Author Topic: Where to now  (Read 221 times)

0 Members and 1 Guest are viewing this topic.

Offline AlanSav

  • New Member
  • Posts: 5
Where to now
« on: 29 August 2018, 03:42:52 PM »
Well, I’ve been using humalin since May. Now on 18 morning and night. My glucose levels, despite correct diet etc will not go under 8.9 and I feel so poorly. Today diabetes nurse said she’d be concerned if they don’t go under 8. Then she said maybe my level is 8.9 . I tell her that I’m up to 15 and it’s rising rapidly even without eating and I feel 100 years old, feeling arthritic etc. She tell me it’s pointless raising my insulin use, says they won’t change so I can have evening injection and three before eating. Other blood tests show ferritin rising again now at just under 500 plus extraordinary low testosterone levels. Last time heamotologist gave up on my ferritin, appears I’ve only got half chromosomes for haemochromotosis and they couldn’t see how it had fallen on its own without blood letting from 1300. So rather than help, she said see GP. Totally distraught as daily life is hard to achieve. Feel like giving up. Not taking anything and forcing them to help me. Last time was a four month waiting list. I’m eating properly, I have never smoked and rarely have alcohol. What do I ask docs to do now please

Offline Pattidevans

  • Administrator
  • Posts: 24,780
  • It's ONLY Diabetes. It could be something worse!
Re: Where to now
« Reply #1 on: 29 August 2018, 07:51:30 PM »
Hi Alan
I'm going to fire a barrage of questions at you, but without knowing the full score we will find it hard to comment.
When you say Humulin, is it Humulin I?   If it is then it's an intermediate acting insulin designed to be taken twice a day.  Or is it another form of Humulin such as a 70/30 mix? They make several kinds of insulin so if you can tell us exactly which it is we can help you a bit better.  Look on the packaging and tell us.
Are you on any other diabetic medications such as Metformin?

When do you test?  Before/after meals and how long after?  When are your readings showing 15 in relation to meals?  What is your first morning test telling you (that is your level immediately upon rising)?
What is your daily diet like (I mean what exactly do you eat at each meal) and do you eat breakfast soon after rising?  I ask because lots of people's blood sugar rises throughout the morning if they don't eat breakfast.  This is called the "Dawn Phenomenon".  See https://www.diabetes-support.org.uk/info/?page_id=143
I presume your diabetic nurse is the one at your GP's surgery?  If so I'd be asking for a referral to the diabetic clinic locally which has proper DSNs and consultants.

I'm unversed in ferretin and Haemochromatosis, I am sorry.  Hopefully someone else can help there.
Anyway, if you could answer the above it would make it easier for us to make suggestions  ;) .  Meantime so sorry you are feeling so poo... no one wants to feel like that, but do be assured that there is help out there and you could indeed feel better with the right treatment.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline Alan

  • Member
  • Posts: 3,323
    • Type 2 Diabetes - A Personal Journey
Re: Where to now
« Reply #2 on: 30 August 2018, 12:35:13 AM »
Well, I’ve been using humalin since May. Now on 18 morning and night. My glucose levels, despite correct diet etc will not go under 8.9 and I feel so poorly.
G'day again Alan. I echo Patti's questions. More info will help us help you.
  • Has your menu changed much since we discussed "correct diet" last time?
  • What is your present typical diet for breakfast, lunch and dinner?
  • When are you testing related to those meals?
  • Last time I suggested this technique: Jennifer’s advice. Have you given that a try?
Quote
Today diabetes nurse said she’d be concerned if they don’t go under 8. Then she said maybe my level is 8.9 . I tell her that I’m up to 15 and it’s rising rapidly even without eating and I feel 100 years old, feeling arthritic etc. She tell me it’s pointless raising my insulin use, says they won’t change so I can have evening injection and three before eating.
Very odd. Are you able to go over the nurse's head to the doctor?
Quote
Other blood tests show ferritin rising again now at just under 500 plus extraordinary low testosterone levels. Last time heamotologist gave up on my ferritin, appears I’ve only got half chromosomes for haemochromotosis and they couldn’t see how it had fallen on its own without blood letting from 1300. So rather than help, she said see GP. Totally distraught as daily life is hard to achieve. Feel like giving up. Not taking anything and forcing them to help me. Last time was a four month waiting list. I’m eating properly, I have never smoked and rarely have alcohol. What do I ask docs to do now please
I am no expert on haemochromotosis but a second opinion appears wise, possibly including a consultation with a specialist on liver diseases.
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
There is nothing I could eat I like more than my eyes.
Type 2 Diabetes - A Personal Journey (latest: Slow Cooked Beef Brisket)
Born Under a Wandering Star (Surviving Long-haul Flights in Cattle Class)

Offline Paulines7

  • Member
  • Posts: 970
Re: Where to now
« Reply #3 on: 31 August 2018, 10:15:04 AM »
Hello AlanSav.  I would also be interested in what you are eating as I control my Type2 diabetes by diet and have done for 4½ years now. I know nothing about the medications that you are on so cannot help with that but I may be able to help as far as diet is concerned.  If you can give more information on what you are eating and when you are testing, the members of this forum including myself, should be able to offer some advice.     
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017. 47 Feb 2018. 50 Jul 2018. Pacemaker fitted 2008 - replaced 2017.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"