Author Topic: Cyber Knife  (Read 543 times)

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Offline Paulines7

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Cyber Knife
« on: 30 October 2018, 06:56:24 PM »
Just an update on my husband John's prostate cancer.  He had his prostate removed in 2010, had radiotherapy in 2012 then had to go on hormone treatment 4 years ago.  His PSA started going up again at the end of last year, and in July, when it had reached a certain level, he went for a PET scan which showed that his prostate cancer had gone into his spine. 

However, he couldn't have treatment straight away as he had a suspected tumour in his appendix.  They had to remove that before they could treat his prostate cancer.  This was taken out in September and, fortunately, the tumour was contained within the appendix.

Once he had recovered from that operation, he was sent to the Royal Marsden in London to assess the prostate cancer in his spine.  They have a radiotherapy machine called a cyber knife and it is the very latest in technology.  I believe that there are only two of these machines in the NHS. 

We are staying at the Royal Marsden in hospital accommodation this week and John had his first treatment yesterday.  He is due another one tomorrow and one on Friday.  We are over the moon that he has been offered this specialist treatment.  He has felt no I'll effects from this new treatment, I am pleased to say. 

Whilst John was having treatment yesterday, I was chatting to one of the other patients.  He also had prostate cancer that had gone to his spine and the cyber knife treatment had cured it.  Unfortunately it had now come back elsewhere in his body, but he had every confidence that the machine would get rid of it.

John has been on morphine for the past two weeks as the pain has been unbearable but once they have got rid of the cancer and everything has healed, John has been told that he will not have any pain.



Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017. 47 Feb 2018. 50 Jul 2018. Pacemaker fitted 2008 - replaced 2017.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline Pattidevans

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Re: Cyber Knife
« Reply #1 on: 30 October 2018, 07:08:42 PM »
Hi Pauline
Thank you for the update.  Julian and I have been thinking of you and wishing John well.  It sounds like the cyber knife is an amazing piece of technology and fingers crossed John will be well very soon.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline sedge

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Re: Cyber Knife
« Reply #2 on: 30 October 2018, 10:38:49 PM »
Hear hear Pauline - Pete and I wish John all the best for this.  It does sound absolutely brilliant.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline himtoo

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Re: Cyber Knife
« Reply #3 on: 31 October 2018, 08:12:18 AM »
sending get well thoughts and prayers to John.
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6) 04/18 46 (6.4)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline TerryJ

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Re: Cyber Knife
« Reply #4 on: 31 October 2018, 08:33:34 AM »
It's a fantastic piece of kit, let's hope more become available soon -

https://www.royalmarsden.nhs.uk/your-care/treatments/radiotherapy/cyberknife
Type 2 since 1999. Current meds Gliclazide
HbA1c Feb10 10.9, May10 7.7, Oct10 6.6, Oct11 6.7, Dec12 6.4, Nov13 6.9

Offline Paulines7

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Re: Cyber Knife
« Reply #5 on: 01 November 2018, 10:22:28 AM »
Thank you all for your good wishes.  Everything went well again yesterday.  Last one tomorrow then back home.  We have a day to explore London now. 
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017. 47 Feb 2018. 50 Jul 2018. Pacemaker fitted 2008 - replaced 2017.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline Liam

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  • We live to fight another day.
Re: Cyber Knife
« Reply #6 on: 01 November 2018, 11:36:49 AM »
Glad to hear it went well. Hope it proves to be as good as it sounds. Best of wishes too you both.
DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline Quantum Learning

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Re: Cyber Knife
« Reply #7 on: 01 November 2018, 03:58:54 PM »
Yes, best wishes to both of you.
Type 2 dx Nov 2012 FBG 14%/129.5
HbA1c Jan 2013 79/9.3%
April 2013 50/6.7%
July 2013 39/5.7%
Oct 2013 39/5.7% Chol 5.9
July 2014 45/6.3% Chol 5.5
Aug 2015 61/7.7% Chol 5.9
May 2016 84/9.7% Chol 6.9
Oct 2016 53/7%  Chol 6.3
Dec 2016 41/5.9% Chol 6.0
June 2017 51/6.8% Chol 6.1
Oct 2017 52/6.9%
Jan 2018 51/6.8% Chol 5.9
Sept 2018 47/6.4% Chol 4.8
Metformin SR 2g, Doxazosin 4mg, Lansoprazole 30mg, Fexofenadine 180mg Co-Codamol 30/500g  Amitriptyline 20mg
Toujeo/NovoRapid, Allergic 2 Levemir

Offline Alan

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    • Type 2 Diabetes - A Personal Journey
Re: Cyber Knife
« Reply #8 on: 01 November 2018, 08:38:29 PM »
Wishing him the very best outcome Pauline.
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
There is nothing I could eat I like more than my eyes.
Type 2 Diabetes - A Personal Journey (latest: Slow Cooked Beef Brisket)
Born Under a Wandering Star (Surviving Long-haul Flights in Cattle Class)

Offline Paulines7

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Re: Cyber Knife
« Reply #9 on: 03 November 2018, 01:27:56 PM »
We are back home now after an awful journey on the train yesterday afternoon.  There were only two second class carriages and it wasn't the rush hour but it was the last day of the half term for many school children.  We struggled on with our cases and there was nowhere to sit.  Fortunately, some people gave up their seats for us. 

I have been surprised how many people have helped us with our luggage in London and most of them were women.  I had a small cabin sized case and wore a rucksack on my back. One woman took my case for me, down the stairs at South Kensington tube station and another one offered on the stairs on the Bakerloo line but as I was a good halfway down,I thanked her but said I could manage.  When we got on the train at Waterloo, a lady lifted my case and rucksack onto the racks for me and a gentleman got them down for me at the end of the journey. 

John has been told that the radiotherapy will continue to work for two more weeks and he will be in pain, but after that, it will begin to heal.  He has morphine to help with the pain.  John is due a check up in London next month and the consultant wants him to have further scans in January.  We feel very fortunate that John has been offered this specialist treatment as normal radiotherapy could well have damaged his spinal cord. 

My bg levels have not been very good these past six weeks.  Some of it may be to do with the worry over John but I have not stuck to my low carb diet.  I have had a lot more treats than normal, mainly in the form of chocolates and biscuits, but now I am back home I will be more disciplined and also try to lose weight.   
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017. 47 Feb 2018. 50 Jul 2018. Pacemaker fitted 2008 - replaced 2017.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline sedge

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Re: Cyber Knife
« Reply #10 on: 05 November 2018, 04:05:13 PM »
Understandable that your BG will be affected Pauline, stress hormones and all that.

Good job John can take morphine - let's hope he doesn't have to be on it for too long and recovers well.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: Cyber Knife
« Reply #11 on: 06 November 2018, 09:31:37 AM »
Very glad to hear all went well, despite the horrific train journey.  Also that John has morphine to help with the pain.  Give him a big hug from us.


Pauline, it’s understandable that you should worry, but don’t forget that those ‘treats’ can easily damage your health.  I’ve always thought I was invincible until I heard that I had the start of retinopathy.  Anyhow, onwards and downwards eh?


Sorry won’t be around much until later in the week as we have house guests.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline Paulines7

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Re: Cyber Knife
« Reply #12 on: 17 January 2019, 12:55:24 PM »
Just an update on my husband John.  We went to the Royal Marsden for his check up on Tuesday and John's PSA has reduced from 6+ to 2.05 since having the Cyber Knife treatment on his spine.  He is still in some pain but hasn't taken morphine since Christmas Eve. The pain is normal at this time, given the very high dose of radiation that he had, but it should improve in time.  The Registrar that we saw on this visit was very helpful and informative.  She has given John something different for his pain; a medication that is normally given to treat epilepsy.  A lower dose of it has been found to treat pain. 

The Registrar has also given John some tablets to treat his hematuria.  This medication is only available at the  Royal Marsden so we are very fortunate that John has been prescribed it as the Consultant had previously said that they would only treat him for the prostate cancer in his spine.  He has had treatment two years ago at Salisbury Hospital for this condition but it involved injecting something into his bladder by means of a catheter.  It helped his condition but was not long lasting.  The tablets, if they work, will be far more pleasant than having the invasive treatment weekly for several weeks.
Diabetes Type2 diagnosed March 2014.  Treated by diet only.  HbA1c 60 on diagnosis, 52 in June 2014, 50 October 2014, 44 December 2014, 48 May 2015, 50 Sep 2015, 53 Jan 2016, 50 Oct 2016, 56 Feb 2017, 50 Jun 2017. 50 Aug 2017. 47 Feb 2018. 50 Jul 2018. Pacemaker fitted 2008 - replaced 2017.

When I get old I don't want people thinking
                      "What a sweet little old lady"........
                             I want 'em saying
                    "Oh Crap! Whats she up to now ?"

Offline himtoo

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  • Posts: 2,887
  • Prince of Protein
Re: Cyber Knife
« Reply #13 on: 17 January 2019, 05:09:43 PM »
Just an update on my husband John.  We went to the Royal Marsden for his check up on Tuesday and John's PSA has reduced from 6+ to 2.05 since having the Cyber Knife treatment on his spine.  He is still in some pain but hasn't taken morphine since Christmas Eve. The pain is normal at this time, given the very high dose of radiation that he had, but it should improve in time.  The Registrar that we saw on this visit was very helpful and informative.  She has given John something different for his pain; a medication that is normally given to treat epilepsy.  A lower dose of it has been found to treat pain. 

The Registrar has also given John some tablets to treat his hematuria.  This medication is only available at the  Royal Marsden so we are very fortunate that John has been prescribed it as the Consultant had previously said that they would only treat him for the prostate cancer in his spine.  He has had treatment two years ago at Salisbury Hospital for this condition but it involved injecting something into his bladder by means of a catheter.  It helped his condition but was not long lasting.  The tablets, if they work, will be far more pleasant than having the invasive treatment weekly for several weeks.


that is such a great bit of news pauline..sending hugs !!!
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6) 04/18 46 (6.4)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline sedge

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Re: Cyber Knife
« Reply #14 on: 17 January 2019, 06:01:34 PM »
Just a very quick FAB!! from me at the mo as short of time.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4