I’ve been having quite a few appointments with the hospital diabetes team since the summer so thought I’d give a little update. For a very brief summary of what’s happened so far over the last almost 10 years
since I was diagnosed. First year or two i was seen at lots of GP clinics as I moved a lot, all the usual limited knowledge of diabetes, threw lots of tablets, non insulin injections at me, you name a diabetes tablet and I probably took it. Then I moved south where I’ve lived for nearly 8 years. Was referred to rubbish hospital, started me on insulin but never really got along with them. Eventually moved to good hospital. Had help with adjusting doses, lost lots of weight, everything improved, discharged back to GP... where i had a bad experience and didn’t have any input for 2 years. Weight and bgs both got worse, rereffered to good hospital where I’ve been having regular appointments since about June or July.
I’ve seen the consultant a couple of times, the dietician once, and today was the DSN. I usually struggle to communicate my points in appointments which is probably linked to being autistic, so I’ve started writing anything I want to say out on my iPad and taking it with me which is helpful. Sometimes I hand it over, sometimes I manage to explain verbally and leave it in my bag but i know it’s there if I need it. Chat with the DSN today was useful. She emphasised the importance of taking lantus at roughly the same time every day, at least within an hour either side. I take it fairly randomly so I’ve set up a phone reminder. She also suggested a meter that calculates the doses for you, as I’m struggling to keep on top of remembering doses, calculating ratios when it’s not 1:10, knowing what changes to make for exercise, etc. Choice given was freestyle insulinx or accu check expert. The insulinx was a bit slimmer and more pocket friendly but the expert looked better, with being able to include adjustments for exercise, stress, illness, etc. We set it up together to use 1:8 for breakfast and lunch and 1:10 for dinner, with two exercise adjustments of -25% and -50% to adjust for the meal before band and swimming respectively. The other adjustments I’m not really going to use for now. Plan is to use the meter, save me some brain power, let it gather some data, then review together in a month or so and discuss adjustments. In the meantime I need to focus on exercising, eating well and losing some weight. Seeing the dietician in a week or two, last time we talked about making carb counting easier which I’ve been trying to put into action, but that was 3 months ago and I’ve not really lost any weight since, so this time we can hopefully discuss that more.