  • Global Moderator
  • Posts: 3,237
  • We live to fight another day.
Re: Any use?
« Reply #5 on: 21 July 2018, 09:34:37 AM »
Well this is technically already possible. They just need more trails and research. I could be wrong but I expect CGMs prescribing to slowly becoming more normal, much like pumps have become more common.
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline sedge

  • Global Moderator
  • Posts: 14,366
Re: Any use?
« Reply #6 on: 21 July 2018, 10:26:07 AM »
Well - only if they become cheaper Liam.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline himtoo

  • Member
  • Posts: 2,887
  • Prince of Protein
Re: Any use?
« Reply #7 on: 21 July 2018, 06:17:31 PM »
i agree with Liam.... there is much going on in the closed loop on a DIY basis --- i know a couple myself and they do pretty damn well.

for all those old enough to remember --- blood testing and pens did not miraculously appear overnight.

T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6) 04/18 46 (6.4)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline sedge

  • Global Moderator
  • Posts: 14,366
Re: Any use?
« Reply #8 on: 21 July 2018, 10:06:07 PM »
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4