Author Topic: It's that kneecap again  (Read 1404 times)

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Offline Dr DeEath

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Re: It's that kneecap again
« Reply #15 on: 30 November 2018, 12:42:37 PM »
Sedge, as you know I am not pumping. For my upcoming vitrectomy the plan is take isophane insulin only (equivalent to your basal)with a light meal around six hours before surgery and go back to normal routine later in the day (they think surgery will only take an hour. Perhaps a parallel to this could be done? My eye team seem keen to avoid the sliding-scale and from two experiences so am I! :)
T1 for over 50 years.  MDI on Porcine insulin.  Lisinopril and Atorvastatin.

Offline sedge

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Re: It's that kneecap again
« Reply #16 on: 03 December 2018, 04:00:10 PM »
Yep Dr D - easy on MDI, you just take your basal and then obviously because you're Nil by mouth anyway, you don't eat or drink so you don't need to bolus, but if you go high you can correct, very cautiously - so that's fine.

Pumping - we only use short acting insulin 24/24. The part of it which is your basal, drips in constantly at whatever rate you happen to need at that time of day - think it's every 3 minutes you get a teensy bit - just like a pancreas does !  LOL

BUT - are they going to make me remove my pump whilst in theatre and if they do - are we going to get this Oh you'll have to lock that away in wherever we're going to put your clothes, handbag etc so you won't be able to access it again until we are ready to be discharged - which has surely got to be hours later, they surely can't give you a GA and you're being discharged 'soon' - in which case you'd be without any basal for too long and your BG would be sky high.

I do have some Levemir that's been in my fridge and been on it's travels abroad numerous times over the last few years (if it's still in date) - but since I came off the stuff in 2009 - I wouldn't know how much to inject - should I ever need to use it in an emergency, then it would purely be trial and error since when you pump, your TDD basal bears very little resemblance to your basal on MDI, my TDD Levemir was between 18 and 20u whereas I use a tiddly bit over 10u by pump!
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline sedge

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Re: It's that kneecap again
« Reply #17 on: 07 December 2018, 09:59:13 PM »
All a bit clearer now.

Op will only take approx. 45 mins - so I won't be bothered if I have to take it off for let's say an hour or so.  It can be getting on for that sometimes when I have a shower, hairwash etc and don't pass where I left it this time while I'm drying, cutting toenails, whatever.

I was all over the hospital today!  I thought it would be quite relaxing as the Day surgery unit is through the main entrance, and turn immediately right.  Well the bit that was in there was fine.  But then I had to go and have an ECG and a breathing' test so that was at the completely furthest part of the hospital, plus on the first floor.  Didn't have to wait all that long TBH and the ECG seemed OK, but the breathing thing wasn't.  They stick a nose clip on you and you have to breath through your mouth, but they don't allow for a person with (sorry, bit revolting) post nasal drip.  Of course I have nose drops and an inhaler and when I know I have to have a breathing test I use them for a few days beforehand but not all the time because the nose thing tells you it causes thinning of the skin so you can't use it long term - and the inhaler is steroids hence I only use it when I really need to.  I didn't know I had to have this test else I'd have prepared for it.  I'd already decided to use them from the weekend immediately before the op, anyway.  Sooo - I hope that result will be OK ….

Also had to go for a blood test, which I expected and it's on the ground floor more or less directly underneath the Cardio Respiratory place, so that's fine.  However - amongst all the 'usual' when we're us, they're doing TSH as entirely expected PLUS T3.  Haven't had that done by my GP or the hospital I see for my diabetes where all the initial input into my thyroid was instigated - for years and years and years so it will be interesting, anyway!
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: It's that kneecap again
« Reply #18 on: 08 December 2018, 10:09:36 AM »
Be interesting what the T3 test shows up.  I take Liothyronine (T3) in addition to Levothyroxine and feel better on it.  Apparently some people can not convert T4 (Levothyroxine) into T3.  I had tests at the beginning when I was seeing the Endo about the thyroid, but since I got the pump and was transferred to his colleague I’ve never had the tests.  Once the GP asked for them and the lab didn’t do them.  When I asked why she rang the lab.  I gather they are expensive tests.  She told the lab I was under the specialist and taking Liothyronine and so they did the test, but not had one since then, which was several years ago - 5ish I think.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline sedge

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Re: It's that kneecap again
« Reply #19 on: 08 December 2018, 12:38:53 PM »
Perhaps it's one of those things - once you've shown you don't convert it, you just have to replace whatever's missing on an ongoing basis and that's that?

I discovered this morning that I omitted to take my BP tablet and my Clopidogrel yesterday - oops!  Got to stop the latter after the weekend anyway - a week before op.  What I meant to say was, by 2pm (it was 11am apt) when we got home - I was hypo from all the ruddy walking I'd done!  Low 3s although I never felt it.  As my sandwich was next to me (my 'pre lunch' test)I just had a small swig of Lucozade, and ate my sandwich.  It was a couple of hours before it got up to 5 again, so it was a bit high pre dinner and I obviously corrected then with my bolus.  Bit of a strange exercise plan - go to hospital and walk round the whole ground floor corridors twice and avoid needing a bolus for lunch !  LOL
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: It's that kneecap again
« Reply #20 on: 08 December 2018, 01:50:45 PM »
Quote
Perhaps it's one of those things - once you've shown you don't convert it, you just have to replace whatever's missing on an ongoing basis and that's that?
Dunno.  I know that when I had my 2nd test after going onto Liothyronine my T3 was too high.  I was originally on 20mg per day but was told to cut it down to 10mg (or msg?).  Anyway, to start with it wasn't easy to break the pills in half so I got a pill splitter which worked OK on the original tablets, but then a scandal broke out where the suppliers of the drug went from charging £4.28 or something for a month's supply, to £258.19.  Scandalous, yes and the company were taken to court.  The drug was out of patent so other manufacturers were given licences and I have noticed that the new pills I'm getting don't have a line scored across them, so when I split them I often find they just crumble into bits and I have to guess what a half a pill is.  Ergo the dose can vary day to day depending on how the pills split.  I've complained to the chemist and asked them to get the ones with a line on them (also now cheap) but they say that what they are supplying is all they can get? ???  You might find the following links of interest Sedge.... OK the first is the Daily Mail but it gives a reasonable idea of the drug company's nefarious goings on.  The second link is of interest  to anyone who feels they might need to supplement with T3.

https://www.dailymail.co.uk/health/article-5104197/NHS-forced-pay-extra-34-million-common-thyroid-pill.html
http://www.pajiba.com/think_pieces/the-scandal-you-probably-havent-heard-about-its-time-to-improve-thyroid-treatment.php

FWIW I sympathise with the walking hypo/non-bolus situation.  On our latest holiday we were walking so much I could go nearly all day with no boluses.  One day after lunch with no bolus I had to have an ice cream that I didn't really want, in addition to having the pump on a temp basal of 20%.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline sedge

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Re: It's that kneecap again
« Reply #21 on: 09 December 2018, 12:36:22 AM »
Sorry - one of your comments does not compute, Patti.

When did they invent an ice cream that a person wouldn't want?  Is it new?  LOL


Although I confess were it bubble gum or candy floss flavoured I wouldn't want it either - and I'd resent having to eat the poxy thing!
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: It's that kneecap again
« Reply #22 on: 09 December 2018, 12:56:46 AM »
Arrgh I just didn't want anything to eat and this thing was humongous!  ISTR it was some sort of "healthy" yogurty sort of thing. It was in the shape of a rose or something.. sculpted and I had the choice of umpteen flavours that could be incorporated.  TBH being hypo I was like "gimme anything, asap".
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline sedge

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Re: It's that kneecap again
« Reply #23 on: 09 December 2018, 12:29:09 PM »
ROFL !
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: It's that kneecap again
« Reply #24 on: 09 December 2018, 02:44:46 PM »
One of these things pictured here https://www.amorino.com/en/products/gelato.3.html
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline sedge

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Re: It's that kneecap again
« Reply #25 on: 11 December 2018, 03:20:45 AM »
Very artistic - everything one needs when one's BG has plummeted indeed !  LOL
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Dr DeEath

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Re: It's that kneecap again
« Reply #26 on: 11 December 2018, 01:29:47 PM »
Reading between the lines is your op early next week? I have to stop my lisinopril for a couple of days as it can cause issues with the GA.
T1 for over 50 years.  MDI on Porcine insulin.  Lisinopril and Atorvastatin.

Offline sedge

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Re: It's that kneecap again
« Reply #27 on: 11 December 2018, 10:10:33 PM »
Yes - Tuesday 18th, in the morning.  GA but just day surgery.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline sedge

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Re: It's that kneecap again
« Reply #28 on: 19 December 2018, 12:50:33 AM »
Back On Topic LOL   Settle down with a beverage, original unedited version of War and Peace follows …..

I was first on the list, Oh good!

Admissions Nurse was, I should say, Philipinno - had to concentrate really hard to understand her questions - completes one side of her form, turns it over and then gets another form and says 'As it only a Local, straight to the Consent form then' -  WHAAAT? Did you just say 'local' ?  etc.  Having a right whinge to me that 'the unspecified they' have given her the wrong form and now she'll have to go and get another (cos by this time she's firstly asked me if I'm sure I'm right, yes because firstly my consultant told me it would be when I asked him, immediately before he referred me, ditto by the nurse at my pre-med last week - but no, still had to read part of the accompanying Encyclopedia Britannica, AKA my Notes) before sailing out (to the tune in my head of 'Stately as  Galleon' LOL) to get another form, where we got onto page 2.


What am I there to have done? - Removal of offending metalwork'
 - then we move onto the GA questions again - ie Any spare parts?

We move through the hearing aids, artificial eyes, dentures, I mention my pump - yep that's there!  Blimey! - says to remind anaesthetist (and he already knew when I got to that point, and was fine with it staying on and the Bluetooth was left turned on as long as it stayed ouside the theatre in the initial recovery room, along with my handbag, clothes, coat and outdoor shoes) - and then asked if I had any metalwork?  I laughed and said 'only the offending lot' - and then had to explain my answer .....

Taped up wedding ring with about a mile of micropore LOL

Not the best start I thought .......

Off to a room to disrobe, don gown and dressing gown and slippers, then the anaesthetist, great - then the main man - the actual main man, the one who drew the short straw and did it in the first place - he's a man you can talk to and welcomes questions - So bearing in mind the wound was stapled and immobilised for ages and ages thereafter in order for the bone to knit and all the swelling to dissipate - is it going to be immobilised again - how on earth will that like being bent from the outseet, if it isn't immobilised.  He chuckled and actually said 'We have a cunning plan - when we do such things, we apply a padded dressing which is thicker behind the joint, which is reduced in a couple of days and unless something is a problem, we don't need to see you until a fortnight after the procedure - when the STITCHES we fastened it with this time, are removed!'   Oh brill.

So off I go, happily.  We go via the loo, LOL.  We arrive.  Slippers off, stashed in bag, dressing gown off pump retrieved from pocket also into bag and me onto trolley,  Cannula inserted into left hand as I'm right handed.  Arrow on left leg checked with notes.  Ready? Yes thanks.  Injection starts to go into cannula and next thing I know I'm waking up - and apparently it's turned 2 pm !  OK, I did have to get up at 6am LOL

One sip of water and off we went, as per usual.  Got dressed, went up to the just ordinary area and onto a full length reclining chair, lovely. Supposed to be 2-3 hours.  Started to complete the job I'd started downstairs!  Desperately trying to stay awake, they gave me one Cyclazine tablet with a tiny drop of water (I mean there was more water, but I decided to restrict it, good job they're so tiny!) said thank you - and simply fell asleep again.  Eventually I wake up and realise there's another lady next to me - obviously had hand surgery, asked her, yes it was carpal tunnel.  I also remembered to apologise to the poor woman for my awful (apparently) snoring - the only person I've ever met who  it doesn't 'get to' ! LOL



I was asked to ring Pete about half four so it's rush hour with a few miles of parked traffic past the hospital entrance going from Bedworth to Nuneaton, because of the very major roadworks they decided to do on a '5 ways' island, nightmare on a normal day outside the rush hour, so took 3 arts of an hour by the time they told me he was there and let him in to escort me to the car in the rain and when I got home Just normal ordinary busy rush hour traffic the other way, so just queues rather than total gridlock - it was time for another nap, eventually about a quarter of a cup of tea, felt nauseous, had a nap, few forkfuls of stew, nap … not so bad now, but raging acid reflux even though no Cloppy Dog for over a week now so I've had to admit defeat and take a Lanzaprazole.


Oh and just remembered the admitting nurse was trying to measure my left ankle as well as the right one, I said You don't need to that and she said You have to have them on both legs - I went to tell her why and she told me to let her do her job, please because she knew her job and I didn't.  She came to check I'd got changed and wanted to know why I was only wearing the right one, I replied safely right at the bottom of my bag, thanks.


You wouldn't mind if just the odd consultant somewhere in the mists of time had told you not to, but when having an operation on the particular lower limb and/or intermittent claudication are both firmly official NHS Clinical Contra-idications and all of those are printed an the packets of the ruddy popsocks in question -  God help anyone saying Help me!  I'm hypo!


Poor chap later, turning up for a later appointment, T2 on oral meds (apparently you have to stop them X days before an anaesthetic) asked the nurse if she could test his BG please because when he did it that morning, it was already 18.0!   Couldn't stop myself saying O hell mate - you must feel like shit!  He agreed he did, I said, I only wish I could help you...  It's bad, isn't it?  Why on earth don't they issue folk with one 3ml cartridge of something and strict instructions re dose, surely SOME extra insulin has got to be better than no help whatever?


Oh - I also needed a couple of paracetamol earlier, as it's ruddy sore.  That's abated by now, to just an Oh - it's a bit sore, level.  None of the all round achy throbbing - so far LOL


My task for tomorrow even though I didn't accept it by choice is to get an appointment at my GP to get the dressing 'reduced' on Thursday.  Obviously at this time of year they won't be busy! …….
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline sedge

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Re: It's that kneecap again
« Reply #29 on: 19 December 2018, 01:52:51 AM »
 :D   Good job I was first on the list, eh what! 
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4