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Insulin pumping / Re: What a morning!
« Last post by nytquill17 on Today at 10:03:17 PM »
Had a prawn salad, and blouses for it
Sorry, I know it's just the autocorrect on your ipad being a pain, and I don't mean to make light of the awful time you're having, but now I'm imagining a chorus line of prawns in tiny little blouses!  :))


In all seriousness though, I feel like I can relate to this a bit more now than before, and I can see how frustrating it all must have been! That trapped nerve sounds agony though. Really hope you can get it seen to sooner rather than later!
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Insulin pumping / What a morning!
« Last post by Pattidevans on Today at 05:22:31 PM »
For the last 9days I’ve been waking in the 10ish Range.  I know it’s too high, but I have rationalised that I have a trapped nerve which is sometimes very painful and also been eating stuff I wouldn’t normally eat.  This morning FBG was 10.5, so I did a 2.9u correction.  1hr 15 later I was about to eat 2smallish slices of white toast off a crusty loaf, BG by then was 12.8. Pump calculated a bolus of 5.0 and delivered it, immediately followed by a low reservoir alarm.  So I ate 1slice of toast.  Pumpy alarmed again with an occlusion.  Turned it off, primed it, turned it on... another occlusion alarm.  Gave up and decided to change pump before eating other slice of toast.  Filled a new reservoir, changed pump and was pressing the button to bring the Plunger up to 150u before I could start the pump again and nothing at all is coming out of the tubing.  I was seriously thinking the pump was broken and got in mortal terror of having to revert to MDI...please God not on top of the trapped nerve pain!  Clicked through the options to change cartridge and only then discovered I’d put the empty cartridge into the pump and thrown the refilled one in the rubbish bin!

So, fished out the cartridge with 150u in it from the rubbish bin and continued withpump change.  Ate cold toast.  Rubbed shoulder with Deep Heat and took 2 Panadol.  Rubbed rest of self with sun tan lotion and went outside to sunbathe.  Decided it was time to adjust basal and did so for 15hours of the day.  V hot so decided to swim.  Got up and felt very very weird.  Tested 24.5!  Not sure if insulin had gone off in the heat as I’d been in the sun for an hour as I’d forgotten to put the pump Frio on it.  Did a correction.

An hour or so later I was 16.4and when we went for a late lunch I was 8.7.  Had a prawn salad, and blouses for it, but my arm/shoulder was killing me and I couldn’t eat it.  So 2Panadol and a Deep Heat rub later I had an ice cream.  Not easy this diabetes lark.   

Just surprised at how terrified I was at the thought of going back to MDI,
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Insulin pumping / Re: Omnipod is GO!
« Last post by Pattidevans on Today at 04:50:39 PM »
Hope so.. let us know what they say!
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General discussion / Re: Finally in the right headspace...
« Last post by Lisa65 on Today at 03:44:07 PM »
Hi Nyt
I have real issues with perceived authority or with people who I consider are out to give me a hard time (about BG levels or anything else ) hence my reluctance to go to my reviews .I don't want to feel like I've done something wrong by sidelining my diabetes for a couple of years. I did find one nurse I really liked but she's left and I havent seen the new one yet. I'm hoping she isn't one of those "don't test because diabetes is progressive and you'll just depress yourself" types!
Hi Lucy, maybe we can encourage each other with the weight loss. I have put 2 and a half stone back on from my all time low, but I don't want to get back to that as I had got a bit obsessed with it and I didn't look good..so about a stone and a half would be fine. I don't play with the brass band anymore, too much politics but am still enjoying the bell ringing.


I've done a solid four days of testing now, pre meal, one and two hours after, before and after sleeping and although the results aren't good they aren't terrible. Mostly in the 8-10 region. Like Lucy just said, remembering when I lost weight before the BGs went down in steps rather than a straight line, so I'll concentrate on getting some weight off. I'll get a libre at some point but probably won't use it until my levels are generally better ,so I can use it to pinpoint problem areas.
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Food, diet and weight management / Weight loss
« Last post by Lucy on Today at 01:51:36 PM »
Ive recently started trying to lose weight again, after losing then regaining 4 stone or so in 2016. Today is the end of the first week and I’m down 8 pounds so I’m pleased with that. I did a lot of thinking before restarting, about what I’ve learnt about myself and what went wrong last time, so that I can lose weight again, but in a better way. The main difference is, last time I lost weight through calorie counting using my fitness pal and this time I’ve decided not to count calories. My way of thinking is far too all/nothing for it, which is linked to why I stopped last time.


Week 1 seems to have been a success, but the part I’m struggling with so far is worrying that I am eating too much, since I’m not counting calories. Danger being that I will then cut food down, and give in because I’m hungry all the time... just wondered if anyone had any suggestions for how I can check that I’m eating the right sorts of things / amounts? I guess the scales will tell me in the end, and I’ve been keeping a food diary on my phone in case that helps. I have searched for sample meal plans online but they generally include things I wouldn’t eat.


Anyway, anyone else trying to lose weight?
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General discussion / Re: Finally in the right headspace...
« Last post by Lucy on Today at 01:31:42 PM »
Welcome back. I’ve just started trying to get some weight off and a1c down myself, as I lost then regained 4 stone a couple of years ago. That time I noticed with the weight loss not a gradual reduction of bg but more that when I went past certain weight points my bg dropped down a little step. I had to lose quite a bit before the first step. So don’t be disheartened by the readings you’re seeing, it will come with time.

Are you still doing the brass band or bell ringing or whatever music you’d got into? (Hopefully I have the right person...)
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Insulin pumping / Re: Omnipod is GO!
« Last post by nytquill17 on Today at 01:01:45 PM »
Nah, I think I would have just as much trouble, if not more, with a tubed pump! Sleeping on the pod itself isn't a problem, it's the pressure on the cannula/tugging on the adhesive, which I reckon would still happen with a tubed pump. Although probably to a lesser degree because the site doesn't protrude as much. Buuuut then you have the tubing and constantly having to find a place for the pump itself, at night and during the day. It would be an adjustment either way, is what I'm getting at. And I feel like I mind the annoyance of the pods much less than I would mind the annoyance of a tubed pump in the long run. Though I can't properly say of course, since I've not tried both!


P.S. Have just written the CDE and told her an abridged version of what I wrote here. They did know I was going away over the weekend so hopefully their expectations were low to begin with haha.
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Insulin pumping / Re: Omnipod is GO!
« Last post by Pattidevans on Today at 12:55:00 PM »
You will!  I know it’s easy to fear what the HCPs are going to say, but don’t, because they are there to help.  Talk to that CDE, ask for their help. Explain it was a holiday.   No one is well controlled ev ry minute of a holiday.


I’ve had a devil of a time this morning (which I’ll tell about in another thread).  At one point I thought the pump was broken and  I can tell you, sheer panic took over at the thought of actually having to do MDI, fir which I do have the wherewithal, but the thought terrorised me!


As to sleeping positions, perhaps you’d be better off with a tubed pump?  Mine just roams free in the bed, hardly ever lie on it by accident and don’t pull it out either.
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Insulin pumping / Re: Omnipod is GO!
« Last post by nytquill17 on Today at 12:19:05 PM »
Well, I had a fun weekend away for my birthday, but diabetes definitely rained on the parade in ways it wouldn't have done pre-pump (or if I was better with the pump). Woke up early most mornings feeling sick and gross from high BGs, and barely saw an in-range number all weekend. Now I was eating massive amounts of food so I take full responsibility for that - and I certainly wasn't expecting BGs to behave well over the weekend! But I wasn't expecting to feel so sick and so stressed all the time - about BGs being high, about BGs not coming down despite multiple corrections (including many syringe corrections), about running out of insulin in the pod, about being queried about my insulin use by my pharmacy...UGH!

By the end I was restricting what I ate so as not to use too much insulin, and doing syringe boluses in order to save the insulin in the pod for basals. It all kind of put a damper on the holiday, though I did still have fun.

Woke up an hour early this morning mega high (19+) AGAIN after only having eaten a handful of crackers between 2 p.m. and bedtime (but had had 2 breakfast sandwiches at McDonald's and a roast beef sandwich and fries at Arby's before 2 p.m.). No ketones to speak of, cannula still in. BG just spiked of its own accord as soon as the bolus for the crackers ran out. I don't know what I'm doing wrong or what I could do differently. I mean, obviously, stop eating as much and let things settle down. But if this pump thing is going to work, it HAS to be able to (*I* have to be able to) handle a holiday with some carb splurges. Right now I kind of hate that me being on the pod means a whole chain of people are basically scrutinizing my food choices - my clinic, because of uploading my data via diasend; the pharmacy, because of me needing to buy more insulin than usual if I eat more than usual; and my insurance, if I have to replace a pod early because I go through the whole reservoir before 72 hours is up.

And now I need to upload my data for the CDE which is also stressful (they're going to see my horrible no-good very bad weekend and go over it with a fine-toothed comb. AAGH!) and I'm supposed to be getting lab work done in the next day or two for an appointment with the endo who I frankly do not want to see right now. I may just put off the appointment, all she seems to do is tick boxes anyway and I am definitely not ticking any boxes right now!!

Have promised myself I will persevere until the end of my 3 month trial period (early Sept.) but I feel like if I'm not seeing SOME benefit to BG management that outweighs all the annoyances (finding a comfortable position to sleep in, dealing with the itching when the adhesive starts pulling - and did I mention that ALL of my 5 previous infusion sites are still clearly visible on my skin? Even after nearly 2 weeks, the first ones still haven't fully healed. It's not like I had a beach-ready body to begin with or anything but if I had been I would be pretty self-conscious about it - I look like I've been attacked by biting insects!) and the added stresses and anxieties about high BGs and getting enough supplies...well this may not be for me.

Still taking comfort in the fact that all of you who have transitioned to a pump have felt similarly and none of you have turned back, so probably I will get the hang of it too! :)
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General discussion / Re: Finally in the right headspace...
« Last post by nytquill17 on Today at 01:54:35 AM »
Hi Lisa!! It's good to see you again :)

The thing is, diabetes is a relentless slog. And it isn't always tops on our priority list - it's important, but it's not the sum total of who you are and the life you lead, you know? :) So it's always a balancing act, never automated or easy. The important thing isn't that you never go off track, it's that you keep checking in with yourself and course-correcting when you realize things have gone awry. So you're doing that, which is excellent!

I recently came across a great piece of advice from Adam Brown who writes on (T1) diabetes management and motivation: the problem with diabetes is that most of the motivations to "do the right thing" are very far in the future, and most of them are negative. E.g. I need to have in-range BGs today so that I don't develop complications years down the line. The trick is to find motivations that are personal, immediate, and POSITIVE. What will having in-range BGs do for you today? Those are a lot easier to care about! And it's often things like: I'll have more energy and a more even mood. I'll be more productive at work and a better person to my friends, family, and loved ones. It really helps me to think in concrete and immediate terms like that - then I feel like I'm doing my diabetes care for me and my loved ones, and not to please a doctor or because I "should".

Let us know how you get on! I do hope you can get hold of a Libre in the near future, too!
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