Author Topic: Retinal Bleed - Here We Go Again  (Read 1214 times)

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Offline Liam

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Re: Retinal Bleed - Here We Go Again
« Reply #15 on: 22 October 2018, 03:53:33 PM »
Best wishes. Hope you get some good news.
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline Dr DeEath

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Re: Retinal Bleed - Here We Go Again
« Reply #16 on: 28 October 2018, 06:20:07 PM »
I meant to post yesterday but after developing a migraine on Friday had a muggy head most of yesterday.

Friday's appointment started in the usual way - do the pinholes help you read more (this for the eye I cannot see out of), these drops will sting, we will now check the pressures (despite doing this just over a month ago), etc. They have a new instrument of torture to measure pressures. It's like a super biro - it comes close to your eye and then touches it? I kept flinching! Whilst the puff of air can take you by surprise the sensation that you are going to be picked in the eye is just horrible (there is no other word for it).

Twenty minutes later I saw the consultant from Moorfield. He was the sort of person that inspires confidence. He had a good look - it was the brightest light I can ever recall (probably shone out of my ears :) ). Anyway it confirmed there is a lot of blood there including one dense mass. The next step is a pre-op at Moorfield (they want reports from my cardiac surgeon and the anesthesist). All being well he hopes to carry out the vitrectomy before Christmas. He stuck me as a man of his word! So fingers crossed!
T1 for over 50 years.  MDI on Porcine insulin.  Lisinopril and Atorvastatin.

Offline Liam

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Re: Retinal Bleed - Here We Go Again
« Reply #17 on: 28 October 2018, 06:33:34 PM »
Step in the right direction.

I don't mind the big pen thing. It is hard not to blink but I manage it. Can't feel it anyway but instinct is to close the eye lid.
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline Pattidevans

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Re: Retinal Bleed - Here We Go Again
« Reply #18 on: 28 October 2018, 10:37:45 PM »
Once again. all I can say is good luck!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline sedge

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Re: Retinal Bleed - Here We Go Again
« Reply #19 on: 28 October 2018, 11:58:08 PM »
Urghh, I had the pen thingy during the pre-op for my last cataract op, but my head was still in the frame thingy that they use for slit lamp exams and the retinal photos etc, so you can sort of grit your teeth and brace yourself LOL
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline himtoo

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Re: Retinal Bleed - Here We Go Again
« Reply #20 on: 29 October 2018, 07:25:42 AM »
i guess i am a real big baby.... i hate going to eye clinic .... the drops and the the pressure machine and i swear it looks like i am staring straight at the sun when he is looking at the backs of my eyes
i get handed a fair few tissues along the way

good news on getting the op soon -- fingers and everything else ( except eyes ) crossed for you
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6) 04/18 46 (6.4)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline Dr DeEath

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Re: Retinal Bleed - Here We Go Again
« Reply #21 on: 07 November 2018, 10:37:59 AM »
Sorry I forgot to update after the surgeon. He was quite upbeat about a good outcome but the tests that day left me with a splitting headache than went into the next day - I am sure I get more sensitive to the light from the slit lamp as I get older or this one had an increased output.

Anyway, I have a pre-op next Monday and will update you after.
T1 for over 50 years.  MDI on Porcine insulin.  Lisinopril and Atorvastatin.

Offline sedge

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Re: Retinal Bleed - Here We Go Again
« Reply #22 on: 07 November 2018, 04:38:09 PM »
Hope all goes fairly swiftly after Monday then - there again pre-ops last for 6 months LOL
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Dr DeEath

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Re: Retinal Bleed - Here We Go Again
« Reply #23 on: 07 November 2018, 06:39:45 PM »
Hope all goes fairly swiftly after Monday then - there again pre-ops last for 6 months LOL

Some of my pre-op tests for my bypass surgery only had a three month validity. I got in just under this otherwise all the bloods (including HbA1c), ECG and something I cannot recall would have been repeated. They actually repeated these, and the echocardiogram and chest X-ray on admission.
T1 for over 50 years.  MDI on Porcine insulin.  Lisinopril and Atorvastatin.

Offline Dr DeEath

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Re: Retinal Bleed - Here We Go Again
« Reply #24 on: 12 November 2018, 08:37:53 AM »
Set off early with a friend and just finishing a coffee at Kings Cross (reminds me of commuting). Now for the underground. Fingers crossed it all goes OK!
T1 for over 50 years.  MDI on Porcine insulin.  Lisinopril and Atorvastatin.

Offline Liam

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Re: Retinal Bleed - Here We Go Again
« Reply #25 on: 12 November 2018, 09:46:18 AM »
Good luck.
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline Pattidevans

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Re: Retinal Bleed - Here We Go Again
« Reply #26 on: 12 November 2018, 09:47:17 AM »
Thinking of you and keeping fingers crossed.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline himtoo

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Re: Retinal Bleed - Here We Go Again
« Reply #27 on: 14 November 2018, 07:21:49 AM »
just catching up this morning and saw this -- belated good luck !!
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6) 04/18 46 (6.4)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline Dr DeEath

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Re: Retinal Bleed - Here We Go Again
« Reply #28 on: 16 November 2018, 09:36:49 PM »
Apologies I meant to update everyone on Wednesday but things became hectic (fortunately not medical issues). Monday was a very long day and I was tired and headachey all day Tuesday.

Whereas the pre-op for my bypass was far more involved it was impressively quick for what was involved. Monday started with a review of my medical history - the information passed to them was seriously lacking (e.g. they did not know I recently had a bypass - I suspect that this made them expand the number of tests). After this I saw a different consultant (I had had the eye test and drops by then) who seemed to peer for ages before admitting she could see nothing through the blood. She then asked if some students could take a look. I agreed as they have to learn but towards the end started to regret it I was that dazzled). Then it was on to other tests which involved endless waiting. Before leaving I saw the first nurse again. Basically everything was fine with the only unavailable results being blood tests. She said she would call me if there were any issues but all has been quiet so fingers crossed. I have a date for mid-December but will then have to avoid heavy lifting, etc. for a few weeks. It not long since the last one was lifted (pun not intended).

Despite it being very busy what stood out was how pleasant and helpful all the staff were.

I got home at 5:30 and promptly fell asleep!
T1 for over 50 years.  MDI on Porcine insulin.  Lisinopril and Atorvastatin.

Offline Pattidevans

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  • It's ONLY Diabetes. It could be something worse!
Re: Retinal Bleed - Here We Go Again
« Reply #29 on: 18 November 2018, 05:24:31 PM »
It's nice to hear that the staff were helpful and kind.  So often they can make you feel like a piece of meat.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans