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Insulin pumping / Re: Any use?
« Last post by sedge on Yesterday at 10:06:07 PM »
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General discussion / Re: Ophthalmology Appointments
« Last post by Dr DeEath on Yesterday at 09:05:13 PM »
My local hospital had problems getting doctors. The way they cheated the target system was to make appointments but not inform the patient. They would then send letters saying I'd missed appointments I'd never been told about. I heard from my Endo that it was a trick to blame me so there targets looked right.

Another clinic (not opthalmology) used to send you a text reminder about an appointment you knew nothing about. Usually one could not make it at such short notice. The appointment or change of appointment letter would arrive a day or two later. I wonder what percentage of people made the appointments? I tend not to believe the stats about non-attendance especially when most clinics are overcrowded and running late!
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General discussion / Re: Retinopathy Test
« Last post by colette3 on Yesterday at 07:44:36 PM »
Thank you all for your comments.  What I have is Helocobacter Pylori and on a triple therapy of Metronidazole, amoxicillin, (AB.s) and a PPI called omeprazole which deals with acid reflux.  I have been taking this now for 9 days and beginning to feel the benefit.  Taking one AB is bad enough but 3 together is brutal.  Diarrhoea has been my side effect and I had 2 days where it was absolutely brutal.  I do hope the bacteria is eradicated at the end of this course but if it isn’t then I will have no option but to take a second course.


I take your point Dr Death.  I am quite an experienced researcher on Google and am settled in my mind what I am looking for and excluding a great deal of rubbish one finds especially the hideous scaremongers who reckon the only way to survive is to read their latest webinar, course, book etc. 

Getting near the end so please keep your fingers crossed that it works.
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General discussion / Re: Ophthalmology Appointments
« Last post by Liam on Yesterday at 06:40:22 PM »
My local hospital had problems getting doctors. The way they cheated the target system was to make appointments but not inform the patient. They would then send letters saying I'd missed appointments I'd never been told about. I heard from my Endo that it was a trick to blame me so there targets looked right.
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Insulin pumping / Re: Any use?
« Last post by himtoo on Yesterday at 06:17:31 PM »
i agree with Liam.... there is much going on in the closed loop on a DIY basis --- i know a couple myself and they do pretty damn well.

for all those old enough to remember --- blood testing and pens did not miraculously appear overnight.

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General discussion / Re: Ophthalmology Appointments
« Last post by himtoo on Yesterday at 06:13:06 PM »
( lots of swearing commences here )  I have had ongoin issues with opthalmology for the last 5 years............i am meant to be seen every 6 months as I have retinopathy and a macular edema on my left eye.

i have gone as long as 11 months between appointments ,,,,, but i calendar myself to ring about 4 weeks before i am due so i now get seen about 7 monthly ( after rowing with the appointment team as well )

i had a complaint in with the CCG for 4 years but they ended up saying they were doing the best they could and said i should go to the ombudsman if i wished to pursue any further ...

not all departments are run this badly but there is no joined up thinking in the NHS... each department runs its appoinment making as it chooses -- with no regard to best practise.. ( and that is direct from my neighbour who is a manager in a well run dept )

ahhh hemmmm ( rant over ).........



l
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General discussion / Ophthalmology Appointments
« Last post by Dr DeEath on Yesterday at 04:45:10 PM »
Some of you will remember that I had quite a severe retinal bleed last year some months after my annual review was postponed for half-a-year. I will never know if minor laser treatment earlier would have prevented the heavy duty laser I subsequently required?

Anyway in February I was told it was stable but needed reviewing in four months. This was changed to five a few weeks later and then to six! This made it August but with the OHS in the background did not overly concern me. However, today I got a letter moving it to November! I think this is totally unacceptable! A clinician said four months and this has now been more than doubled. I feel the time has come for proper explanations to have to be given - the old "unforseen circumstances' is not really acceptable. My heart surgery was put back but I got a phone call, and apology, before the revised admission letter was sent.

Speaking with some diabetic friends in other parts of the country this seems a not uncommon problem!

Have you had issues with opthalmology appointments?
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General discussion / Re: Retinopathy Test
« Last post by Dr DeEath on Yesterday at 04:25:42 PM »
Collette, I am not a regular poster on here as I'm not the one with diabetes in our family - I'm here for my husband who's way of dealing with illness is to ignore it.  I've had a lot of help from members and hints on cooking and diet which have been valuable, really valuable.
I've obviously missed your posts, but wonder if you have actually been diagnosed with bowel cancer because you seem to be having the same problems as I had, 15 years ago.
I suffered from very painful stomach cramps and (sorry) explosive diahorrea after nearly every meal or snack, and went through a huge battery of tests - some very embarassing and intrusive and uncomfortable (even painful).  Eventually a biopsy proved I have coeliac disease and I was put on a strict No Gluten diet.
This means no pastry, bread, cakes or biscuits for EVER.  It is actually basically LCHF although I can eat fruit and root vegs ad lib, aand its not as awful as it sounds.  Substitute breads and cakes and pasta can be bought, for a price, but to my mind they're not tasty and personally I prefer to do without.
Have you been tested for Coeliac Disease?
If you have and its come back negative - why not try the diet (100% no gluten - read the labels) for a couple of weeks and see if it helps?  You can stil be gluten sensitive with a negative diagnosis, Dr Google will help   :eek:

One of my cousin's developed a lactose intolerance last year. I find the continued increase in people developing intolerances rather disturbing. The problem is that the figures are confused by people who decide avoiding certain elements in your diet is healthy.

I would advise caution with Dr Google. As I found out when I developed my heart problem there is a lot of out of date and mis- information out there!
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General discussion / Re: Retinopathy Test
« Last post by Pattidevans on Yesterday at 12:10:36 PM »
Quote
I've obviously missed your posts, but wonder if you have actually been diagnosed with bowel cancer
Er, I think Colette has been told she has irritable bowel syndrome (IBS), not cancer, but all the same the rest of your post poses an interesting question!
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Insulin pumping / Re: Any use?
« Last post by sedge on Yesterday at 10:26:07 AM »
Well - only if they become cheaper Liam.
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