Author Topic: what would you ask...................  (Read 924 times)

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Offline Liam

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Re: what would you ask...................
« Reply #15 on: 25 November 2018, 02:11:55 PM »
It is a real shame you don't see anyone useful more often. It took a long time but even my local hospital DNS are trained up now and useful. They did have the two nurses retire as they changed to "doing pumps".

It isn't so much that they have some magic skill or anything. Just sometimes fresh eyes can see something I've missed. Normally I agree with the advice.

I know the PCs in our hospital are pretty locked down. The Endo told me they can't even put anything USB into them as they are locked down tightly. He told me that when we were talking about them having a machine only for uploading pumps and CGMs.

DX Type I 1994.    Novorapid Animas Vibe pump
HbA1c 3/10 10.2%, 7/10 8.1%, 12/10 7.5%.
2/11 7.8%, 8/11 8.6% 9/11 8.3%.
3/12 62 (7.8%). 10/12 67 (8.3%)
4/13 63 (7.9%) 6/13 59 (7.5%)
1/14 71 (8.6%) 7/14 59 (7.5%) 11/14 (6.7%)
3/15 56 (7.3%) 12/15 49 (6.6%)
Ramipril: 10mg Quetiapine: 550mg Metformin: 2000mg

Offline sedge

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Re: what would you ask...................
« Reply #16 on: 25 November 2018, 02:54:34 PM »
You know when you hypo in the night, Patti - are these proper full blown hypos where you wake up all sweaty and confused and you're the low 3s or lower, or middle to high 3s, or even where you haven't woken up at all but when you see the Libre line it shows you've been under 4 and you go what ?
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: what would you ask...................
« Reply #17 on: 25 November 2018, 05:59:16 PM »
No, I don't wake up all sweaty etc.  I only wake up cos I need the bathroom and since I have had the sensors on I have grabbed the reader and scanned to discover I'm hypo.  The other night I was "LO" but when I tested with the meter I was actually 3.9.  So yes, technically that was a hypo.  Later the same night I was 3.1 on the scanner and 5.9 on my meter.  Now either, or both, could be wrong!  I ate a couple of glucose tabs and turned the pump down a notch from an 80% temp basal to 70%.  Last night I was fairly high (10ish) before bed so didn't put a temp basal on and stayed in a nice straight line around 7 - 8 all night.  There's no pattern I can see!
So sorry Paul.. Complete  :threadhijack:
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline Lucy

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Re: what would you ask...................
« Reply #18 on: 25 November 2018, 09:43:23 PM »
Sounds more like the sensors aren't accurate or you're lying on them than bg going scary low overnight then? If the only low you've had overnight on bg meter is one 3.9.
Type: Lucy.
Lantus and Apidra. Metformin XR, Propanolol

Offline sedge

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Re: what would you ask...................
« Reply #19 on: 25 November 2018, 10:25:50 PM »
I agree Patti hasn't had a hypo - I was going to say bearing in mind if you aren't diabetic you can drop pretty damn low during the night anyway, without coming to any harm because it's natural for a body to do that - I get to think, providing we don't have too much IOB in the first place, it doesn't actually hurt us whatever unless we get into 'clinically hypo' territory under approx. 3.4.

In other words, reading what you've said, the Libre is exactly as reliable during the night for you as it was all day and all night for me.  Yet - you trust what it tells you about trends and other things.  Does not compute, sorry.  And clearly a waste of time for trying to correctly set basal rates - which is what I primarily wanted it for apart from being interested to see whether I actually had any trends, any time.
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Pattidevans

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Re: what would you ask...................
« Reply #20 on: 26 November 2018, 10:18:09 AM »
Correction:  it was 2.9 not 3.9.  Had to scroll back on my pump handset to see.  So it was a hypo, but as for the rest I think I must have been lying on my sensor and they were compression lows.  I do tend to lie on my right with my arm up to cushion my head.


Most of the time during the day it’s within a point or so of my meter.  E.g. scan 6.4 test 6.9.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline Alan

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Re: what would you ask...................
« Reply #21 on: 26 November 2018, 08:08:35 PM »
I have been appointed to the All Wales patient reference group and I attend my first meeting in Cardiff on 12th December.
this group consists of a few dozen healthcare professionals covering all aspects of the care of Diabetics in Wales
a handful of Diabetic patients and parents of diabetics make up the balance
Congratulations. You are volunteering for a lot of frustration as others have noted but will benefit many. Well done.
Quote
so over the coming months i shall be representing  diabetics ( type 1's and type 2's ) and was wondering what sort of things people would want asking if they had this voice......
I notice all the discussion so far has been T1. My hope is just a pipe dream but occasionally I wonder how nice it would be if all the doctors, dieticians and educators could persuade their type 2 patients of the following:
  • The single most important part of a type 2 diabetic's treatment regimen is the food they choose to put in their mouths.
  • The medications or insulin they are prescribed are only an aid to an appropriate way of eating, not a way of combatting a poor menu.
  • A balanced diet is important for good health but within that balance their carbohydrate portion choices at each and every meal are far more important than their fat and protein choices.
  • The way to discover the correct carbohydrate portions is to test at the peak of their blood glucose excursions after meals and use those results to review the cause of high spikes to modify their future choices.
Of course, it is bloody difficult for the doctors, dieticians and educators to teach that to their patients if they are blissfully unaware of it themselves. And it is bloody difficult for the patients to follow that advice if they cannot obtain adequate supplies of affordable test strips or a CGM.
Cheers, Alan, T2, Australia.
--
Everything in Moderation - Except Laughter.
There is nothing I could eat I like more than my eyes.
Type 2 Diabetes - A Personal Journey (latest: Slow Cooked Beef Brisket)
Born Under a Wandering Star (Surviving Long-haul Flights in Cattle Class)

Offline Pattidevans

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Re: what would you ask...................
« Reply #22 on: 26 November 2018, 10:52:22 PM »
You are dead right Alan and I touched on it in my first post where I said "education for all", but I should have expanded on that an awful lot!
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline sedge

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Re: what would you ask...................
« Reply #23 on: 27 November 2018, 12:10:20 AM »
I hope all of us on this forum sing from much the same hymn sheet as you Alan as far as education diet exercise and medication are concerned!
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4

Offline Blueduck

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Re: what would you ask...................
« Reply #24 on: 04 December 2018, 06:14:38 PM »
I would like to ask, why when first diagnosed as diabetic, people are not tested to see what type they have so treatment can be correct from day 1, meaning more help, more control, more knowledge

Good luck, hope your voice is heard and actually listened to😀
Cheryl

Spelling is not everything!
Humalog
Levimir from Dec. 2018
4 metformin a day
Diagnosed T2 2010 Now find I am T1 2017

Offline Dr DeEath

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Re: what would you ask...................
« Reply #25 on: 05 December 2018, 10:57:34 AM »
I would like to ask, why when first diagnosed as diabetic, people are not tested to see what type they have so treatment can be correct from day 1, meaning more help, more control, more knowledge

Good luck, hope your voice is heard and actually listened to😀

So would I. This particular applies where fit middle-aged of normal weight are immediately diagnosed Type II. A 6' 12 stone friend was subjected to totally ineffective Metformin for an extended period as GP refused to budge. Now on 24u total insulin and doing really well. The mind set is such that I have been referred to as Type II as it is (was) a middle-age problem.
T1 for over 50 years.  MDI on Porcine insulin.  Lisinopril and Atorvastatin.

Offline Ziggy

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Re: what would you ask...................
« Reply #26 on: 15 December 2018, 10:39:14 AM »
Diagnosed over 10 years ago, found this Wonderful site and have never had to take any medicines for my diabetes - until mow - when I have developed Polymyalgia Rheumatica which can cause diabetes - so Lord knows if like me you have diabetes already ........................  I spent a day and didn't eat a carb and was 19!!!!
ZigSig:-
T2 Since 22-May-2008 - HbA1c Dec 2015 - 38 or 5.6.  Chol - 5.8
 

Ramapril 10mg, Omeprazole 20mg
Exercise - am running on a fairly regular basis - knees don't fail me now :)  and Diet (am a lacto ova vegetarian and am trying to stay low GI/GL)     Still on the Road To Find Out

Offline Pattidevans

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Re: what would you ask...................
« Reply #27 on: 16 December 2018, 09:57:18 AM »
I’m really so sorry to hear about your new health condition Ziggy.  That is pretty shocking being at 19 without ingesting any carbs. I presume you are now under a Dr’s care again?  Are you now taking any meds for the diabetes?


Sorry it took so long to respond, it’s been manic in our house since the middle of last week, with increased volunteering responsibilities and socialising.  Though I must say the second category has been a lot of fun.
Patti


Type 1.  Mis-diagnosed T2 May 2003, finally had CPeptide test 15/7/11 and proper diagnosis 1/9/11.  Now pumping Apidra with Roche Spirit Combo pump. Hba1c 6.1 Sept 2017.  45 (6.3) April 2018.


© 2015 Patti Evans

Offline himtoo

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Re: what would you ask...................
« Reply #28 on: 17 December 2018, 08:14:39 PM »
expandinging on the locked down PC's--- my hospital cant access diasend even though we are being told to upload all our Libre results there- the NHS is in a mess

their PC's are all locked down !!
T1 Dia Aug 1972 -pumping omnipod since 29/09/15  Losartan 100mg , simvastatin 40mg,Furosemide 40mg, Omeprazole 80mg , Doxazosin 8mg
Hba1c - 02/2014 43(6.1) 07/14 42(6.0) 08/14 40( 5.8 ) 12/14 39 (5.7) 08/15 41 ( 5.9) 10/15 44 ( 6.2 ) 03/16 49 (6.6) 04/18 46 (6.4)
cholesterol --nov 2011 4.3 june 2012 4.4 June 2013 4.1 Feb 2014 4.1 dec 14 4.5 oct 15 4.4
Dafne grad. necrobiosis lipoidica on legs
laser treatment on both eyes 2002 and 2012, injections left eye 3 , wearing Noctura mask since oct 2014

Offline sedge

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Re: what would you ask...................
« Reply #29 on: 17 December 2018, 09:19:58 PM »
Locked down for what purpose? - so OK can't access Facespace or whatever - but my hospital absolutely uses TP software, dunno about Diasend, but they certainly have the Roche pump software prog on them in the Diabetes centre at Rugby and download our pumps to it.  The Wisdem centre at UHCW itself do too.  At the same time I don't suppose for a single minute that the endos and their staff have access to the DaVinci robot program or the Urology dept to the Roche prog.

There's got to be a relatively simple, safe cure surely?
Jenny

T1 DX 1972, pumping Novorapid 24/05/11

HbA1c - 7/07 8.7, 1/08 7.8, 9/08 8.4, 3/09 7.3, 7/09 7.2, 12/09 7.3, 11/10 8.1, 2/11 8.6, 9/11 6.5 2/12 6.4  5/12 50/6.7  11/12 52/6.9  01/13 46/6.4  06/16 46/6.4  12/16 45/6.4